{"id":3220,"date":"2020-02-26T12:54:04","date_gmt":"2020-02-26T18:54:04","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3220"},"modified":"2024-02-09T14:24:40","modified_gmt":"2024-02-09T14:24:40","slug":"chuck","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Chuck"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"Spotlight R\u00f6portaj\u0131\"<\/h2>\n\n\n\n

\u0130sim<\/strong>: Chuck\n                 Ya\u015f<\/strong>: 63 ya\u015f\u0131nda<\/p>\n\n\n\n

\u00dclke<\/strong>: Kanada<\/p>\n\n\n\n

LGMD Alt Tipi<\/strong>: LGMD\n2L\/R12 Anoktamin5 ile ili\u015fkili<\/p>\n\n\n\n

Ka\u00e7 ya\u015f\u0131nda te\u015fhis konuldu?<\/strong>?  <\/p>\n\n\n\n

 Bana te\u015fhis konuldu.\n50 ya\u015f\u0131na kadar.<\/p>\n\n\n\n

\u0130lk BEL\u0130RT\u0130LER\u0130N\u0130Z nelerdi?<\/strong>   <\/p>\n\n\n\n

Fel\u00e7 nedeniyle hastaneye gitti\u011fimde doktorlar\nS\u0131rt\u0131mdaki t\u00fcm kaslar\u0131n gitti\u011fini ve kemiklerin \u00e7\u0131k\u0131nt\u0131 yapt\u0131\u011f\u0131n\u0131 fark ettim.<\/p>\n\n\n\n

LGMD hastas\u0131 olan ba\u015fka aile \u00fcyeleriniz var m\u0131?   <\/strong><\/p>\n\n\n\n

Hay\u0131r, ailemde LGMD'li olan tek ki\u015fi benim.<\/p>\n\n\n\n

En b\u00fcy\u00fck zorluklar olarak neleri g\u00f6r\u00fcyorsunuz?\nLGMD ile ya\u015famda<\/strong>?  <\/p>\n\n\n\n

En b\u00fcy\u00fck zorluk kendimi zay\u0131flam\u0131\u015f g\u00f6rmek ve daha az \u015fey yapmak zorunda kalmak.\nfaaliyetler.<\/strong><\/p>\n\n\n\n

En b\u00fcy\u00fck BA\u015eARINIZ nedir?<\/strong>   <\/p>\n\n\n\n

Torunlar\u0131m\u0131n yan\u0131 s\u0131ra, bir d\u0131\u015f cephe kaplama uzman\u0131yd\u0131m ve\nD.Y.I. kurulumu i\u00e7in \u00f6l\u00e7\u00fcm k\u0131lavuzu art\u0131k Kuzey Amerika i\u00e7in standartt\u0131r.\nAmerika. Ayr\u0131ca, bir siding & shingle\ntasarlad\u0131\u011f\u0131m ve in\u015fa etti\u011fim ekran Kuzey'deki her Home Depot'a kuruldu.\nAmerika'ya.  <\/p>\n\n\n\n

Masa tak\u0131m\u0131mla MD i\u00e7in para ve fark\u0131ndal\u0131k yarat\u0131yorum\nups. Her y\u0131l genellikle yakla\u015f\u0131k\n$12,000.00<\/p>\n\n\n\n

Ayn\u0131 zamanda Londra, Ontario'daki\nMusk\u00fcler Distrofi 4 y\u0131ld\u0131r. <\/p>\n\n\n\n

LGMD sizi nas\u0131l etkiledi?\nBug\u00fcn oldu\u011fun ki\u015fi?   <\/strong><\/p>\n\n\n\n

Eskiden yapabildi\u011fim \u015feylere kat\u0131lamamak\nkendimi yeniden ke\u015ffetmem gerekiyordu. Bir kullan\u0131m g\u00f6rd\u00fcm\ntasar\u0131m ve pazarlama becerilerim i\u00e7in ve \u015fimdi MDC i\u00e7in her y\u0131l $12,000 topluyorum Bir fark yaratabilmekten ve\nfark\u0131ndal\u0131\u011f\u0131n\u0131 art\u0131r\u0131yor ve bunu \u00e7ok \u00f6d\u00fcllendirici buluyor. \n<\/p>\n\n\n\n

D\u00fcnyan\u0131n LGMD hakk\u0131nda ne bilmesini istersiniz?<\/strong>?<\/p>\n\n\n\n

Bacak kaslar\u0131na sald\u0131rd\u0131\u011f\u0131n\u0131 1st<\/sup>. Kal\u0131tsal bir kas hastal\u0131\u011f\u0131 oldu\u011funu. <\/p>\n\n\n\n

Bir\u00e7ok yerin insanlar i\u00e7in ne kadar eri\u015filmez oldu\u011funu \u00f6\u011frendim.\n\u00c7\u00fcnk\u00fc basamaklar\u0131 var.<\/p>\n\n\n\n

LGMD hastal\u0131\u011f\u0131n\u0131z yar\u0131n \"tedavi\" edilebilseydi, ne olurdu?\nyapmak isteyece\u011finiz ilk \u015fey ne olurdu?<\/strong><\/p>\n\n\n\n

Yar\u0131n iyile\u015fecek olsam, bir t\u00fcpl\u00fc dal\u0131\u015f gezisi ayarlard\u0131m.\nAvustralya.<\/p>","protected":false},"excerpt":{"rendered":"

LGMD “Spotlight Interview” Name:     Chuck                  Age:  63 years old […]<\/p>","protected":false},"author":1,"featured_media":3221,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,49],"tags":[],"class_list":["post-3220","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2l"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Chuck - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Chuck - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD “Spotlight Interview” Name:     Chuck                  Age:  63 years old […]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2020-02-26T18:54:04+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-09T14:24:40+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"dooley\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\"},\"author\":{\"name\":\"dooley\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/007755074875959ad5503c1c969678c7\"},\"headline\":\"INDIVIDUAL WITH LGMD: Chuck\",\"datePublished\":\"2020-02-26T18:54:04+00:00\",\"dateModified\":\"2024-02-09T14:24:40+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/\"},\"wordCount\":378,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2020\/02\/26\/chuck\/#primaryimage\"},\"thumbnailUrl\":\"\",\"articleSection\":[\"Individuals with LGMD - 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