{"id":1385,"date":"2016-11-07T08:30:49","date_gmt":"2016-11-07T14:30:49","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1385"},"modified":"2016-11-07T08:30:49","modified_gmt":"2016-11-07T14:30:49","slug":"nitesh","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/","title":{"rendered":"INDIVIDUAL WITH LGMD: Nitesh"},"content":{"rendered":"

\"unknown-nitesh\"<\/a>LGMD \"SPOT I\u015eI\u011eI R\u00d6PORTAJI\"<\/strong><\/p>\n

\u0130sim<\/strong>:\u00a0 Nitesh \u00a0\u00a0Ya\u015f<\/strong>: \u00a0\u00a027 years old<\/p>\n

\u00dclke<\/strong>: Hindistan<\/p>\n

LGMD Alt Tipi<\/strong>: \u00a0LGMD (sub-type unknown)<\/p>\n

 <\/p>\n

Ka\u00e7 ya\u015f\u0131nda te\u015fhis konuldu?<\/strong>:<\/p>\n

I was diagnosed at the age of 10.<\/p>\n

\u0130lk belirtileriniz neydi?<\/strong>:<\/p>\n

My first symptoms included: calf muscle stiffness and pain and frequent falls along with difficulties in running and jumping.<\/p>\n

LGMD hastas\u0131 olan ba\u015fka aile \u00fcyeleriniz var m\u0131?<\/strong><\/p>\n

Hay\u0131r, ailemde LGMD hastas\u0131 olan tek ki\u015fi benim.<\/p>\n

LGMD ile ya\u015faman\u0131n en b\u00fcy\u00fck zorluklar\u0131n\u0131n ne oldu\u011funu d\u00fc\u015f\u00fcn\u00fcyorsunuz?<\/strong>:<\/p>\n

The greatest challenge in living with LGMD is that you have to plan and depend on others for things which normal people take for granted in their lives. For example, if you are going to restaurant or movie theatre or checking in a hotel\u00a0 you need to check if the infrastructure is disabled friendly, if you are travelling you need to make sure that the personal care assistant is available, make provisions for your wheelchair battery etc.<\/p>\n

En b\u00fcy\u00fck ba\u015far\u0131n\u0131z nedir?<\/strong>:<\/p>\n

There are so many accomplishments. The fact that I am still working and is leading a happy and a wonderful life is an accomplishment itself. Despite the challenges I have been able to complete my undergraduate degree in Finance and has also completed all level of Chartered Accountancy (CA) and Chartered Financial Analyst (CFA, US)<\/p>\n

LGMD bug\u00fcn oldu\u011funuz ki\u015fi olman\u0131zda sizi nas\u0131l etkiledi?<\/strong><\/p>\n

Living with LGMD is challenging but full of teachings and experience. It is a progressive disease and in the entire journey you face several challenges of different magnitude. It had made me stronger and less worrisome. Most importantly it imparted training unconsciously to become more used to changing environment which has helped me personally adjust in various spheres. I have come a long way from being able to play cricket to a situation where now even standing is little difficult. All such experiences have taught me to stay contended and happy with whatever I am left with.<\/p>\n

D\u00fcnyan\u0131n LGMD hakk\u0131nda ne bilmesini istersiniz?<\/strong>:<\/p>\n

According to me LGMD is not a disease but a way of life. There are numerous forms of physical disabilities where you see a lot of inspiring people are able to develop a skill such as painting with one hand or leg, finding their own unique way to lead normal life, but what\u2019s most unique about LGMD is that it constantly changes the situation and the moment you find yourself in a comfort zone, it throws some another challenge and leaves you at a starting point again. So it\u2019s important to treat each individual with LGMD differently and that all the solutions needs to be tailor made.<\/p>\n

LGMD hastal\u0131\u011f\u0131n\u0131z yar\u0131n \"tedavi edilebilseydi\", yapmak isteyece\u011finiz ilk \u015fey ne olurdu?<\/strong>:<\/p>\n

I would like to go on an adventure spree, do all sort of activities such as mountaineering, paragliding, driving car or as simple as taking a long walk.<\/p>\n

Daha fazla \"LGMD Spotlight R\u00f6portaj\u0131\" okumak veya gelecek bir r\u00f6portajda yer almak i\u00e7in g\u00f6n\u00fcll\u00fc olmak i\u00e7in l\u00fctfen web sitemizi ziyaret edin: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Nitesh \u00a0\u00a0Age: \u00a0\u00a027 years old Country: […]<\/p>","protected":false},"author":1,"featured_media":1390,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[30,47],"class_list":["post-1385","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","tag-india","tag-unknown-sub-type"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Nitesh - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Nitesh - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Nitesh \u00a0\u00a0Age: \u00a0\u00a027 years old Country: […]\" \/>\n<meta property=\"og:url\" content=\"http:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2016-11-07T14:30:49+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/#article\",\"isPartOf\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Nitesh\",\"datePublished\":\"2016-11-07T14:30:49+00:00\",\"dateModified\":\"2016-11-07T14:30:49+00:00\",\"mainEntityOfPage\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/\"},\"wordCount\":528,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/#primaryimage\"},\"thumbnailUrl\":\"\",\"keywords\":[\"India\",\"Unknown Sub-type\"],\"articleSection\":[\"Individuals with LGMD - Interviews\"],\"inLanguage\":\"tr-TR\"},{\"@type\":\"WebPage\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/\",\"url\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/\",\"name\":\"INDIVIDUAL WITH LGMD: Nitesh - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/#primaryimage\"},\"image\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2016-11-07T14:30:49+00:00\",\"dateModified\":\"2016-11-07T14:30:49+00:00\",\"breadcrumb\":{\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/#breadcrumb\"},\"inLanguage\":\"tr-TR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"tr-TR\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Nitesh\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"tr-TR\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"tr-TR\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"tr-TR\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD: Nitesh - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"http:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/","og_locale":"tr_TR","og_type":"article","og_title":"INDIVIDUAL WITH LGMD: Nitesh - LGMD Awareness Foundation","og_description":"LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Nitesh \u00a0\u00a0Age: \u00a0\u00a027 years old Country: […]","og_url":"http:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2016-11-07T14:30:49+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/#article","isPartOf":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"INDIVIDUAL WITH LGMD: Nitesh","datePublished":"2016-11-07T14:30:49+00:00","dateModified":"2016-11-07T14:30:49+00:00","mainEntityOfPage":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/"},"wordCount":528,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/#primaryimage"},"thumbnailUrl":"","keywords":["India","Unknown Sub-type"],"articleSection":["Individuals with LGMD - Interviews"],"inLanguage":"tr-TR"},{"@type":"WebPage","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/","url":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/","name":"INDIVIDUAL WITH LGMD: Nitesh - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/#primaryimage"},"image":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/#primaryimage"},"thumbnailUrl":"","datePublished":"2016-11-07T14:30:49+00:00","dateModified":"2016-11-07T14:30:49+00:00","breadcrumb":{"@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/#breadcrumb"},"inLanguage":"tr-TR","potentialAction":[{"@type":"ReadAction","target":["http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/"]}]},{"@type":"ImageObject","inLanguage":"tr-TR","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"http:\/\/www.lgmd-info.org\/individuals-with-lgmd-interviews\/2016\/11\/07\/nitesh\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Nitesh"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"tr-TR"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"tr-TR","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"tr-TR","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/posts\/1385","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/comments?post=1385"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/posts\/1385\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/media?parent=1385"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/categories?post=1385"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/tags?post=1385"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}