{"id":1403,"date":"2017-01-28T09:30:12","date_gmt":"2017-01-28T15:30:12","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1403"},"modified":"2017-01-28T09:30:12","modified_gmt":"2017-01-28T15:30:12","slug":"brenda","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2017\/01\/28\/brenda\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a Brenda"},"content":{"rendered":"

LGMD \"\u7126\u70b9\u8bbf\u8c08\"<\/p>\n

\u540d\u79f0<\/strong>: \u5e03\u4f26\u8fbe\u00a0 \u5e74\u9f84<\/strong>: 55 \u5c81\"\"<\/a><\/p>\n

\u56fd\u5bb6<\/strong>: \u7f8e\u56fd<\/p>\n

LGMD \u5b50\u7c7b\u578b<\/strong>: LGMD2A - \u53c8\u79f0\u9499\u86cb\u767d\u9176\u75c5<\/p>\n

 <\/p>\n

\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>:<\/p>\n

\u6211\u662f\u5728 50 \u5c81\u65f6\u88ab\u786e\u8bca\u7684\u3002<\/p>\n

\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u6211\u6700\u521d\u51fa\u73b0\u7684\u75c7\u72b6\u5305\u62ec\uff1a\u8dcc\u5012\u3001\u624b\u8155\u4e0b\u5782\u3001\u8d70\u8def\u65f6\u81c0\u90e8\u524d\u503e\u3001\u817f\u62bd\u7b4b\u548c\u4f53\u91cd\u8fc5\u901f\u4e0b\u964d\u3002<\/p>\n

\u60a8\u662f\u5426\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD\uff1a<\/strong><\/p>\n

\u6ca1\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD\u3002<\/p>\n

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\u4e0e LGMD \u5171\u540c\u751f\u6d3b\u7684\u6700\u5927\u6311\u6218\u662f\uff0c\u6211\u770b\u8d77\u6765\u5f88\u6b63\u5e38\uff0c\u800c\u75be\u75c5\u5374\u6c38\u8fdc\u5b58\u5728\u3002<\/p>\n

\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u6211\u6700\u4f1f\u5927\u7684\u6210\u5c31\u5305\u62ec\uff1a\u5728\u963f\u5c14\u5351\u65af\u5c71\u6ed1\u96ea\u3001\u5728\u5927\u897f\u6d0b\u6d77\u5cb8\u5212\u76ae\u8247\u3001\u5728\u5c1a\u666e\u5170\u6e56\u5212\u76ae\u8247\u4ee5\u53ca\u5728\u4f5b\u8499\u7279\u5dde\u6ed1\u65f1\u51b0\u3002 \u6b64\u5916\uff0c\u6211\u8fd8\u517b\u80b2\u4e86\u4e00\u4e2a\u5065\u5eb7\u7684 17 \u5c81\u5973\u513f\uff0c\u5e76\u4e0e\u4e00\u4f4d\u65e0\u8bba\u5982\u4f55\u90fd\u6df1\u7231\u7740\u6211\u7684\u51fa\u8272\u4e08\u592b\u7ed3\u5a5a 25 \u5e74\uff01 \u6211\u8fd8\u5728\u4f5b\u8499\u7279\u5dde\u552f\u4e00\u4e00\u5bb6\u4e94\u661f\u7ea7\u5ea6\u5047\u6751\u62c5\u4efb\u4e86 22 \u5e74\u7684\u5a31\u4e50\u603b\u76d1\u3002<\/p>\n

LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong><\/p>\n

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\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>:<\/p>\n

\u6211\u60f3\u544a\u8bc9\u5927\u5bb6\uff0c\u6211\u8fd8\u662f\u90a3\u4e2a\u4e00\u6709\u673a\u4f1a\u5c31\u5728\u739b\u838e\u8461\u8404\u56ed\u7684\u76d6\u5934\u5d16\u6c99\u6ee9\u4e0a\u8df3\u821e\u3001\u7ffb\u7b4b\u6597\u548c\u505a\u540e\u5f2f\u7684\u5e03\u4f26\u8fbe\u3002 \u5979\u662f\u7b2c\u4e00\u4e2a\u5728\u6ed1\u6c34\u677f\u4e0a\u8fdb\u884c\u56de\u65cb\u6ed1\u96ea\u7684\u4eba\uff0c\u7b2c\u4e00\u4e2a\u8fdb\u884c\u4e0b\u5761\u3001\u8d8a\u91ce\u548ctelemark\u6ed1\u96ea\u7684\u4eba\uff0c\u7b2c\u4e00\u4e2a\u5728\u6b27\u6d32\u963f\u5c14\u5351\u65af\u5c71\u6ed1\u96ea\u7684\u4eba\u3002 \u7b2c\u4e00\u4e2a\u5728\u534e\u76db\u987f\u5c71\u7684\u5854\u514b\u66fc\u5ce1\u8c37\u5934\u5899\u6ed1\u96ea\u7684\u4eba\u3002 \u5728\u4f5b\u8499\u7279\u5dde\u57fa\u6797\u987f\u6ed1\u96ea\u5ea6\u5047\u6751\uff08Killington ski Resort\uff09\u7684\u6240\u6709\u9ed1\u94bb\u548c\u53cc\u9ed1\u94bb\u96ea\u9053\uff08\u5305\u62ec\u6240\u6709\u6728\u8d28\u96ea\u9053\uff09\u4e0a\u6ed1\u96ea\u957f\u8fbe 30 \u5e74\u4e4b\u4e45\u3002 \u6211\u7edd\u4e0d\u4f1a\u8ba9\u8fd9\u79cd\u75be\u75c5\u7ed9\u6211\u8d34\u4e0a\u6807\u7b7e\uff0c\u4e5f\u4e0d\u4f1a\u8ba9\u6211\u5367\u75c5\u5728\u5e8a\u3002 \u5b89\u4e1c\u5c3c-\u963f\u9a6c\u6258\u533b\u751f\uff08Dr. Anthony Amato\uff09\u5728\u6211 50 \u5c81\u786e\u8bca\u65f6\u8bf4\uff1a\"\u795d\u60a8\u5065\u5eb7\u957f\u5bff\"\u3002 \u6211\u60f3\u8ba9\u5168\u4e16\u754c\u77e5\u9053\uff0c\u6b8b\u75be\u4eba\u548c\u4f60\u4e00\u6837\uff01<\/p>\n

\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u4e0e\u4e08\u592b\u5171\u821e\uff0c\u6beb\u65e0\u75b2\u60eb\u4e4b\u611f\u3002 \u5728\u96ea\u9053\u4e0a\u6ed1\u96ea\uff0c\u5b8c\u7f8e\u8f6c\u5f2f\u3002 \u5728\u6c99\u6ee9\u4e0a\u6f2b\u6b65\uff0c\u6beb\u65e0\u75b2\u60eb\u611f\u3002 \u518d\u6b21\u4ee5\u826f\u597d\u7684\u901f\u5ea6\u5f92\u6b65\u65c5\u884c\uff0c\u6ca1\u6709\u5173\u8282\u75bc\u75db\u6216\u624b\u8155\u9178\u75db\u3002 \u4e0e\u5973\u58eb\u4eec\u4e00\u8d77\u9a91\u81ea\u884c\u8f66\uff0c\u5e76\u80fd\u8ddf\u4e0a\u8282\u594f\u3002 \u5728\u96ea\u5730\u4e0a\u9a91\u80a5\u80ce\u81ea\u884c\u8f66\u3002<\/p>\n

\u5982\u9700\u9605\u8bfb\u66f4\u591a \"LGMD \u7126\u70b9\u8bbf\u8c08\"\uff0c\u6216\u81ea\u613f\u53c2\u52a0\u5373\u5c06\u4e3e\u884c\u7684\u8bbf\u8c08\uff0c\u8bf7\u8bbf\u95ee\u6211\u4eec\u7684\u7f51\u7ad9\uff1a https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD “Spotlight Interview” Name:\u00a0 Brenda\u00a0 Age:\u00a0 55 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":1404,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[70],"class_list":["post-1403","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Brenda - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2017\/01\/28\/brenda\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Brenda - 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