Limb-girdle musk\u00fcler distrofi (LGMD) gibi ilerleyici bir n\u00f6rom\u00fcsk\u00fcler hastal\u0131kla ya\u015famak zaman zaman mali a\u00e7\u0131dan zorlay\u0131c\u0131 olabilir. Kamu ve \u00f6zel sigortan\u0131n genellikle kar\u015f\u0131lamad\u0131\u011f\u0131 engellilikle ilgili bir\u00e7ok maliyet vard\u0131r. Eri\u015filebilirlik i\u00e7in ev modifikasyonlar\u0131, uyarlanabilir yard\u0131mc\u0131lar, belirli t\u0131bbi malzemeler ve ekipmanlar, bireylerin kendi fonlar\u0131yla sat\u0131n almak zorunda kalabilecekleri \u00f6rneklerden sadece birka\u00e7\u0131d\u0131r. A\u015fa\u011f\u0131da, mali y\u00fck\u00fc dengelemeye yard\u0131mc\u0131 olmak i\u00e7in yard\u0131m sa\u011flayabilecek baz\u0131 kaynaklar bulunmaktad\u0131r.<\/p>\n<\/div><\/div><\/div><\/div><\/div>\n
Bu Musk\u00fcler Distrofi i\u00e7in Colorado Fonu<\/a> Musk\u00fcler distrofi veya n\u00f6romusk\u00fcler bir bozuklukla ya\u015fayan bireylerin ya\u015fam kalitesini art\u0131rmay\u0131 misyon edinmi\u015f, k\u00e2r amac\u0131 g\u00fctmeyen bir kurulu\u015ftur. Mali yard\u0131ma ihtiya\u00e7 duyan bireylere hibeler sunmaktad\u0131rlar.<\/p>\n Bu CLR \u0130yi Ya\u015fam Vakf\u0131<\/a> Musk\u00fcler distrofiden etkilenen ailelerin \"\u0130yi Hayat\u0131 Ya\u015famalar\u0131na\" yard\u0131mc\u0131 olmaya odaklanm\u0131\u015f, k\u00e2r amac\u0131 g\u00fctmeyen bir kurulu\u015ftur. Musk\u00fcler Distrofi Ailelerine yard\u0131mc\u0131 olmak i\u00e7in \u00fc\u00e7 program sunmaktad\u0131rlar:<\/p>\n Bu Kabusuma G\u00fcl\u00fcyorum<\/a> ihtiyac\u0131 olan ki\u015filere \u00fccretsiz adaptif ve t\u0131bbi ekipman sa\u011flayarak musk\u00fcler distrofi ile ya\u015fayan insanlar\u0131n ya\u015fam kalitesini art\u0131rmak i\u00e7in \u00e7al\u0131\u015fan kar amac\u0131 g\u00fctmeyen bir kurulu\u015ftur! M\u00fc\u015fterilerinin daha sa\u011fl\u0131kl\u0131, daha rahat ve daha \u00fcretken bir ya\u015fam s\u00fcrmelerine yard\u0131mc\u0131 olacak cihazlar ve teknolojiler sa\u011flamay\u0131 ama\u00e7lamaktad\u0131rlar.<\/p>\n Curb Free Vakf\u0131<\/a> tekerlekli sandalye kullan\u0131c\u0131lar\u0131na seyahat hibeleri sa\u011flayan 501(c)(3) kar amac\u0131 g\u00fctmeyen bir kurulu\u015ftur.<\/p>\n The Speak Foundation<\/a> is a non-profit organization that is run entirely by volunteers who live with a form of Muscular Dystrophy or who have a loved one with a disability. It is a charitable, faith-based organization that is dedicated to helping people of any age cope with and overcome the challenges of living with a <\/span>neuromuscular disease (NMD)<\/span>.<\/span><\/p>\n Bu Birle\u015fik Omurga Derne\u011fi<\/a> web sitelerinde engelli bireyler i\u00e7in bir dizi fon kayna\u011f\u0131 listelemektedir. T\u00fcm kurulu\u015flar\u0131n, hibe ba\u015fvuru sahibinin kar\u015f\u0131lamas\u0131 gereken belirli yeterlilik standartlar\u0131 vard\u0131r. \u00c7o\u011funun sa\u011flayaca\u011f\u0131 fon miktar\u0131nda s\u0131n\u0131rlamalar vard\u0131r. Mevcut hibeleri, yeterlilik kriterleri ve ba\u015fvuru s\u00fcreci hakk\u0131nda tam bilgi almak i\u00e7in do\u011frudan kurulu\u015fla ileti\u015fime ge\u00e7meniz \u00f6nerilir.<\/p>\n Nakit hibeler, indirimler, kullan\u0131lm\u0131\u015f ekipman ve ba\u011f\u0131\u015flanan i\u015f\u00e7ilik, ev veya ara\u00e7 tadilat b\u00fct\u00e7enizin daha fazlas\u0131n\u0131 kar\u015f\u0131lamas\u0131n\u0131 sa\u011flayacak se\u00e7eneklerdir. Bu kaynaklar yard\u0131mc\u0131 olabilir.<\/p>\n Engelli Bayi<\/b>: Online marketplace for used accessible vehicles and other equipment. Daha fazla bilgi edinin<\/a><\/p>\n Destekleyici Konut ve Ev De\u011fi\u015fikli\u011fi Ulusal Kaynak Merkezi<\/b>: Offers a state directory for finding local resources for home modification financial aid. Daha fazla bilgi edinin<\/a> Ulusal Mobilite Ekipman\u0131 Sat\u0131c\u0131lar\u0131 Birli\u011fi<\/b>: Offers information on funding and financing, a guide to mobility equipment options, and a dealer locator. Visit their web sitesi<\/a> daha fazla ayr\u0131nt\u0131 i\u00e7in.<\/p>\n Mobilite Kayna\u011f\u0131<\/b>: Lists state grants and other resources for financing accessible vehicles. Visit their web sitesi<\/a> detaylar i\u00e7in<\/p>\n Birlikte Yeniden \u0130n\u015fa<\/b>: Helps people build new homes or modify existing ones to make them more accessible. Daha fazla bilgi edinin <\/a><\/p>\n K\u0131rsal Konut Onar\u0131m Kredileri ve Hibeleri<\/b>: Funded by the US Department of Agriculture. Recipients must be 62 years or older and from low-income households, and funds may be used to modify existing residences. Daha fazla bilgi edinin<\/a><\/p>\n Devlet Hibeleri<\/b>: Find the Housing and Urban Development (HUD) office in your state to look for grants related to modifications. Go to their web sitesi<\/a><\/p>\n<\/div><\/div><\/div><\/div><\/div>\n Nadir Hastal\u0131klar i\u00e7in EveryLife Vakf\u0131 <\/span><\/a> 501(c)(3) numaral\u0131 kar amac\u0131 g\u00fctmeyen, partizan olmayan bir kurulu\u015f olup nadir hastal\u0131klar hasta toplulu\u011funu, hayat kurtaran te\u015fhis, tedavi ve iyile\u015ftirmelerin adil bir \u015fekilde geli\u015ftirilmesini ve bunlara eri\u015fimi ilerleten etkili, bilim odakl\u0131 mevzuat ve politikalar\u0131 savunmalar\u0131 i\u00e7in g\u00fc\u00e7lendirmeye adanm\u0131\u015ft\u0131r.<\/span><\/p>\n Study.com<\/a> engelli \u00f6\u011frenciler i\u00e7in kapsaml\u0131 bir \u00fcniversite ve kariyer rehberi geli\u015ftirerek \u00f6\u011frencileri \u00fcniversite e\u011fitimleriyle ilgili kritik bilgiler hakk\u0131nda bilgilendirmi\u015f ve ba\u015far\u0131ya ula\u015fmalar\u0131na yard\u0131mc\u0131 olmu\u015ftur. Bu rehber Engelli \u00d6\u011frenciler i\u00e7in \u00dcniversite ve Kariyer Rehberi <\/a>derinlemesine burs bilgilerinin yan\u0131 s\u0131ra a\u015fa\u011f\u0131dakiler de dahil olmak \u00fczere \u00e7e\u015fitli alanlarda ayr\u0131nt\u0131lar sunar:<\/p>\n\n
CRL \u0130yi Ya\u015fam Vakf\u0131<\/strong><\/h4><\/h1><\/div>
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Kabusuma G\u00fcl\u00fcyorum (LAMN)<\/strong><\/h4>\n<\/div>
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NMD United: ALEX LANDIS EMERGENCY FUND (ALEF)<\/strong><\/h4>\n<\/div>
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Curb Free Vakf\u0131<\/strong><\/h4>\n
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The Speak Foundation<\/strong><\/h4><\/h1><\/div>
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Birle\u015fik Omurga Derne\u011fi<\/strong><\/h4><\/h1><\/div>
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OTHER GRANTS AND REBATES:<\/h1><\/div>
\n<\/a><\/p>\nSCHOLARSHIPS AND EDUCATION RESOURCES:<\/h1><\/div>
Nadir Hastal\u0131klar i\u00e7in EveryLife Vakf\u0131<\/span><\/strong><\/h3><\/h1><\/div>
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\n<\/span><\/li>\n<\/ul>\n<\/div>Study.com<\/strong><\/h3><\/h1><\/div>
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School Toolkit: explaining living with a rare disease to young children<\/strong><\/h3><\/h1><\/div>