{"id":1282,"date":"2016-07-26T15:59:21","date_gmt":"2016-07-26T20:59:21","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1282"},"modified":"2016-07-26T15:59:21","modified_gmt":"2016-07-26T20:59:21","slug":"maram","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2016\/07\/26\/maram\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1aMaram"},"content":{"rendered":"<p><strong>07\/26\/2016 &#8211;\u00a0<\/strong>LGMD \"\u7126\u70b9\u8bbf\u8c08\"<\/p>\n<p><strong>\u59d3\u540d<\/strong>:  \u9a6c\u62c9\u59c6\u00a0\u00a0\u00a0 <strong>\u5e74\u9f84<\/strong>: 26 \u5c81<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/07\/LGMD2E-Maram.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1281 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2016\/07\/LGMD2E-Maram-300x169.png\" alt=\"LGMD2E - Maram\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>\u56fd\u5bb6<\/strong>:\u5df4\u52d2\u65af\u5766<\/p>\n<p><strong>LGMD \u5b50\u7c7b\u578b<\/strong>:LGMD2E<\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>:<\/p>\n<p>\u6211 10 \u5c81\u65f6\u88ab\u8bca\u65ad\u51fa\u60a3\u6709\u808c\u8089\u840e\u7f29\u75c7\u3002  26 \u5c81\u65f6\uff0c\u6211\u5f97\u5230\u4e86 LGMD2E \u57fa\u56e0\u786e\u8bca\u3002<\/p>\n<p><strong>\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n<p>\u6211 3 \u5c81\u65f6\uff0c\u7236\u6bcd\u53d1\u73b0\u6211\u6b65\u6001\u4e0d\u7a33\uff0c\u5f88\u96be\u4ece\u5730\u4e0a\u7ad9\u8d77\u6765\u3002<\/p>\n<p><strong>\u60a8\u662f\u5426\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD\uff1a<\/strong><\/p>\n<p>\u4e0d\uff0c\u6211\u5bb6\u53ea\u6709\u6211\u4e00\u4e2a\u4eba\u3002<\/p>\n<p><strong>\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n<p>\u6311\u6218\u592a\u591a\u4e86\u3002  \u5bf9\u5f88\u591a\u4eba\u6765\u8bf4\uff0c\u7b80\u5355\u7684\u4e8b\u60c5\u5c31\u662f\u6211\u6700\u5927\u7684\u6311\u6218\uff0c\u4f46\u4e0a\u5395\u6240\u548c\u7761\u89c9\u65f6\u5de6\u53f3\u53d8\u6362\u59ff\u52bf\u8ba9\u6211\u611f\u5230\u975e\u5e38\u865a\u5f31\u3002<\/p>\n<p><strong>\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n<p>\u5728\u6211\u56fd\uff0c\u4eba\u4eec\u5bf9 LGMD \u4e00\u65e0\u6240\u77e5\u3002  \u6211\u6bcf\u5929\u90fd\u5728\u52aa\u529b\u901a\u8fc7\u793e\u4ea4\u5a92\u4f53\u63d0\u9ad8\u4eba\u4eec\u5bf9\u8fd9\u79cd\u75be\u75c5\u7684\u8ba4\u8bc6\u3002  \u6211\u5df2\u7ecf\u5e2e\u52a9\u6211\u56fd\u548c\u963f\u62c9\u4f2f\u4e16\u754c\u7684\u8bb8\u591a\u60a3\u8005\u8fdb\u884c\u4e86\u57fa\u56e0\u68c0\u6d4b\uff0c\u4ee5\u786e\u8bca\u4ed6\u4eec\u7684\u75c5\u60c5\uff0c\u5e76\u83b7\u5f97\u4e86\u6211\u4eec\u6240\u9700\u7684\u8bbe\u5907\uff0c\u4f7f\u6211\u4eec\u7684\u751f\u6d3b\u53d8\u5f97\u66f4\u52a0\u8f7b\u677e\u3002  \u6211\u8fd8\u8054\u7cfb\u4e86\u4e16\u754c\u5404\u5730\u7684\u60a3\u8005\uff0c\u6211\u4eec\u5df2\u7ecf\u6210\u4e3a\u4e86\u4eb2\u5bc6\u7684\u670b\u53cb\u3002  \u4ed6\u4eec\u662f\u6211\u6700\u5927\u7684\u6210\u5c31\u3002<\/p>\n<p><strong>LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong><\/p>\n<p>\u6211\u8ba4\u4e3a\u8fd9\u5728\u67d0\u79cd\u7a0b\u5ea6\u4e0a\u8ba9\u6211\u53d8\u5f97\u66f4\u52a0\u575a\u5f3a\u3002  \u6211\u53d8\u5f97\u66f4\u52a0\u5173\u5fc3\u8eab\u8fb9\u7684\u4eba\u3002\u6211\u611f\u6fc0\u751f\u547d\u4e2d\u7684\u6bcf\u4e00\u70b9\u5e78\u798f\uff0c\u5305\u62ec\u6211\u7684\u5927\u5bb6\u5ead\u3002  \u6211\u53d8\u5f97\u66f4\u63a5\u8fd1\u4e0a\u5e1d\u3002  \u6211\u8ba4\u4e3a\u5b83\u4ee5\u4e00\u79cd\u597d\u7684\u65b9\u5f0f\u6539\u53d8\u4e86\u6211\uff0c\u6211\u559c\u6b22\u73b0\u5728\u7684\u81ea\u5df1\u3002<\/p>\n<p><strong>\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>:<\/p>\n<p>\u6211\u60f3\u8ba9\u4ed6\u4eec\u77e5\u9053\uff0c\u6211\u4eec\u548c\u6b63\u5e38\u4eba\u5e76\u6ca1\u6709\u4ec0\u4e48\u4e0d\u540c\u3002   \u4e00\u4e2a\u7b80\u5355\u7684\u57fa\u56e0\u9519\u8bef\u6216\u7a81\u53d8\u5bfc\u81f4\u6211\u884c\u52a8\u4e0d\u4fbf\uff0c\u800c\u4ed6\u4eec\u5374\u53ef\u4ee5\u3002  \u539f\u56e0\u5e76\u4e0d\u590d\u6742\uff0c\u5982\u679c\u6211\u4eec\u4e86\u89e3\u4e86\u8fd9\u4e00\u70b9\uff0c\u5c31\u80fd\u627e\u5230\u6cbb\u7597\u65b9\u6cd5\u3002<\/p>\n<p><strong>\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n<p>\u6211\u60f3\u7d27\u7d27\u5730\u62e5\u62b1\u6211\u7684\u7236\u6bcd\uff0c\u6c38\u8fdc\u4e0d\u8ba9\u4ed6\u4eec\u79bb\u5f00\u3002  \u6211\u4e00\u76f4\u5728\u60f3\uff0c\u5982\u679c\u6ca1\u6709\u4ed6\u4eec\uff0c\u751f\u6d3b\u5c06\u4f1a\u591a\u4e48\u8270\u96be\u3002<\/p>\n<p>\u5982\u9700\u9605\u8bfb\u66f4\u591a \"LGMD \u7126\u70b9\u8bbf\u8c08\"\uff0c\u6216\u81ea\u613f\u53c2\u52a0\u5373\u5c06\u4e3e\u884c\u7684\u8bbf\u8c08\uff0c\u8bf7\u8bbf\u95ee\u6211\u4eec\u7684\u7f51\u7ad9\uff1a https:\/\/www.lgmd-info.org\/spotlight-interviews\u3002<\/p>","protected":false},"excerpt":{"rendered":"<p>07\/26\/2016 &#8211;\u00a0LGMD &#8220;Spotlight Interview&#8221; NAME:\u00a0 Maram\u00a0\u00a0\u00a0 AGE: 26 years old [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1281,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,62],"tags":[63],"class_list":["post-1282","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2e","tag-lgmd2e-palestine"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - 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