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X-WR-CALNAME:LGMD Awareness Foundation
X-ORIGINAL-URL:https://www.lgmd-info.org/tr
X-WR-CALDESC:Events for LGMD Awareness Foundation
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DTSTART:20260101T000000
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DTSTART;VALUE=DATE:20260612
DTEND;VALUE=DATE:20260615
DTSTAMP:20260611T215141
CREATED:20260221T004206Z
LAST-MODIFIED:20260428T231116Z
UID:9368-1781222400-1781481599@www.lgmd-info.org
SUMMARY:University of Iowa Wellstone Dystroglycanopathies Patient and Family Conference
DESCRIPTION:This is a can’t-miss event to participate in the Natural History Study and learn the most recent updates on research and trials for LGMD2I/R9! \n\nRegistration for the 2026 Iowa Wellstone Dystroglycanopathy Patient & Family Conference is open!\n\n\nLocation: Hyatt Regency Hotel and Conference Center\, 300 E 9th St.\, Coralville\, IA 52241\n\n\nDate: June 12-13\, 2026\n\n\n\n\n\nJoin us for Wellstone study updates\, meet industry and advocacy representatives\, connect with friends\, listen to talks about Clinical Trials\, Advocacy\, Caregivers Session\, Exercise with Muscular Dystrophy\, Pilates for everyone\, and Q&A session with Wellstone staff. \n\n\n\n\n\nWrap up the day with Social Hour\, Dinner\, and Trivia!\n\n\n\n\n\nImportant Information for the 2026 conference:\n\n\n\n\nThe conference will focus on in-person attendance\, but we will also livestream the main sessions. \n\n\n\n\n\n\nOnly the large sessions will be live streamed (via Zoom)\, smaller breakout sessions will NOT be available virtually. \n\n\n\n\n\n\nThere will be a supervised play area for children during the conference sessions (9:00 AM-12:15 PM and 1:15 PM-4:15 PM). \n\n\n\n\n\n\nTravel reimbursement is available to participants who complete study exams. \n\n\n\n\n\n\nIndicate exam appointment preference in registration form – appointment times are first come\, first serve!\n\n\n\n\n\n\nStudy exams can also be scheduled at other times during the year by contacting Carrie Stephan (contact info below).\n\n\n\n\nLink to reserve rooms at the Hyatt Regency: \n\n\n\n\nMake sure to book the rooms under the group code: G-WELL\n\n\n\n\n\n\nHyatt King and Queen-Queen Rooms: $149/night\n\n\n\n\n\n\nThe deadline to reserve a room at the Hyatt is MAY 20th\, 2026!\n\n\n\n\n\n\n24-hour access to the fitness center\n\n\n\n\n\n\nParking is available in the adjacent Iowa River Landing North Parking Ramp: $10/day\n\n\n\n\n\n\nWatermill Kitchen + Bar is open 6:30am-9pm (restaurant) & 11am-12am (bar)\n\n\n\n\n\n\nThe Café coffee shop is open 6am – 11am\, Monday-Sunday\n\n\n\n\n\n\n\nOther Hotels near the area:\n\n\n\n\nComfort Inn & Suites- 214 9th St Coralville\, IA 52241 (0.7 miles away)\n\n\n\n\n\n\nHomewood Suites by Hilton Coralville- 921 E 2nd Ave\, Coralville\, IA 52241 (0.4 miles away)\n\n\n\n\n\n\nStaybridge Suites Iowa City- Coralville- 801 E 2nd Ave\, Coralville\, IA 52241 (0.4 miles away)\n\n\n\n\n\n\nSuper 8 by Wyndham- 611 1st Ave\, Coralville\, IA 52241 (0.7 miles away)\n\n\n\n\n\n\nHampton Inn Iowa City/Coralville- 1200 First avenue\, Coralville\, IA 52241 (0.8 miles away)\n\n\n\n\n\n\nQuality Inn Coralville- 209 9th St\, Coralville\, IA 52241 (0.6 miles away)\n\n\n\n\n\n\nSuper 7 Motel- 810 1st Ave\, Coralville\, IA 52241 (0.6 miles away)\n\n\n\n\n\n\nHeartland Inn- 87 2ns St\, Coralville\, IA 52241 (0.7 miles away)\n\n\n\n\n\n\n\nRegistration link:  https://uiowa.qualtrics.com/jfe/form/SV_6wXW0T1VdiclPWC \n\n\n\n\n\nQuestions?\n\n\nContact: Carrie Stephan  Carrie-stephan@uiowa.edu\n\n\n319-356-2673\n\n\n\nContact: Paige Sinksen Paige-sinksen@uiowa.edu\n\n\n\n\n 
URL:https://www.lgmd-info.org/tr/event/university-of-iowa-wellstone-dystroglycanopathies-patient-and-family-conference/
LOCATION:Hyatt Regency and Conference Center Coralville\, IA\, 300 E. 9th Street\, Coralville\, Iowa\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.lgmd-info.org/wp-content/uploads/2026/02/lgmd2i-conference-2026.jpg
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