{"id":5413,"date":"2021-08-04T01:40:31","date_gmt":"2021-08-04T01:40:31","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?page_id=5413"},"modified":"2021-08-26T16:05:21","modified_gmt":"2021-08-26T16:05:21","slug":"lgmd-day-2021","status":"publish","type":"page","link":"https:\/\/www.lgmd-info.org\/zh\/lgmd-day-2021\/","title":{"rendered":"2021 \u5e74 LGMD \u65e5"},"content":{"rendered":"

\u7b2c\u4e03\u5c4a LGMD \u5ba3\u4f20\u65e5 - 2021 \u5e74 9 \u6708 30 \u65e5<\/h1><\/div><\/div><\/div>

 <\/p>\n

\u5728\u5168\u4e16\u754c\u5e86\u795d\u7b2c\u4e03\u5c4a \u8001\u5e74\u75f4\u5446\u75c7\u5ba3\u4f20\u65e5<\/strong> \u5173\u4e8e 2021 \u5e74 9 \u6708 30 \u65e5<\/strong>\u6211\u4eec\u9080\u8bf7\u60a8\u5e2e\u52a9\u6211\u4eec \u5ba3\u4f20 - \u6559\u80b2 - \u5e86\u795d<\/b>!<\/span><\/p>\n

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<\/span><\/div><\/div><\/div><\/div><\/div>

\u56e2\u7ed3\u5c31\u662f\u529b\u91cf<\/h2><\/div>

\u4eca\u5929\u5c31\u82b1\u70b9\u65f6\u95f4\u6765\u5ba3\u4f20 LGMD \u610f\u8bc6\u7684\u91cd\u8981\u6027\uff01<\/p>\n<\/div><\/div><\/div><\/div><\/div>

\"LGMD<\/span><\/div><\/div><\/div>

\u5021\u5bfc\u8005\uff1a<\/h1><\/div>

2021 \u5e74\u8170\u5e26\u8d34\u7eb8\u8fd0\u52a8<\/h3><\/div>

\u5728 9 \u6708 30 \u65e5\u524d\u540e\u5c06\u60a8\u548c Girdie \u8d34\u7eb8\u7684\u7167\u7247\u4e0a\u4f20\u5230\u793e\u4ea4\u5a92\u4f53\u3002\u8bf7\u6ce8\u660e\u60a8\u7684\u4f4d\u7f6e\u3001\u6807\u7b7e #LGMD-awareness\uff0c\u522b\u5fd8\u4e86\u6807\u8bb0 @LGMD-awareness\uff0c\u8fd9\u6837\u6211\u4eec\u5c31\u80fd\u770b\u5230 Girdie \u5728\u4e16\u754c\u7684\u54ea\u4e2a\u89d2\u843d\u4f20\u64ad LGMD \u610f\u8bc6\uff01<\/p>\n<\/div><\/div><\/div><\/div><\/div>

\u6559\u80b2\uff1a<\/h1><\/div>

\u4e86\u89e3\u6709\u5173\u80ba\u7ed3\u6838\u7684\u4e8b\u5b9e\u5e76\u5e2e\u52a9\u63d0\u9ad8\u8ba4\u8bc6<\/h3><\/div>

\u5e2e\u52a9 Girdie \u5411\u5168\u4e16\u754c\u5ba3\u4f20 LGMD\u3002\u4e0e\u5bb6\u4eba\u3001\u670b\u53cb\u3001\u540c\u4e8b\u548c\u793e\u533a\u5206\u4eab\u8fd9\u4e9b\u4e8b\u5b9e\u3002<\/p>\n<\/div><\/div><\/div>

1.\u80a2\u8170\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08LGMD\uff09\u662f\u4e00\u79cd\u7f55\u89c1\u7684\u795e\u7ecf\u808c\u8089\u75be\u75c5\uff0c\u4f1a\u5bfc\u81f4\u4e25\u91cd\u7684\u808c\u8089\u840e\u7f29\uff0c\u5f71\u54cd\u7740\u4e16\u754c\u5404\u5730\u7684\u4eba\u4eec\u3002<\/strong><\/p>\n<\/div><\/div><\/div>

2.\u80a2\u8170\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08LGMD\uff09\u7684\u65e9\u671f\u75c7\u72b6\u53ef\u80fd\u5305\u62ec\u722c\u697c\u68af\u56f0\u96be\u3001\u7ecf\u5e38\u8dcc\u5012\u3001\u4ece\u5750\u59ff\u8d77\u7acb\u56f0\u96be\uff0c\u751a\u81f3\u65e0\u6cd5\u7528\u811a\u8dbe\u7ad9\u7acb\u3002<\/strong><\/p>\n<\/div><\/div><\/div>

3.\u76ee\u524d\u8fd8\u6ca1\u6709\u6cbb\u6108\u7684\u65b9\u6cd5\uff0c\u4f46\u7531\u4e8e\u79d1\u5b66\u754c\u4eba\u58eb\u548c\u8d44\u52a9\u5176\u7814\u7a76\u5de5\u4f5c\u7684\u7ec4\u7ec7\uff0c\u79d1\u5b66\u754c\u6bcf\u5e74\u90fd\u5728\u5411\u6cbb\u7597\u80a2\u8170\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08LGMD\uff09\u7684\u65b9\u6cd5\u8fc8\u8fdb\u3002<\/strong><\/p>\n<\/div><\/div><\/div>

4.\u80a2\u8170\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08LGMD\uff09\u6709 30 \u591a\u79cd\u4e0d\u540c\u7c7b\u578b\uff0c\u6bcf\u79cd\u7c7b\u578b\u90fd\u662f\u7531\u4e0d\u540c\u7684\u57fa\u56e0\u7a81\u53d8\u5f15\u8d77\u7684\u3002\u7531\u4e8e\u4e0d\u540c\u7c7b\u578b\u7684 LGMD \u5728\u4e34\u5e8a\u68c0\u6d4b\u4e2d\u770b\u8d77\u6765\u975e\u5e38\u76f8\u4f3c\uff0c\u56e0\u6b64\u9700\u8981\u8fdb\u884c\u57fa\u56e0\u68c0\u6d4b\u6765\u786e\u8bca\u3002<\/strong><\/p>\n<\/div><\/div><\/div>

\u6709\u5173 LGMD \u7684\u66f4\u591a\u4fe1\u606f\uff0c\u8bf7\u70b9\u51fb \u8fd9\u91cc<\/a>.<\/strong><\/p>\n<\/div><\/div><\/div><\/div><\/div>

\"71091057<\/span><\/div><\/div><\/div>

\u5e86\u795d\uff1a<\/h1><\/div>

\u56db\u80a2\u675f\u5e26\u5ba3\u4f20\u6d3b\u52a8\u7684\u9752\u7eff\u8272<\/h3><\/div>

\u5728\u5e86\u795d\u6d3b\u52a8\u4e2d\uff0c\u8bf7\u8003\u8651\u7a7f\u4e0a\u9752\u7eff\u8272\u7684\u670d\u88c5\u548c\u4f69\u6234\u9752\u7eff\u8272\u7684\u8155\u5e26\uff0c\u4ee5\u5e2e\u52a9\u63d0\u9ad8\u4eba\u4eec\u7684\u610f\u8bc6\u3002\u5728\u793e\u4ea4\u5a92\u4f53\u4e0a\u53d1\u5e03\u60a8\u7684\u7167\u7247\u65f6\uff0c\u8bf7\u6ce8\u660e\u60a8\u6240\u5728\u7684\u4f4d\u7f6e\u3001\u6807\u7b7e #LGMD-awareness\uff0c\u4e0d\u8981\u5fd8\u8bb0\u6807\u8bb0 @LGMD-awareness\u3002<\/p>\n<\/div>

\u4e0b\u8f7d 2021 \u5e74\u80ba\u7ed3\u6838\u5ba3\u4f20\u65e5\u4f20\u5355<\/span><\/a><\/div><\/div><\/div><\/div><\/div>
<\/div><\/div>

LGMD \u610f\u8bc6\u57fa\u91d1\u4f1a\u516c\u53f8\u548c LGMD \u57fa\u91d1\u4f1a\u8054\u76df<\/strong><\/h3><\/div><\/div><\/div>

\u6cbb\u7597\u9499\u86cb\u767d\u9176\u8054\u76df 3<\/p>\n

CureLGMD2i \u57fa\u91d1\u4f1a<\/p>\n

\u8006\u90a3\u6559\u57fa\u91d1\u4f1a<\/p>\n

\u5e93\u5c14\u7279+\u5f7c\u5f97\u57fa\u91d1\u4f1a<\/p>\n

LGMD-1D DNAJB6 \u57fa\u91d1\u4f1a<\/p>\n

LGMD2D \u57fa\u91d1\u4f1a<\/p>\n<\/div><\/div><\/div>

LGMD2i \u7814\u7a76\u57fa\u91d1<\/p>\n

LGMD2L \u57fa\u91d1\u4f1a<\/p>\n

\u9ea6\u8003-\u6d1b\u514b\u4f0d\u5fb7\u533b\u5b66\u535a\u58eb\u7814\u7a76\u5b9e\u9a8c\u5ba4<\/p>\n

Stichting SpierKracht<\/p>\n

\u6f14\u8bb2\u57fa\u91d1\u4f1a<\/p>\n<\/div><\/div><\/div><\/div><\/div>

<\/div><\/div>

\u6211\u4eec\u7684\u5ba3\u4f20\u5408\u4f5c\u4f19\u4f34<\/strong><\/h3><\/div><\/div><\/div>

ADM Argentina - Grupo LGMD Argentina<\/p>\n

\u963f\u5c14\u6cd5\u9879\u76ee\u534f\u4f1a<\/p>\n

\u963f\u5c24\u4ec0\u5361\u739b\u57fa\u91d1\u4f1a<\/p>\n

Camronscure<\/p>\n

\u5f81\u670d Escalones ODV<\/p>\n

\u4e39\u5c3c\u5c14-\u5f17\u683c\u68ee LGMD \u57fa\u91d1\u4f1a\u6709\u9650\u516c\u53f8<\/p>\n

GFB Onlus<\/p>\n

AFM-TELETHON LGMD\u5174\u8da3\u5c0f\u7ec4<\/p>\n

\u5370\u5ea6\u808c\u8089\u840e\u7f29\u75c7\u534f\u4f1a<\/p>\n

LGMD \u7f51\u7edc\u6c11\u653f\u5c40<\/p>\n<\/div><\/div><\/div>

\u808c\u8089\u840e\u7f29\u75c7\u534f\u4f1a<\/p>\n

\u65b0\u897f\u5170\u808c\u8089\u840e\u7f29\u75c7\u534f\u4f1a<\/p>\n

\u82f1\u56fd\u808c\u8089\u840e\u7f29\u75c7\u534f\u4f1a<\/p>\n

\u5168\u56fd\u513f\u7ae5\u533b\u9662<\/p>\n

\u7ebd\u5361\u65af\u5c14\u5927\u5b66<\/p>\n

\u4fc4\u7f57\u65af LGMD \u60a3\u8005\u56e2\u4f53<\/p>\n

Syneos Health<\/p>\n

TREAT-NMD \u795e\u7ecf\u808c\u8089\u7f51\u7edc\u6709\u9650\u516c\u53f8<\/p>\n

UILDM - \u7c73\u5170\u5206\u533a - \u8f9b\u6208\u5229\u96c6\u56e2<\/p>\n<\/div><\/div><\/div><\/div><\/div>

<\/div><\/div>

\u6211\u4eec\u8877\u5fc3\u611f\u8c22<\/strong><\/h3><\/div>
\"Sarepta<\/span><\/div>

\u6177\u6168\u8d5e\u52a9\u4eca\u5e74\u7684 Girdie \u8d34\u7eb8\u6d3b\u52a8<\/strong><\/h3><\/div><\/div><\/div><\/div><\/div><\/p>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5415,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-5413","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"yoast_head":"\nLGMD Day 2021 - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/zh\/lgmd-day-2021\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Day 2021 - LGMD Awareness Foundation\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/zh\/lgmd-day-2021\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:modified_time\" content=\"2021-08-26T16:05:21+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/08\/Girdie-Promo-2.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1050\" \/>\n\t<meta property=\"og:image:height\" content=\"600\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data1\" content=\"20 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/ko\/lgmd-day-2021\/\",\"url\":\"https:\/\/www.lgmd-info.org\/ko\/lgmd-day-2021\/\",\"name\":\"LGMD Day 2021 - 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