{"id":2098,"date":"2018-07-13T09:14:39","date_gmt":"2018-07-13T14:14:39","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2098"},"modified":"2018-07-13T09:14:39","modified_gmt":"2018-07-13T14:14:39","slug":"individual-with-lgmd-majed","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2018\/07\/13\/individual-with-lgmd-majed\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Majed"},"content":{"rendered":"

LGMD \"SPOT I\u015eI\u011eI R\u00d6PORTAJI\"<\/strong><\/p>\n

\u0130sim<\/strong>: Majed\u00a0 \u00a0Ya\u015f<\/strong>:\u00a0 20\u00a0\u00a0\"\"<\/a><\/p>\n

\u00dclke<\/strong>: Suriye \/ Almanya<\/p>\n

LGMD Alt tipi<\/strong>: LGMD2C<\/p>\n

 <\/p>\n

KA\u00c7 YA\u015eINDA TE\u015eHIS KONULDU?<\/strong>:<\/p>\n

Bana 8 ya\u015f\u0131mda te\u015fhis konuldu.<\/p>\n

 <\/p>\n

\u0130LK BELIRTILERINIZ NEYDI?<\/strong>:<\/p>\n

Belirtiler ben 7 ya\u015f\u0131ndayken ortaya \u00e7\u0131kmaya ba\u015flad\u0131. K\u00fc\u00e7\u00fck bir \u00e7ocukken ayak parmaklar\u0131m\u0131n \u00fczerinde y\u00fcr\u00fcrd\u00fcm.<\/p>\n

 <\/p>\n

\u00a0LGMD HASTASI OLAN BA\u015eKA AI\u0307LE \u00dcYELERI\u0307NI\u0307Z VAR MI?<\/strong>:<\/p>\n

Evet, erkek karde\u015fime ve iki amcama (annemin erkek karde\u015fleri) da LGMD2C te\u015fhisi kondu. (Karde\u015fim hala Suriye'de ya\u015f\u0131yor ve ad\u0131 Younis. Kendisi daha \u00f6nce LGMD Spotlight R\u00f6portaj\u0131nda yer alm\u0131\u015ft\u0131).<\/p>\n

 <\/p>\n

LGMD I\u0307LE YA\u015eARKEN KAR\u015eILA\u015eTI\u011eINIZ EN B\u00dcY\u00dcK ZORLUKLARIN NELER OLDU\u011eUNU D\u00dc\u015e\u00dcN\u00dcYORSUNUZ?<\/strong>:<\/p>\n

Benim i\u00e7in en b\u00fcy\u00fck zorluk y\u00fcr\u00fcmek ve uzun s\u00fcre ayakta durmak. Bir baston kullanarak 500 metre y\u00fcr\u00fcyebiliyorum. Ayr\u0131ca tekerlekli sandalye kullan\u0131yorum ve banyoda baz\u0131 zorluklar ya\u015f\u0131yorum. Bazen baz\u0131 g\u00fcnl\u00fck i\u015fleri kendi ba\u015f\u0131ma yap\u0131yorum.<\/p>\n

\u015eu anda Almanya'da amcamla ya\u015f\u0131yorum ve iki y\u0131ld\u0131r ailemi ve karde\u015flerimi g\u00f6rmedim. Ailemden, karde\u015flerimden ve \u00fclkemden uzakta tek ba\u015f\u0131ma ya\u015faman\u0131n zor oldu\u011funu d\u00fc\u015f\u00fcn\u00fcyorum.<\/p>\n

 <\/p>\n

EN B\u00dcY\u00dcK BA\u015eARINIZ NEDIR<\/strong>:<\/p>\n

Ger\u00e7ek \u015fu ki, benim i\u00e7in en b\u00fcy\u00fck ba\u015far\u0131n\u0131n ne oldu\u011funu bilmiyorum. Ama hala y\u00fcr\u00fcyebildi\u011fim ve biraz egzersiz yapabildi\u011fim i\u00e7in gurur duyuyorum.<\/p>\n

Suriye'deki sava\u015f ve yerinden edilme ko\u015fullar\u0131na ra\u011fmen liseyi ba\u015far\u0131yla bitirdim ve 10 y\u0131l \u00f6nce y\u00fczmeyi \u00f6\u011frendim.<\/p>\n

Ama ya\u015fad\u0131\u011f\u0131m en b\u00fcy\u00fck zorluk Suriye'den Almanya'ya 9 \u00fclkeden ge\u00e7erek yapt\u0131\u011f\u0131m m\u00fclteci yolculu\u011fuydu. 10 g\u00fcn i\u00e7inde yolda kar\u015f\u0131la\u015ft\u0131\u011f\u0131m zorluklar\u0131 tarif edemem. S\u0131rbistan'da bir ormanda 5 kilometre yol kat ettim ve o s\u0131rada tekerlekli sandalyem yoktu, Yunan Adalar\u0131 \u00f6nlerinde botumuzun batmas\u0131 d\u0131\u015f\u0131nda bo\u011fulmaktan nas\u0131l kurtuldu\u011fumu bilmiyorum.<\/p>\n

\u015eimdi Almanca \u00f6\u011freniyorum ve bitirdikten sonra \u00fcniversite e\u011fitimimi tamamlayaca\u011f\u0131m.<\/p>\n

 <\/p>\n

LGMD BUG\u00dcN OLDU\u011eUNUZ KI\u0307\u015eI\u0307YE D\u00d6N\u00dc\u015eMENI\u0307ZDE SI\u0307ZI\u0307 NASIL ETKI\u0307LEDI\u0307?<\/strong>:<\/p>\n

LGMD bana sab\u0131rl\u0131 ve nazik bir insan olmay\u0131 \u00f6\u011fretti. Bir insan ko\u015fullar\u0131 ne olursa olsun istedi\u011fini yapabilir. Zor ama ayn\u0131 zamanda bana irade ve kararl\u0131l\u0131k g\u00f6stermeyi \u00f6\u011fretti.<\/p>\n

 <\/p>\n

D\u00dcNYANIN LGMD HAKKINDA NE BI\u0307LMESI\u0307NI\u0307 I\u0307STI\u0307YORSUNUZ<\/strong>:<\/p>\n

D\u00fcnyan\u0131n bu hastal\u0131k ve t\u00fcm farkl\u0131 LGMD t\u00fcrleri hakk\u0131nda daha fazla bilgi sahibi olmas\u0131n\u0131 istiyorum. Ayr\u0131ca, insanlar\u0131n LGMD'ye odaklanan daha fazla ara\u015ft\u0131rman\u0131n bu hastal\u0131klara bir \u00e7are ve tedavi bulmaya yard\u0131mc\u0131 olmak i\u00e7in hayati \u00f6nem ta\u015f\u0131d\u0131\u011f\u0131n\u0131 bilmelerini istiyorum. Umar\u0131m bilim insanlar\u0131 bu hastal\u0131\u011fa bir \u00e7are bulurlar. Ayr\u0131ca insanlar\u0131n bunu \u00f6nlemek i\u00e7in ad\u0131mlar atmas\u0131n\u0131 istiyorum.<\/p>\n

 <\/p>\n

LGMD HASTALI\u011eINIZ YARIN \"TEDAVI\u0307\" EDI\u0307LEBI\u0307LECEK OLSA, YAPMAK I\u0307STEYECE\u011eI\u0307NI\u0307Z I\u0307LK \u015eEY NE OLURDU<\/strong>:<\/p>\n

\u0130lk yapaca\u011f\u0131m \u015fey y\u00fczme havuzuna gitmek ve y\u00fcksek bir yerden atlamak. Ayr\u0131ca h\u0131zl\u0131 ko\u015fmak ve karde\u015fim Younis ile futbol oynamak.<\/p>\n

 <\/p>\n

* * * Daha fazla \"LGMD Spotlight R\u00f6portaj\u0131\" okumak veya gelecek bir r\u00f6portajda yer almak i\u00e7in g\u00f6n\u00fcll\u00fc olmak i\u00e7in l\u00fctfen web sitemizi ziyaret edin https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a>\u00a0 <\/u><\/p>\n

* * * LGMD konusunda fark\u0131ndal\u0131k yaratmaya yard\u0131mc\u0131 olmak i\u00e7in l\u00fctfen bu g\u00f6nderiyi BE\u011eEN\u0130N, YORUM YAPIN ve PAYLA\u015eIN!<\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name: Majed\u00a0 \u00a0Age:\u00a0 20\u00a0\u00a0 Country: \u00a0Syria \/ […]<\/p>","protected":false},"author":1,"featured_media":2099,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,75],"tags":[98],"class_list":["post-2098","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2c","tag-lgmd2c-syria-germany"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Majed - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2018\/07\/13\/individual-with-lgmd-majed\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Majed - 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