{"id":417,"date":"2015-02-18T14:59:09","date_gmt":"2015-02-18T20:59:09","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=282"},"modified":"2015-02-18T14:59:09","modified_gmt":"2015-02-18T20:59:09","slug":"282","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Suzanne"},"content":{"rendered":"

\u00a002\/18\/2015:<\/span><\/p>\n

ADI: Suzanne \"LGMD2B<\/a><\/span><\/p>\n

YA\u015e: 45
\n<\/span><\/p>\n

\u00dcLKE: \u0130ngiltere
\n<\/span><\/p>\n

LGMD Alt Tipi: LGMD2B - Miyoshi Varyant\u0131
\n
\nKA\u00c7 YA\u015eINDA TE\u015eHIS KONULDU?
\nYakla\u015f\u0131k 29 ya\u015f\u0131ndayken do\u011fru te\u015fhis konuldu.<\/span><\/span><\/p>\n

\u0130LK BELIRTILERINIZ NEYDI?
\nParmak u\u00e7lar\u0131mda duram\u0131yordum.<\/p>\n

LGMD'L\u0130 BA\u015eKA A\u0130LE \u00dcYELER\u0130N\u0130Z VAR MI: Hay\u0131r<\/p>\n

LGMD I\u0307LE YA\u015eARKEN KAR\u015eILA\u015eTI\u011eINIZ EN B\u00dcY\u00dcK ZORLUKLARIN NELER OLDU\u011eUNU D\u00dc\u015e\u00dcN\u00dcYORSUNUZ:
\nEn b\u00fcy\u00fck zorluk, yapmak istedi\u011fim her \u015feyi yapacak enerjiyi bulmak. Sandalyeden kalkmak gibi bir \u015feyin bile \u00e7ok zor bir i\u015f oldu\u011funu g\u00f6r\u00fcyorum.<\/p>\n

EN B\u00dcY\u00dcK BA\u015eARINIZ NEDIR?
\nEn b\u00fcy\u00fck ba\u015far\u0131m evlenmek ve iki harika \u00e7ocu\u011fa sahip olmak. Ayr\u0131ca Sailability ile tekne kullanmay\u0131 \u00f6\u011frendim ve tekerlekli sandalyemle buz pateni yap\u0131yorum!<\/p>\n

LGMD BUG\u00dcN OLDU\u011eUNUZ KI\u015eI OLMANIZDA SIZI NASIL ETKILEDI?
\nAile ve arkada\u015flar gibi hayatta ger\u00e7ekten \u00f6nemli olan \u015feylerin fark\u0131na varmama ve her zaman sizden daha k\u00f6t\u00fc durumda olan insanlar oldu\u011fu i\u00e7in sahip olduklar\u0131m\u0131n k\u0131ymetini bilmeme yard\u0131mc\u0131 oldu.<\/p>\n

D\u00dcNYANIN LGMD HAKKINDA NE B\u0130LMES\u0130N\u0130 \u0130ST\u0130YORSUNUZ: \u015eu anda LGMD 2B Miyoshi i\u00e7in herhangi bir tedavi veya iyile\u015ftirme bulunmamaktad\u0131r. Jain Vakf\u0131 \u015fu anda hastal\u0131k hakk\u0131nda daha fazla bilgi edinmek ve tedavi veya bir \u00e7are bulmaya \u00e7al\u0131\u015fmak i\u00e7in klinik \u00e7al\u0131\u015fmalara ve ara\u015ft\u0131rmalara yard\u0131mc\u0131 oluyor!<\/p>\n

LGMD HASTALI\u011eINIZ YARIN \"TEDAVI\u0307\" EDI\u0307LEBI\u0307LECEK OLSA, YAPMAK I\u0307STEYECE\u011eI\u0307NI\u0307Z I\u0307LK \u015eEY NE OLURDU?
\n\u00c7ocuklar\u0131ma \"tam anlam\u0131yla\" sar\u0131l\u0131r, yolda ko\u015far ve dans dersleri al\u0131rd\u0131m.<\/p>","protected":false},"excerpt":{"rendered":"

\u00a002\/18\/2015: NAME: Suzanne AGE: 45 COUNTRY: England LGMD Sub-Type: LGMD2B […]<\/p>","protected":false},"author":1,"featured_media":283,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[26,23,27],"class_list":["post-417","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-england","tag-lgmd2b","tag-miyoshi-variant"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Suzanne<\/title>\n<meta name=\"description\" content=\"Suzanne, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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