{"id":5172,"date":"2021-05-17T20:23:28","date_gmt":"2021-05-17T20:23:28","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5172"},"modified":"2024-02-09T14:24:21","modified_gmt":"2024-02-09T14:24:21","slug":"5172","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2021\/05\/17\/5172\/","title":{"rendered":"\u0418\u041d\u0414\u0418\u0412\u0418\u0414\u0423\u0410\u041b \u0421 \u041b\u0413\u041c\u0414: \u041c\u0430\u0440\u0438\u044f"},"content":{"rendered":"
\"Lgmd1b<\/span><\/div>

\u00a0<\/strong><\/p>\n

\u0418\u043c\u044f<\/strong>: \u041c\u0430\u0440\u0438\u044f \u0412\u043e\u0437\u0440\u0430\u0441\u0442<\/strong>: 29 \u043b\u0435\u0442<\/p>\n

\u0421\u0442\u0440\u0430\u043d\u0430<\/strong>: \u0421\u0428\u0410<\/p>\n

LGMD \u041f\u043e\u0434\u0442\u0438\u043f<\/strong>: LGMD 1B<\/p>\n

 <\/p>\n

\u0412 \u043a\u0430\u043a\u043e\u043c \u0432\u043e\u0437\u0440\u0430\u0441\u0442\u0435 \u0432\u0430\u043c \u0431\u044b\u043b \u043f\u043e\u0441\u0442\u0430\u0432\u043b\u0435\u043d \u0434\u0438\u0430\u0433\u043d\u043e\u0437<\/strong>:<\/p>\n

\u0412\u043d\u0430\u0447\u0430\u043b\u0435, \u0432 \u0432\u043e\u0437\u0440\u0430\u0441\u0442\u0435 \u0434\u0432\u0443\u0445 \u043b\u0435\u0442, \u043c\u043d\u0435 \u043f\u043e\u0441\u0442\u0430\u0432\u0438\u043b\u0438 \u0434\u0438\u0430\u0433\u043d\u043e\u0437 \u0421\u041c\u0410. \u0417\u0430\u0442\u0435\u043c \u0432 15 \u043b\u0435\u0442 \u043c\u043d\u0435 \u0431\u044b\u043b \u043f\u043e\u0441\u0442\u0430\u0432\u043b\u0435\u043d \u043f\u043e\u0432\u0442\u043e\u0440\u043d\u044b\u0439 \u0434\u0438\u0430\u0433\u043d\u043e\u0437 - \u043c\u044b\u0448\u0435\u0447\u043d\u0430\u044f \u0434\u0438\u0441\u0442\u0440\u043e\u0444\u0438\u044f \u043a\u043e\u043d\u0435\u0447\u043d\u043e\u0441\u0442\u0435\u0439.<\/p>\n

\u041a\u0430\u043a\u043e\u0432\u044b \u0431\u044b\u043b\u0438 \u0432\u0430\u0448\u0438 \u043f\u0435\u0440\u0432\u044b\u0435 \u0441\u0438\u043c\u043f\u0442\u043e\u043c\u044b<\/strong>:<\/p>\n

\u0420\u043e\u0434\u0438\u0442\u0435\u043b\u0438 \u0441\u043a\u0430\u0437\u0430\u043b\u0438, \u0447\u0442\u043e \u044f \u043d\u0435 \u0445\u043e\u0434\u0438\u043b\u0430 \u0434\u043e 17 \u043c\u0435\u0441\u044f\u0446\u0435\u0432. \u0412 \u043c\u043b\u0430\u0434\u0435\u043d\u0447\u0435\u0441\u0442\u0432\u0435 \u044f \u0445\u043e\u0434\u0438\u043b \u0441 \u043a\u043e\u0432\u044b\u043b\u044f\u043d\u0438\u0435\u043c \u0438 \u0438\u0441\u043f\u043e\u043b\u044c\u0437\u043e\u0432\u0430\u043b \u0440\u0443\u043a\u0438, \u0447\u0442\u043e\u0431\u044b \u043f\u043e\u0434\u043d\u044f\u0442\u044c\u0441\u044f \u0438\u0437 \u0441\u0438\u0434\u044f\u0447\u0435\u0433\u043e \u043f\u043e\u043b\u043e\u0436\u0435\u043d\u0438\u044f.<\/p>\n

\u0415\u0441\u0442\u044c \u043b\u0438 \u0443 \u0432\u0430\u0441 \u0434\u0440\u0443\u0433\u0438\u0435 \u0447\u043b\u0435\u043d\u044b \u0441\u0435\u043c\u044c\u0438, \u0441\u0442\u0440\u0430\u0434\u0430\u044e\u0449\u0438\u0435 LGMD:<\/strong><\/p>\n

\u041d\u0435\u0442, \u044f \u0435\u0434\u0438\u043d\u0441\u0442\u0432\u0435\u043d\u043d\u044b\u0439 \u0447\u0435\u043b\u043e\u0432\u0435\u043a \u0432 \u043c\u043e\u0435\u0439 \u0441\u0435\u043c\u044c\u0435 \u0441 LGMD.<\/p>\n

\u0427\u0442\u043e, \u043f\u043e \u0432\u0430\u0448\u0435\u043c\u0443 \u043c\u043d\u0435\u043d\u0438\u044e, \u044f\u0432\u043b\u044f\u0435\u0442\u0441\u044f \u043d\u0430\u0438\u0431\u043e\u043b\u044c\u0448\u0435\u0439 \u043f\u0440\u043e\u0431\u043b\u0435\u043c\u043e\u0439 \u0432 \u0436\u0438\u0437\u043d\u0438 \u0441 LGMD<\/strong>:<\/p>\n

\u041f\u0441\u0438\u0445\u0438\u0447\u0435\u0441\u043a\u0438: \u041f\u0440\u0435\u0434\u043f\u043e\u043b\u043e\u0436\u0435\u043d\u0438\u0435, \u0447\u0442\u043e \u043c\u044b \u043d\u0435 \u0436\u0438\u0432\u0435\u043c \u043d\u043e\u0440\u043c\u0430\u043b\u044c\u043d\u043e\u0439 \u0436\u0438\u0437\u043d\u044c\u044e, \u044f\u0432\u043b\u044f\u0435\u0442\u0441\u044f \u0434\u043b\u044f \u043c\u0435\u043d\u044f \u0441\u0430\u043c\u044b\u043c \u0431\u043e\u043b\u044c\u0448\u0438\u043c \u0432\u044b\u0437\u043e\u0432\u043e\u043c. \u0424\u0438\u0437\u0438\u0447\u0435\u0441\u043a\u0438: \u041d\u0430\u0443\u0447\u0438\u0442\u044c\u0441\u044f \u043f\u0440\u0438\u043d\u0438\u043c\u0430\u0442\u044c \u043f\u0440\u043e\u0433\u0440\u0435\u0441\u0441\u0438\u0440\u0443\u044e\u0449\u0443\u044e \u0441\u0438\u0442\u0443\u0430\u0446\u0438\u044e, \u043a\u043e\u0433\u0434\u0430 \u044f \u0437\u0430\u043c\u0435\u0447\u0430\u044e, \u0447\u0442\u043e \u0447\u0442\u043e-\u0442\u043e \u0441\u0442\u0430\u043b\u043e \u0441\u043b\u0430\u0431\u0435\u0435.<\/p>\n

\u041a\u0430\u043a\u043e\u0435 \u0432\u0430\u0448\u0435 \u0441\u0430\u043c\u043e\u0435 \u0431\u043e\u043b\u044c\u0448\u043e\u0435 \u0434\u043e\u0441\u0442\u0438\u0436\u0435\u043d\u0438\u0435<\/strong>:<\/p>\n

\u041f\u043e\u043b\u0443\u0447\u0435\u043d\u0438\u0435 \u043f\u0440\u0430\u0432 \u0438 \u0441\u043e\u0431\u0441\u0442\u0432\u0435\u043d\u043d\u043e\u0433\u043e \u0430\u0432\u0442\u043e\u043c\u043e\u0431\u0438\u043b\u044f. \u042d\u0442\u043e\u0442 \u043f\u0440\u043e\u0446\u0435\u0441\u0441 \u0437\u0430\u043d\u044f\u043b \u0434\u043e\u043b\u0433\u0438\u0445 \u0434\u0432\u0430 \u0433\u043e\u0434\u0430. \u041a\u0430\u0437\u0430\u043b\u043e\u0441\u044c, \u0447\u0442\u043e \u043a\u043e\u043d\u0446\u0430 \u044d\u0442\u043e\u043c\u0443 \u043d\u0435 \u0432\u0438\u0434\u043d\u043e. \u041d\u0430\u043b\u0438\u0447\u0438\u0435 \u043c\u0430\u0448\u0438\u043d\u044b \u0438\u0437\u043c\u0435\u043d\u0438\u043b\u043e \u043c\u043e\u044e \u0436\u0438\u0437\u043d\u044c \u0438 \u043f\u043e\u043c\u043e\u0433\u0430\u0435\u0442 \u043c\u043d\u0435 \u043e\u0441\u0442\u0430\u0432\u0430\u0442\u044c\u0441\u044f \u043d\u0435\u0437\u0430\u0432\u0438\u0441\u0438\u043c\u043e\u0439, \u043d\u0430\u0441\u043a\u043e\u043b\u044c\u043a\u043e \u044d\u0442\u043e \u0432\u043e\u0437\u043c\u043e\u0436\u043d\u043e.<\/p>\n

\u041a\u0430\u043a LGMD \u043f\u043e\u0432\u043b\u0438\u044f\u043b \u043d\u0430 \u0442\u043e, \u0447\u0442\u043e \u0432\u044b \u0441\u0442\u0430\u043b\u0438 \u0442\u0435\u043c \u0447\u0435\u043b\u043e\u0432\u0435\u043a\u043e\u043c, \u043a\u043e\u0442\u043e\u0440\u044b\u043c \u044f\u0432\u043b\u044f\u0435\u0442\u0435\u0441\u044c \u0441\u0435\u0433\u043e\u0434\u043d\u044f:<\/strong><\/p>\n

\u042d\u0442\u043e \u043e\u043f\u0440\u0435\u0434\u0435\u043b\u0435\u043d\u043d\u043e \u0441\u0444\u043e\u0440\u043c\u0438\u0440\u043e\u0432\u0430\u043b\u043e \u043c\u043e\u044e \u043b\u0438\u0447\u043d\u043e\u0441\u0442\u044c \u0438 \u0442\u043e, \u043a\u0435\u043c \u044f \u044f\u0432\u043b\u044f\u044e\u0441\u044c. \u041c\u043e\u0439 \u044f\u0440\u043e\u0441\u0442\u043d\u044b\u0439 \u0445\u0430\u0440\u0430\u043a\u0442\u0435\u0440 \u043f\u0440\u043e\u0438\u0441\u0442\u0435\u043a\u0430\u0435\u0442 \u0438\u0437 \u043c\u043e\u0435\u0439 \u0440\u0435\u0448\u0438\u043c\u043e\u0441\u0442\u0438 \u043f\u043e\u043a\u0430\u0437\u0430\u0442\u044c \u0434\u0440\u0443\u0433\u0438\u043c, \u0447\u0442\u043e \u043c\u044b \u043c\u043e\u0436\u0435\u043c. \u041c\u043e\u044f \u0441\u0442\u0440\u0430\u0441\u0442\u043d\u0430\u044f \u043d\u0430\u0442\u0443\u0440\u0430 \u043f\u0440\u043e\u0438\u0441\u0442\u0435\u043a\u0430\u0435\u0442 \u0438\u0437 \u0442\u043e\u0433\u043e, \u0447\u0442\u043e \u044f \u0431\u043e\u0440\u043e\u043b\u0430\u0441\u044c \u0441 \u0441\u0430\u043c\u043e\u0433\u043e \u043f\u0435\u0440\u0432\u043e\u0433\u043e \u0434\u043d\u044f, \u0434\u0430\u0436\u0435 \u0432 \u0434\u0435\u0442\u0441\u0442\u0432\u0435. \u0412\u0437\u0440\u043e\u0441\u043b\u0435\u043d\u0438\u0435 \u0441 \u0438\u043d\u0432\u0430\u043b\u0438\u0434\u043d\u043e\u0441\u0442\u044c\u044e \u0441\u0444\u043e\u0440\u043c\u0438\u0440\u043e\u0432\u0430\u043b\u043e \u043c\u0435\u043d\u044f \u0442\u0430\u043a, \u043a\u0430\u043a \u044f \u0438 \u043f\u0440\u0435\u0434\u0441\u0442\u0430\u0432\u0438\u0442\u044c \u0441\u0435\u0431\u0435 \u043d\u0435 \u043c\u043e\u0433\u0443. \u042f \u0437\u043d\u0430\u044e, \u0447\u0442\u043e \u044d\u0442\u0430 \u0431\u043e\u043b\u0435\u0437\u043d\u044c \u0441\u0434\u0435\u043b\u0430\u043b\u0430 \u0438\u0437 \u043c\u0435\u043d\u044f \u0442\u0443 \u041c\u0430\u0440\u0438\u044e, \u043a\u043e\u0442\u043e\u0440\u0443\u044e \u0432\u0441\u0435 \u0437\u043d\u0430\u044e\u0442.<\/p>\n

\u0427\u0442\u043e \u0432\u044b \u0445\u043e\u0442\u0438\u0442\u0435, \u0447\u0442\u043e\u0431\u044b \u043c\u0438\u0440 \u0443\u0437\u043d\u0430\u043b \u043e LGMD<\/strong>:<\/p>\n

\u042f \u0445\u043e\u0447\u0443, \u0447\u0442\u043e\u0431\u044b \u043b\u044e\u0434\u0438 \u0437\u043d\u0430\u043b\u0438, \u0447\u0442\u043e \u044d\u0442\u043e \u0440\u0435\u0434\u043a\u043e\u0435 \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0435, \u043f\u043e\u044d\u0442\u043e\u043c\u0443 \u043d\u0435\u0442 \u043d\u0438 \u043b\u0435\u0447\u0435\u043d\u0438\u044f, \u043d\u0438 \u0441\u043f\u043e\u0441\u043e\u0431\u0430 \u0432\u044b\u043b\u0435\u0447\u0438\u0442\u044c\u0441\u044f. \u0410 \u0435\u0449\u0435 \u044f \u0445\u043e\u0447\u0443 \u043a\u0440\u0438\u0447\u0430\u0442\u044c \u0441 \u0433\u043e\u0440\u043d\u044b\u0445 \u0432\u0435\u0440\u0448\u0438\u043d, \u0447\u0442\u043e \u044d\u0442\u043e \u043d\u0435 \u0420\u0421!<\/p>\n

\u0415\u0441\u043b\u0438 \u0431\u044b \u0432\u0430\u0448 LGMD \u043c\u043e\u0436\u043d\u043e \u0431\u044b\u043b\u043e \"\u0432\u044b\u043b\u0435\u0447\u0438\u0442\u044c\" \u0437\u0430\u0432\u0442\u0440\u0430, \u0447\u0442\u043e \u0431\u044b \u0432\u044b \u0445\u043e\u0442\u0435\u043b\u0438 \u0441\u0434\u0435\u043b\u0430\u0442\u044c \u0432 \u043f\u0435\u0440\u0432\u0443\u044e \u043e\u0447\u0435\u0440\u0435\u0434\u044c<\/strong>:<\/p>\n

\u042f \u0431\u044b \u043f\u043e\u0431\u0435\u0436\u0430\u043b\u0430 \u0437\u0430 \u0441\u0432\u043e\u0438\u043c\u0438 \u043f\u044f\u0442\u044c\u044e \u043f\u043b\u0435\u043c\u044f\u043d\u043d\u0438\u0446\u0430\u043c\u0438 \u0438 \u043f\u043b\u0435\u043c\u044f\u043d\u043d\u0438\u043a\u0430\u043c\u0438. \u042f \u0431\u044b \u043f\u043e\u0448\u043b\u0430 \u0432 \u0442\u043e\u0440\u0433\u043e\u0432\u044b\u0439 \u0446\u0435\u043d\u0442\u0440 \u0438 \u0432\u044b\u0431\u0440\u0430\u043b\u0430 \u0441\u0435\u0431\u0435 \u043d\u0430\u0440\u044f\u0434, \u043d\u0435 \u0431\u0435\u0441\u043f\u043e\u043a\u043e\u044f\u0441\u044c \u043e \u0442\u043e\u043c, \u0447\u0442\u043e \u044f \u0445\u0443\u0434\u0430\u044f \u0438 \u043d\u0438 \u0432\u043e \u0447\u0442\u043e \u043d\u0435 \u0432\u043b\u0435\u0437\u0443. \u0410 \u043f\u043e\u0442\u043e\u043c \u044f \u0431\u044b, \u043d\u0430\u0432\u0435\u0440\u043d\u043e\u0435, \u043f\u043e\u0448\u043b\u0430 \u0438\u0433\u0440\u0430\u0442\u044c \u0432 \u043f\u0443\u0442\u0447. \u042d\u0442\u043e \u0442\u043e, \u043f\u043e \u0447\u0435\u043c\u0443 \u044f \u0441\u043a\u0443\u0447\u0430\u044e \u0438 \u0447\u0442\u043e \u0431\u044b\u043b\u043e \u043e\u0433\u0440\u043e\u043c\u043d\u043e\u0439 \u0447\u0430\u0441\u0442\u044c\u044e \u043c\u043e\u0435\u0433\u043e \u0434\u0435\u0442\u0441\u0442\u0432\u0430. \u0412 \u0434\u0435\u0442\u0441\u0442\u0432\u0435 \u043f\u0430\u043f\u0430 \u0431\u0440\u0430\u043b \u043d\u0430\u0441 \u0441 \u0441\u0435\u0441\u0442\u0440\u0430\u043c\u0438 \u043f\u043e\u0447\u0442\u0438 \u043a\u0430\u0436\u0434\u0443\u044e \u043d\u0435\u0434\u0435\u043b\u044e, \u0438 \u044d\u0442\u043e \u0441\u0442\u0430\u043b\u043e \u043e\u0434\u043d\u0438\u043c \u0438\u0437 \u043c\u043e\u0438\u0445 \u043b\u044e\u0431\u0438\u043c\u044b\u0445 \u0440\u0430\u0437\u0432\u043b\u0435\u0447\u0435\u043d\u0438\u0439.<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5173,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,44],"tags":[],"class_list":["post-5172","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd1b"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD:\u00a0 Maria - 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