{"id":5724,"date":"2022-05-09T21:26:35","date_gmt":"2022-05-09T21:26:35","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5724"},"modified":"2024-02-09T14:23:54","modified_gmt":"2024-02-09T14:23:54","slug":"individual-with-lgmd-buck","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/lgmd2l\/2022\/05\/09\/individual-with-lgmd-buck\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Buck"},"content":{"rendered":"

 <\/p>\n

\"\"<\/p>\n

\u0130sim<\/strong>: Buck<\/p>\n

Ya\u015f<\/strong>: 31 ya\u015f\u0131nda<\/p>\n

\u00dclke<\/strong>: Amerika Birle\u015fik Devletleri<\/p>\n

LGMD Alt Tipi<\/strong>: LGMD 2L \/ R12<\/p>\n

 <\/p>\n

Ka\u00e7 ya\u015f\u0131nda te\u015fhis konuldu?<\/strong>?<\/p>\n

Bana 28 ya\u015f\u0131mda te\u015fhis konuldu.<\/p>\n

\u0130lk BEL\u0130RT\u0130LER\u0130N\u0130Z nelerdi?<\/strong><\/p>\n

\u0130lk belirtilerim aras\u0131nda bacaklar\u0131mda g\u00fc\u00e7s\u00fczl\u00fck ve a\u011fr\u0131, merdiven \u00e7\u0131kmakta zorlanma ve yerden kalkmakta zorlanma vard\u0131.<\/p>\n

LGMD hastas\u0131 olan ba\u015fka aile \u00fcyeleriniz var m\u0131?<\/strong><\/p>\n

LGMD te\u015fhisi konmu\u015f bilinen bir akrabam yok.<\/p>\n

LGMD ile ya\u015faman\u0131n en b\u00fcy\u00fck zorluklar\u0131n\u0131n ne oldu\u011funu d\u00fc\u015f\u00fcn\u00fcyorsunuz?<\/strong>?<\/p>\n

Kronik a\u011fr\u0131, LGMD ile ya\u015fad\u0131\u011f\u0131m en b\u00fcy\u00fck zorluk.<\/p>\n

En b\u00fcy\u00fck BA\u015eARINIZ nedir?<\/strong><\/p>\n

H\u00e2l\u00e2 en b\u00fcy\u00fck ba\u015far\u0131m \u00fczerinde \u00e7al\u0131\u015f\u0131yorum ama \u015fimdilik odakland\u0131\u011f\u0131m \u00fc\u00e7 g\u00fczel \u00e7ocu\u011fum var.<\/p>\n

LGMD bug\u00fcn oldu\u011funuz ki\u015fi olman\u0131zda sizi nas\u0131l etkiledi?<\/strong><\/p>\n

Her zaman b\u00fcy\u00fck bir i\u015f ahlak\u0131na sahip oldum, akl\u0131ma koydu\u011fum \u015feyi her zaman ba\u015farabildim. Engelim nedeniyle i\u015fleri halletmek zor ama ben asla pes etmiyorum. Pozitif kalmay\u0131 ve ba\u015fkalar\u0131n\u0131 cesaretlendirmeyi ba\u015fard\u0131m.<\/p>\n

D\u00fcnyan\u0131n LGMD hakk\u0131nda ne bilmesini istersiniz?<\/strong>?<\/p>\n

D\u00fcnyan\u0131n bu hastal\u0131\u011f\u0131n hayat de\u011fi\u015ftirdi\u011fini ve zaman zaman son derece zor olabilece\u011fini bilmesini istiyorum. Ne yaz\u0131k ki LGMD i\u00e7in \u00e7ok fazla destek yok. Umar\u0131m fark\u0131ndal\u0131\u011f\u0131 art\u0131rmak, bu hastal\u0131kla ya\u015fayan insanlar i\u00e7in daha iyi deste\u011fe yol a\u00e7abilir.<\/p>\n

LGMD hastal\u0131\u011f\u0131n\u0131z yar\u0131n \"tedavi edilebilseydi\", yapmak isteyece\u011finiz ilk \u015fey ne olurdu?<\/strong>?<\/p>\n

E\u011fer yar\u0131n iyile\u015febilseydim, \u00e7ocuklar\u0131mla birlikte trambolin park\u0131na giderdim! Art\u0131k hayattaki k\u00fc\u00e7\u00fck \u015feylere de\u011fer veriyorum.<\/p>","protected":false},"excerpt":{"rendered":"

  Name:\u00a0 \u00a0\u00a0\u00a0 \u00a0Buck Age: \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a031 years old Country: \u00a0\u00a0Unites […]<\/p>","protected":false},"author":3,"featured_media":5725,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,49],"tags":[],"class_list":["post-5724","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2l"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Buck - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/tr\/lgmd2l\/2022\/05\/09\/individual-with-lgmd-buck\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Buck - 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