{"id":974,"date":"2015-08-07T09:25:46","date_gmt":"2015-08-07T14:25:46","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=974"},"modified":"2015-08-07T09:25:46","modified_gmt":"2015-08-07T14:25:46","slug":"samantha","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/tr\/individuals-with-lgmd-interviews\/2015\/08\/07\/samantha\/","title":{"rendered":"LGMD'L\u0130 B\u0130REY: Samantha"},"content":{"rendered":"<p>08\/07\/2015:<\/p>\n<p><strong>\u0130sim<\/strong>:  Samantha\u00a0 <strong>YA\u015e<\/strong>: 7 ya\u015f\u0131nda<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/08\/LGMD2i-Samantha.png\"><img decoding=\"async\" class=\"lazyload  size-medium wp-image-975 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2015\/08\/LGMD2i-Samantha-300x169.png\" alt=\"LGMD2i - Samantha\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p>\u00dcLKE: ABD<\/p>\n<p>LGMD Alt Tipi: LGMD2i<\/p>\n<p><strong>\u00a0<\/strong><\/p>\n<p><strong>Ka\u00e7 ya\u015f\u0131nda te\u015fhis konuldu?<\/strong>:<\/p>\n<p>Bana 2 ya\u015f\u0131nda te\u015fhis konuldu.<\/p>\n<p><strong>\u0130lk belirtileriniz neydi?<\/strong>:<\/p>\n<p>Annem ve babam beni \u00e7ok d\u00fc\u015ferken g\u00f6rd\u00fc ve arkada\u015flar\u0131ma ayak uydurmakta zorland\u0131m.<\/p>\n<p><strong>LGMD hastas\u0131 olan ba\u015fka aile \u00fcyeleriniz var m\u0131?<\/strong><\/p>\n<p>Hay\u0131r, ailemde LGMD hastas\u0131 olan tek ki\u015fi benim.<\/p>\n<p><strong>LGMD ile ya\u015faman\u0131n en b\u00fcy\u00fck zorluklar\u0131n\u0131n ne oldu\u011funu d\u00fc\u015f\u00fcn\u00fcyorsunuz?<\/strong>:<\/p>\n<p>Okuldaki arkada\u015flar\u0131m kadar h\u0131zl\u0131 ko\u015famamaktan ho\u015flanm\u0131yorum.  Jimnastik yapmak zor ama yine de denerken e\u011fleniyorum.  Annem ve babam bana \"CoQ10\" ad\u0131nda bir vitamin ald\u0131r\u0131yor ve tad\u0131n\u0131 sevmiyorum.  Ayr\u0131ca geceleri esneme botlar\u0131m\u0131 giymeyi de sevmiyorum.   \u0130nsanlar\u0131n LGMD hastas\u0131 oldu\u011fumu bilmesinden ger\u00e7ekten ho\u015flanm\u0131yorum \u00e7\u00fcnk\u00fc bu biraz utan\u00e7 verici.<\/p>\n<p><strong>En b\u00fcy\u00fck ba\u015far\u0131n\u0131z nedir?<\/strong>:<\/p>\n<p>Art\u0131k b\u00f6l\u00fcm kitaplar\u0131n\u0131 okuyabildi\u011fim ve ata binebildi\u011fim i\u00e7in gurur duyuyorum.  Ayr\u0131ca tramplenden atlayabildi\u011fim ve havuzun derinliklerinde y\u00fczebildi\u011fim i\u00e7in de heyecanl\u0131y\u0131m.   Softbol oynarken topa iyi vuruyorum ve kaleye girdi\u011fimde heyecanlan\u0131yorum.<\/p>\n<p><strong>LGMD bug\u00fcn oldu\u011funuz ki\u015fi olman\u0131zda sizi nas\u0131l etkiledi?<\/strong><\/p>\n<p>LGMD i\u00e7in para toplamak amac\u0131yla kuzenlerimle birlikte limonata standlar\u0131 kurup bileklik sat\u0131yorum.   \u015eansl\u0131y\u0131m ki Iowa'daki bir konferansa gitti\u011fimde LGMD hastas\u0131 ba\u015fka insanlarla tan\u0131\u015ft\u0131m.  Onlar art\u0131k benim arkada\u015flar\u0131m.<\/p>\n<p><strong>D\u00fcnyan\u0131n LGMD hakk\u0131nda ne bilmesini istersiniz?<\/strong>:<\/p>\n<p>LGMD'ye sahip olmak zor ama bazen benimkinden daha k\u00f6t\u00fc engelleri olan ba\u015fka insanlarla tan\u0131\u015f\u0131yorum ve LGMD'nin asl\u0131nda o kadar da k\u00f6t\u00fc olmad\u0131\u011f\u0131n\u0131 fark ediyorum.<\/p>\n<p><strong>LGMD hastal\u0131\u011f\u0131n\u0131z yar\u0131n \"tedavi edilebilseydi\", yapmak isteyece\u011finiz ilk \u015fey ne olurdu?<\/strong>:<\/p>\n<p>Esneme botlar\u0131m\u0131 pencereden atar ve kutlamak i\u00e7in Hershey Park'a giderdim!<\/p>","protected":false},"excerpt":{"rendered":"<p>08\/07\/2015: Name:\u00a0 Samantha\u00a0 AGE: 7 yrs. old COUNTRY: USA LGMD [&hellip;]<\/p>","protected":false},"author":1,"featured_media":975,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-974","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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