{"id":730,"date":"2015-05-28T09:14:03","date_gmt":"2015-05-28T14:14:03","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=730"},"modified":"2015-05-28T09:14:03","modified_gmt":"2015-05-28T14:14:03","slug":"tarun","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/05\/28\/tarun\/","title":{"rendered":"INDIVIDUAL WITH LGMD: Tarun"},"content":{"rendered":"

5-28\/2015:<\/p>\n

Name:\u00a0 Tarun\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Age: 29 yrs. old\"Unknown<\/a><\/p>\n

COUNTY: India<\/p>\n

LGMD Sub-Type: Unknown<\/p>\n

\u00a0<\/strong><\/p>\n

AT WHAT ARE WERE YOU DIAGNOSED:<\/strong><\/p>\n

I diagnosed at the age 13.<\/p>\n

\u041a\u0410\u041a\u0418\u0415 \u0423 \u0412\u0410\u0421 \u0411\u042b\u041b\u0418 \u041f\u0415\u0420\u0412\u042b\u0415 \u0421\u0418\u041c\u041f\u0422\u041e\u041c\u042b<\/strong>:<\/p>\n

I first noticed muscle weakness at age 13. As a child, I had a tendency to walk on my toes. I would fall over when trying to run & also struggled standing up from a chair or the ground,<\/p>\n

DO YOU HAVE OTHER FAMILY MEMBERS WHO HAVE: <\/strong><\/p>\n

Yes, My elder sister too has LGMD<\/p>\n

\u0427\u0422\u041e, \u041f\u041e \u0412\u0410\u0428\u0415\u041c\u0423 \u041c\u041d\u0415\u041d\u0418\u042e, \u042f\u0412\u041b\u042f\u0415\u0422\u0421\u042f \u0421\u0410\u041c\u041e\u0419 \u0411\u041e\u041b\u042c\u0428\u041e\u0419 \u041f\u0420\u041e\u0411\u041b\u0415\u041c\u041e\u0419 \u0412 \u0416\u0418\u0417\u041d\u0418 \u0421 \u041b\u0413\u041c\u0414<\/strong>:<\/p>\n

The greatest challenge is finding the energy to do everything I want to do. \u00a0I want to be an independent person and I would \u00a0resist taking help as much as I can but I have to rely on family for simple daily things. Sometimes it is like having an itch that I can\u2019t scratch.<\/p>\n

\u041a\u0410\u041a\u041e\u0415 \u0412\u0410\u0428\u0415 \u0421\u0410\u041c\u041e\u0415 \u0411\u041e\u041b\u042c\u0428\u041e\u0415 \u0414\u041e\u0421\u0422\u0418\u0416\u0415\u041d\u0418\u0415<\/strong>:<\/p>\n

My greatest accomplishment is living a productive and active lifestyle despite the challenges that I encounter on a daily basis due to my LGMD diagnosis. I stay happy and keep smiling no matter what. I used to go to the office on my 3 wheel scooter, so many times I fell down from my scooter and had stitches on my face.\u00a0 People around me told don\u2019t stop driving if you fell we are here to pick you.<\/p>\n

\u041a\u0410\u041a \u0411\u041e\u041b\u0415\u0417\u041d\u042c \u041b\u0413\u041c \u041f\u041e\u0412\u041b\u0418\u042f\u041b\u0410 \u041d\u0410 \u0422\u041e, \u0427\u0422\u041e \u0412\u042b \u0421\u0422\u0410\u041b\u0418 \u0422\u0415\u041c \u0427\u0415\u041b\u041e\u0412\u0415\u041a\u041e\u041c, \u041a\u041e\u0422\u041e\u0420\u042b\u041c \u042f\u0412\u041b\u042f\u0415\u0422\u0415\u0421\u042c \u0421\u0415\u0413\u041e\u0414\u041d\u042f:<\/strong><\/p>\n

LGMD has helped me in a lot of ways; despite causing me to be physically weaker. It taught me how to keep a smile on my lips without caring about ups and downs of life. It showed how great parents could be. How loving, caring and dedicated a mother could be. How sacrificing and loving a father could be. How supportive siblings could be. \u00a0It has also taught me a lot about myself.\u00a0 I have made life-long friendships with so many special people who have disabilities.<\/p>\n

\u0427\u0422\u041e \u0412\u042b \u0425\u041e\u0422\u0418\u0422\u0415, \u0427\u0422\u041e\u0411\u042b \u041c\u0418\u0420 \u0423\u0417\u041d\u0410\u041b \u041e \u041b\u0413\u041c\u0414<\/strong>:<\/p>\n

I want people to know that the disease of LGMD exists. You may not even be able to tell that someone has LGMD. You may see another person and think they just walk differently or slower. Though my country is developing quickly but it lacks\u00a0 disable friendly zones in public places such as banks, ATMs, post office etc.\u00a0 Generally people think we are useless and sympathize but I would want this type of attitude to change.\u00a0 We have disability in our body not in our mind. \u00a0Most importantly, I want the world to know that LGMD is not a reason to believe that someone\u2019s life is any less valuable. God can and does use difficult experiences, trials, and suffering.<\/p>\n

\u00a0<\/strong>\u0415\u0421\u041b\u0418 \u0411\u042b \u0417\u0410\u0412\u0422\u0420\u0410 \u041c\u041e\u0416\u041d\u041e \u0411\u042b\u041b\u041e \u0411\u042b \"\u0412\u042b\u041b\u0415\u0427\u0418\u0422\u042c\" \u0412\u0410\u0428 \u041b\u0413\u041c\u0414, \u0427\u0422\u041e \u0411\u042b \u0412\u042b \u0421\u0414\u0415\u041b\u0410\u041b\u0418 \u0412 \u041f\u0415\u0420\u0412\u0423\u042e \u041e\u0427\u0415\u0420\u0415\u0414\u042c<\/strong>:<\/p>\n

First thing I would probably just drive car till the road ends J and run, sit down and then stand up and then sit down and stand up over and over because I could.<\/p>","protected":false},"excerpt":{"rendered":"

5-28\/2015: Name:\u00a0 Tarun\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Age: 29 yrs. old COUNTY: India LGMD […]<\/p>","protected":false},"author":1,"featured_media":731,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[30,33],"class_list":["post-730","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","tag-india","tag-unknown"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Tarun<\/title>\n<meta name=\"description\" content=\"Tarun who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares his experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2015\/05\/28\/tarun\/\" \/>\n<meta property=\"og:locale\" content=\"ru_RU\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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