{"id":1503,"date":"2017-07-11T11:52:08","date_gmt":"2017-07-11T16:52:08","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1503"},"modified":"2017-07-11T11:52:08","modified_gmt":"2017-07-11T16:52:08","slug":"ralph","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/07\/11\/ralph\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Ralph"},"content":{"rendered":"

\u0130sim<\/strong>: Ralph\u00a0 Ya\u015f<\/strong>: 24 yrs. old<\/p>\n

\u00dclke<\/strong>: G\u00fcney Afrika<\/p>\n

LGMD Alt Tipi<\/strong>: LGMD2B\"\"<\/a><\/p>\n

 <\/p>\n

Ka\u00e7 ya\u015f\u0131nda te\u015fhis konuldu?<\/strong>:<\/p>\n

Bana 23 ya\u015f\u0131mda, Kurtarma Dal\u0131\u015f\u0131 Kursumu bitirdikten hemen sonra te\u015fhis konuldu.<\/p>\n

\u0130lk belirtileriniz neydi?<\/strong>:<\/p>\n

\u00c7ok aktif, adrenalin pompalayan bir ya\u015fam tarz\u0131m var ve her ge\u00e7en g\u00fcn daha yava\u015f ko\u015ftu\u011fumu fark ettikten sonra ben de daha s\u0131k\u0131 antrenman yapmaya ba\u015flad\u0131m. Ama sonu\u00e7ta v\u00fccudum gittik\u00e7e zay\u0131flamaya devam etti. Dal\u0131\u015f\u0131m\u0131 tamamlad\u0131ktan sonra yard\u0131m almaya karar verdim.<\/p>\n

LGMD hastas\u0131 olan ba\u015fka aile \u00fcyeleriniz var m\u0131?<\/strong><\/p>\n

Hay\u0131r, ben tekim ve ailem te\u015fhisimi duyduklar\u0131nda olduk\u00e7a etkilendiler. Beni ger\u00e7ekten etkilemedi. Sadece ba\u015fka bir zorluk olarak g\u00f6rd\u00fcm. Ama bir s\u00fcre sonra ger\u00e7ekler y\u00fcz\u00fcme vurdu... ne demek istedi\u011fimi anl\u0131yorsunuzdur.<\/p>\n

LGMD ile ya\u015faman\u0131n en b\u00fcy\u00fck zorluklar\u0131n\u0131n ne oldu\u011funu d\u00fc\u015f\u00fcn\u00fcyorsunuz?<\/strong>:<\/p>\n

Kabullenme. Eskiden yapt\u0131\u011f\u0131m t\u00fcm aktiviteleri yapam\u0131yor olmam olduk\u00e7a zorlu bir durum. Para\u015f\u00fctle atlama, beyaz su raftingi ve off-road'dan vazge\u00e7mek zordu \u00e7\u00fcnk\u00fc bunlar kollar\u0131m\u0131 ve bacaklar\u0131m\u0131 \u00e7ok fazla zorluyordu.<\/p>\n

En b\u00fcy\u00fck ba\u015far\u0131n\u0131z nedir?<\/strong>:<\/p>\n

\u00c7o\u011fu insan\u0131n hayalini kurdu\u011fu hayat\u0131 ya\u015famak ve \u00e7evremdeki herkese ilham kayna\u011f\u0131 olmak. Do\u011fru zihniyete ve g\u00fc\u00e7l\u00fc bir iradeye sahip oldu\u011funuzda ba\u015faramayaca\u011f\u0131n\u0131z hi\u00e7bir \u015fey yoktur.<\/p>\n

Dolu dolu bir hayat ya\u015famam i\u00e7in bana ilham veren bir hikaye var. Publius Horatius Cocles, antik Roma Cumhuriyeti ordusunda Roma ve Clusium aras\u0131ndaki sava\u015f s\u0131ras\u0131nda Pons Sublicius'u savunan \u00fcnl\u00fc bir subayd\u0131. \u015eiir \u015f\u00f6yle devam eder: Sonra cesur Horatius konu\u015ftu, kap\u0131n\u0131n kaptan\u0131: \"Bu d\u00fcnyadaki her insan i\u00e7in. \u00d6l\u00fcm erken ya da ge\u00e7 gelir. Ve insan nas\u0131l daha iyi \u00f6lebilir korkulu ihtimallerle y\u00fczle\u015fmekten.\"<\/p>\n

LGMD bug\u00fcn oldu\u011funuz ki\u015fi olman\u0131zda sizi nas\u0131l etkiledi?<\/strong><\/p>\n

Her zaman k\u0131r\u0131lmaz oldu\u011fuma inan\u0131rd\u0131m. Te\u015fhisimden bu yana, durdurulamaz oldu\u011fumu fark ettim. Sadece ya\u015fam ve \u00f6l\u00fcm var ve ya\u015fam\u0131 se\u00e7erek hayallerimin sadece k\u0131sa bir nefes uzakta oldu\u011funu g\u00f6rd\u00fcm. Ve ben bu bo\u015flu\u011fu kapatmaya niyetliyim.<\/p>\n

D\u00fcnyan\u0131n LGMD hakk\u0131nda ne bilmesini istersiniz?<\/strong>:<\/p>\n

Herhangi bir hastal\u0131ktan muzdarip insanlar\u0131 asla k\u00fc\u00e7\u00fcmsemeyin. B\u00f6yle bir engelle ya\u015famak ve \u00fcstesinden gelmek i\u00e7in ihtiyac\u0131n\u0131z olan zihniyet sizin i\u00e7in \u00e7ok fazla olabilir.<\/p>\n

LGMD hastal\u0131\u011f\u0131n\u0131z yar\u0131n \"tedavi edilebilseydi\", yapmak isteyece\u011finiz ilk \u015fey ne olurdu?<\/strong>:<\/p>\n

Ko\u015fmaya ba\u015flard\u0131m ve bacaklar\u0131m k\u0131r\u0131lana kadar asla durmazd\u0131m \u00e7\u00fcnk\u00fc o an i\u00e7in... \u00f6zg\u00fcr olurdum!<\/p>\n

Daha fazla \"LGMD Spotlight R\u00f6portaj\u0131\" okumak veya gelecek bir r\u00f6portajda yer almak i\u00e7in g\u00f6n\u00fcll\u00fc olmak i\u00e7in l\u00fctfen web sitemizi ziyaret edin: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Name:\u00a0 Ralph\u00a0 Age: 24 yrs. old Country: South Africa LGMD […]<\/p>","protected":false},"author":1,"featured_media":1502,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[77],"class_list":["post-1503","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-south-africa"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Ralph - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/07\/11\/ralph\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Ralph - 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