{"id":961,"date":"2015-07-22T13:35:05","date_gmt":"2015-07-22T18:35:05","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=961"},"modified":"2015-07-22T13:35:05","modified_gmt":"2015-07-22T18:35:05","slug":"leanne","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/22\/leanne\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Leanne"},"content":{"rendered":"<p>07\/22\/2015:<\/p>\n<p><strong>\u0130S\u0130M<\/strong>: Leanne <strong>YA\u015e<\/strong>: 50 ya\u015f\u0131nda<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/07\/LGMD2A-Leanne.png\"><img decoding=\"async\" class=\"lazyload  size-medium wp-image-962 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/07\/LGMD2A-Leanne-300x169.png\" alt=\"LGMD2A - Leanne\" width=\"300\" height=\"169\" \/><\/a><br \/>\n<strong>\u00dcLKE<\/strong>: Avustralya<br \/>\n<strong>LGMD Alt Tipi<\/strong>: LGMD2A \/ Kalpainopati<\/p>\n<p><strong>KA\u00c7 YA\u015eINDA TE\u015eHIS KONULDU?<\/strong>:<br \/>\nBana 42 ya\u015f\u0131ndayken kas biyopsisi ile te\u015fhis konuldu.<\/p>\n<p><strong>\u0130LK BELIRTILERINIZ NEYDI?<\/strong>:<br \/>\nKal\u00e7a ve kal\u00e7a \u00e7evresinde kilo kaybediyordum. Te\u015fhis konulduktan sonra di\u011fer \u015feyler de yerine oturdu, \u00f6rne\u011fin \u00e7\u00f6melmeden kalkmakta daha fazla zorluk \u00e7ekiyordum, spor salonunda \u00e7al\u0131\u015ft\u0131ktan sonra kendimi enerjik hissetmiyordum ve merdivenleri \u00e7\u0131kam\u0131yordum.<\/p>\n<p><strong>LGMD HASTASI OLAN BA\u015eKA AI\u0307LE \u00dcYELERI\u0307NI\u0307Z VAR MI?<\/strong>:<br \/>\nHay\u0131r, LGMD te\u015fhisi konulan tek aile \u00fcyesi benim.<\/p>\n<p><strong>LGMD I\u0307LE YA\u015eARKEN KAR\u015eILA\u015eTI\u011eINIZ EN B\u00dcY\u00dcK ZORLUKLARIN NELER OLDU\u011eUNU D\u00dc\u015e\u00dcN\u00dcYORSUNUZ?<\/strong>:<br \/>\n\u00d6zellikle tek ba\u015f\u0131na yap\u0131lan gezilerde spontanl\u0131k eksikli\u011fi, \u00f6rne\u011fin kamera \"oyun zaman\u0131\", al\u0131\u015fveri\u015f.<\/p>\n<p>Her zaman yard\u0131m eden\/yapan ki\u015fi olarak daha rahatken, i\u015flerin yap\u0131lmas\u0131n\u0131 istemeye ba\u015flamak zorunda kalmak<\/p>\n<p>LMGD'nin tutars\u0131z do\u011fas\u0131 nedeniyle nas\u0131l ve ne zaman ilerleyece\u011fine dair net y\u00f6nergeler olmadan \u015fu anda var olan ve olmaya devam edecek s\u0131n\u0131rlamalara uymak i\u00e7in hedeflerimi ve gelece\u011fe dair umutlar\u0131m\u0131 yeniden de\u011ferlendirmek ve yeniden tan\u0131mlamak zorunda kalmak<\/p>\n<p><strong>EN B\u00dcY\u00dcK BA\u015eARINIZ NEDIR<\/strong>:<br \/>\nUmar\u0131m t\u00fcm ili\u015fkilerimde iyi, sevecen bir insan olmu\u015fumdur ve gen\u00e7 yeti\u015fkin \u00e7ocuklar\u0131ma iyi ahlak ve de\u011ferler a\u015f\u0131lamaya yard\u0131mc\u0131 olmu\u015fumdur.<\/p>\n<p><strong>LGMD BUG\u00dcN OLDU\u011eUNUZ KI\u0307\u015eI\u0307YE D\u00d6N\u00dc\u015eMENI\u0307ZDE SI\u0307ZI\u0307 NASIL ETKI\u0307LEDI\u0307?<\/strong>:<br \/>\nKesinlikle daha empatik ve daha az aceleciyim (hahaha) ve hayat\u0131n her zaman \"g\u00fcll\u00fck g\u00fclistanl\u0131k\" olmad\u0131\u011f\u0131n\u0131 daha fazla kabulleniyorum<\/p>\n<p><strong>D\u00dcNYANIN LGMD HAKKINDA NE BI\u0307LMESI\u0307NI\u0307 I\u0307STI\u0307YORSUNUZ<\/strong>:<br \/>\nHalk aras\u0131nda ALS (MND) gibi hastal\u0131klar kadar kolay tan\u0131mlanabilir olmas\u0131n\u0131 isterdim; hala tan\u0131nmak i\u00e7in m\u00fccadele ediyorlar ancak insanlar\u0131n gerekli ihtiya\u00e7lar konusunda anlay\u0131\u015fl\u0131 ve e\u011fitimli olmalar\u0131na yard\u0131mc\u0131 olmak i\u00e7in MD, Kanser, MS ve di\u011ferlerinden tart\u0131\u015fmas\u0131z daha y\u00fcksek bir profile sahipler.<\/p>\n<p><strong>LGMD HASTALI\u011eINIZ YARIN \"TEDAVI\u0307\" EDI\u0307LEBI\u0307LECEK OLSA, YAPMAK I\u0307STEYECE\u011eI\u0307NI\u0307Z I\u0307LK \u015eEY NE OLURDU<\/strong>:<br \/>\nHepsinin e\u015fit faturas\u0131 var - B\u00fcy\u00fck bir aile y\u00fcr\u00fcy\u00fc\u015f\u00fcne \u00e7\u0131kmak, kameram\u0131 sahile g\u00f6t\u00fcrmek, \u00f6nceden planlamadan her yere seyahat etmek, yeniden dekore etmek ve bah\u00e7e!<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>07\/22\/2015: NAME: Leanne AGE: 50 yrs. old COUNTRY: Australia LGMD [&hellip;]<\/p>","protected":false},"author":1,"featured_media":962,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[51,12,19],"class_list":["post-961","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-australia","tag-calpainopathy","tag-lgmd-2a"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>LGMD Spotlight Interview - Leanne<\/title>\n<meta name=\"description\" content=\"Leanne who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/07\/22\/leanne\/\" \/>\n<meta property=\"og:locale\" content=\"tr_TR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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