{"id":5372,"date":"2021-07-11T21:37:18","date_gmt":"2021-07-11T21:37:18","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5372"},"modified":"2024-02-09T14:24:04","modified_gmt":"2024-02-09T14:24:04","slug":"individual-with-lgmd-lena","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2021\/07\/11\/individual-with-lgmd-lena\/","title":{"rendered":"\u0418\u041d\u0414\u0418\u0412\u0418\u0414\u0423\u0410\u041b \u0421 \u041b\u0413\u041c\u0414: \u041b\u0435\u043d\u0430"},"content":{"rendered":"<div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1456px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:0px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-1\"><p><img decoding=\"async\" class=\"lazyload size-medium wp-image-5373 alignright\" src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/LGMD2J-Lena-300x169.png\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/LGMD2J-Lena-300x169.png\" alt=\"Lgmd2j Lena\" width=\"300\" height=\"169\" srcset=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-srcset=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/LGMD2J-Lena-200x113.png 200w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/LGMD2J-Lena-300x169.png 300w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/LGMD2J-Lena-400x225.png 400w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/LGMD2J-Lena-600x338.png 600w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/LGMD2J-Lena-768x432.png 768w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/LGMD2J-Lena-800x450.png 800w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/LGMD2J-Lena-1024x576.png 1024w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/LGMD2J-Lena-1200x675.png 1200w, https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/07\/LGMD2J-Lena.png 1280w\" data-sizes=\"auto\" data-orig-sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/p>\n<p><strong>\u0418\u043c\u044f<\/strong>:         \u041b\u0435\u043d\u0430\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <strong>\u0412\u043e\u0437\u0440\u0430\u0441\u0442<\/strong>: \u00a044<\/p>\n<p><strong>\u0421\u0442\u0440\u0430\u043d\u0430<\/strong>:  \u0421\u0428\u0410<\/p>\n<p><strong>LGMD \u041f\u043e\u0434\u0442\u0438\u043f<\/strong>:  \u041c\u044b\u0448\u0435\u0447\u043d\u0430\u044f \u0434\u0438\u0441\u0442\u0440\u043e\u0444\u0438\u044f \u0442\u0438\u043f\u0430 2J\/R10, \u0441\u0432\u044f\u0437\u0430\u043d\u043d\u0430\u044f \u0441 \u0442\u0438\u0442\u0430\u043d\u043e\u043c<\/p>\n<p><strong>\u0412 \u043a\u0430\u043a\u043e\u043c \u0432\u043e\u0437\u0440\u0430\u0441\u0442\u0435 \u0432\u0430\u043c \u0431\u044b\u043b \u043f\u043e\u0441\u0442\u0430\u0432\u043b\u0435\u043d \u0434\u0438\u0430\u0433\u043d\u043e\u0437<\/strong>?<\/p>\n<p>\u0414\u0438\u0430\u0433\u043d\u043e\u0437 \u043c\u043d\u0435 \u043f\u043e\u0441\u0442\u0430\u0432\u0438\u043b\u0438 \u0432 42 \u0433\u043e\u0434\u0430.<\/p>\n<p><strong>\u041a\u0430\u043a\u043e\u0432\u044b \u0431\u044b\u043b\u0438 \u0432\u0430\u0448\u0438 \u043f\u0435\u0440\u0432\u044b\u0435 \u0441\u0438\u043c\u043f\u0442\u043e\u043c\u044b?<\/strong><\/p>\n<p>\u0420\u0430\u0431\u043e\u0442\u0430\u044f \u0432\u043e\u0441\u043f\u0438\u0442\u0430\u0442\u0435\u043b\u0435\u043c \u0432 \u0434\u043e\u0448\u043a\u043e\u043b\u044c\u043d\u043e\u043c \u0443\u0447\u0440\u0435\u0436\u0434\u0435\u043d\u0438\u0438, \u044f \u0437\u0430\u043c\u0435\u0442\u0438\u043b\u0430, \u0447\u0442\u043e \u043c\u043d\u0435 \u0441\u0442\u0430\u043b\u043e \u043e\u0447\u0435\u043d\u044c \u0442\u0440\u0443\u0434\u043d\u043e \u043f\u043e\u0434\u043d\u0438\u043c\u0430\u0442\u044c\u0441\u044f \u0441 \u043f\u043e\u043b\u0430. \u0417\u0430\u0442\u0435\u043c \u044f \u043d\u0430\u0447\u0430\u043b\u0430 \u043f\u0430\u0434\u0430\u0442\u044c \u0438 \u0442\u0435\u0440\u044f\u0442\u044c \u0440\u0430\u0432\u043d\u043e\u0432\u0435\u0441\u0438\u0435.<\/p>\n<p><strong>\u0415\u0441\u0442\u044c \u043b\u0438 \u0443 \u0432\u0430\u0441 \u0434\u0440\u0443\u0433\u0438\u0435 \u0447\u043b\u0435\u043d\u044b \u0441\u0435\u043c\u044c\u0438, \u0441\u0442\u0440\u0430\u0434\u0430\u044e\u0449\u0438\u0435 LGMD? <\/strong><\/p>\n<p>\u0423 \u043d\u0430\u0441 \u0441 \u0441\u0435\u0441\u0442\u0440\u043e\u0439 \u0434\u0438\u0430\u0433\u043d\u043e\u0441\u0442\u0438\u0440\u043e\u0432\u0430\u043b\u0438 LGMD \u043f\u043e\u0434\u0442\u0438\u043f\u0430 2J, \u043c\u044b \u0442\u0430\u043a\u0436\u0435 \u0434\u0443\u043c\u0430\u0435\u043c, \u0447\u0442\u043e \u043e\u043d \u043c\u043e\u0433 \u0431\u044b\u0442\u044c \u0443 \u043d\u0430\u0448\u0435\u0433\u043e \u043e\u0442\u0446\u0430 \u0438 \u0432\u0441\u0435\u0445 \u043d\u0430\u0448\u0438\u0445 \u0434\u044f\u0434\u0435\u0439. (\u0412\u0441\u0435 \u043e\u043d\u0438 \u0443\u043c\u0435\u0440\u043b\u0438, \u0438 \u0434\u0438\u0430\u0433\u043d\u043e\u0437 \u0438\u043c \u043d\u0435 \u0441\u0442\u0430\u0432\u0438\u043b\u0438).<\/p>\n<p><strong>\u0427\u0442\u043e, \u043f\u043e \u0432\u0430\u0448\u0435\u043c\u0443 \u043c\u043d\u0435\u043d\u0438\u044e, \u044f\u0432\u043b\u044f\u0435\u0442\u0441\u044f \u043d\u0430\u0438\u0431\u043e\u043b\u044c\u0448\u0435\u0439 \u043f\u0440\u043e\u0431\u043b\u0435\u043c\u043e\u0439 \u0432 \u0436\u0438\u0437\u043d\u0438 \u0441 LGMD<\/strong>?<\/p>\n<p>\u041d\u0435\u0432\u043e\u0437\u043c\u043e\u0436\u043d\u043e\u0441\u0442\u044c \u0437\u0430\u043d\u0438\u043c\u0430\u0442\u044c\u0441\u044f \u0432\u0441\u0435\u043c\u0438 \u0432\u0438\u0434\u0430\u043c\u0438 \u0444\u0438\u0437\u0438\u0447\u0435\u0441\u043a\u043e\u0439 \u0430\u043a\u0442\u0438\u0432\u043d\u043e\u0441\u0442\u0438, \u043a\u043e\u0442\u043e\u0440\u044b\u043c\u0438 \u044f \u0445\u043e\u0447\u0443 \u0437\u0430\u043d\u0438\u043c\u0430\u0442\u044c\u0441\u044f. \u041d\u0435\u0443\u0432\u0435\u0440\u0435\u043d\u043d\u043e\u0441\u0442\u044c \u0432 \u0431\u0443\u0434\u0443\u0449\u0435\u043c \u0438 \u0432 \u0442\u043e\u043c, \u0447\u0442\u043e \u0443 \u043c\u043e\u0438\u0445 \u0434\u0435\u0442\u0435\u0439 \u0442\u043e\u0436\u0435 \u0440\u0430\u0437\u043e\u0432\u044c\u0435\u0442\u0441\u044f LGMD. \u0415\u0449\u0435 \u043e\u0434\u043d\u0430 \u043f\u0440\u043e\u0431\u043b\u0435\u043c\u0430, \u0441 \u043a\u043e\u0442\u043e\u0440\u043e\u0439 \u044f \u0441\u0442\u0430\u043b\u043a\u0438\u0432\u0430\u044e\u0441\u044c, - \u044d\u0442\u043e \u044d\u043c\u043e\u0446\u0438\u043e\u043d\u0430\u043b\u044c\u043d\u0430\u044f \u0430\u0434\u0430\u043f\u0442\u0430\u0446\u0438\u044f \u043a \u043f\u043e\u0441\u0442\u0435\u043f\u0435\u043d\u043d\u043e\u043c\u0443 \u043e\u0441\u043b\u0430\u0431\u043b\u0435\u043d\u0438\u044e \u043c\u043e\u0438\u0445 \u043d\u043e\u0433 \u0438 \u043a\u043e\u043d\u0435\u0447\u043d\u043e\u0441\u0442\u0435\u0439.<\/p>\n<p><strong>\u041a\u0430\u043a\u043e\u0435 \u0432\u0430\u0448\u0435 \u0441\u0430\u043c\u043e\u0435 \u0431\u043e\u043b\u044c\u0448\u043e\u0435 \u0434\u043e\u0441\u0442\u0438\u0436\u0435\u043d\u0438\u0435? <\/strong><\/p>\n<p>\u042f \u0433\u043e\u0440\u0436\u0443\u0441\u044c \u0442\u0435\u043c, \u0447\u0442\u043e \u044f\u0432\u043b\u044f\u044e\u0441\u044c \u043c\u0430\u0442\u0435\u0440\u044c\u044e \u0438 \u0436\u0435\u043d\u043e\u0439. \u042f \u0442\u0430\u043a\u0436\u0435 \u0433\u043e\u0440\u0436\u0443\u0441\u044c \u0442\u0435\u043c, \u0447\u0442\u043e \u0430\u043a\u0442\u0438\u0432\u043d\u043e \u0443\u0447\u0430\u0441\u0442\u0432\u0443\u044e \u0432 \u043e\u0431\u0449\u0435\u0441\u0442\u0432\u0435\u043d\u043d\u043e\u0439 \u0433\u0440\u0443\u043f\u043f\u0435, \u0443\u0447\u0430\u0441\u0442\u0432\u0443\u044e \u0432 \u0430\u043a\u0446\u0438\u0438 \"\u0420\u043e\u043a \u0413\u043e\u043b\u043e\u0441\" \u0438 \u043d\u0430\u0443\u0447\u0438\u043b\u0430\u0441\u044c \u0438\u0441\u043f\u043e\u043b\u044c\u0437\u043e\u0432\u0430\u0442\u044c \u0441\u043e\u0446\u0438\u0430\u043b\u044c\u043d\u044b\u0435 \u0441\u0435\u0442\u0438, \u0447\u0442\u043e\u0431\u044b \u0437\u043d\u0430\u043a\u043e\u043c\u0438\u0442\u044c\u0441\u044f \u0441 \u043b\u044e\u0434\u044c\u043c\u0438 \u043f\u043e \u0432\u0441\u0435\u043c\u0443 \u043c\u0438\u0440\u0443.<\/p>\n<p><strong>\u041a\u0430\u043a LGMD \u043f\u043e\u0432\u043b\u0438\u044f\u043b \u043d\u0430 \u0442\u043e, \u0447\u0442\u043e \u0432\u044b \u0441\u0442\u0430\u043b\u0438 \u0442\u0435\u043c \u0447\u0435\u043b\u043e\u0432\u0435\u043a\u043e\u043c, \u043a\u043e\u0442\u043e\u0440\u044b\u043c \u044f\u0432\u043b\u044f\u0435\u0442\u0435\u0441\u044c \u0441\u0435\u0433\u043e\u0434\u043d\u044f? <\/strong><\/p>\n<p>\u042f \u0431\u043e\u043b\u044c\u0448\u0435 \u0432\u044b\u0441\u0442\u0443\u043f\u0430\u044e \u0432 \u0437\u0430\u0449\u0438\u0442\u0443 \u0441\u0432\u043e\u0435\u0433\u043e \u0437\u0434\u043e\u0440\u043e\u0432\u044c\u044f. \u0423 \u043c\u0435\u043d\u044f \u043f\u043e\u044f\u0432\u0438\u043b\u043e\u0441\u044c \u0431\u043e\u043b\u044c\u0448\u0435 \u0432\u043e\u0437\u043c\u043e\u0436\u043d\u043e\u0441\u0442\u0435\u0439 \u0437\u0430\u0434\u0430\u0432\u0430\u0442\u044c \u0432\u043e\u043f\u0440\u043e\u0441\u044b \u0438 \u043f\u0440\u0435\u0434\u043f\u0440\u0438\u043d\u0438\u043c\u0430\u0442\u044c \u0434\u0435\u0439\u0441\u0442\u0432\u0438\u044f, \u043a\u043e\u0442\u043e\u0440\u044b\u0435 \u043f\u043e\u043c\u043e\u0433\u0430\u044e\u0442 \u043c\u043d\u0435 \u0438 \u0434\u0440\u0443\u0433\u0438\u043c \u043b\u044e\u0434\u044f\u043c, \u043a\u043e\u0442\u043e\u0440\u044b\u0445, \u0432\u043e\u0437\u043c\u043e\u0436\u043d\u043e, \u0432 \u043f\u0440\u043e\u0442\u0438\u0432\u043d\u043e\u043c \u0441\u043b\u0443\u0447\u0430\u0435 \u0438\u0433\u043d\u043e\u0440\u0438\u0440\u043e\u0432\u0430\u043b\u0438 \u0431\u044b \u0438\u043b\u0438 \u043d\u0435 \u0437\u0430\u043c\u0435\u0447\u0430\u043b\u0438.<\/p>\n<p><strong>\u0427\u0442\u043e \u0432\u044b \u0445\u043e\u0442\u0438\u0442\u0435, \u0447\u0442\u043e\u0431\u044b \u043c\u0438\u0440 \u0443\u0437\u043d\u0430\u043b \u043e LGMD<\/strong>?<\/p>\n<p>\u0412\u044b \u043f\u043e-\u043f\u0440\u0435\u0436\u043d\u0435\u043c\u0443 \u043c\u043e\u0436\u0435\u0442\u0435 \u043b\u044e\u0431\u0438\u0442\u044c, \u0441\u043c\u0435\u044f\u0442\u044c\u0441\u044f \u0438 \u0436\u0438\u0442\u044c \u043f\u043e\u043b\u043d\u043e\u0446\u0435\u043d\u043d\u043e\u0439 \u0436\u0438\u0437\u043d\u044c\u044e \u0441 LGMD. \u0424\u0438\u0437\u0438\u0447\u0435\u0441\u043a\u0438\u0435 \u043e\u0433\u0440\u0430\u043d\u0438\u0447\u0435\u043d\u0438\u044f \u043d\u0430\u0448\u0435\u0433\u043e \u0442\u0435\u043b\u0430 \u043d\u0435 \u043c\u0435\u0448\u0430\u044e\u0442 \u043d\u0430\u043c \u043f\u0440\u043e\u0434\u043e\u043b\u0436\u0430\u0442\u044c \u0443\u0447\u0438\u0442\u044c\u0441\u044f \u0438 \u043f\u043e\u0437\u043d\u0430\u0432\u0430\u0442\u044c \u043c\u0438\u0440.<\/p>\n<p><strong>\u0415\u0441\u043b\u0438 \u0431\u044b \u0432\u0430\u0448 LGMD \u043c\u043e\u0436\u043d\u043e \u0431\u044b\u043b\u043e \"\u0432\u044b\u043b\u0435\u0447\u0438\u0442\u044c\" \u0437\u0430\u0432\u0442\u0440\u0430, \u0447\u0442\u043e \u0431\u044b \u0432\u044b \u0445\u043e\u0442\u0435\u043b\u0438 \u0441\u0434\u0435\u043b\u0430\u0442\u044c \u0432 \u043f\u0435\u0440\u0432\u0443\u044e \u043e\u0447\u0435\u0440\u0435\u0434\u044c<\/strong>?<\/p>\n<p>\u0415\u0441\u043b\u0438 \u0431\u044b \u044f \u043c\u043e\u0433 \u0432\u044b\u043b\u0435\u0447\u0438\u0442\u044c\u0441\u044f \u0437\u0430\u0432\u0442\u0440\u0430, \u044f \u0431\u044b \u043f\u043e\u0435\u0445\u0430\u043b \u043d\u0430 \u043f\u043b\u044f\u0436 \u0438 \u043f\u043e\u0448\u0435\u0432\u0435\u043b\u0438\u043b \u043f\u0430\u043b\u044c\u0446\u0430\u043c\u0438 \u043d\u043e\u0433 \u0432 \u043e\u043a\u0435\u0430\u043d\u0435!!!<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5373,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,66],"tags":[68,78],"class_list":["post-5372","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2j","tag-lgmd2j-titinopathy","tag-lgmd2j-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>INDIVIDUAL WITH LGMD: Lena - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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