{"id":1564,"date":"2017-09-11T15:56:15","date_gmt":"2017-09-11T20:56:15","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1564"},"modified":"2017-09-11T15:56:15","modified_gmt":"2017-09-11T20:56:15","slug":"karen-2","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/09\/11\/karen-2\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Karen"},"content":{"rendered":"

LGMD \"Spotlight R\u00f6portaj\u0131\"<\/strong><\/p>\n

\u0130sim<\/strong>: Karen \u00a0Ya\u015f<\/strong>: 54 Ya\u015f\u0131nda\"\"<\/a><\/p>\n

\u00dclke<\/strong>: ABD<\/p>\n

LGMD Alt Tipi<\/strong>: LGMD 2I<\/p>\n

 <\/p>\n

Ka\u00e7 ya\u015f\u0131nda te\u015fhis konuldu?<\/strong><\/p>\n

Bana 33 ya\u015f\u0131mda te\u015fhis konuldu.<\/p>\n

\u0130lk BEL\u0130RT\u0130LER\u0130N\u0130Z nelerdi?<\/strong><\/p>\n

\u0130lk belirtim, ilkokulda beden e\u011fitimi dersinde di\u011fer \u00e7ocuklara k\u0131yasla genel bir zay\u0131fl\u0131kt\u0131. Lise beden e\u011fitimi dersi daha da k\u00f6t\u00fcyd\u00fc. Hamstring ve bald\u0131r kaslar\u0131mda gerginlik ya\u015fad\u0131m. Bald\u0131rlar\u0131m b\u00fcy\u00fckt\u00fc. Daha sonra y\u00fcr\u00fcy\u00fc\u015f\u00fcmde g\u00f6zle g\u00f6r\u00fcl\u00fcr bir de\u011fi\u015fiklik oldu.<\/p>\n

LGMD hastas\u0131 olan ba\u015fka aile \u00fcyeleriniz var m\u0131?<\/strong><\/p>\n

Hay\u0131r, LGMD te\u015fhisi konulan tek aile \u00fcyesi benim.<\/p>\n

LGMD ile ya\u015faman\u0131n en b\u00fcy\u00fck zorluklar\u0131n\u0131n ne oldu\u011funu d\u00fc\u015f\u00fcn\u00fcyorsunuz?<\/strong>:<\/p>\n

LGMD ile ya\u015faman\u0131n en b\u00fcy\u00fck zorluklar\u0131 g\u00fcnl\u00fck ki\u015fisel ve ev i\u015flerini tamamlamak, aktivite ve dinlenmeyi y\u00f6netmek, kamusal alanlara eri\u015fmeye haz\u0131r olmak ve gelecekteki ihtiya\u00e7lar i\u00e7in planlama yapmakt\u0131r.<\/p>\n

En b\u00fcy\u00fck ba\u015far\u0131n\u0131z nedir?<\/strong>:<\/p>\n

Ailemin ve arkada\u015flar\u0131m\u0131n sevgisi ve deste\u011fiyle, s\u00fcrekli de\u011fi\u015fen s\u0131n\u0131rlamalara ve engellere ra\u011fmen hayat\u0131 kucakl\u0131yor ve deneyimliyorum. Bu benim en b\u00fcy\u00fck ba\u015far\u0131m.<\/p>\n

LGMD, BUG\u00dcN oldu\u011funuz ki\u015fi olman\u0131zda sizi nas\u0131l etkiledi?<\/strong><\/p>\n

LGMD ile ya\u015famak beni kabullenici, kararl\u0131, becerikli, al\u00e7akg\u00f6n\u00fcll\u00fc ve minnettar bir insan haline getirdi. Te\u015fhisimi kabul etmeyi \u00f6\u011frendim ve ilerledik\u00e7e bana bir insan olarak b\u00fcy\u00fcme f\u0131rsat\u0131 sa\u011flad\u0131\u011f\u0131n\u0131 fark ettim.<\/p>\n

D\u00fcnyan\u0131n LGMD hakk\u0131nda ne bilmesini istersiniz?<\/strong>?<\/p>\n

LGMD ilerleyici bir hastal\u0131kt\u0131r. Her g\u00fcn\u00fcn her hareketine giren her d\u00fc\u015f\u00fcnceyi etkiler. Bir tedavi, tedavi ve yard\u0131mc\u0131 cihazlar i\u00e7in s\u00fcrekli ara\u015ft\u0131rma ve geli\u015ftirme \u015fartt\u0131r.<\/p>\n

LGMD hastal\u0131\u011f\u0131n\u0131z yar\u0131n \"tedavi edilebilseydi\", yapmak isteyece\u011finiz ilk \u015fey ne olurdu?<\/strong>:<\/p>\n

Yar\u0131n iyile\u015fecek olsam, paten kayard\u0131m!<\/p>\n

 <\/p>\n

* * * * Daha fazla \"LGMD Spotlight R\u00f6portaj\u0131\" okumak veya yakla\u015fan bir r\u00f6portajda yer almak i\u00e7in g\u00f6n\u00fcll\u00fc olmak i\u00e7in l\u00fctfen web sitemizi ziyaret edin: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight Interview\u201d Name:\u00a0 Karen \u00a0Age: 54 Yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1562,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[83],"class_list":["post-1564","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Karen - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/09\/11\/karen-2\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Karen - 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