{"id":1503,"date":"2017-07-11T11:52:08","date_gmt":"2017-07-11T16:52:08","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1503"},"modified":"2017-07-11T11:52:08","modified_gmt":"2017-07-11T16:52:08","slug":"ralph","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2017\/07\/11\/ralph\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a \u62c9\u5c14\u592b"},"content":{"rendered":"

\u540d\u79f0<\/strong>: \u62c9\u5c14\u592b\u00a0 \u5e74\u9f84<\/strong>: 24 \u5c81<\/p>\n

\u56fd\u5bb6<\/strong>:\u5357\u975e<\/p>\n

LGMD \u5b50\u7c7b\u578b<\/strong>:LGMD2B\"\"<\/a><\/p>\n

 <\/p>\n

\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>:<\/p>\n

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\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u6211\u7684\u751f\u6d3b\u65b9\u5f0f\u975e\u5e38\u6d3b\u8dc3\uff0c\u80be\u4e0a\u817a\u7d20\u5206\u6ccc\u65fa\u76db\uff0c\u5f53\u6211\u53d1\u73b0\u81ea\u5df1\u6bcf\u5929\u8dd1\u6b65\u7684\u901f\u5ea6\u8d8a\u6765\u8d8a\u6162\u4e4b\u540e\uff0c\u6211\u4e5f\u5f00\u59cb\u8d8a\u6765\u8d8a\u52aa\u529b\u5730\u8bad\u7ec3\u3002 \u4f46\u6700\u7ec8\u6211\u7684\u8eab\u4f53\u8fd8\u662f\u8d8a\u6765\u8d8a\u865a\u5f31\u3002 \u5b8c\u6210\u6f5c\u6c34\u8bad\u7ec3\u540e\uff0c\u6211\u51b3\u5b9a\u5bfb\u6c42\u5e2e\u52a9\u3002<\/p>\n

\u60a8\u662f\u5426\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD\uff1a<\/strong><\/p>\n

\u4e0d\uff0c\u6211\u662f\u552f\u4e00\u7684\u4e00\u4e2a\uff0c\u6211\u7684\u5bb6\u4eba\u5728\u5f97\u77e5\u6211\u7684\u8bca\u65ad\u7ed3\u679c\u540e\u53d7\u5230\u4e86\u4e0d\u5c0f\u7684\u6253\u51fb\u3002 \u5176\u5b9e\u5bf9\u6211\u6ca1\u6709\u5f71\u54cd\u3002 \u53ea\u662f\u628a\u5b83\u770b\u4f5c\u662f\u53e6\u4e00\u4e2a\u6311\u6218\u3002 \u4f46\u8fc7\u4e86\u4e00\u6bb5\u65f6\u95f4\uff0c\u73b0\u5b9e\u771f\u7684\u6765\u4e86......\u5982\u679c\u4f60\u660e\u767d\u6211\u7684\u610f\u601d\u7684\u8bdd\u3002<\/p>\n

\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u63a5\u53d7\u3002 \u4e8b\u5b9e\u4e0a\uff0c\u6211\u4e0d\u80fd\u518d\u53c2\u52a0\u4ee5\u524d\u7ecf\u5e38\u53c2\u52a0\u7684\u6240\u6709\u6d3b\u52a8\uff0c\u8fd9\u5bf9\u6211\u6765\u8bf4\u662f\u4e2a\u4e0d\u5c0f\u7684\u6311\u6218\u3002 \u6211\u5f88\u96be\u653e\u5f03\u8df3\u4f1e\u3001\u767d\u6c34\u6f02\u6d41\u548c\u8d8a\u91ce\u8fd0\u52a8\uff0c\u56e0\u4e3a\u8fd9\u4e9b\u8fd0\u52a8\u5bf9\u6211\u7684\u80f3\u818a\u548c\u817f\u9020\u6210\u7684\u8d1f\u62c5\u592a\u5927\u4e86\u3002<\/p>\n

\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

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\u6709\u4e00\u4e2a\u6545\u4e8b\u6fc0\u52b1\u7740\u6211\u5145\u5b9e\u5730\u751f\u6d3b\u3002 \u666e\u5e03\u5229\u4e4c\u65af-\u970d\u62c9\u63d0\u4e4c\u65af-\u79d1\u514b\u83b1\u65af\u662f\u53e4\u7f57\u9a6c\u5171\u548c\u56fd\u519b\u961f\u4e2d\u7684\u4e00\u540d\u519b\u5b98\uff0c\u5728\u7f57\u9a6c\u4e0e\u514b\u9c81\u897f\u4e4c\u59c6\u7684\u6218\u4e89\u4e2d\uff0c\u4ed6\u4fdd\u536b\u4e86\u5e9e\u65af-\u82cf\u91cc\u5409\u4e4c\u65af\uff0c\u56e0\u6b64\u800c\u95fb\u540d\u3002 \u8bd7\u4e2d\u5199\u9053 \"\u52c7\u6562\u7684\u970d\u62c9\u63d0\u4e4c\u65af\uff0c\u5b88\u95e8\u7684\u961f\u957f \"\u4e16\u4e0a\u6bcf\u4e2a\u4eba \u6b7b\u4ea1\u6216\u65e9\u6216\u665a\u90fd\u4f1a\u6765\u4e34\u3002 \"\u4eba\u600e\u4e48\u6b7b\u90fd\u6bd4\u9762\u5bf9\u6b7b\u4ea1\u597d\"<\/p>\n

LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong><\/p>\n

\u6211\u4e00\u76f4\u8ba4\u4e3a\u81ea\u5df1\u662f\u7262\u4e0d\u53ef\u7834\u7684\u3002 \u81ea\u4ece\u786e\u8bca\u540e\uff0c\u6211\u610f\u8bc6\u5230\u81ea\u5df1\u662f\u4e0d\u53ef\u963b\u6321\u7684\u3002 \u4e16\u4e0a\u53ea\u6709\u751f\u4e0e\u6b7b\uff0c\u9009\u62e9\u4e86\u751f\uff0c\u6211\u7684\u68a6\u60f3\u5c31\u53ea\u5dee\u4e00\u53e3\u6c14\u3002 \u6211\u6253\u7b97\u7f29\u5c0f\u8fd9\u4e2a\u5dee\u8ddd\u3002<\/p>\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>:<\/p>\n

\u6c38\u8fdc\u4e0d\u8981\u770b\u4e0d\u8d77\u4efb\u4f55\u5f62\u5f0f\u7684\u75be\u75c5\u60a3\u8005\u3002 \u4f60\u9700\u8981\u62b1\u7740\u8fd9\u6837\u7684\u5fc3\u6001\u53bb\u751f\u6d3b\uff0c\u53bb\u514b\u670d\u8fd9\u6837\u7684\u969c\u788d\uff0c\u8fd9\u53ef\u80fd\u4f1a\u8ba9\u4f60\u96be\u4ee5\u627f\u53d7\u3002<\/p>\n

\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u6211\u4f1a\u5f00\u59cb\u5954\u8dd1\uff0c\u4e0d\u8dd1\u65ad\u817f\u51b3\u4e0d\u7f62\u4f11\uff0c\u56e0\u4e3a\u6b64\u65f6\u6b64\u523b......\u6211\u662f\u81ea\u7531\u7684\uff01<\/p>\n

\u5982\u9700\u9605\u8bfb\u66f4\u591a \"LGMD \u7126\u70b9\u8bbf\u8c08\"\uff0c\u6216\u81ea\u613f\u53c2\u52a0\u5373\u5c06\u4e3e\u884c\u7684\u8bbf\u8c08\uff0c\u8bf7\u8bbf\u95ee\u6211\u4eec\u7684\u7f51\u7ad9\uff1a https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Name:\u00a0 Ralph\u00a0 Age: 24 yrs. old Country: South Africa LGMD […]<\/p>","protected":false},"author":1,"featured_media":1502,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[77],"class_list":["post-1503","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-south-africa"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Ralph - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2017\/07\/11\/ralph\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Ralph - 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