{"id":1195,"date":"2016-05-14T12:19:56","date_gmt":"2016-05-14T17:19:56","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1195"},"modified":"2016-05-14T12:19:56","modified_gmt":"2016-05-14T17:19:56","slug":"dave","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a Dave"},"content":{"rendered":"

05\/14\/2016:<\/p>\n

LGMD \"\u7126\u70b9\u8bbf\u8c08\"<\/p>\n

\u540d\u79f0<\/strong>: \u6234\u592b\u00a0\u00a0\u00a0 \u5e74\u9f84<\/strong>: 27 \u5c81\"LGMD2A<\/a><\/p>\n

\u56fd\u5bb6<\/strong>:\u6fb3\u5927\u5229\u4e9a<\/p>\n

LGMD \u5b50\u7c7b\u578b<\/strong>: LGMD 2A \/ Calpainopathy<\/p>\n

 <\/p>\n

\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>:<\/p>\n

\u6211\u60f3\u6211\u662f\u5728 14 \u5c81\u5de6\u53f3\u88ab\u8bca\u65ad\u51fa\u6765\u7684\uff0c\u6211\u77e5\u9053\u90a3\u662f\u5728\u6211\u4e0a\u9ad8\u4e2d\u7684\u65f6\u5019\u3002<\/p>\n

\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u6bcf\u5468\u516d\u6211\u90fd\u4f1a\u53bb\u6253\u9ad8\u5c14\u592b\uff0c\u56de\u5bb6\u540e\u6211\u5fc5\u987b\u53bb\u7761\u4e0a\u51e0\u4e2a\u5c0f\u65f6\u3002 \u6211\u6d51\u8eab\u9178\u75db\u3002 \u4e8e\u662f\uff0c\u5988\u5988\u5e26\u6211\u53bb\u770b\u533b\u751f\uff0c\u770b\u770b\u6211\u4e3a\u4ec0\u4e48\u603b\u662f\u611f\u5230\u75b2\u5026\u3002<\/p>\n

\u60a8\u662f\u5426\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD\uff1a <\/strong><\/p>\n

\u6211\u662f\u5bb6\u91cc\u552f\u4e00\u60a3\u6709\u4efb\u4f55\u5f62\u5f0f\u808c\u8089\u840e\u7f29\u75c7\u7684\u4eba\u3002<\/p>\n

\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u6211\u9047\u5230\u7684\u6700\u5927\u95ee\u9898\u662f\u5411\u522b\u4eba\uff08\u5bb6\u4eba\u3001\u670b\u53cb\u548c\u964c\u751f\u4eba\uff09\u89e3\u91ca\u6211\u7684\u808c\u8089\u840e\u7f29\u75c7\uff0c\u4f46\u4ed6\u4eec\u5e76\u4e0d\u5b8c\u5168\u76f8\u4fe1\u6211\u3002\u4ed6\u4eec\u53ea\u662f\u8ba4\u4e3a\u6211\u7d2f\u662f\u56e0\u4e3a\u6211\u61d2\u3002<\/p>\n

\u6211\u5728\u533b\u9662\u4f4f\u4e86\u4e00\u665a\uff0c\u817f\u90e8\u4e25\u91cd\u62bd\u7b4b\uff0c\u65e0\u6cd5\u5e73\u9759\u4e0b\u6765\u3002\u6211\u6709\u4e09\u4e2a\u661f\u671f\u65e0\u6cd5\u6b63\u5e38\u884c\u8d70\uff0c\u4ecd\u7136\u4e0d\u5f97\u4e0d\u5fcd\u75db\u5de5\u4f5c\u3002 \u6211\u4e00\u76f4\u6709\u4e0a\u697c\u68af\u548c\u957f\u65f6\u95f4\u642c\u8fd0\u91cd\u7269\u7684\u95ee\u9898\u3002<\/p>\n

\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u6211\u6700\u5927\u7684\u6210\u5c31\u662f\u4eca\u5e74\u4e8c\u6708\u4e0e\u59bb\u5b50\u4e3d\u8d1d\u5361\u7ed3\u5a5a\u3002 \u5979\u6210\u4e3a\u6211\u524d\u8fdb\u7684\u529b\u91cf\u548c\u52a8\u529b\u3002 \u6211\u662f\u6fb3\u5927\u5229\u4e9a\u7684\u7b2c\u4e8c\u4ee3\u5361\u8f66\u53f8\u673a\uff0c\u5bf9\u6b64\u6211\u6df1\u611f\u81ea\u8c6a\uff01 \u4e0d\u8fc7\uff0c\u6211\u7684\u5de5\u4f5c\u6709\u65f6\u4f1a\u8ba9\u6211\u611f\u5230\u4f53\u529b\u4e0d\u652f\u3002 \u6211\u7684\u59bb\u5b50\u4e3d\u8d1d\u5361\u5e2e\u52a9\u6211\u6e21\u8fc7\u96be\u5173\u3002 \u5979\u662f\u6211\u7684\u795e\u5947\u5973\u4eba\u3002<\/p>\n

LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong><\/p>\n

\u6211\u5b66\u4f1a\u4e86\u503e\u542c\u522b\u4eba\u8bb2\u8ff0\u81ea\u5df1\u7684\u75c5\u60c5\u3002\u6211\u5728 Facebook \u4e0a\u8ba4\u8bc6\u4e86\u5f88\u591a\u597d\u670b\u53cb\uff0c\u5e76\u4e0e\u4ed6\u4eec\u4fdd\u6301\u8054\u7cfb\u3002\u6211\u503e\u542c\u4ed6\u4eec\u7684\u62c5\u5fe7\u548c\u95ee\u9898\uff0c\u4e5f\u5411\u4ed6\u4eec\u5bfb\u6c42\u5efa\u8bae\u3002\u6700\u91cd\u8981\u7684\u662f\uff0c\u6211\u5b66\u4f1a\u4e86\u5728\u9700\u8981\u5e2e\u52a9\u7684\u65f6\u5019\u5bfb\u6c42\u5e2e\u52a9\uff0c\u800c\u4e0d\u662f\u4ec0\u4e48\u4e8b\u60c5\u90fd\u60f3\u81ea\u5df1\u505a\u3002<\/p>\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>:<\/p>\n

\u6211\u60f3\u8ba9\u5168\u4e16\u754c\u90fd\u77e5\u9053\u80a2\u8170\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u5b58\u5728\uff01\uff01\uff01\u6211\u4e0d\u5f97\u4e0d\u5411\u4eba\u4eec\u89e3\u91ca\u6211\u7684\u75c5\u60c5\uff0c\u4f46\u4ed6\u4eec\u51e0\u4e4e\u90fd\u4e0d\u76f8\u4fe1\u6211\uff01 \u6211\u66fe\u591a\u6b21\u5411\u4eba\u4eec\u89e3\u91ca\u6211\u7684\u75c5\u60c5\uff0c\u4f46\u4ed6\u4eec\u51e0\u4e4e\u90fd\u4e0d\u76f8\u4fe1\u6211\uff0c\u8fd9\u771f\u662f\u4ee4\u4eba\u96be\u4ee5\u7f6e\u4fe1\u3002 \u4ed6\u4eec\u4e0d\u660e\u767d\uff0c\u6211\u7684 LGMD \u4e0d\u662f\u53bb\u5065\u8eab\u623f\u5c31\u80fd\u6cbb\u597d\u6216\u6cbb\u6108\u7684\u3002 LGMD \u6ca1\u6709\u6cbb\u6108\u6216\u6cbb\u7597\u65b9\u6cd5\u3002 \u6211\u4eec\u65e0\u6cd5\u63a7\u5236\u81ea\u5df1\u7684\u75c5\u60c5\uff0c\u5b83\u662f\u6211\u4eec....\uff0c\u662f\u6211\u4eec\u4e0e\u4e4b\u6597\u4e89\u7684\u4e00\u90e8\u5206\uff0c\u4f46\u6b63\u662f\u5b83\u9020\u5c31\u4e86\u73b0\u5728\u7684\u6211\u4eec\u3002<\/p>\n

\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u9664\u4e86\u6210\u5bb6....\uff0c\u6211\u7684\u4e2a\u4eba\u76ee\u6807\u662f\u91cd\u65b0\u6253\u7bee\u7403\u3002\u6211\u4ece\u5c0f\u5c31\u559c\u6b22\u7bee\u7403\u3002\u6211\u4e00\u5b9a\u4f1a\u91cd\u8fd4\u7403\u573a\uff0c\u5c3d\u53ef\u80fd\u957f\u65f6\u95f4\u5730\u5954\u8dd1\u3002<\/p>\n

 <\/p>\n

\u5982\u9700\u9605\u8bfb\u66f4\u591a \"LGMD \u7126\u70b9\u8bbf\u8c08\"\uff0c\u6216\u81ea\u613f\u53c2\u52a0\u5373\u5c06\u4e3e\u884c\u7684\u8bbf\u8c08\uff0c\u8bf7\u8bbf\u95ee\u6211\u4eec\u7684\u7f51\u7ad9\uff1a https:\/\/www.lgmd-info.org\/spotlight-interviews\u3002<\/p>","protected":false},"excerpt":{"rendered":"

05\/14\/2016: LGMD \u201cSpotlight Interview\u201d Name:\u00a0 Dave\u00a0\u00a0\u00a0 Age: \u00a027 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1196,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[51,12,15],"class_list":["post-1195","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-australia","tag-calpainopathy","tag-lgmd2a"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Dave - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2016\/05\/14\/dave\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Dave - 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