{"id":413,"date":"2015-01-12T22:03:55","date_gmt":"2015-01-13T04:03:55","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=141"},"modified":"2015-01-12T22:03:55","modified_gmt":"2015-01-13T04:03:55","slug":"irina","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/01\/12\/irina\/","title":{"rendered":"INDIVIDUAL WITH LGMD: Irina"},"content":{"rendered":"

01\/12\/2015:<\/p>\n

\u0130S\u0130M<\/strong>: Irina\u00a0 \"LGMD2A<\/a> <\/span><\/p>\n

YA\u015e<\/strong>: 18
\n<\/span><\/p>\n

\u00dcLKE:<\/strong> Fransa
\n<\/span><\/p>\n

LGMD Alt Tip:<\/strong> LGMD 2A \/ Calpainopathy<\/span><\/p>\n

KA\u00c7 YA\u015eINDA TE\u015eHIS KONULDU?<\/strong> When I was 14 years old.<\/p>\n

\u0130LK BELIRTILERINIZ NEYDI?<\/strong>
\nThe first symptom that I experienced was having difficulty running.<\/p>\n

DO YOU HAVE OTHER FAMILY MEMBERS WHO HAVE LGMD: No. <\/strong>
\n LGMD I\u0307LE YA\u015eARKEN KAR\u015eILA\u015eTI\u011eINIZ EN B\u00dcY\u00dcK ZORLUKLARIN NELER OLDU\u011eUNU D\u00dc\u015e\u00dcN\u00dcYORSUNUZ:<\/strong>
\nStairs\u2026there are just so many of them! Also, not knowing if people feel sympathy or just pity.<\/p>\n

EN B\u00dcY\u00dcK BA\u015eARINIZ NEDIR?<\/strong>
\nI was able to get to the top of the Cathedral Santa Maria del Fiore famously known as \u201cThe Duomo\u201d in Italy. It has 465 grueling steps to the top! But better than that, the greatest accomplishment of mine is to stay happy and keep smiling no matter what.<\/p>\n

LGMD BUG\u00dcN OLDU\u011eUNUZ KI\u015eI OLMANIZDA SIZI NASIL ETKILEDI?<\/strong>
\nKnowing that I have LGMD has made me grow up or to be more mature for my age. I have become calm and relaxed by not letting the little things bother me. I also find that I worry less \u2013 only about what is important. I don\u2019t have time to worry about trifles.<\/p>\n

D\u00dcNYANIN LGMD HAKKINDA NE BI\u0307LMESI\u0307NI\u0307 I\u0307STI\u0307YORSUNUZ<\/strong>:
\nI want people to know that the disease of LGMD exists! That just because someone has trouble running \u2013 don\u2019t call them lazy. Also, if a girl uses a walking stick it is probably because she needs it – it is not about looking good!<\/p>\n

LGMD HASTALI\u011eINIZ YARIN \"TEDAVI\u0307\" EDI\u0307LEBI\u0307LECEK OLSA, YAPMAK I\u0307STEYECE\u011eI\u0307NI\u0307Z I\u0307LK \u015eEY NE OLURDU<\/strong>:
\nTo run after the bus that I just missed!<\/p>","protected":false},"excerpt":{"rendered":"

01\/12\/2015: NAME: Irina\u00a0 AGE: 18 COUNTRY: France LGMD Sub-Type: LGMD […]<\/p>","protected":false},"author":1,"featured_media":144,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[12,18,15],"class_list":["post-413","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-calpainopathy","tag-france","tag-lgmd2a"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Irina<\/title>\n<meta name=\"description\" content=\"Irina, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/01\/12\/irina\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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