\u8fd9\u4e00\u72ec\u7279\u7684\u9879\u76ee\u81f4\u529b\u4e8e\u63d0\u9ad8\u4e34\u5e8a\u533b\u751f\u3001\u60a3\u8005\u3001\u5bb6\u5ead\u6210\u5458\u548c\u62a4\u7406\u4eba\u5458\u5bf9 LGMD \u7684\u8ba4\u8bc6\u3002LGMD \u5ba3\u4f20\u6346\u7ed1\u5305\u9879\u76ee\u901a\u8fc7\u5ba3\u4f20\u652f\u6301\u5728\u4e34\u5e8a\u533b\u751f\u548c\u60a3\u8005\u4e4b\u95f4\u67b6\u8d77\u4e86\u4e00\u5ea7\u6865\u6881\uff0c\u540c\u65f6\u4e3a\u5458\u5de5\u548c\u60a3\u8005\u63d0\u4f9b\u6709\u7528\u7684\u5de5\u5177\u548c\u8d44\u6e90\u3002<\/p>\n<\/div><\/div><\/div>
\u5982\u679c\u60a8\u5bf9\u60a8\u8bca\u6240\u7684 LGMD \u5ba3\u4f20\u6346\u7ed1\u9879\u76ee\u611f\u5174\u8da3\uff0c\u8bf7\u901a\u8fc7 info@LGMD-Info.org \u8054\u7cfb\u6211\u4eec\u3002<\/h4><\/div><\/div><\/div><\/div><\/div><\/div>![\"Lab](\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2024\/08\/LAB-Mockup-Web-080924.png\" "\\"\u5b9e\u9a8c\u5ba4\u6a21\u62df\u7f51\u7ad9")
<\/span><\/div><\/div><\/div><\/div><\/div>\u9879\u76ee\u76ee\u6807<\/strong><\/h3><\/div>- 1<\/span>\n
\u63d0\u9ad8\u4e34\u5e8a\u533b\u751f\u3001\u60a3\u8005\u3001\u5bb6\u5ead\u6210\u5458\u548c\u62a4\u7406\u4eba\u5458\u5bf9 LGMD \u7684\u8ba4\u8bc6<\/p>\n<\/div><\/li>
- 2<\/span>\n
\u5f3a\u8c03\u57fa\u56e0\u786e\u8bca\u7684\u91cd\u8981\u6027\uff0c\u4ee5\u5e2e\u52a9\u5bf9\u75c7\u6cbb\u7597\uff0c\u5e76\u83b7\u5f97\u5f53\u524d\u548c\u672a\u6765\u91cd\u8981\u7684\u4e34\u5e8a\u8bd5\u9a8c\u673a\u4f1a<\/p>\n<\/div><\/li>
- 3<\/span>\n
\u6559\u80b2\u4e34\u5e8a\u533b\u751f\u548c\u60a3\u8005\u4e86\u89e3 LGMD \u60a3\u8005\u767b\u8bb0\u518c\u53ca\u5176\u5728\u63a8\u52a8\u7814\u7a76\u65b9\u9762\u53d1\u6325\u7684\u4f5c\u7528<\/p>\n<\/div><\/li>
- 4<\/span>\n
\u5206\u4eab LGMD \u793e\u533a\u7684\u80fd\u91cf\u548c\u70ed\u60c5\uff0c\u4f7f\u60a3\u8005\u548c\u5bb6\u5c5e\u80fd\u591f\u627e\u5230\u652f\u6301\uff0c\u5728 LGMD \u7684\u9053\u8def\u4e0a\u4e0d\u518d\u611f\u5230\u5b64\u72ec<\/p>\n<\/div><\/li>
- 5<\/span>\n
\u5f25\u5408\u4e34\u5e8a\u533b\u751f\u4e0e\u60a3\u8005\u4e4b\u95f4\u7684\u5dee\u8ddd\uff08\u901a\u8fc7\u5ba3\u4f20\u652f\u6301\uff09<\/p>\n<\/div><\/li>
- 6<\/span>\n
\u4e3a\u5458\u5de5\u548c\u60a3\u8005\u63d0\u4f9b\u6709\u7528\u7684\u5de5\u5177<\/p>\n<\/div><\/li>
- 7<\/span>\n
\u5efa\u7acb\u4e34\u5e8a\u5173\u7cfb\uff0c\u5e76\u4e0e\u5ba3\u4f20\u793e\u533a\u5c1a\u672a\u719f\u77e5\u7684\u65b0\u4e34\u5e8a\u533b\u751f\u5efa\u7acb\u8054\u7cfb<\/p>\n<\/div><\/li><\/ul><\/div><\/div>
\u53c2\u4e0e\u8bca\u6240\u5730\u70b9<\/strong><\/h4><\/div>The clinic sites participating in the LGMD Advocacy Bundles project include:<\/p>\n
- \u52a0\u5229\u798f\u5c3c\u4e9a\u5927\u5b66\u6b27\u6587\u5206\u6821<\/p>\n
- \u79d1\u7f57\u62c9\u591a\u5927\u5b66\uff0c\u79d1\u7f57\u62c9\u591a\u5dde\u4e39\u4f5b<\/p>\n
- \u4fc4\u4ea5\u4fc4\u5dde\u54e5\u4f26\u5e03\u5e02\u5168\u56fd\u513f\u7ae5\u533b\u9662<\/p>\n
- \u4fc4\u514b\u62c9\u8377\u9a6c\u5dde\u4fc4\u514b\u62c9\u8377\u9a6c\u57ce INTEGRIS \u795e\u7ecf\u79d1\u5b66\u7814\u7a76\u6240<\/p>\n
- \u534e\u76db\u987f\u5927\u5b66\uff0c\u5bc6\u82cf\u91cc\u5dde\u5723\u8def\u6613\u65af<\/p>\n
- \u5f17\u5409\u5c3c\u4e9a\u5dde\u91cc\u58eb\u6ee1\u5f17\u5409\u5c3c\u4e9a\u8054\u90a6\u5927\u5b66<\/p>\n
\u2022 Froedtert Memorial Hospital, Milwaukee, WI<\/p>\n<\/div><\/div><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div><\/div><\/div>\u8d44\u6e90<\/strong><\/h2><\/div><\/div><\/div><\/div><\/div>
<\/span><\/div><\/div><\/div><\/div><\/div>\u9879\u76ee\u76ee\u6807<\/strong><\/h3><\/div>- 1<\/span>\n
\u63d0\u9ad8\u4e34\u5e8a\u533b\u751f\u3001\u60a3\u8005\u3001\u5bb6\u5ead\u6210\u5458\u548c\u62a4\u7406\u4eba\u5458\u5bf9 LGMD \u7684\u8ba4\u8bc6<\/p>\n<\/div><\/li>
- 2<\/span>\n
\u5f3a\u8c03\u57fa\u56e0\u786e\u8bca\u7684\u91cd\u8981\u6027\uff0c\u4ee5\u5e2e\u52a9\u5bf9\u75c7\u6cbb\u7597\uff0c\u5e76\u83b7\u5f97\u5f53\u524d\u548c\u672a\u6765\u91cd\u8981\u7684\u4e34\u5e8a\u8bd5\u9a8c\u673a\u4f1a<\/p>\n<\/div><\/li>
- 3<\/span>\n
\u6559\u80b2\u4e34\u5e8a\u533b\u751f\u548c\u60a3\u8005\u4e86\u89e3 LGMD \u60a3\u8005\u767b\u8bb0\u518c\u53ca\u5176\u5728\u63a8\u52a8\u7814\u7a76\u65b9\u9762\u53d1\u6325\u7684\u4f5c\u7528<\/p>\n<\/div><\/li>
- 4<\/span>\n
\u5206\u4eab LGMD \u793e\u533a\u7684\u80fd\u91cf\u548c\u70ed\u60c5\uff0c\u4f7f\u60a3\u8005\u548c\u5bb6\u5c5e\u80fd\u591f\u627e\u5230\u652f\u6301\uff0c\u5728 LGMD \u7684\u9053\u8def\u4e0a\u4e0d\u518d\u611f\u5230\u5b64\u72ec<\/p>\n<\/div><\/li>
- 5<\/span>\n
\u5f25\u5408\u4e34\u5e8a\u533b\u751f\u4e0e\u60a3\u8005\u4e4b\u95f4\u7684\u5dee\u8ddd\uff08\u901a\u8fc7\u5ba3\u4f20\u652f\u6301\uff09<\/p>\n<\/div><\/li>
- 6<\/span>\n
\u4e3a\u5458\u5de5\u548c\u60a3\u8005\u63d0\u4f9b\u6709\u7528\u7684\u5de5\u5177<\/p>\n<\/div><\/li>
- 7<\/span>\n
\u5efa\u7acb\u4e34\u5e8a\u5173\u7cfb\uff0c\u5e76\u4e0e\u5ba3\u4f20\u793e\u533a\u5c1a\u672a\u719f\u77e5\u7684\u65b0\u4e34\u5e8a\u533b\u751f\u5efa\u7acb\u8054\u7cfb<\/p>\n<\/div><\/li><\/ul><\/div><\/div>
\u53c2\u4e0e\u8bca\u6240\u5730\u70b9<\/strong><\/h4><\/div>The clinic sites participating in the LGMD Advocacy Bundles project include:<\/p>\n
- \u52a0\u5229\u798f\u5c3c\u4e9a\u5927\u5b66\u6b27\u6587\u5206\u6821<\/p>\n
- \u79d1\u7f57\u62c9\u591a\u5927\u5b66\uff0c\u79d1\u7f57\u62c9\u591a\u5dde\u4e39\u4f5b<\/p>\n
- \u4fc4\u4ea5\u4fc4\u5dde\u54e5\u4f26\u5e03\u5e02\u5168\u56fd\u513f\u7ae5\u533b\u9662<\/p>\n
- \u4fc4\u514b\u62c9\u8377\u9a6c\u5dde\u4fc4\u514b\u62c9\u8377\u9a6c\u57ce INTEGRIS \u795e\u7ecf\u79d1\u5b66\u7814\u7a76\u6240<\/p>\n
- \u534e\u76db\u987f\u5927\u5b66\uff0c\u5bc6\u82cf\u91cc\u5dde\u5723\u8def\u6613\u65af<\/p>\n
- \u5f17\u5409\u5c3c\u4e9a\u5dde\u91cc\u58eb\u6ee1\u5f17\u5409\u5c3c\u4e9a\u8054\u90a6\u5927\u5b66<\/p>\n
\u2022 Froedtert Memorial Hospital, Milwaukee, WI<\/p>\n<\/div><\/div><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div><\/div><\/div>\u8d44\u6e90<\/strong><\/h2><\/div><\/div><\/div><\/div><\/div>
\u63d0\u9ad8\u4e34\u5e8a\u533b\u751f\u3001\u60a3\u8005\u3001\u5bb6\u5ead\u6210\u5458\u548c\u62a4\u7406\u4eba\u5458\u5bf9 LGMD \u7684\u8ba4\u8bc6<\/p>\n<\/div><\/li>
\u5f3a\u8c03\u57fa\u56e0\u786e\u8bca\u7684\u91cd\u8981\u6027\uff0c\u4ee5\u5e2e\u52a9\u5bf9\u75c7\u6cbb\u7597\uff0c\u5e76\u83b7\u5f97\u5f53\u524d\u548c\u672a\u6765\u91cd\u8981\u7684\u4e34\u5e8a\u8bd5\u9a8c\u673a\u4f1a<\/p>\n<\/div><\/li>
\u6559\u80b2\u4e34\u5e8a\u533b\u751f\u548c\u60a3\u8005\u4e86\u89e3 LGMD \u60a3\u8005\u767b\u8bb0\u518c\u53ca\u5176\u5728\u63a8\u52a8\u7814\u7a76\u65b9\u9762\u53d1\u6325\u7684\u4f5c\u7528<\/p>\n<\/div><\/li>
\u5206\u4eab LGMD \u793e\u533a\u7684\u80fd\u91cf\u548c\u70ed\u60c5\uff0c\u4f7f\u60a3\u8005\u548c\u5bb6\u5c5e\u80fd\u591f\u627e\u5230\u652f\u6301\uff0c\u5728 LGMD \u7684\u9053\u8def\u4e0a\u4e0d\u518d\u611f\u5230\u5b64\u72ec<\/p>\n<\/div><\/li>
\u5f25\u5408\u4e34\u5e8a\u533b\u751f\u4e0e\u60a3\u8005\u4e4b\u95f4\u7684\u5dee\u8ddd\uff08\u901a\u8fc7\u5ba3\u4f20\u652f\u6301\uff09<\/p>\n<\/div><\/li>
\u4e3a\u5458\u5de5\u548c\u60a3\u8005\u63d0\u4f9b\u6709\u7528\u7684\u5de5\u5177<\/p>\n<\/div><\/li>
\u5efa\u7acb\u4e34\u5e8a\u5173\u7cfb\uff0c\u5e76\u4e0e\u5ba3\u4f20\u793e\u533a\u5c1a\u672a\u719f\u77e5\u7684\u65b0\u4e34\u5e8a\u533b\u751f\u5efa\u7acb\u8054\u7cfb<\/p>\n<\/div><\/li><\/ul><\/div><\/div>
\u53c2\u4e0e\u8bca\u6240\u5730\u70b9<\/strong><\/h4><\/div>The clinic sites participating in the LGMD Advocacy Bundles project include:<\/p>\n
- \u52a0\u5229\u798f\u5c3c\u4e9a\u5927\u5b66\u6b27\u6587\u5206\u6821<\/p>\n
- \u79d1\u7f57\u62c9\u591a\u5927\u5b66\uff0c\u79d1\u7f57\u62c9\u591a\u5dde\u4e39\u4f5b<\/p>\n
- \u4fc4\u4ea5\u4fc4\u5dde\u54e5\u4f26\u5e03\u5e02\u5168\u56fd\u513f\u7ae5\u533b\u9662<\/p>\n
- \u4fc4\u514b\u62c9\u8377\u9a6c\u5dde\u4fc4\u514b\u62c9\u8377\u9a6c\u57ce INTEGRIS \u795e\u7ecf\u79d1\u5b66\u7814\u7a76\u6240<\/p>\n
- \u534e\u76db\u987f\u5927\u5b66\uff0c\u5bc6\u82cf\u91cc\u5dde\u5723\u8def\u6613\u65af<\/p>\n
- \u5f17\u5409\u5c3c\u4e9a\u5dde\u91cc\u58eb\u6ee1\u5f17\u5409\u5c3c\u4e9a\u8054\u90a6\u5927\u5b66<\/p>\n
\u2022 Froedtert Memorial Hospital, Milwaukee, WI<\/p>\n<\/div><\/div><\/div><\/div><\/div>
<\/div><\/div><\/div><\/div><\/div><\/div>\u8d44\u6e90<\/strong><\/h2><\/div><\/div><\/div><\/div><\/div>
The clinic sites participating in the LGMD Advocacy Bundles project include:<\/p>\n
- \u52a0\u5229\u798f\u5c3c\u4e9a\u5927\u5b66\u6b27\u6587\u5206\u6821<\/p>\n
- \u79d1\u7f57\u62c9\u591a\u5927\u5b66\uff0c\u79d1\u7f57\u62c9\u591a\u5dde\u4e39\u4f5b<\/p>\n
- \u4fc4\u4ea5\u4fc4\u5dde\u54e5\u4f26\u5e03\u5e02\u5168\u56fd\u513f\u7ae5\u533b\u9662<\/p>\n
- \u4fc4\u514b\u62c9\u8377\u9a6c\u5dde\u4fc4\u514b\u62c9\u8377\u9a6c\u57ce INTEGRIS \u795e\u7ecf\u79d1\u5b66\u7814\u7a76\u6240<\/p>\n
- \u534e\u76db\u987f\u5927\u5b66\uff0c\u5bc6\u82cf\u91cc\u5dde\u5723\u8def\u6613\u65af<\/p>\n
- \u5f17\u5409\u5c3c\u4e9a\u5dde\u91cc\u58eb\u6ee1\u5f17\u5409\u5c3c\u4e9a\u8054\u90a6\u5927\u5b66<\/p>\n
\u2022 Froedtert Memorial Hospital, Milwaukee, WI<\/p>\n<\/div><\/div><\/div><\/div><\/div>
![\"Cure](\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2024\/04\/CURE-Poster.webp\" "\\"\u6cbb\u7597\u6d77\u62a5\\"")
<\/span><\/div><\/div><\/div>