{"id":1315,"date":"2016-09-02T08:01:44","date_gmt":"2016-09-02T13:01:44","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1315"},"modified":"2016-09-02T08:01:44","modified_gmt":"2016-09-02T13:01:44","slug":"melanie-2","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2016\/09\/02\/melanie-2\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a Melanie"},"content":{"rendered":"

LGMD \u7126\u70b9\u8bbf\u8c08 -\u00a0<\/strong>09\/02\/2016<\/strong><\/p>\n

\u00a0<\/strong><\/p>\n

\u540d\u79f0<\/strong>: \u6885\u5170\u59ae\u00a0 \u5e74\u9f84<\/strong>: 29 \u5c81\"LGMD2i<\/a><\/p>\n

\u56fd\u5bb6<\/strong>: \u5fb7\u56fd<\/p>\n

LGMD \u5b50\u7c7b\u578b<\/strong> : LGMD2i\uff08\u6742\u5408\u5b50\u578b\uff09<\/p>\n

 <\/p>\n

\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>:<\/p>\n

\u6211\u662f\u5728 4 \u5c81\u65f6\u901a\u8fc7\u808c\u8089\u6d3b\u68c0\u786e\u8bca\u7684\u3002<\/p>\n

\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u6211\u5728\u8dd1\u6b65\u548c\u8d70\u697c\u68af\u65f6\u603b\u662f\u6454\u8de4\u3002 \u8fd9\u5bfc\u81f4\u4e86\u8bb8\u591a\u7600\u4f24\u548c\u75a4\u75d5\uff01 \u6b64\u5916\uff0c\u6211\u8fd8\u4e0d\u80fd\u81ea\u5df1\u4ece\u5730\u4e0a\u7ad9\u8d77\u6765\u3002 \u8fd9\u4e9b\u75c7\u72b6\u5728\u6211\u4e24\u5c81\u65f6\u5c31\u5df2\u7ecf\u51fa\u73b0\u4e86\u3002<\/p>\n

\u60a8\u662f\u5426\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD\uff1a<\/strong><\/p>\n

\u4e0d\uff0c\u6211\u662f\u5bb6\u65cf\u4e2d\u552f\u4e00\u7684 LGMD \u60a3\u8005\u3002<\/p>\n

\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u6700\u5927\u7684\u6311\u6218\u662f\u8ba9\u4eba\u4eec\u660e\u767d\uff0c\u6211\u4e0d\u662f\u61d2\u5f97\u505a\u65e5\u5e38\u5de5\u4f5c\uff0c\u800c\u662f\u592a\u865a\u5f31\uff0c\u65e0\u6cd5\u72ec\u7acb\u5b8c\u6210\u3002 \u5bf9\u6211\u4eec\u8bb8\u591a\u4eba\u6765\u8bf4\uff0c\u53e6\u4e00\u4e2a\u6311\u6218\u662f\u63a5\u53d7\u8f6e\u6905\u6210\u4e3a\u4f60\u6700\u597d\u7684\u670b\u53cb\uff01<\/p>\n

\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u6210\u5c31\u592a\u591a\u4e86\uff01 \u4e0e LGMD \u548c\u7766\u76f8\u5904\u672c\u8eab\u5c31\u662f\u4e00\u79cd\u6210\u5c31\uff01 \u5728\u6211\u7684\u535a\u5ba2 (www.littlemissturtle.com<\/a>)\u6211\u5199\u4e0b\u4e86\u6211\u6240\u6709\u7684\u6210\u5c31\u548c\u8f66\u8f6e\u4e0a\u7684\u5192\u9669\u3002<\/p>\n

LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong><\/p>\n

\u6211\u5728 LGMD \u7684\u966a\u4f34\u4e0b\u957f\u5927\u3002 \u5b83\u4f7f\u6211\u6210\u4e3a\u4e00\u4e2a\u975e\u5e38\u575a\u5f3a\u7684\u4eba\u3002 \u8fd9\u79cd\u75be\u75c5\u4f1a\u9010\u6e10\u5bfc\u81f4\u808c\u8089\u65e0\u529b\u548c\u840e\u7f29\uff0c\u800c\u6211\u5374\u80fd\u5b8c\u5168\u6e05\u9192\u5730\u8ba4\u8bc6\u5230\u8fd9\u4e00\u70b9\uff0c\u8fd9\u5bf9\u6211\u6765\u8bf4\u662f\u4e00\u9879\u8270\u5de8\u7684\u6311\u6218\uff0c\u6211\u6bcf\u5929\u90fd\u975e\u5e38\u73cd\u60dc\uff01 \u4e3a\u4e86\u6709\u66f4\u591a\u65f6\u95f4\u505a\u81ea\u5df1\u559c\u6b22\u7684\u4e8b\u60c5\uff0c\u6211\u6700\u8fd1\u505c\u6b62\u4e86\u5de5\u4f5c\u3002 LGMD \u6559\u4f1a\u6211\u4ece\u5bb9\u5e94\u5bf9\u3002 \u591a\u4eab\u53d7\uff0c\u5c11\u62c5\u5fc3\uff0c\u4fdd\u6301\u4e50\u89c2\uff0c\u5c3d\u53ef\u80fd\u591a\u5730\u4e0e\u6240\u7231\u7684\u4eba\u5728\u4e00\u8d77\u3002 \u8fd9\u5c31\u662f\u6211\u7684\u65b9\u5f0f\uff01<\/p>\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>:<\/p>\n

LGMD \u662f\u4e00\u79cd\u7f55\u89c1\u800c\u68d8\u624b\u7684\u75be\u75c5\u3002 \u5b83\u65e0\u6cd5\u4e0e\u591a\u53d1\u6027\u786c\u5316\u75c7\uff08MS\uff09\u7b49\u5176\u4ed6\u75be\u75c5\u76f8\u63d0\u5e76\u8bba\u3002 \u91cd\u8981\u7684\u662f\uff0c\u5f53 LGMD \u60a3\u8005\u8bf7\u6c42\u5e2e\u52a9\u65f6\uff0c\u8981\u5145\u5206\u542c\u53d6\u4ed6\u4eec\u7684\u610f\u89c1\uff0c\u4ee5\u514d\u5728\u6b64\u8fc7\u7a0b\u4e2d\u4f24\u5bb3\u5230\u4ed6\u4eec\u3002<\/p>\n

\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u6211\u4f1a\u81ea\u5df1\u4ece\u5e8a\u4e0a\u722c\u8d77\u6765\uff0c\u7a7f\u597d\u8863\u670d\uff0c\u7136\u540e\u53bb\u6563\u6b65\uff01 \u53ea\u8981\u6211\u7684\u811a\u8fd8\u80fd\u8d70\u8def\uff0c\u6211\u5c31\u4f1a\u4e00\u76f4\u8d70\u4e0b\u53bb\u3002<\/p>\n

\u5982\u9700\u9605\u8bfb\u66f4\u591a \"LGMD \u7126\u70b9\u8bbf\u8c08\"\uff0c\u6216\u81ea\u613f\u53c2\u52a0\u5373\u5c06\u4e3e\u884c\u7684\u8bbf\u8c08\uff0c\u8bf7\u8bbf\u95ee\u6211\u4eec\u7684\u7f51\u7ad9\uff1a https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD Spotlight interview –\u00a009\/02\/2016 \u00a0 Name:\u00a0 Melanie\u00a0 Age:\u00a0 29 yrs. 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