{"id":1318,"date":"2016-09-09T08:11:31","date_gmt":"2016-09-09T13:11:31","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1318"},"modified":"2016-09-09T08:11:31","modified_gmt":"2016-09-09T13:11:31","slug":"steven","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2016\/09\/09\/steven\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a Steven"},"content":{"rendered":"

LGMD Spotlight interview:\u00a0 \u00a0<\/strong><\/p>\n

\u540d\u79f0<\/strong>:\u00a0 Steven\u00a0 \u5e74\u9f84<\/strong>:\u00a0 57 yrs. old\"Unknown<\/a><\/p>\n

\u56fd\u5bb6<\/strong>: \u7f8e\u56fd<\/p>\n

LGMD \u5b50\u7c7b\u578b<\/strong> : \u00a0LGMD (sub-type unknown)<\/p>\n

 <\/p>\n

\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>:<\/p>\n

I was diagnosed at the age of 43.<\/p>\n

\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

Vague symptoms have been present since birth.\u00a0 I had a waddling gait, could not climb, had difficulty with stairs but the doctors could not diagnose the cause.\u00a0 My mother always knew something was wrong\u2026.but what?\u00a0 I was finally diagnosed with LGMD when heart problems began at the age of 43.<\/p>\n

\u60a8\u662f\u5426\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD\uff1a<\/strong><\/p>\n

Yes, most likely.\u00a0 A second cousin (female) and my Grandpa Stone possibly had a form of MD because he was crippled from youth but back then they called it \u201crheumatism\u201d.\u00a0 I also had another second cousin (male) who was totally helpless and died young.<\/p>\n

\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

The greatest challenge are falls!\u00a0 I was in Boy Scouts since the age of 11 and had difficulty keeping up with other boys in activities.\u00a0 I have experienced numerous falls.\u00a0 I require the rescue squad and neighbors to help me up as my wife is usually at work when I fall.<\/p>\n

\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

My greatest accomplishments include fathering 4 children \u2013 3 of which are still living.\u00a0 I was able to hold a job for 25 years and volunteered with the local rescue squad for 38 years; beginning at the age of 16.\u00a0 I continue to volunteer with the rescue squad but only answer the phone.<\/p>\n

I served as a Boy Scout Leader (assistant scout Master for 25 years.)\u00a0 Currently, I am now an organizational representative.\u00a0 I was an Eagle Scout in 1978.\u00a0 For my Eagle project, I did a church cassette tape ministry.\u00a0 I continue to serve as the sound man at church today,<\/p>\n

LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong><\/p>\n

All of my life \u2013 everything that I do is a challenge!\u00a0 But with work and determination, I have \u2018Kept on Keeping on.\u2019\u00a0\u00a0 I am determined to stay as active as I can be despite my LGMD.<\/p>\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>:<\/p>\n

LGMD makes every accomplishment a real challenge.\u00a0 But work and the desire to succeed can make many things possible.\u00a0 My whole life has been hard but it could be worse\u2026.especially if I had a different type of muscular dystrophy or I had a more severe form of LGMD.<\/p>\n

\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

If my LGMD could be cured tomorrow, I would want to be recertified as an EMT and then volunteer on active duty with the rescue squad.<\/p>\n

 <\/p>\n

\u5982\u9700\u9605\u8bfb\u66f4\u591a \"LGMD \u7126\u70b9\u8bbf\u8c08\"\uff0c\u6216\u81ea\u613f\u53c2\u52a0\u5373\u5c06\u4e3e\u884c\u7684\u8bbf\u8c08\uff0c\u8bf7\u8bbf\u95ee\u6211\u4eec\u7684\u7f51\u7ad9\uff1a https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD Spotlight interview:\u00a0 \u00a0 Name:\u00a0 Steven\u00a0 Age:\u00a0 57 yrs. old […]<\/p>","protected":false},"author":1,"featured_media":1317,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[16,47],"class_list":["post-1318","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","tag-united-states","tag-unknown-sub-type"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Steven - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2016\/09\/09\/steven\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Steven - 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