{"id":496,"date":"2015-03-31T08:45:20","date_gmt":"2015-03-31T13:45:20","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=496"},"modified":"2015-03-31T08:45:20","modified_gmt":"2015-03-31T13:45:20","slug":"496","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/03\/31\/496\/","title":{"rendered":"INDIVIDUAL WITH LGMD: Eva"},"content":{"rendered":"

03\/31\/2015<\/p>\n

Name:\u00a0 Eva\u00a0\u00a0 \u00a0Age: 33 Yrs. Old\"Unknown<\/a><\/p>\n

Country:\u00a0 Kenya<\/p>\n

LGMD Sub-Type :\u00a0 Unknown<\/p>\n

KA\u00c7 YA\u015eINDA TE\u015eHIS KONULDU?\u00a0<\/strong><\/p>\n

Bana 14 ya\u015f\u0131mda te\u015fhis konuldu.<\/p>\n

\u0130LK BELIRTILERINIZ NEYDI?<\/strong>:<\/p>\n

I had difficulty running fast and raising my hand up with ease. I was never able also to bend and sweep the floor properly when it came to doing house chores.<\/p>\n

LGMD HASTASI OLAN BA\u015eKA AI\u0307LE \u00dcYELERI\u0307NI\u0307Z VAR MI?<\/strong>:<\/p>\n

No. I am the only one with muscular dystrophy in our family.<\/p>\n

LGMD I\u0307LE YA\u015eARKEN KAR\u015eILA\u015eTI\u011eINIZ EN B\u00dcY\u00dcK ZORLUKLARIN NELER OLDU\u011eUNU D\u00dc\u015e\u00dcN\u00dcYORSUNUZ?<\/strong>:<\/p>\n

My muscles are getting weaker by the day and that means my level of dependency is also increasing. It\u2019s hard for me to keep a personal caregiver because most of them do not have the heart, they start complaining just weeks after being employed. I am grateful for the support I get from my husband and relatives who show up to keep my house clean and assist in any way possible.<\/p>\n

EN B\u00dcY\u00dcK BA\u015eARINIZ NEDIR<\/strong>:<\/p>\n

Getting married and starting a family with my husband, \u00a0Creating awareness about Muscular Dystrophy in Kenya. Many people are now aware of the condition and are glad to have started because I have met more people in the country with the same condition through Muscular Dystrophy Awareness of Kenya and hoping still to do more.<\/p>\n

LGMD BUG\u00dcN OLDU\u011eUNUZ KI\u015eI OLMANIZDA SIZI NASIL ETKILEDI?<\/strong><\/p>\n

Because of\u00a0 LGMD I think I have to plan my days in advance, I cannot just wake up in the morning and say, today am going out simply because transport has to be arranged, I must have an escort e.t.c. I am also very optimistic of the future and my life is influenced much with my Christian beliefs.<\/p>\n

D\u00dcNYANIN LGMD HAKKINDA NE BI\u0307LMESI\u0307NI\u0307 I\u0307STI\u0307YORSUNUZ?<\/strong><\/p>\n

A diagnosis of LGMD\u00a0 is not a death sentence, you can live your life to the fullest doing what you can at the time. LGMD weakens your muscles but it shouldn’t weaken your spirit. People living with LGMD can work and employers should not shy away from employing us. With the research work going on, plus the trials a cure for muscular dystrophy is in the horizon, I hope it gets here sooner.\u00a0\u00a0<\/strong><\/p>\n

LGMD HASTALI\u011eINIZ YARIN \"TEDAVI\u0307\" EDI\u0307LEBI\u0307LECEK OLSA, YAPMAK I\u0307STEYECE\u011eI\u0307NI\u0307Z I\u0307LK \u015eEY NE OLURDU?<\/strong>
\nI would kneel down, raise my hands towards heaven and worship my God.<\/p>","protected":false},"excerpt":{"rendered":"

03\/31\/2015 Name:\u00a0 Eva\u00a0\u00a0 \u00a0Age: 33 Yrs. Old Country:\u00a0 Kenya LGMD […]<\/p>","protected":false},"author":1,"featured_media":497,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[34,33],"class_list":["post-496","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","tag-kenya","tag-unknown"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Eva<\/title>\n<meta name=\"description\" content=\"Eva, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/03\/31\/496\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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