{"id":2722,"date":"2019-04-29T10:19:08","date_gmt":"2019-04-29T15:19:08","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2722"},"modified":"2019-04-29T10:19:08","modified_gmt":"2019-04-29T15:19:08","slug":"individual-with-lgmd-hasan","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2019\/04\/29\/individual-with-lgmd-hasan\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Hasan"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"SPOT I\u015eI\u011eI R\u00d6PORTAJI\"<\/strong><\/p>\n\n\n\n

\u0130sim<\/strong>: Hasan \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0YA\u015e<\/strong>: 34 ya\u015f\u0131nda<\/p>\n\n\n\n

\u00dclke<\/strong>: Pakistan<\/p>\n\n\n\n

LGMD Alt Tipi<\/strong>:\nBilinmiyor<\/p>\n\n\n\n

Ka\u00e7 ya\u015f\u0131nda te\u015fhis konuldu?<\/strong>:<\/p>\n\n\n\n

Bana 19 ya\u015f\u0131ndayken te\u015fhis konuldu.<\/p>\n\n\n\n

\u0130lk belirtileriniz neydi?<\/strong>:<\/p>\n\n\n\n

A\u011fr\u0131 ve kramplar hissetmeye ba\u015flad\u0131, y\u00fcr\u00fcmeye ba\u015flad\u0131, omurga\ne\u011frilik ....<\/p>\n\n\n\n

LGMD hastas\u0131 olan ba\u015fka aile \u00fcyeleriniz var m\u0131?<\/strong><\/p>\n\n\n\n

Evet, iki k\u0131z ve bir erkek karde\u015fimde de bu durum var<\/p>\n\n\n\n

En b\u00fcy\u00fck zorluklar olarak neleri g\u00f6r\u00fcyorsunuz?\nLGMD ile ya\u015famda<\/strong>:<\/p>\n\n\n\n

Ba\u011f\u0131ms\u0131z ya\u015fam\u0131 kaybetmek bence en b\u00fcy\u00fc\u011f\u00fc.\nhayat\u0131mdaki zorluklar. As\u0131l \u00f6nemli olan, \u00fclkemdeki yerlerin \u00e7o\u011funlukla\ntekerlekli sandalye kullan\u0131yorum ve insanlar hep \u00e7ocuk felci ge\u00e7irdi\u011fimi d\u00fc\u015f\u00fcn\u00fcyor. Yine de, ben\neskiden bir\u00e7ok \u015fey yapt\u0131\u011f\u0131m g\u00fcnleri d\u00fc\u015f\u00fcn\u00fcyorum, \u015fimdi bunlar\u0131 yapam\u0131yorum\nbenim i\u00e7in ger\u00e7ekten berbat. <\/p>\n\n\n\n

\u0130nsanlar benim ihtiya\u00e7lar\u0131m\u0131 ve gereksinimlerimi anlam\u0131yor\nhayat\u0131n g\u00fcnl\u00fck ak\u0131\u015f\u0131. Bu nedenle onlara rehberlik etmeliyiz.<\/p>\n\n\n\n

En b\u00fcy\u00fck ba\u015far\u0131n\u0131z nedir?<\/strong>:<\/p>\n\n\n\n

Benim bak\u0131\u015f a\u00e7\u0131ma g\u00f6re, \u015fu anda hayal etti\u011fim bir i\u015fim var.\nve \u015fimdi i\u015fimi \u00e7ok seviyorum. Neredeyse semptomlara ba\u015flad\u0131m\n\u00e7al\u0131\u015fmalar\u0131m\u0131 tamamlamak \u00fczereyim. Bu y\u00fczden, san\u0131r\u0131m bu\nhayat\u0131mdaki ba\u015far\u0131.<\/p>\n\n\n\n

LGMD sizi nas\u0131l etkiledi?\nBug\u00fcn oldu\u011fun ki\u015fi:<\/strong><\/p>\n\n\n\n

D\u00fcr\u00fcst olmak gerekirse, beni o kadar de\u011fi\u015ftirdi ki\nt\u00fcm hayat\u0131m boyunca. Bu durumun te\u015fhisi konulduktan sonra \u00e7ok \u015fey \u00f6\u011frendim ve\nKabullen. \u015eu anda hayat\u0131mdaki ana unsurlardan biri sab\u0131rl\u0131 olmak. <\/p>\n\n\n\n

D\u00fcnyan\u0131n LGMD hakk\u0131nda ne bilmesini istersiniz?<\/strong>:<\/p>\n\n\n\n

L\u00fctfen bizi yarg\u0131lamak yerine hastal\u0131\u011f\u0131m\u0131z\u0131 anlamaya \u00e7al\u0131\u015f\u0131n.\nHayat g\u00fczeldir ve sadece bir kez geliriz. Bu y\u00fczden her g\u00fcn\u00fcn tad\u0131n\u0131 \u00e7\u0131kar\u0131n ve kendinizi k\u00f6t\u00fc hissetmeyin.\nya da ne oldu\u011fun i\u00e7in seni a\u015fa\u011f\u0131lar. <\/p>\n\n\n\n

Bizimle ilgili soru sormaktan \u00e7ekinmeyin.<\/p>\n\n\n\n

LGMD hastal\u0131\u011f\u0131n\u0131z yar\u0131n \"tedavi\" edilebilseydi, ne olurdu?\nyapmak isteyece\u011finiz ilk \u015fey<\/strong>:<\/p>\n\n\n\n

S\u00fcrpriz yapmak i\u00e7in yak\u0131n aile \u00fcyelerimi g\u00f6rmek istiyorum\ntekrar y\u00fcr\u00fcmeye ba\u015flayabilece\u011fimi s\u00f6ylediler. <\/p>\n\n\n\n

Daha fazlas\u0131n\u0131 okumak i\u00e7in \"LGMD Spotlight\nR\u00f6portajlar\" veya yakla\u015fan bir r\u00f6portajda yer almak i\u00e7in g\u00f6n\u00fcll\u00fc olmak,\nl\u00fctfen web sitemizi ziyaret edin: https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 \u00a0\u00a0\u00a0 Hasan \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0AGE:\u00a0\u00a0 34 years old […]<\/p>","protected":false},"author":1,"featured_media":2723,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[],"class_list":["post-2722","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Hasan - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2019\/04\/29\/individual-with-lgmd-hasan\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Hasan - 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