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X-WR-CALNAME:LGMD Awareness Foundation
X-ORIGINAL-URL:https://www.lgmd-info.org
X-WR-CALDESC:Events for LGMD Awareness Foundation
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DTSTART:20260308T070000
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DTSTART:20261101T060000
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DTSTART;TZID=America/New_York:20260516T113000
DTEND;TZID=America/New_York:20260516T200000
DTSTAMP:20260405T014348
CREATED:20260219T192211Z
LAST-MODIFIED:20260220T194841Z
UID:9355-1778931000-1778961600@www.lgmd-info.org
SUMMARY:Fore The Cure: 2026 LGMD2D Golf Tournament
DESCRIPTION:Agenda\n\n\n\n11:30 AM \nCheck-in\n\n\n01:00 PM \nShotgun Start\n\n\n05:00 PM \nDinner Reception with raffle prizes
URL:https://www.lgmd-info.org/event/fore-the-cure-2026-lgmd2d-golf-tournament/
LOCATION:Southers Marsh\, 30 Southers Marsh Lane\, Plymouth\, MA\, 02360\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.lgmd-info.org/wp-content/uploads/2026/02/LGMD2D_GOLF-2026.jpg
ORGANIZER;CN="LGMD2D Foundation":MAILTO:info@lgmd2d.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260522
DTEND;VALUE=DATE:20260524
DTSTAMP:20260405T014348
CREATED:20251226T192041Z
LAST-MODIFIED:20251226T192041Z
UID:9341-1779408000-1779580799@www.lgmd-info.org
SUMMARY:European LGMD2I/R9 Patient & Family Conference
DESCRIPTION:This conference will unite the LGMD2I/R9 patient community with clinical and industry leaders to share research progress\, the latest updates on standards of care and clinical trials\, and pathways to approved treatments. \nThe conference will be held in Korsør\, Denmark\, at the Musholm Sport & Conference Center\, which is within walking distance of  Korsør Train Station. \nSee the draft agenda here.   \nWe hope you can join us in Denmark to connect with patients and families\, learn about the latest research\, and hear from clinical experts in the field. We hope to see you there! Registration Link:  https://forms.gle/ZnNgRojvZ1E7AwWJ7
URL:https://www.lgmd-info.org/event/european-lgmd2i-r9-patient-family-conference/
LOCATION:Musholm Sport & Conference center\, Korsør\, Denmark
ATTACH;FMTTYPE=image/jpeg:https://www.lgmd-info.org/wp-content/uploads/2025/12/597393932_1300308522137831_6643034261391160321_n.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260612
DTEND;VALUE=DATE:20260615
DTSTAMP:20260405T014348
CREATED:20260220T194206Z
LAST-MODIFIED:20260220T194230Z
UID:9368-1781222400-1781481599@www.lgmd-info.org
SUMMARY:University of Iowa Wellstone Dystroglycanopathies Patient and Family Conference
DESCRIPTION:This is a can’t-miss event to participate in the Natural History Study and learn the most recent updates on research and trials for LGMD2I/R9! \nMore details coming soon!
URL:https://www.lgmd-info.org/event/university-of-iowa-wellstone-dystroglycanopathies-patient-and-family-conference/
LOCATION:Hyatt Regency and Conference Center Coralville\, IA\, 300 E. 9th Street\, Coralville\, Iowa\, United States
ATTACH;FMTTYPE=image/jpeg:https://www.lgmd-info.org/wp-content/uploads/2026/02/lgmd2i-conference-2026.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260731T110000
DTEND;TZID=America/New_York:20260731T150000
DTSTAMP:20260405T014348
CREATED:20260220T193331Z
LAST-MODIFIED:20260220T193331Z
UID:9365-1785495600-1785510000@www.lgmd-info.org
SUMMARY:2026 LGMD Scientific Summit
DESCRIPTION:LGMD Scientific Summit\nJoin patients\, advocates\, researchers\, and leaders for a landmark summit dedicated to Limb Girdle Muscular Dystrophy (LGMD). \nTopic to include: emerging therapies\, clinical trial updates\, and patient-centered trial design.\n\n\n\n\n\n\nREGISTER TODAY
URL:https://www.lgmd-info.org/event/2026-lgmd-scientific-summit/
LOCATION:Virtual
ATTACH;FMTTYPE=image/jpeg:https://www.lgmd-info.org/wp-content/uploads/2026/02/2026-GlobalAdvocacySummitAd.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260930
DTEND;VALUE=DATE:20261001
DTSTAMP:20260405T014348
CREATED:20260220T190708Z
LAST-MODIFIED:20260220T191018Z
UID:9363-1790726400-1790812799@www.lgmd-info.org
SUMMARY:12th Annual LGMD Awareness Day
DESCRIPTION:
URL:https://www.lgmd-info.org/event/12th-annual-lgmd-awareness-day/
LOCATION:Worldwide
ATTACH;FMTTYPE=image/jpeg:https://www.lgmd-info.org/wp-content/uploads/2021/03/LGMD_logo-1-Color-Update-2.jpg
ORGANIZER;CN="LGMD Awareness Foundation":MAILTO:info@lgmd-info.org
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