{"id":1692,"date":"2018-02-13T09:31:28","date_gmt":"2018-02-13T15:31:28","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1692"},"modified":"2018-02-13T09:31:28","modified_gmt":"2018-02-13T15:31:28","slug":"younis","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Younis"},"content":{"rendered":"

\u0130S\u0130M<\/strong>: Younis\u00a0 YA\u015e<\/strong>: 14 ya\u015f\u0131nda<\/span>
\n \u00dcLKE<\/strong>: Suriye<\/span>
\n LGMD ALT T\u0130P\u0130<\/strong>: LGMD 2C\"\"<\/a><\/span><\/p>\n

Ka\u00e7 ya\u015f\u0131nda te\u015fhis konuldu?<\/strong>:<\/strong><\/span><\/p>\n

Bana 7 ya\u015f\u0131mda te\u015fhis konuldu.<\/span><\/p>\n

\u0130lk belirtileriniz neydi?<\/strong><\/span><\/p>\n

Belirtiler ben 5 ya\u015f\u0131ndayken ortaya \u00e7\u0131kmaya ba\u015flad\u0131. K\u00fc\u00e7\u00fck bir \u00e7ocukken ayak parmaklar\u0131m\u0131n \u00fczerinde y\u00fcr\u00fcrd\u00fcm.<\/span><\/p>\n

LGMD hastas\u0131 olan ba\u015fka aile \u00fcyeleriniz var m\u0131?<\/strong><\/span><\/p>\n

Evet, a\u011fabeyime ve iki amcama (annemin erkek karde\u015fleri) da LGMD2C te\u015fhisi kondu. (En b\u00fcy\u00fck a\u011fabeyim Almanya'ya g\u00f6\u00e7 etti.)<\/span><\/p>\n

LGMD ile ya\u015faman\u0131n en b\u00fcy\u00fck zorluklar\u0131n\u0131n ne oldu\u011funu d\u00fc\u015f\u00fcn\u00fcyorsunuz?<\/strong>:<\/span><\/p>\n

\u015eu anda benim i\u00e7in en b\u00fcy\u00fck zorluklar ko\u015fmak, merdiven \u00e7\u0131kmak ve ba\u011f\u0131ms\u0131z olarak tuvalete gitmek.<\/span><\/p>\n

En b\u00fcy\u00fck ba\u015far\u0131n\u0131z nedir?<\/strong>:<\/span><\/p>\n

En b\u00fcy\u00fck ba\u015far\u0131m\u0131n ne oldu\u011funu bilmiyorum ama hala y\u00fcr\u00fcyebildi\u011fim ve olduk\u00e7a ba\u011f\u0131ms\u0131z oldu\u011fum i\u00e7in gurur duyuyorum. Hayatta \u00fcstesinden gelmek zorunda kald\u0131\u011f\u0131m en b\u00fcy\u00fck zorluklardan biri, Suriye'deki \"sava\u015f ve yerinden edilme ko\u015fullar\u0131na\" ra\u011fmen e\u011fitimimi tamamlamak oldu.<\/span><\/p>\n

LGMD BUG\u00dcN OLDU\u011eUNUZ KI\u015eI OLMANIZDA SIZI NASIL ETKILEDI?<\/strong><\/span><\/p>\n

LGMD bana sab\u0131rl\u0131 olmay\u0131 \u00f6\u011fretti. Ayr\u0131ca beni daha bilin\u00e7li ve a\u00e7\u0131k hale getirdi.<\/span><\/p>\n

D\u00dcNYANIN LGMD HAKKINDA NE BI\u0307LMESI\u0307NI\u0307 I\u0307STI\u0307YORSUNUZ?<\/strong><\/span><\/p>\n

D\u00fcnyan\u0131n bu hastal\u0131k ve t\u00fcm farkl\u0131 LGMD t\u00fcrleri hakk\u0131nda daha fazla bilgi sahibi olmas\u0131n\u0131 istiyorum. Ayr\u0131ca, insanlar\u0131n LGMD'ye odaklanan daha fazla ara\u015ft\u0131rman\u0131n bu hastal\u0131klara bir \u00e7are ve tedavi bulmaya yard\u0131mc\u0131 olmak i\u00e7in hayati \u00f6nem ta\u015f\u0131d\u0131\u011f\u0131n\u0131 bilmelerini istiyorum. Umar\u0131m bilim insanlar\u0131 bu hastal\u0131\u011fa bir \u00e7are bulurlar. Ayr\u0131ca insanlar\u0131n bunu \u00f6nlemek i\u00e7in ad\u0131mlar atmas\u0131n\u0131 istiyorum.<\/span><\/p>\n

LGMD HASTALI\u011eINIZ YARIN \"TEDAVI\u0307\" EDI\u0307LEBI\u0307LECEK OLSA, YAPMAK I\u0307STEYECE\u011eI\u0307NI\u0307Z I\u0307LK \u015eEY NE OLURDU?<\/strong><\/span><\/p>\n

LGMD yar\u0131n tedavi edilse, yapaca\u011f\u0131m ilk \u015fey h\u0131zl\u0131 ko\u015fmak ve ard\u0131ndan arkada\u015flar\u0131mla futbol oynamak olurdu.<\/span><\/p>\n

 <\/p>\n

* * * Daha fazla \"LGMD Spotlight R\u00f6portaj\u0131\" okumak veya gelecek bir r\u00f6portajda yer almak i\u00e7in g\u00f6n\u00fcll\u00fc olmak i\u00e7in l\u00fctfen web sitemizi ziyaret edin<\/span> https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a>\u00a0 <\/u><\/p>\n

* * * LGMD konusunda fark\u0131ndal\u0131k yaratmaya yard\u0131mc\u0131 olmak i\u00e7in l\u00fctfen bu g\u00f6nderiyi BE\u011eEN\u0130N, YORUM YAPIN ve PAYLA\u015eIN!<\/span><\/p>","protected":false},"excerpt":{"rendered":"

NAME:\u00a0 Younis\u00a0 AGE:\u00a0 14 yrs. old COUNTRY:\u00a0 Syria LGMD SUB-TYPE:\u00a0 […]<\/p>","protected":false},"author":1,"featured_media":1690,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,75],"tags":[89],"class_list":["post-1692","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2c","tag-lgmd2c-syria"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Younis - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2018\/02\/13\/younis\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Younis - 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