{"id":701,"date":"2015-05-21T11:57:37","date_gmt":"2015-05-21T16:57:37","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=701"},"modified":"2015-05-21T11:57:37","modified_gmt":"2015-05-21T16:57:37","slug":"andrea","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/05\/21\/andrea\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Andrea"},"content":{"rendered":"

05\/21\/2015:<\/p>\n

 <\/p>\n

\u0130sim:<\/strong>\u00a0 Andrea \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 Ya\u015f<\/strong>: 17 yrs. old\"LGMD1B<\/a><\/p>\n

\u00dclke<\/strong>: Norway<\/p>\n

LGMD Alt Tipi<\/strong>: LGMD 1B \/ Laminopathy<\/p>\n

Ka\u00e7 ya\u015f\u0131nda te\u015fhis konuldu?<\/strong>:<\/p>\n

I was about 6 months old when they discovered that something was wrong, but it wasn\u2019t until I was about 2 years old that they decided it was muscle dystrophy. I have probably had the disease my whole life. I was 7 years old when I got the diagnosis LGMD 1B.<\/p>\n

\u0130lk belirtileriniz neydi?<\/strong>:<\/p>\n

I couldn\u2019t hold my head up when I started sitting on my own.<\/p>\n

LGMD hastas\u0131 olan ba\u015fka aile \u00fcyeleriniz var m\u0131?<\/strong><\/p>\n

No, I am the only one with LGMD in my family. Both my parents have been tested and the results showed that I didn\u2019t inherit it, it was from a mutation.<\/p>\n

LGMD ile ya\u015faman\u0131n en b\u00fcy\u00fck zorluklar\u0131n\u0131n ne oldu\u011funu d\u00fc\u015f\u00fcn\u00fcyorsunuz?<\/strong>:<\/p>\n

The greatest challenges are that I can\u2019t do anything on my own. I need help with practically everything, like getting dressed, getting in and out of bed, and picking up stuff.<\/p>\n

En b\u00fcy\u00fck ba\u015far\u0131n\u0131z nedir?<\/strong>:<\/p>\n

My greatest accomplishment is my mind. How I have a positive look on everything.<\/p>\n

LGMD bug\u00fcn oldu\u011funuz ki\u015fi olman\u0131zda sizi nas\u0131l etkiledi?<\/strong><\/p>\n

It has made me appreciate the small pleasures and made me a very positive person.<\/p>\n

D\u00fcnyan\u0131n LGMD hakk\u0131nda ne bilmesini istersiniz?<\/strong>:<\/p>\n

I want the world to know that I am not chained to my wheelchair, the wheelchair is the most helpful aid I have. Without it I would be chained, it is my freedom. When some people see me they only see the wheelchair, the noise around me, and not me. The disease only affects my muscles and not my brain, I am a normal 17-year-old girl.<\/p>\n

LGMD hastal\u0131\u011f\u0131n\u0131z yar\u0131n \"tedavi edilebilseydi\", yapmak isteyece\u011finiz ilk \u015fey ne olurdu?<\/strong>:<\/p>\n

I would jump, run up and down the stairs, pick up things, do all the normal things I never have been able to do!<\/p>","protected":false},"excerpt":{"rendered":"

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