{"id":3332,"date":"2020-07-07T21:55:22","date_gmt":"2020-07-08T02:55:22","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=3332"},"modified":"2024-02-09T14:24:36","modified_gmt":"2024-02-09T14:24:36","slug":"individual-with-lgmd-eric","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2020\/07\/07\/individual-with-lgmd-eric\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Eric"},"content":{"rendered":"
\"\"<\/figure><\/div>\n\n\n\n

LGMD \"SPOT I\u015eI\u011eI R\u00d6PORTAJI\" <\/strong><\/p>\n\n\n\n

\u0130sim<\/strong>: Eric\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Ya\u015f<\/strong>: 23 yrs. old<\/p>\n\n\n\n

\u00dclke<\/strong>: ABD   <\/p>\n\n\n\n

LGMD Alt Tipi<\/strong>: LGMD 2B\/R2 Dysferlin ile ili\u015fkili<\/p>\n\n\n\n

Ka\u00e7 ya\u015f\u0131nda te\u015fhis konuldu?<\/strong>:<\/p>\n\n\n\n

\u0130ki ya\u015f\u0131ndayken bana yanl\u0131\u015fl\u0131kla Kas Miyopotisi te\u015fhisi konmu\u015f. Yirmi y\u0131l sonra, bana do\u011fru bir \u015fekilde LGMD te\u015fhisi kondu.                                 <\/p>\n\n\n\n

\u0130lk belirtileriniz neydi?<\/strong>:<\/p>\n\n\n\n

\u0130lk belirtilerim konu\u015fmamda gecikme, k\u00f6t\u00fc y\u00fcr\u00fcme ve hareketsiz oturamama oldu.<\/p>\n\n\n\n

LGMD hastas\u0131 olan ba\u015fka aile \u00fcyeleriniz var m\u0131?<\/strong>:<\/strong><\/p>\n\n\n\n

Hay\u0131r, ailemde LGMD'li olan tek ki\u015fi benim.<\/p>\n\n\n\n

LGMD ile ya\u015faman\u0131n en b\u00fcy\u00fck zorluklar\u0131n\u0131n ne oldu\u011funu d\u00fc\u015f\u00fcn\u00fcyorsunuz?<\/strong>:<\/p>\n\n\n\n

Bir s\u00fcr\u00fc zorluk var, \u015fu anda benim i\u00e7in en b\u00fcy\u00fck zorluk merdivenlerden \u00e7\u0131kmak.<\/p>\n\n\n\n

En b\u00fcy\u00fck ba\u015far\u0131n\u0131z nedir?<\/strong>:<\/p>\n\n\n\n

En b\u00fcy\u00fck ba\u015far\u0131m, Deletethewordcant adl\u0131 kar amac\u0131 g\u00fctmeyen kurulu\u015fumu olu\u015fturmak ve kaydettirmek olacakt\u0131r. Ve psikoloji alan\u0131nda y\u00fcksek lisans yap\u0131yorum.<\/p>\n\n\n\n

LGMD bug\u00fcn oldu\u011funuz ki\u015fi olman\u0131zda sizi nas\u0131l etkiledi?<\/strong>:<\/strong><\/p>\n\n\n\n

Beni etkiledi \u00e7\u00fcnk\u00fc okulla, zorbalarla, g\u00fcnl\u00fck aktivitelerle ve \u00e7ok daha fazlas\u0131yla daha g\u00fc\u00e7l\u00fc ve sert olmak zorundayd\u0131m.<\/p>\n\n\n\n

D\u00fcnyan\u0131n LGMD hakk\u0131nda ne bilmesini istersiniz?<\/strong>:<\/p>\n\n\n\n

D\u00fcnya \u015funu bilmeli ki LGMD hastas\u0131 olsan\u0131z da olmasan\u0131z da her zaman kendinize inan\u0131n. Ayr\u0131ca, baz\u0131 \u015feylerde zorlanabilirsiniz veya daha fazla zaman alabilir, ancak asla pes etmeyin. Her zaman YAPAB\u0130L\u0130R\u0130M deyin!<\/p>\n\n\n\n

LGMD hastal\u0131\u011f\u0131n\u0131z yar\u0131n \"tedavi edilebilseydi\", yapmak isteyece\u011finiz ilk \u015fey ne olurdu?<\/strong>:<\/p>\n\n\n\n

Yar\u0131n tedavi olsayd\u0131m, en y\u00fcksek da\u011f\u0131n tepesine t\u0131rman\u0131rd\u0131m.<\/p>\n\n\n\n

Daha fazla \"LGMD Spotlight R\u00f6portaj\u0131\" okumak veya gelecek bir r\u00f6portajda yer almak i\u00e7in g\u00f6n\u00fcll\u00fc olmak i\u00e7in l\u00fctfen web sitemizi ziyaret edin: http:\/\/lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d  Name: Eric\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Age:\u00a0 23 yrs. old Country:  […]<\/p>","protected":false},"author":1,"featured_media":3333,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[],"class_list":["post-3332","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Eric - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2020\/07\/07\/individual-with-lgmd-eric\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Eric - 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