{"id":1163,"date":"2016-03-28T17:23:19","date_gmt":"2016-03-28T22:23:19","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1163"},"modified":"2016-03-28T17:23:19","modified_gmt":"2016-03-28T22:23:19","slug":"emily","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2016\/03\/28\/emily\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a Emily"},"content":{"rendered":"

03\/28\/2016<\/strong><\/p>\n

LGMD \"\u7126\u70b9\u8bbf\u8c08\"<\/strong><\/p>\n

\u540d\u79f0\uff1a<\/strong>\u00a0 \u827e\u7c73\u4e3d\u00a0\u00a0\u00a0\u00a0 \u5e74\u9f84<\/strong>: 29 \u5c81\"LGMD2B<\/a><\/p>\n

\u56fd\u5bb6<\/strong>: \u82f1\u56fd<\/p>\n

LGMD \u5b50\u7c7b\u578b<\/strong>: LGMD2B<\/p>\n

 <\/p>\n

\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>:<\/p>\n

\u6211\u5728 28 \u5c81\u65f6\u88ab\u786e\u8bca\u4e3a LGMD2B\uff0c\u4f46\u5728 24 \u5c81\u65f6\u5c31\u5df2\u7ecf\u88ab\u6000\u7591\u60a3\u6709\u6b64\u75c5\u3002<\/p>\n

\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u6211\u7684\u7b2c\u4e00\u4e2a\u75c7\u72b6\u662f\u722c\u697c\u68af\u8d39\u52b2\uff0c\u6211\u8fd8\u53d1\u73b0\u81ea\u5df1\u65e0\u6cd5\u8e2e\u8d77\u811a\u5c16\u53bb\u591f\u4e66\u67b6\u4e0a\u7684\u4e66\u3002<\/p>\n

\u60a8\u662f\u5426\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD\uff1a<\/strong><\/p>\n

\u4e0d\uff0c\u53ea\u6709\u6211\u4e00\u4e2a\u4eba\uff01<\/p>\n

\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u6709\u5f88\u591a\u6311\u6218\u3002\u6bd4\u5982\uff0c\u5f53\u6211\u4e0d\u7528\u8f6e\u6905\u65f6\uff0c\u5982\u4f55\u8ba9\u522b\u4eba\u63a5\u53d7\u6211\u662f \"\u6b8b\u75be\u4eba\"\u3002\u6211\u53d1\u73b0\u4eba\u4eec\u4e00\u822c\u90fd\u4e0d\u613f\u610f\u548c\u6211\u8c08\u8bba\u8fd9\u4e2a\u95ee\u9898\uff0c\u8fd9\u53ef\u80fd\u4f1a\u8ba9\u6211\u975e\u5e38\u5b64\u7acb\uff01\u6709\u65f6\u6211\u4f1a\u611f\u5230\u81ea\u5351\u548c\u7126\u8651\u3002\u5728\u4eba\u524d\u6454\u5012\u662f\u6700\u7cdf\u7cd5\u7684\u4e8b\u60c5\uff0c\u800c\u6211\u53c8\u5f88\u96be\u505a\u66fe\u7ecf\u53ef\u4ee5\u505a\u7684\u4e8b\u60c5\uff0c\u8fd9\u8ba9\u6211\u5f88\u96be\u8fc7\u3002\u6211\u6000\u5ff5\u80fd\u8dd1\u6b65\u7684\u65e5\u5b50\uff01\u6211\u8fd8\u9700\u8981\u52aa\u529b\u89e3\u91ca\u81ea\u5df1\u3002\u6709\u65f6\u4f1a\u6447\u6447\u6643\u6643\uff0c\u611f\u89c9\u81ea\u5df1\u5f88\u53ef\u601c\u6216\u5f88\u865a\u5f31\u3002<\/p>\n

\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u76ee\u524d\uff0c\u6211\u79bb\u5f00\u5bb6\uff0c\u5728\u4e61\u4e0b\u72ec\u7acb\u751f\u6d3b\u3002\u6211\u8fd8\u662f\u82f1\u56fd\u808c\u8089\u840e\u7f29\u75c7\u534f\u4f1a\u7684\u5fd7\u613f\u8005\uff0c\u62c5\u4efb\u540c\u4f34\u652f\u6301\u8005\uff0c\u8fd9\u5bf9\u6211\u6765\u8bf4\u662f\u4e00\u9879\u4e86\u4e0d\u8d77\u7684\u6210\u5c31\u3002<\/p>\n

LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong><\/p>\n

\u60a3\u4e0a LGMD \u7edd\u5bf9\u7ed9\u4e86\u6211\u4e0d\u540c\u7684\u4eba\u751f\u89c2\uff01\u6211\u5b66\u4f1a\u4e86\u6b23\u8d4f\u751f\u6d3b\u4e2d\u7684\u5c0f\u4e8b\uff0c\u4e5f\u66f4\u52a0\u575a\u5b9a\u4e86\u5b9e\u73b0\u4efb\u4f55\u76ee\u6807\u7684\u51b3\u5fc3\u3002\u6211\u611f\u89c9\u975e\u5e38\u79ef\u6781\uff0c\u5e76\u5e0c\u671b\u626d\u8f6c\u6211\u7684\u8bca\u65ad\u7ed3\u679c\uff0c\u628a\u6ce8\u610f\u529b\u96c6\u4e2d\u5728\u597d\u7684\u65b9\u9762\uff0c\u800c\u4e0d\u662f\u574f\u7684\u65b9\u9762\u3002\u8fd9\u8ba9\u6211\u66f4\u6709\u89c9\u609f\u548c\u540c\u60c5\u5fc3\uff0c\u6211\u60f3\u5e2e\u52a9\u548c\u6211\u4e00\u6837\u7684\u4eba\u3002\u8fd9\u4e5f\u6709\u52a9\u4e8e\u6211\u7684 \"\u90aa\u6076 \"\u5e7d\u9ed8\u611f\uff01<\/p>\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>:<\/p>\n

\u4e00\u5207\uff01\u6211\u53ea\u662f\u60f3\u8ba9\u4eba\u4eec\u4e86\u89e3\u8fd9\u4e9b\u60c5\u51b5\u7684\u590d\u6742\u6027\u548c\u75c5\u60c5\u672c\u8eab\u3002<\/p>\n

\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u8fd9\u4e2a\u95ee\u9898\u5f88\u96be\u56de\u7b54\uff0c\u56e0\u4e3a\u95ee\u9898\u592a\u591a\u4e86\uff01<\/p>\n

\u6211\u53ef\u80fd\u4f1a\u5148\u8dd1\u6b65\uff0c\u4f46\u4e5f\u4f1a\u9a91\u4e0a\u8fd0\u52a8\u578b\u6469\u6258\u8f66\uff0c\u5b66\u4e60\u9a91\u884c\uff01<\/p>\n

 <\/p>\n

\u5982\u9700\u9605\u8bfb\u66f4\u591a \"LGMD \u7126\u70b9\u8bbf\u8c08\"\uff0c\u6216\u81ea\u613f\u53c2\u52a0\u5373\u5c06\u4e3e\u884c\u7684\u8bbf\u8c08\uff0c\u8bf7\u8bbf\u95ee\u6211\u4eec\u7684\u7f51\u7ad9\uff1a\u00a0 https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

03\/28\/2016 LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:\u00a0 Emily\u00a0\u00a0\u00a0\u00a0 Age: 29 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1164,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[60],"class_list":["post-1163","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-united-kingdom"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Emily - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2016\/03\/28\/emily\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Emily - 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