{"id":1325,"date":"2016-09-16T09:00:17","date_gmt":"2016-09-16T14:00:17","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1325"},"modified":"2016-09-16T09:00:17","modified_gmt":"2016-09-16T14:00:17","slug":"scott","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Scott"},"content":{"rendered":"

LGMD \"SPOT I\u015eI\u011eI R\u00d6PORTAJI\"<\/strong><\/p>\n

\u0130sim<\/strong>: Scott\u00a0 Ya\u015f<\/strong>: 48 ya\u015f\u0131nda\"LGMD2L<\/a><\/p>\n

\u00dclke<\/strong>: Birle\u015fik Devletler<\/p>\n

LGMD Alt Tipi<\/strong>: LGMD 2L - Anoktaminopati olarak da bilinir<\/p>\n

\u00a0<\/strong><\/p>\n

Ka\u00e7 ya\u015f\u0131nda te\u015fhis konuldu?<\/strong>:<\/p>\n

MD hastal\u0131\u011f\u0131m yakla\u015f\u0131k 15 y\u0131l \u00f6nce ba\u015flam\u0131\u015f olmas\u0131na ra\u011fmen, nihayet yak\u0131n zamanda ekstremite-girdle MD Tip 2L te\u015fhisi kondu. \u015eimdiye kadar doktorlar taraf\u0131ndan sadece LGMD oldu\u011fu konusunda bilgilendirildim.<\/p>\n

\u0130lk belirtileriniz neydi?<\/strong>:<\/p>\n

Merdiven \u00e7\u0131kmakta ve ko\u015fmakta zorlanmaya ba\u015flad\u0131m.<\/p>\n

LGMD hastas\u0131 olan ba\u015fka aile \u00fcyeleriniz var m\u0131? <\/strong><\/p>\n

Hay\u0131r<\/p>\n

LGMD ile ya\u015faman\u0131n en b\u00fcy\u00fck zorluklar\u0131n\u0131n ne oldu\u011funu d\u00fc\u015f\u00fcn\u00fcyorsunuz?<\/strong>:<\/p>\n

Ben her zaman ba\u011f\u0131ms\u0131z bir insan oldum. Tek \u00e7ocuk oldu\u011fum i\u00e7in her zaman kendi ba\u015f\u0131ma bir \u015feyler yapt\u0131m. Son zamanlarda aileme ve arkada\u015flar\u0131ma daha fazla g\u00fcvenmek zorunda kald\u0131m. Ayr\u0131ca, art\u0131k bir \u015feyleri yapmam\u0131n bu kadar uzun s\u00fcrmesi beni deli ediyor.<\/p>\n

En b\u00fcy\u00fck ba\u015far\u0131n\u0131z nedir?<\/strong>:<\/p>\n

\u00dcniversiteyi tamamlad\u0131\u011f\u0131m ve diplomam\u0131 ald\u0131\u011f\u0131m i\u00e7in gurur duyuyorum.<\/p>\n

Ayr\u0131ca, MD ile m\u00fccadele etti\u011fim i\u00e7in istifa etmek zorunda kalmadan \u00f6nce ayn\u0131 \u015firkette 30 y\u0131l \u00e7al\u0131\u015ft\u0131\u011f\u0131m i\u00e7in mutluyum.<\/p>\n

LGMD bug\u00fcn oldu\u011funuz ki\u015fi olman\u0131zda sizi nas\u0131l etkiledi? <\/strong><\/p>\n

H\u00e2l\u00e2 sab\u0131r geli\u015ftirmeye \u00e7al\u0131\u015f\u0131yorum. Bir zamanlar hafife ald\u0131\u011f\u0131m i\u015fleri ba\u015farman\u0131n gururunu ya\u015f\u0131yorum.<\/p>\n

D\u00fcnyan\u0131n LGMD hakk\u0131nda ne bilmesini istersiniz?<\/strong>:<\/p>\n

L\u00fctfen yerel ve ulusal MD hay\u0131r kurumlar\u0131n\u0131 ister maddi olarak ister g\u00f6n\u00fcll\u00fc olarak ihtiya\u00e7 sahiplerine zaman ay\u0131rarak desteklemeye devam edin. Bu b\u00fcy\u00fck bir takdirdir.<\/p>\n

LGMD hastal\u0131\u011f\u0131n\u0131z yar\u0131n \"tedavi edilebilseydi\", yapmak isteyece\u011finiz ilk \u015fey ne olurdu?<\/strong>:<\/p>\n

Yerel plajlar\u0131mdan birinde okyanus kenar\u0131nda yard\u0131ms\u0131z y\u00fcr\u00fcy\u00fcn.<\/p>\n

 <\/p>\n

Daha fazla \"LGMD Spotlight R\u00f6portaj\u0131\" okumak veya gelecek bir r\u00f6portajda yer almak i\u00e7in g\u00f6n\u00fcll\u00fc olmak i\u00e7in l\u00fctfen web sitemizi ziyaret edin: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Scott\u00a0 Age: 48 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1324,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,49],"tags":[48,50,16],"class_list":["post-1325","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2l","tag-anoctaminopathy","tag-lgmd2l","tag-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Scott - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Scott - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Scott\u00a0 Age: 48 yrs. old Country: […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2016-09-16T14:00:17+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Scott\",\"datePublished\":\"2016-09-16T14:00:17+00:00\",\"dateModified\":\"2016-09-16T14:00:17+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/\"},\"wordCount\":305,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"Anoctaminopathy\",\"LGMD2L\",\"United States\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2L\"],\"inLanguage\":\"tr-TR\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/\",\"url\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/\",\"name\":\"INDIVIDUAL WITH LGMD: Scott - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2016-09-16T14:00:17+00:00\",\"dateModified\":\"2016-09-16T14:00:17+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/#breadcrumb\"},\"inLanguage\":\"tr-TR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"tr-TR\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Scott\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"tr-TR\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"tr-TR\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"tr-TR\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD: Scott - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/","og_locale":"tr_TR","og_type":"article","og_title":"INDIVIDUAL WITH LGMD: Scott - LGMD Awareness Foundation","og_description":"LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Scott\u00a0 Age: 48 yrs. old Country: […]","og_url":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2016-09-16T14:00:17+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"2 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Scott","datePublished":"2016-09-16T14:00:17+00:00","dateModified":"2016-09-16T14:00:17+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/"},"wordCount":305,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/#primaryimage"},"thumbnailUrl":"","keywords":["Anoctaminopathy","LGMD2L","United States"],"articleSection":["Individuals with LGMD - Interviews","LGMD2L"],"inLanguage":"tr-TR"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/","url":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/","name":"INDIVIDUAL WITH LGMD: Scott - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/#primaryimage"},"thumbnailUrl":"","datePublished":"2016-09-16T14:00:17+00:00","dateModified":"2016-09-16T14:00:17+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/#breadcrumb"},"inLanguage":"tr-TR","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/"]}]},{"@type":"ImageObject","inLanguage":"tr-TR","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/ru\/individuals-with-lgmd-interviews\/2016\/09\/16\/scott\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Scott"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"tr-TR"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"tr-TR","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"tr-TR","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/posts\/1325","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/comments?post=1325"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/posts\/1325\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/media?parent=1325"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/categories?post=1325"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/tags?post=1325"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}