{"id":2341,"date":"2018-11-18T21:09:52","date_gmt":"2018-11-19T03:09:52","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2341"},"modified":"2018-11-18T21:09:52","modified_gmt":"2018-11-19T03:09:52","slug":"lgmd-organization-gfb-onlus","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/","title":{"rendered":"KURULU\u015e: GFB ONLUS"},"content":{"rendered":"
\"\"<\/figure>\n\n\n

KURULU\u015eUN ADI<\/strong>: GFB ONLUS (GRUPPO FAMILIARI BETA-SARCOGLICANOPATIE ONLUS)<\/p>\n

WEB S\u0130TES\u0130:<\/strong>\u00a0 \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 www.lgmd2e.org<\/a><\/p>\n

FACEBOOK:\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/strong>www.facebook.com\/gfbonlus-1045732368903903<\/a><\/p>\n

TWITTER:\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/strong>twitter.com\/gfbonlus<\/a><\/p>\n

KURULU\u015eUNUZ HANGI\u0307 LGMD ALT TI\u0307PI\u0307NE ODAKLANIYOR:\u00a0 <\/strong><\/p>\n

Limb Girdle Muscular Dystrophy tip 2E'ye (LGMD2E) odaklan\u0131yoruz<\/p>\n

BIR ALT T\u00dcRE ODAKLANIRSANIZ, BIR KAYIT DEFTERI VAR MI VE HASTALAR NASIL KATILABILIR? <\/strong><\/p>\n

Web sitemizde Lgmd2E- Lgmd2D- Lgmd2C - Lgmd2F'den etkilenen ki\u015filer hakk\u0131nda Gizlilik Yasas\u0131na uygun olarak bilgi topluyoruz. \u0130lk amac\u0131m\u0131z istatistiksel verileri detayland\u0131rmak ve ikinci olarak bir sarkoglikanopatiler hasta kayd\u0131 olu\u015fturmak istiyoruz.<\/p>\n

Burada hasta istatistiklerimizi okuyabilirsiniz:
http:\/\/www.beta-sarcoglicanopathy.org\/index.php?option=com_content&view=article&id=47&Itemid=53<\/p>\n

GFB \u015fu anda Sarkoglikanopati'den (LGMD2C -2D - 2E -2F) etkilenen toplam 403 hasta saymaktad\u0131r. Payla\u015facak ek bilgileri olan ki\u015fileri, bu bilgileri bize a\u015fa\u011f\u0131daki yollarla g\u00f6ndermeye davet ediyoruz info@beta-sarcoglicanopatie.it<\/a> .<\/p>\n

Kurulu\u015funuz Kar Amac\u0131 G\u00fctmeyen bir kurulu\u015f mu? E\u011fer \u00f6yleyse, ne t\u00fcr:\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/strong><\/p>\n

Evet, biz kar amac\u0131 g\u00fctmeyen bir kurulu\u015fuz. GFB Onlus, 27 \u015eubat 2013 tarihinde \u0130talya'da resmi olarak g\u00f6n\u00fcll\u00fc bir kurulu\u015f olarak kurulmu\u015f ve Lombardiya'daki g\u00f6n\u00fcll\u00fc kurulu\u015flar\u0131n b\u00f6lgesel sicilinin SO-81 numaral\u0131 il b\u00f6l\u00fcm\u00fcne kaydedilmi\u015ftir. 2014 y\u0131l\u0131nda 947 say\u0131l\u0131 Aile Dayan\u0131\u015fma Dernekleri b\u00f6lgesel siciline de dahil edilmi\u015ftir.<\/p>\n

KURULU\u015eUNUZUN KURULMASINA NE I\u0307LHAM VERDI\u0307?<\/strong>:<\/p>\n

\u00c7ocuklar\u0131m\u0131z\u0131n hastal\u0131\u011f\u0131n\u0131 deneyimledi\u011fimiz y\u0131llarda, bu hastal\u0131\u011fa y\u00f6nelik kesin bilimsel \u00e7al\u0131\u015fmalar\u0131n ve tedavi yakla\u015f\u0131mlar\u0131n\u0131n olmad\u0131\u011f\u0131n\u0131 fark ettik (2012 y\u0131l\u0131na kadar). Tamamen yaln\u0131z b\u0131rak\u0131lm\u0131\u015ft\u0131k ve ayr\u0131ca Lgmd2E i\u00e7in hi\u00e7bir dernek yoktu.<\/p>\n

KURULU\u015eUNUZUN MISYONU NEDIR?<\/strong><\/p>\n

Gfb Onlus, hastal\u0131\u011f\u0131n tedavisine y\u00f6nelik ara\u015ft\u0131rma projelerini finanse etmek i\u00e7in kurulmu\u015ftur. Ayr\u0131ca, bu \u00f6zel hastal\u0131k i\u00e7in en g\u00fcncel spesifik ara\u015ft\u0131rma faaliyetlerinin yan\u0131 s\u0131ra bulunmas\u0131 kolay olmayan bilgi \/ haberler hakk\u0131nda bizi \/ sizi daha iyi bilgilendirmenin bir yolu olmak istiyor. Misyonumuz, Lgmd2E'li insanlar\u0131 kurumlara, ara\u015ft\u0131rma kurulu\u015flar\u0131na, di\u011fer derneklere ve hastalara kar\u015f\u0131 temsil etmektir. Bu rol \u015fimdiye kadar sadece bizim taraf\u0131m\u0131zdan \u00fcstlenilmi\u015ftir \u00e7\u00fcnk\u00fc ne \u0130talya'da ne de yurtd\u0131\u015f\u0131nda ayn\u0131 amaca y\u00f6nelik ba\u015fka bir grup bulunmamaktad\u0131r. Bu web sitesi ve kendi kendine yard\u0131m grubu, bu hastal\u0131ktan etkilenen di\u011fer ailelerle temasa ge\u00e7me, b\u00f6ylece bu hastal\u0131kla her g\u00fcn ya\u015faman\u0131n \u00e7e\u015fitli y\u00f6nlerinin yan\u0131 s\u0131ra bilimsel ara\u015ft\u0131rma ve \u00e7e\u015fitli yard\u0131mlar\u0131n kullan\u0131m\u0131yla ilgili klinik, yasal, lojistik, organizasyonel y\u00f6nleri payla\u015fma arzusuyla olu\u015fturulmu\u015ftur. Amac\u0131m\u0131z, gelecekteki bir hasta kayd\u0131 ve spesifik klinik \u00e7al\u0131\u015fmalar a\u00e7\u0131s\u0131ndan bu hastalar hakk\u0131nda ilk veri toplamay\u0131 ger\u00e7ekle\u015ftirmektir.<\/p>\n

KURULU\u015eUNUZ HANGI HIZMETLERI SA\u011eLIYOR:<\/strong><\/p>\n

2012: A\u011fustos 2012'den bu yana GFB aileleri, Columbus Ohio'daki LGMD2E gen terapisi projesine ilk finansman\u0131 Prof. J. Mendell taraf\u0131ndan y\u00fcr\u00fct\u00fclmektedir. Bug\u00fcne kadar toplam $ 1.300.000 tutar\u0131nda be\u015f \u00f6deme yap\u0131lm\u0131\u015ft\u0131r. 2017: Myonexus Therapeutics \u015eirketi do\u011fdu ve GFB ONLUS \u015eirkete girdi. Myonexus Therapeutics \u015eirketinin amac\u0131, Limb-girdle muscular dystrophy (LGMD) tip 2B, 2C, 2D, 2E ve 2L i\u00e7in gen tedavisi geli\u015ftirmektir. http:\/\/myonexustx.com\/ 2018: GFB Onlus, merkezi Amerika Birle\u015fik Devletleri'nde bulunan iki biyoteknoloji \u015firketi olan Sarepta ve Myonexus aras\u0131ndaki anla\u015fman\u0131n imzalanmas\u0131nda yer ald\u0131. Di\u011fer faaliyetlerimiz, engelliler i\u00e7in trekking sandalyeleri ve di\u011fer spor (g\u00f6ky\u00fcz\u00fc) ve rekreasyon aktiviteleri ile da\u011flara geziler d\u00fczenlemek, GFB ONLUS ailelerinin y\u0131ll\u0131k toplant\u0131lar\u0131n\u0131 d\u00fczenlemek ve kamu kurumlar\u0131 ile yap\u0131lan anla\u015fmalar yoluyla engelliler i\u00e7in ula\u015f\u0131m hizmetleri, LGMD2E ve di\u011fer sarkoglikanopatiler i\u00e7in uluslararas\u0131 bilimsel kongre organizasyonu ve engelli insanlar i\u00e7in psikolojik destek sa\u011flamakt\u0131r.<\/p>\n

KURULU\u015eUNUZUN EN \u00c7OK GURUR DUYDU\u011eU \u015eEY NEDIR?<\/strong><\/p>\n

Dr. J. Mendell taraf\u0131ndan Columbus Ohio ABD'de koordine edilen Lgmd2e gen terapisi projesinin klinik \u00f6ncesi a\u015famas\u0131n\u0131 finanse etmek ($ 1.300.000), Myonexus Therapeutics'e kat\u0131lmak ve Sarepta ile Myonexus aras\u0131nda anla\u015fma yapmak.<\/p>\n

D\u00fcnyan\u0131n KURULU\u015eUNUZ hakk\u0131nda ne bilmesini istersiniz?<\/strong>:<\/p>\n

Bu alanda harika ba\u011flant\u0131lar geli\u015ftiriyoruz ve klinik deneyler ba\u015flamaya haz\u0131r oldu\u011funda bize yard\u0131mc\u0131 olacak bir kay\u0131t defteri olu\u015fturmay\u0131 umuyoruz.<\/p>\n

\u0130NSANLAR KURULU\u015eUNUZU DESTEKLEMEYE NASIL DAHIL OLABILIRLER?<\/strong><\/p>\n

Web sitemizde bizimle ileti\u015fime ge\u00e7mek ve nihayetinde vergiden d\u00fc\u015f\u00fclebilir ba\u011f\u0131\u015flar yapmak i\u00e7in bilgiler yer alacakt\u0131r.<\/p>\n

KURULU\u015eUNUZLA ILETI\u015eIME GE\u00c7MENIN EN IYI YOLU NEDIR?<\/strong><\/p>\n

L\u00fctfen bizimle e-posta yoluyla ileti\u015fime ge\u00e7in info@beta-sarcoglicanopatie.it<\/a> . L\u00fctfen istedi\u011finiz zaman bize ula\u015f\u0131n. Ayr\u0131ca bize her zaman Facebook veya Twitter \u00fczerinden mesaj g\u00f6nderebilirsiniz.<\/p>\n

EKLEMEK ISTEDI\u011eINIZ BA\u015eKA BIR \u015eEY VAR MI?<\/strong><\/p>\n

LGMD2E ve di\u011fer lgmd alt tipleri i\u00e7in k\u00fcr ve tedaviler elde etme konusunda ba\u015far\u0131 bekliyoruz.<\/p>\n

\u00a0<\/p>","protected":false},"excerpt":{"rendered":"

NAME OF ORGANIZATION:\u00a0 \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \u00a0GFB ONLUS (GRUPPO FAMILIARI BETA-SARCOGLICANOPATIE ONLUS) […]<\/p>","protected":false},"author":1,"featured_media":2340,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[94,62,95],"tags":[],"class_list":["post-2341","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-organization-interview","category-lgmd2e","category-organization"],"acf":[],"yoast_head":"\nORGANIZATION: GFB ONLUS - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/tr\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ORGANIZATION: GFB ONLUS - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"NAME OF ORGANIZATION:\u00a0 \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \u00a0GFB ONLUS (GRUPPO FAMILIARI BETA-SARCOGLICANOPATIE ONLUS) […]\" \/>\n<meta property=\"og:url\" content=\"http:\/\/www.lgmd-info.org\/tr\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2018-11-19T03:09:52+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"4 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/#article\",\"isPartOf\":{\"@id\":\"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"ORGANIZATION: GFB ONLUS\",\"datePublished\":\"2018-11-19T03:09:52+00:00\",\"dateModified\":\"2018-11-19T03:09:52+00:00\",\"mainEntityOfPage\":{\"@id\":\"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/\"},\"wordCount\":783,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/#primaryimage\"},\"thumbnailUrl\":\"\",\"articleSection\":[\"LGMD Organization - Interviews\",\"LGMD2E\",\"ORGANIZATION\"],\"inLanguage\":\"tr-TR\"},{\"@type\":\"WebPage\",\"@id\":\"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/\",\"url\":\"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/\",\"name\":\"ORGANIZATION: GFB ONLUS - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/#primaryimage\"},\"image\":{\"@id\":\"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/#primaryimage\"},\"thumbnailUrl\":\"\",\"datePublished\":\"2018-11-19T03:09:52+00:00\",\"dateModified\":\"2018-11-19T03:09:52+00:00\",\"breadcrumb\":{\"@id\":\"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/#breadcrumb\"},\"inLanguage\":\"tr-TR\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"tr-TR\",\"@id\":\"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/#primaryimage\",\"url\":\"\",\"contentUrl\":\"\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"ORGANIZATION: GFB ONLUS\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"tr-TR\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"tr-TR\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\",\"name\":\"dooley\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"tr-TR\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g\",\"caption\":\"dooley\"},\"sameAs\":[\"https:\/\/live-lgmd-2021.pantheonsite.io\"]}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"ORGANIZATION: GFB ONLUS - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"http:\/\/www.lgmd-info.org\/tr\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/","og_locale":"tr_TR","og_type":"article","og_title":"ORGANIZATION: GFB ONLUS - LGMD Awareness Foundation","og_description":"NAME OF ORGANIZATION:\u00a0 \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \u00a0GFB ONLUS (GRUPPO FAMILIARI BETA-SARCOGLICANOPATIE ONLUS) […]","og_url":"http:\/\/www.lgmd-info.org\/tr\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2018-11-19T03:09:52+00:00","og_image":[{"width":1200,"height":630,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png","type":"image\/png"}],"author":"dooley","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"dooley","Est. reading time":"4 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/#article","isPartOf":{"@id":"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/"},"author":{"name":"dooley","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7"},"headline":"ORGANIZATION: GFB ONLUS","datePublished":"2018-11-19T03:09:52+00:00","dateModified":"2018-11-19T03:09:52+00:00","mainEntityOfPage":{"@id":"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/"},"wordCount":783,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/#primaryimage"},"thumbnailUrl":"","articleSection":["LGMD Organization - Interviews","LGMD2E","ORGANIZATION"],"inLanguage":"tr-TR"},{"@type":"WebPage","@id":"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/","url":"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/","name":"ORGANIZATION: GFB ONLUS - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/#primaryimage"},"image":{"@id":"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/#primaryimage"},"thumbnailUrl":"","datePublished":"2018-11-19T03:09:52+00:00","dateModified":"2018-11-19T03:09:52+00:00","breadcrumb":{"@id":"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/#breadcrumb"},"inLanguage":"tr-TR","potentialAction":[{"@type":"ReadAction","target":["http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/"]}]},{"@type":"ImageObject","inLanguage":"tr-TR","@id":"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/#primaryimage","url":"","contentUrl":""},{"@type":"BreadcrumbList","@id":"http:\/\/www.lgmd-info.org\/lgmd2e\/2018\/11\/18\/lgmd-organization-gfb-onlus\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"ORGANIZATION: GFB ONLUS"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"tr-TR"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"tr-TR","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7","name":"dooley","image":{"@type":"ImageObject","inLanguage":"tr-TR","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/c87b3b784fd4c1975884b6c3eab282b5?s=96&d=mm&r=g","caption":"dooley"},"sameAs":["https:\/\/live-lgmd-2021.pantheonsite.io"]}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/posts\/2341","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/comments?post=2341"}],"version-history":[{"count":0,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/posts\/2341\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/media?parent=2341"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/categories?post=2341"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/tr\/wp-json\/wp\/v2\/tags?post=2341"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}