{"id":3256,"date":"2020-05-07T19:03:28","date_gmt":"2020-05-08T00:03:28","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3256"},"modified":"2024-02-09T14:24:38","modified_gmt":"2024-02-09T14:24:38","slug":"denise","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2020\/05\/07\/denise\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Denise"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"Spotlight R\u00f6portaj\u0131\"<\/strong><\/p>\n\n\n\n

\u0130S\u0130M<\/strong>: Denise                                  YA\u015e<\/strong>: 49<\/p>\n\n\n\n

\u00dcLKE<\/strong>: Yeni Zelanda<\/p>\n\n\n\n

LGMD ALT T\u0130P\u0130<\/strong>: LGMD 2A\/R1 Calpain3 ile ili\u015fkili<\/p>\n\n\n\n

KA\u00c7 YA\u015eINDA TE\u015eHIS KONULDU?<\/strong>:<\/p>\n\n\n\n

 Bana 18 ya\u015f\u0131ndayken LGMD te\u015fhisi konuldu ve 39 ya\u015f\u0131ndayken LGMD 2A\/R1 tan\u0131s\u0131 do\u011fruland\u0131.<\/p>\n\n\n\n

\u0130LK BELIRTILERINIZ NEYDI?<\/strong>:<\/p>\n\n\n\n

\u0130lk belirtilerim ko\u015farken ve merdiven \u00e7\u0131karken ya\u015fad\u0131\u011f\u0131m zorluklard\u0131.<\/p>\n\n\n\n

LGMD HASTASI OLAN BA\u015eKA AI\u0307LE \u00dcYELERI\u0307NI\u0307Z VAR MI?<\/strong>:<\/p>\n\n\n\n

Hay\u0131r, LGMD'li tek aile \u00fcyesi benim.<\/p>\n\n\n\n

LGMD I\u0307LE YA\u015eARKEN KAR\u015eILA\u015eTI\u011eINIZ EN B\u00dcY\u00dcK ZORLUKLARIN NELER OLDU\u011eUNU D\u00dc\u015e\u00dcN\u00dcYORSUNUZ?<\/strong>:<\/p>\n\n\n\n

En b\u00fcy\u00fck zorluklar\u0131m kol g\u00fcc\u00fcm\u00fc kaybetmek, se\u00e7eneklerimin elimden al\u0131nmas\u0131 ve ba\u011f\u0131ms\u0131zl\u0131\u011f\u0131m\u0131 kaybetmek ve temel i\u015flevler i\u00e7in ba\u015fkalar\u0131na g\u00fcvenmek zorunda kalmak oldu.<\/p>\n\n\n\n

EN B\u00dcY\u00dcK BA\u015eARINIZ NEDIR<\/strong>:<\/p>\n\n\n\n

En b\u00fcy\u00fck ba\u015far\u0131m iki g\u00fczel k\u0131z\u0131m\u0131n (20 ve 16) olmas\u0131.<\/p>\n\n\n\n

LGMD BUG\u00dcN OLDU\u011eUNUZ KI\u0307\u015eI\u0307YE D\u00d6N\u00dc\u015eMENI\u0307ZDE SI\u0307ZI\u0307 NASIL ETKI\u0307LEDI\u0307?<\/strong>:<\/p>\n\n\n\n

Bu duruma ra\u011fmen dolu dolu bir hayat ya\u015f\u0131yorum. Tam zamanl\u0131 \u00e7al\u0131\u015fmaya, seyahat etmeye ve elimden geldi\u011fince \u00e7ok \u015fey yapmaya devam ediyorum. Bu durumun hayatta ba\u015farmak istedi\u011fim \u015feyleri etkilemesine izin vermemeye \u00e7al\u0131\u015f\u0131yorum. Yeterince kararl\u0131ysan\u0131z her zaman bir yol vard\u0131r.<\/p>\n\n\n\n

D\u00dcNYANIN LGMD HAKKINDA NE BI\u0307LMESI\u0307NI\u0307 I\u0307STI\u0307YORSUNUZ<\/strong>:<\/p>\n\n\n\n

LGMD, sizi temel insani i\u015flevlerinizden mahrum b\u0131rakan ilerleyici ve zay\u0131flat\u0131c\u0131 bir hastal\u0131kt\u0131r. Bu hastal\u0131\u011fa sahip ki\u015filer, inan\u0131lmaz zorluklar kar\u015f\u0131s\u0131nda inan\u0131lmaz derecede g\u00fc\u00e7l\u00fcd\u00fcr.<\/p>\n\n\n\n

LGMD HASTALI\u011eINIZ YARIN \"TEDAVI\u0307\" EDI\u0307LEBI\u0307LECEK OLSA, YAPMAK I\u0307STEYECE\u011eI\u0307NI\u0307Z I\u0307LK \u015eEY NE OLURDU<\/strong>:<\/p>\n\n\n\n

E\u011fer LGMD hastal\u0131\u011f\u0131m yar\u0131n tedavi edilseydi, sahilde y\u00fczerdim!<\/p>\n\n\n\n

* * * Daha fazla \"LGMD Spotlight R\u00f6portaj\u0131\" okumak veya gelecek bir r\u00f6portajda yer almak i\u00e7in g\u00f6n\u00fcll\u00fc olmak i\u00e7in l\u00fctfen web sitemizi ziyaret edin: http:\/\/lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSpotlight Interview\u201d NAME:  Denise                                  AGE: 49 COUNTRY: New […]<\/p>","protected":false},"author":1,"featured_media":3260,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[],"class_list":["post-3256","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Denise - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2020\/05\/07\/denise\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Denise - 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