{"id":6061,"date":"2023-01-24T20:35:20","date_gmt":"2023-01-24T20:35:20","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=6061"},"modified":"2024-02-09T14:23:50","modified_gmt":"2024-02-09T14:23:50","slug":"individual-with-lgmd-heather","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2023\/01\/24\/individual-with-lgmd-heather\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Heather"},"content":{"rendered":"

\"<\/p>\n

\u0130sim<\/strong>: Heather<\/p>\n

Ya\u015f<\/strong>: 60 ya\u015f\u0131nda<\/p>\n

\u00dclke<\/strong>: ABD<\/p>\n

LGMD Alt Tipi<\/strong>: LGMD2A\/R1 calpain 3 ile ili\u015fkili<\/p>\n

Ka\u00e7 ya\u015f\u0131nda te\u015fhis konuldu?<\/strong>?<\/p>\n

Bana 30 ya\u015f\u0131mda te\u015fhis konuldu.<\/p>\n

\u0130lk BEL\u0130RT\u0130LER\u0130N\u0130Z nelerdi?<\/strong><\/p>\n

\u0130lk belirtilerim aras\u0131nda yan yan y\u00fcr\u00fcmek, merdiven \u00e7\u0131kmakta zorlanmak ve d\u00fc\u015fmek vard\u0131.<\/p>\n

LGMD hastas\u0131 olan ba\u015fka aile \u00fcyeleriniz var m\u0131?<\/strong><\/p>\n

Hay\u0131r, ailemde LGMD hastas\u0131 olan tek ki\u015fi benim.<\/p>\n

LGMD ile ya\u015faman\u0131n en b\u00fcy\u00fck zorluklar\u0131n\u0131n ne oldu\u011funu d\u00fc\u015f\u00fcn\u00fcyorsunuz?<\/strong>?<\/p>\n

Benim i\u00e7in en b\u00fcy\u00fck zorluk, yard\u0131m almadan m\u00fcmk\u00fcn oldu\u011funca ba\u011f\u0131ms\u0131z kalabilmek. \u015eimdiye kadar bunu ba\u015fard\u0131m.<\/p>\n

En b\u00fcy\u00fck ba\u015far\u0131n\u0131z nedir?<\/strong><\/p>\n

En b\u00fcy\u00fck ba\u015far\u0131lar\u0131m iki \u00e7ocu\u011fum, ba\u011f\u0131ms\u0131z olarak ya\u015famaya devam etmek ve ak\u00fcl\u00fc tekerlekli sandalyemde otururken minib\u00fcs\u00fcm\u00fc s\u00fcrmek.<\/p>\n

LGMD bug\u00fcn oldu\u011funuz ki\u015fi olman\u0131zda sizi nas\u0131l etkiledi?<\/strong><\/p>\n

LGMD beni daha ba\u011f\u0131ms\u0131z ve pozitif bir insan haline getirerek etkiledi.<\/p>\n

D\u00fcnyan\u0131n LGMD hakk\u0131nda ne bilmesini istersiniz?<\/strong>?<\/p>\n

D\u00fcnyan\u0131n, tekerlekli sandalyede olsan\u0131z bile akl\u0131n\u0131za koyarsan\u0131z mutlu ve \"normal\" bir ya\u015fam tarz\u0131 s\u00fcrebilece\u011finizi bilmesini istiyorum. Ayr\u0131ca d\u00fcnyan\u0131n LGMD'nin beni \u00fczmesine izin vermedi\u011fimi bilmesini istiyorum. Her g\u00fcn\u00fcm\u00fc y\u00fcz\u00fcmde bir g\u00fcl\u00fcmsemeyle dolu dolu ya\u015f\u0131yorum.<\/p>\n

LGMD hastal\u0131\u011f\u0131n\u0131z yar\u0131n \"tedavi edilebilseydi\", yapmak isteyece\u011finiz ilk \u015fey ne olurdu?<\/strong>?<\/p>\n

Yar\u0131n iyile\u015fmi\u015f olsayd\u0131m, yapaca\u011f\u0131m ilk \u015fey o\u011flum ve k\u0131z\u0131mla bir maraton ko\u015fmak olurdu. Onlar benim d\u00fcnyam!<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":6062,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[82,70],"class_list":["post-6061","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Heather - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2023\/01\/24\/individual-with-lgmd-heather\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Heather - 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