{"id":1585,"date":"2017-09-25T20:33:54","date_gmt":"2017-09-26T01:33:54","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1585"},"modified":"2017-09-25T20:33:54","modified_gmt":"2017-09-26T01:33:54","slug":"lori","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/09\/25\/lori\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Lori"},"content":{"rendered":"<p><span style=\"color: #000000;\"><strong>LGMD \"SPOT I\u015eI\u011eI R\u00d6PORTAJI\"<\/strong><\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>\u00a0<\/strong><\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>\u0130sim<\/strong><\/span>:<span style=\"color: #000000;\">\u00a0 Lori\u00a0 <strong>Ya\u015f<\/strong>: 47 ya\u015f\u0131nda<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2017\/09\/LGMD2i-Lori-B.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1584 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2017\/09\/LGMD2i-Lori-B-300x169.png\" alt=\"\" width=\"300\" height=\"169\" \/><\/a><\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>\u00dclke<\/strong>: Birle\u015fik Devletler<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>LGMD Alt Tipi<\/strong>: LGMD2i<\/span><!--more--><\/p>\n<p><span style=\"color: #000000;\"><strong>Ka\u00e7 ya\u015f\u0131nda te\u015fhis konuldu?<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">Bana 41 ya\u015f\u0131nda te\u015fhis konuldu.<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>\u0130lk belirtileriniz neydi?<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">\u0130lk fark etti\u011fim belirtiler kas g\u00fc\u00e7s\u00fczl\u00fc\u011f\u00fc ve d\u00fc\u015fme oldu, ancak o zamanlar bunlar\u0131n ciddi bir \u015fey oldu\u011funu fark etmemi\u015ftim.<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>LGMD hastas\u0131 olan ba\u015fka aile \u00fcyeleriniz var m\u0131?<\/strong><\/span><\/p>\n<p><span style=\"color: #000000;\">Evet, k\u00fc\u00e7\u00fck k\u0131z karde\u015fimde de LGMD2i var.<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>LGMD ile ya\u015faman\u0131n en b\u00fcy\u00fck zorluklar\u0131n\u0131n ne oldu\u011funu d\u00fc\u015f\u00fcn\u00fcyorsunuz?<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">En b\u00fcy\u00fck zorlu\u011fum, eskiden yapt\u0131\u011f\u0131m ve yapmak istedi\u011fim her \u015feyi yapacak enerjiden ve fiziksel g\u00fc\u00e7ten yoksun olmak.<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>En b\u00fcy\u00fck ba\u015far\u0131n\u0131z nedir?<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">En b\u00fcy\u00fck ba\u015far\u0131lar\u0131m iki o\u011flumu (17 ve 24 ya\u015flar\u0131nda) b\u00fcy\u00fctmek ve avukat olmak.<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>LGMD bug\u00fcn oldu\u011funuz ki\u015fi olman\u0131zda sizi nas\u0131l etkiledi?<\/strong><\/span><\/p>\n<p><span style=\"color: #000000;\">LGMD'ye sahip olmak, yapabildiklerim ve hayat\u0131mdaki insanlar i\u00e7in daha fazla minnettar olmama neden oluyor.<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>D\u00fcnyan\u0131n LGMD hakk\u0131nda ne bilmesini istersiniz?<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">\u0130nsanlar\u0131n LGMD'nin genetik bir hastal\u0131k oldu\u011funu ve \u015fu anda herhangi bir tedavisi olmad\u0131\u011f\u0131n\u0131 bilmelerini isterim.<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>LGMD hastal\u0131\u011f\u0131n\u0131z yar\u0131n \"tedavi edilebilseydi\", yapmak isteyece\u011finiz ilk \u015fey ne olurdu?<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">Yar\u0131n iyile\u015fmi\u015f olsayd\u0131m, y\u00fcr\u00fcy\u00fc\u015fe \u00e7\u0131kmak ya da uzun bir y\u00fcr\u00fcy\u00fc\u015f yapmak isterdim.<\/span><\/p>\n<p>&nbsp;<\/p>\n<p><span style=\"color: #000000;\">* Daha fazla \"LGMD Spotlight R\u00f6portaj\u0131\" okumak veya gelecek bir r\u00f6portajda yer almak i\u00e7in g\u00f6n\u00fcll\u00fc olmak i\u00e7in l\u00fctfen web sitemizi ziyaret edin <\/span>at: <a href=\"https:\/\/www.lgmd-info.org\/tr\/spotlight-interviews\/\">https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>LGMD \u201cSPOTLIGHT INTERVIEW\u201d \u00a0 Name:\u00a0 Lori\u00a0 Age: 47 yrs. old [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1584,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[83],"class_list":["post-1585","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>INDIVIDUAL WITH LGMD: Lori - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2017\/09\/25\/lori\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" 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