{"id":1506,"date":"2017-07-28T08:37:52","date_gmt":"2017-07-28T13:37:52","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1506"},"modified":"2017-07-28T08:37:52","modified_gmt":"2017-07-28T13:37:52","slug":"nicole","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2017\/07\/28\/nicole\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a \u59ae\u53ef"},"content":{"rendered":"<p><strong>\u540d\u79f0\uff1a<\/strong> \u59ae\u53ef \u5e74\u9f8437<\/p>\n<p><strong>\u56fd\u5bb6\uff1a<\/strong> \u7f8e\u56fd<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2017\/07\/LGMD2J-Nicole.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1505 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2017\/07\/LGMD2J-Nicole-300x169.png\" alt=\"\" width=\"300\" height=\"169\" \/><\/a><\/p>\n<p><strong>LGMD \u5b50\u7c7b\u578b<\/strong>:LGMD 2J\uff08\u6ef4\u866b\u75c5\uff09<!--more--><\/p>\n<p>&nbsp;<\/p>\n<p><strong>\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>:<\/p>\n<p>\u6211\u5728 24 \u5c81\u65f6\u88ab\u786e\u8bca\u3002<\/p>\n<p><strong>\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n<p>\u6211\u4ece\u5c0f\u5c31\u4e0d\u7231\u8fd0\u52a8\uff0c\u603b\u89c9\u5f97\u81ea\u5df1\u7b28\u624b\u7b28\u811a\u3002\u5c0f\u5b66\u548c\u521d\u4e2d\u65f6\uff0c\u6211\u66fe\u5c1d\u8bd5\u53c2\u52a0\u4f53\u80b2\u8fd0\u52a8\uff0c\u4f46\u603b\u89c9\u5f97\u81ea\u5df1\u534f\u8c03\u6027\u592a\u5dee\uff0c\u65e0\u6cd5\u53c2\u52a0\u4efb\u4f55\u6709\u7ec4\u7ec7\u7684\u8fd0\u52a8\u961f\u3002\u4e00\u5207\u770b\u8d77\u6765\u90fd\u5f88 \"\u6b63\u5e38\"\uff0c\u76f4\u5230\u4e0a\u9ad8\u4e2d\u65f6\uff0c\u6211\u5f00\u59cb\u4ece\u697c\u68af\u4e0a\u6454\u4e0b\u6765--\u6211\u5728\u5341\u51e0\u5c81\u65f6\u5c31\u5f00\u59cb\u7528\u811a\u5c16\u8d70\u8def\uff0c\u8fd9\u4e5f\u662f\u6211\u4ece\u697c\u68af\u4e0a\u6454\u4e0b\u6765\u7684\u539f\u56e0\u4e4b\u4e00\u3002\u867d\u7136\u6211\u613f\u610f\u76f8\u4fe1\u81ea\u5df1\u53ea\u662f\u4e00\u4e2a\u6781\u5ea6\u7b28\u624b\u7b28\u811a\u7684\u4eba\uff0c\u4f46\u6211\u7684\u8111\u6d77\u4e2d\u603b\u662f\u6709\u4e00\u4e9b\u4e1c\u897f\u5728\u544a\u8bc9\u6211\uff0c\u6211\u5e76\u4e0d \"\u6b63\u5e38\"\u30022003 \u5e74\uff0c\u6211\u6709\u4e86\u4e00\u4e2a\u5b8f\u4f1f\u7684\u60f3\u6cd5\uff0c\u6211\u60f3\u5f00\u59cb\u8dd1\u6b65\u6765\u953b\u70bc\u8eab\u4f53\u3002\u6211\u6ca1\u8dd1\u51fa\u56db\u5206\u4e4b\u4e00\u4e2a\u8857\u533a\uff0c\u5c31\u5728\u51e0\u5206\u949f\u5185\u6454\u5012\u5728 #3 \u4e0a\u3002\u4ece\u90a3\u65f6\u8d77\uff0c\u6211\u5f00\u59cb\u503e\u542c\u5185\u5fc3\u7684\u58f0\u97f3\uff0c\u5b83\u544a\u8bc9\u6211\u4e8b\u60c5\u4e0d\u5bf9\u52b2--\u662f\u65f6\u5019\u53bb\u770b\u533b\u751f\u4e86\u3002<\/p>\n<p><strong>\u60a8\u662f\u5426\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD<\/strong><strong>: <\/strong><\/p>\n<p>\u6211\u5f1f\u5f1f\u4fdd\u7f57\u4e5f\u60a3\u6709 LGMD 2J\u3002<\/p>\n<p><strong>\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n<p>\u60a3\u4e0a LGMD \u6700\u56f0\u96be\u7684\u5730\u65b9\u5728\u4e8e\uff0c\u6211\u7684\u601d\u60f3\u548c\u8eab\u4f53\u6839\u672c\u4e0d\u540c\u6b65\u3002\u6211\u7684\u5927\u8111\u8bf4\uff1a\"\u53bb\uff01\"\u800c\u6211\u7684\u8eab\u4f53\u5374\u5728\u5c16\u53eb\uff1a\"\u4f60\u5728\u60f3\u4ec0\u4e48\uff0c\u4f60\u4e0d\u80fd\u8fd9\u6837\u505a\"\u3002\u5728\u6211\u770b\u6765\uff0c\u6211\u53ef\u4ee5\u722c\u697c\u68af\u3001\u7a7f\u4e00\u53cc\u8ff7\u4eba\u7684\u9ad8\u8ddf\u978b\u3001\u4f18\u96c5\u5730\u8d70\u5728\u4eba\u884c\u9053\u4e0a\u3001\u62ce\u7740\u6742\u8d27\u3001\u8dd1\u9a6c\u62c9\u677e\u3002\u4f46\u6211\u7684\u8eab\u4f53\u4e0d\u540c\u610f--\u6211\u4e0d\u60dc\u4e00\u5207\u4ee3\u4ef7\u907f\u514d\u722c\u697c\u68af\uff0c\u6211\u5fc5\u987b\u7a7f\u5e73\u5e95\u978b\u3002\u8d70\u5728\u4eba\u884c\u9053\u4e0a\uff0c\u5982\u679c\u65c1\u8fb9\u6ca1\u6709\u4eba\uff0c\u6211\u5c31\u4f1a\u6709\u4e00\u79cd\u8bf4\u4e0d\u51fa\u7684\u7126\u8651\u611f--\u628a\u4e00\u8f66\u6742\u8d27\u642c\u8fdb\u5bb6\u95e8\uff0c\u611f\u89c9\u5c31\u50cf\u5728\u7528\u81ea\u5df1\u7684\u53cc\u624b\u642c\u52a8\u4e00\u5ea7\u5c71\u3002\u8dd1\u9a6c\u62c9\u677e\u5c31\u50cf\u5728\u5bb6\u91cc\u8bad\u7ec3\u4e00\u5934\u5927\u8c61\u4e00\u6837\u56f0\u96be\u3002\u6211\u7684\u5927\u8111\u8bf4\u6211\u5b8c\u5168\u6709\u80fd\u529b\uff0c\u4f46\u6211\u7684\u8eab\u4f53\u5374\u62d2\u7edd\u505a\u51fa\u76f8\u5e94\u7684\u53cd\u5e94\u3002\u5f53\u6211\u88ab\u9080\u8bf7\u53bb\u4e00\u4e2a\u6211\u4ece\u672a\u53bb\u8fc7\u7684\u5730\u65b9\u65f6\uff0c\u6211\u4e5f\u4f1a\u4ea7\u751f\u5de8\u5927\u7684\u6050\u60e7\u611f\uff0c\u5c24\u5176\u662f\u5f53\u6211\u4e00\u4e2a\u4eba\u53bb\u7684\u65f6\u5019\u3002\u5f53\u6211\u5e94\u9080\u53c2\u52a0\u6d3b\u52a8\u3001\u53c2\u52a0\u5de5\u4f5c\u4f1a\u8bae\u6216\u5fc5\u987b\u53bb\u4e00\u4e2a\u4ece\u672a\u53bb\u8fc7\u7684\u5730\u65b9\u65f6\uff0c\u6211\u53d1\u73b0\u8c37\u6b4c\u5730\u7403\u662f\u6211\u6700\u4eb2\u5bc6\u7684\u76df\u53cb\u3002\u6211\u4f1a\u5728\u8c37\u6b4c\u5730\u7403\u4e0a\u67e5\u770b\u5efa\u7b51\u7269\u7684\u5e03\u5c40\u3002\u505c\u8f66\u573a\u5728\u54ea\u91cc\uff1f\u5230\u524d\u95e8\u8981\u8d70\u591a\u8fdc\uff1f\u5165\u53e3\u5904\u6709\u53f0\u9636\u6216\u659c\u5761\u5417\uff1f\u6709\u6ca1\u6709\u4ec0\u4e48\u4e1c\u897f\u53ef\u80fd\u4f1a\u59a8\u788d\u6211\u5728\u5730\u5f62\u4e2d\u7a7f\u884c\uff1f\u5c3d\u7ba1\u8c03\u67e5\u5f88\u6709\u5e2e\u52a9\uff0c\u4f46\u8fd9\u4e9b\u5148\u53d1\u5236\u4eba\u7684\u63aa\u65bd\u53ea\u80fd\u7a0d\u7a0d\u51cf\u8f7b 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\"\u6211\u8dd1\u4e0d\u52a8\u4e86 \"\u7684\u6b21\u6570\u53ef\u80fd\u6bd4\u8bf4 \"\u6211\u80fd\u505a\u5230 \"\u7684\u6b21\u6570\u8fd8\u591a\u3002\u6211\u53ef\u80fd\u662f\u6700\u540e\u4e00\u4e2a\u51b2\u8fc7\u7ec8\u70b9\u7ebf\u7684\u4eba\uff0c\u4f46\u6211\u4ece\u5f00\u59cb\u5230\u5b8c\u6210\u6bd4\u8d5b\uff0c\u6ca1\u6709\u8d70\u8fc7\u4e00\u4e2a\u5f2f\u8def\u3002<\/p>\n<p>\u5c31\u6211\u4e2a\u4eba\u800c\u8a00\uff0c\u6211\u4e3a\u81ea\u5df1\u6700\u8fd1\u7684\u4e3e\u52a8\u611f\u5230\u975e\u5e38\u81ea\u8c6a\u3002\u60a3\u4e0a LGMD \u9700\u8981\u4ed6\u4eba\u7684\u5927\u91cf\u5e2e\u52a9\uff0c\u800c\u4e14\u968f\u7740\u65f6\u95f4\u7684\u63a8\u79fb\uff0c\u8fd9\u79cd\u9700\u6c42\u53ea\u4f1a\u4e0d\u65ad\u589e\u52a0\u3002\u867d\u7136\u6211\u63a5\u53d7\u8fd9\u4e00\u70b9\uff0c\u4f46\u6211\u4e0d\u4f1a\u8ba9\u5b83\u51b3\u5b9a\u6211\u7684\u751f\u6d3b\u65b9\u5f0f\u3002\u6700\u8fd1\uff0c\u6211\u4e00\u4e2a\u4eba\u642c\u5230\u4e86\u8fdc\u79bb\u6211\u8ba4\u8bc6\u7684\u6240\u6709\u4eba\u8fd1 900 \u82f1\u91cc\u7684\u5730\u65b9\u3002\u6211\u629b\u4e0b\u4e86\u6211\u7684 \"\u808c\u8089\"\uff0c\u6211\u6536\u62fe\u597d\u4e86\u4e00\u5207\uff0c\u6211\u51b3\u5b9a\u8981\u771f\u6b63\u5730\u5355\u98de\uff0c\u53bb\u53d1\u73b0\u81ea\u5df1\u5230\u5e95\u6709\u591a\u5065\u58ee\u3002<\/p>\n<p>\u5728\u804c\u4e1a\u65b9\u9762\uff0c\u6211\u66fe\u88ab\u8bc4\u4e3a\u9a6c\u91cc\u5170\u5dde\u767e\u4f73\u5973\u6027\u548c\u767e\u4f73\u5c11\u6570\u6c11\u65cf\u5546\u4e1a\u4f01\u4e1a\u4e3b\u3002\u968f\u7740\u533b\u5b66\u535a\u58eb\u7684\u53d1\u5c55\uff0c\u4fdd\u6301\u81ea\u5df1\u7684\u4e13\u4e1a\u8eab\u4efd\u4ece\u7b2c\u4e00\u5929\u8d77\u5c31\u662f\u6211\u7684\u9996\u8981\u4efb\u52a1\uff0c\u56e0\u6b64\u6211\u5bf9\u81ea\u5df1\u7684\u5de5\u4f5c\u611f\u5230\u975e\u5e38\u81ea\u8c6a\u3002  2016 \u5e74\uff0c\u6211\u8fd8\u8363\u5e78\u5730\u83b7\u5f97\u4e86 MDA \u52c7\u6c14\u5956\u3002<\/p>\n<p><strong>LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f <\/strong><\/p>\n<p>\u60a3\u4e0a LGMD \u6781\u5927\u5730\u5f71\u54cd\u4e86\u6211\u5bf9\u4ed6\u4eba\u7684\u540c\u60c5\u5fc3\u548c\u540c\u7406\u5fc3\u3002\u6211\u5b8c\u5168\u7406\u89e3\u8eab\u4f53\u4e0d\u9002\u7684\u542b\u4e49\u3002\u6211\u660e\u767d\u6301\u7eed\u7684\u4f24\u5bb3\u548c\u75db\u82e6\u4f1a\u8ba9\u4eba\u7cbe\u75b2\u529b\u7aed\u3002\u867d\u7136\u6211\u7ecf\u5e38\u5bf9\u81ea\u5df1\u5931\u53bb\u8010\u5fc3\uff0c\u4f46\u6211\u76f8\u4fe1\uff0c\u60a3\u4e0a LGMD \u540e\uff0c\u6211\u5bf9\u4ed6\u4eba\u7684\u8010\u5fc3\u662f\u6211\u5728\u786e\u8bca\u524d\u6240\u6ca1\u6709\u7684\u3002<\/p>\n<p>\u9762\u5bf9\u8bca\u65ad\u5e26\u6765\u7684\u79cd\u79cd\u6311\u6218\uff0c\u6211\u52aa\u529b\u4fdd\u6301\u5bf9\u81ea\u8eab\u5c40\u9650\u7684\u5e7d\u9ed8\u611f\u3002\u5982\u679c\u6211\u80fd\u591f\u51cf\u8f7b\u5bb6\u4eba\u548c\u670b\u53cb\uff08\u5f53\u7136\u4e5f\u5305\u62ec\u6211\u81ea\u5df1\uff09\u5728\u60c5\u611f\u548c\u8eab\u4f53\u4e0a\u7684\u8d1f\u62c5\uff0c\u6211\u4f1a\u5c3d\u6211\u6240\u80fd\u8bf4 \"\u4eca\u5929\u6211\u611f\u89c9\u5c31\u50cf\u7ae0\u9c7c\u8981\u94bb\u8fdb\u9876\u9488\u4e00\u6837\"\uff0c\u800c\u4e0d\u662f \"\u6211\u4eca\u5929\u611f\u89c9\u7cdf\u900f\u4e86\"\u3002<\/p>\n<p>LGMD \u8fd8\u57f9\u517b\u4e86\u6211\u521b\u9020\u6027\u5730\u5904\u7406\u95ee\u9898\u7684\u80fd\u529b\u3002\u6211\u5c3d\u91cf\u4e0d\u7ed9\u90a3\u4e2a\u4f4e\u58f0\u8bf4 \"\u6211\u505a\u4e0d\u5230 \"\u7684\u5fae\u5f31\u58f0\u97f3\u4ee5\u4efb\u4f55\u529b\u91cf\uff0c\u800c\u662f\u52aa\u529b\u628a\u6240\u6709\u4e8b\u60c5\u53d8\u6210 \"\u6211\u53ef\u80fd\u4f1a\u8d70\u4e00\u6761\u975e\u5e38\u89c4\u7684\u8def\uff0c\u4f46\u6211\u80fd\u505a\u5230\"\u3002\u6211\u53ef\u80fd\u65e0\u6cd5\u50cf\u5065\u5168\u4eba\u90a3\u6837\u4ece A \u70b9\u5230\u8fbe B \u70b9\uff0c\u4f46\u65e0\u8bba\u6211\u7684\u65b9\u6cd5\u6709\u591a\u79bb\u8c31\uff0c\u6211\u90fd\u4f1a\u60f3\u529e\u6cd5\u5b8c\u6210\u4efb\u52a1\u3002<\/p>\n<p><strong>\u60a8\u60f3\u8ba9\u4e16\u754c\u4e86\u89e3<\/strong><strong> LGMD<\/strong>:<\/p>\n<p>\u6211\u4e0d\u662f \"\u7075\u611f\"\uff1a  \u6211\u4e0e LGMD \u5171\u540c\u751f\u6d3b\u7684\u6bcf\u4e00\u5929\uff0c\u5e76\u4e0d\u610f\u5473\u7740\u6211\u80fd\u591f\u6fc0\u52b1\u4e16\u754c\u5404\u5730\u7684\u6240\u6709\u4eba\u3002\u6211\u80fd\u5426\u6fc0\u52b1 LGMD \u60a3\u8005\u4ee5\u5e7d\u9ed8\u548c\u575a\u5b9a\u7684\u6001\u5ea6\u5bf9\u5f85\u8bca\u65ad\uff1f\u5f53\u7136\u53ef\u4ee5--\u4f46\u6211\u5e76\u4e0d\u4f1a\u56e0\u4e3a\u60a3\u6709 LGMD \u5e76\u7ee7\u7eed\u8fc7\u7740\u81ea\u5df1\u7684\u751f\u6d3b\uff0c\u5c31\u4e0e\u751f\u4ff1\u6765\u5730\u9f13\u821e\u4eba\u5fc3\u3002\u6211\u662f\u4e00\u540d\u60a3\u6709 LGMD \u7684\u5973\u6027\uff0c\u6211\u6b63\u5728\u9002\u5e94\u6211\u7684\u73af\u5883\uff0c\u5c31\u50cf\u6bcf\u4e2a\u4eba\u9002\u5e94\u751f\u6d3b\u4e2d\u7684\u8bb8\u591a\u6311\u6218\u4e00\u6837\u3002\u624b\u81c2\u9aa8\u6298\u7684\u4eba\u5fc5\u987b\u5728\u77ed\u65f6\u95f4\u5185\u5b66\u4f1a\u5982\u4f55\u4ee5\u4e0d\u540c\u7684\u65b9\u5f0f\u505a\u4e8b\u3002\u540c\u6837\uff0c\u6211\u6bcf\u5929\u90fd\u5728\u5b66\u4e60\u5982\u4f55\u8c03\u6574......\u548c\u91cd\u65b0\u8c03\u6574\u3002\u6211\u4e0e\u65ad\u81c2\u8005\u7684\u552f\u4e00\u533a\u522b\u662f\uff0c\u4ed6\u4eec\u7684\u77f3\u818f\u6700\u7ec8\u4f1a\u62c6\u6389\uff0c\u4ed6\u4eec\u7684\u624b\u81c2\u5c06\u5b8c\u5168\u6062\u590d\u529f\u80fd\u3002LGMD \u662f\u6e10\u8fdb\u6027\u7684\uff0c\u6240\u4ee5\u968f\u7740\u75c5\u60c5\u7684\u53d1\u5c55\uff0c\u6211\u5c06\u4e00\u76f4\u5904\u4e8e\u91cd\u65b0\u8c03\u6574\u7684\u8fc7\u7a0b\u4e2d\u3002<\/p>\n<p>\u4e0d\u8981\u5bf9\u6211\uff08\u6216\u4efb\u4f55\u4eba\uff09\u7684\u80fd\u529b\u505a\u51fa\u5047\u8bbe\uff1a<strong>\u00a0 <\/strong>\u5f53\u4f60\u770b\u5230\u4e00\u4e2a\u5750\u7740\u65f6\u770b\u8d77\u6765 \"\u6b63\u5e38 \"\u7684\u4eba\u65f6\uff0c\u8bf7\u4e0d\u8981\u5984\u4e0b\u5224\u65ad--\u4f60\u6c38\u8fdc\u4e0d\u77e5\u9053\u4ed6\u7ad9\u8d77\u6765\u65f6\u4f1a\u9762\u4e34\u4ec0\u4e48\u6311\u6218\u3002\u5f53\u60a8\u770b\u5230\u6709\u4eba\u5750\u5728\u8f6e\u6905\u4e0a\u6216\u4f7f\u7528\u8f85\u52a9\u8bbe\u5907\u65f6\uff0c\u8bf7\u4e0d\u8981\u8ba4\u4e3a\u6211\u4eec\u542c\u529b\u4e0d\u597d\uff0c\u6211\u4eec\u9700\u8981\u5475\u62a4\uff0c\u6216\u8005\u6211\u4eec\u9700\u8981\u4efb\u4f55\u5f62\u5f0f\u7684\u540c\u60c5\u6216\u601c\u60af\u3002\u8fd9\u662f\u6211\u4eec\u7684 \"\u5e38\u6001\"\uff0c\u867d\u7136\u5177\u6709\u6311\u6218\u6027\uff0c\u4f46\u6ca1\u6709\u5fc5\u8981\u5bf9\u6211\u4eec\u8fd9\u4e9b\u60a3\u6709 MD \u7684\u4eba\u533a\u522b\u5bf9\u5f85\u3002<\/p>\n<p>\u4e0d\u8981\u8ba4\u4e3a\u6211\u9700\u8981\uff08\u6216\u60f3\u8981\uff09\u5e2e\u52a9\uff1a\u60a3\u6709 LGMD \u610f\u5473\u7740\u6709\u65f6\u6211\u9700\u8981\u5bfb\u6c42\u5e2e\u52a9\u6765\u5b8c\u6210\u770b\u4f3c\u7b80\u5355\u7684\u4efb\u52a1\u3002\u4e5f\u5c31\u662f\u8bf4\uff0c\u5047\u8bbe\u6211\u9700\u8981\u5e2e\u52a9\u662f......\u55ef\uff0c\u662f\u4e00\u79cd\u4fae\u8fb1\u3002\u5f53\u7136\uff0c\u6211\u53ef\u80fd\u65e0\u6cd5\u50cf\u4f60\u5e0c\u671b\u7684\u90a3\u6837\u5feb\u901f\u6216\u4f18\u96c5\u5730\u5b8c\u6210\u67d0\u4ef6\u4e8b\u60c5\u3002\u4f46\u8fd9\u5e76\u4e0d\u610f\u5473\u7740\u6211\u505a\u4e0d\u5230\u3002\u8ba9\u6211\u8bd5\u8bd5\u5427--\u5982\u679c\u6211\u9700\u8981\u4f60\u7684\u5e2e\u52a9\uff0c\u6211\u4f1a\u5f00\u53e3\u7684\u3002\u5c31\u8fd9\u4e48\u7b80\u5355\u3002\u5982\u679c\u6211\u60f3\u903c\u81ea\u5df1\u53bb\u5c1d\u8bd5\u4e00\u4e9b\u4f60\u8ba4\u4e3a\u6211\u65e0\u6cd5\u80dc\u4efb\u7684\u4e8b\u60c5\uff0c\u90a3\u5c31\u8ba9\u6211\u53bb\u505a\uff01\u5982\u679c\u7ed3\u5c40\u4e0d\u597d--\u90a3\u53c8\u600e\u6837\u3002\u5bf9\u6211\u6765\u8bf4\uff0c\u8fd9\u4e0d\u662f\u5931\u8d25\u3002\u8fd9\u610f\u5473\u7740\u6211\u8bd5\u8fc7\u4e86--\u6709\u4e9b\u65f6\u5019\uff0c\u8fd9\u5c31\u8db3\u591f\u4e86\u3002<\/p>\n<p>\u4e0d\u8981\u5bb3\u6015\u63d0\u95ee\uff1a<strong>\u00a0 <\/strong>\u77e5\u8bc6\u5c31\u662f\u529b\u91cf\u3002\u77e5\u8bc6\u5c31\u662f\u7406\u89e3\u3002\u77e5\u8bc6\u5c31\u662f\u540c\u60c5\u3002\u5173\u4e8e\u533b\u5b66\u535a\u58eb\u7684\u95ee\u9898\u5e76\u4e0d\u4ee4\u4eba\u53cd\u611f\u3002\u770b\u5230\u4f60\u76ef\u7740\u6211\uff0c\u77e5\u9053\u4f60\u60f3\u77e5\u9053\u6211\u7684\u65e5\u5e38\u751f\u6d3b\u662f\u600e\u6837\u7684\uff0c\u8fd9\u624d\u662f\u5192\u72af\u3002\u4ee4\u4eba\u53cd\u611f\u7684\u662f <em>\u5047\u8bbe <\/em>\u4f60\u77e5\u9053\u6211\u7684\u751f\u6d3b\u662f\u4ec0\u4e48\u6837\u7684\u3002\u6211\u4e0d\u6307\u671b\u4f60\u80fd\u7406\u89e3\u6211\u6240\u9762\u4e34\u7684\u6311\u6218\u3002\u4f60\u4e0d\u77e5\u9053--\u4f60\u4ece\u672a\u4e0e LGMD \u4e00\u8d77\u751f\u6d3b\u8fc7......\u4f60\u600e\u4e48\u4f1a\u77e5\u9053\uff1f\u95ee\u6211\u4ec0\u4e48\u90fd\u884c\uff01\u6211\u7684\u5468\u56f4\u90fd\u662f\u5bf9\u533b\u5b66\u6709\u4e86\u89e3\u7684\u4eba\uff0c\u8fd9\u8ba9\u6211\u7684\u751f\u6d3b\u8f7b\u677e\u4e86\u4e00\u4e9b--\u4f46\u5982\u679c\u4f60\u4e0d\u95ee\uff0c\u4f60\u5c31\u4e0d\u53ef\u80fd\u77e5\u9053\u3002   \u4e0d\u8981\u8f6c\u8fc7\u5934\u6765\u53ef\u601c\u6211--\u4ecb\u7ecd\u4e00\u4e0b\u4f60\u81ea\u5df1\uff0c\u7136\u540e\u95ee\u4efb\u4f55\u4f60\u60f3\u77e5\u9053\u7684\u95ee\u9898\u3002<\/p>\n<p><strong>\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n<p>\u8dd1\u6b65\u3002\u6211\u4f1a\u7a7f\u4e0a\u4e00\u53cc\u8dd1\u978b\uff0c\u5728\u6211\u7684\u817f\u548c\u80ba\u5141\u8bb8\u7684\u8303\u56f4\u5185\u8dd1\u5f97\u53c8\u5feb\u53c8\u8fdc\u3002\u4e4b\u540e\uff0c\u6211\u4f1a\u7a7f\u4e0a\u4e00\u53cc\u8ff7\u4eba\u7684\u9ad8\u8ddf\u978b\uff0c\u5f7b\u591c\u8df3\u821e\u3002\u8df3\u821e......\u6211\u6700\u6000\u5ff5\u8df3\u821e\uff01<\/p>\n<p>&nbsp;<\/p>\n<p>\u5982\u9700\u9605\u8bfb\u66f4\u591a \"LGMD \u7126\u70b9\u8bbf\u8c08\"\uff0c\u6216\u81ea\u613f\u53c2\u52a0\u5373\u5c06\u4e3e\u884c\u7684\u8bbf\u8c08\uff0c\u8bf7\u8bbf\u95ee\u6211\u4eec\u7684\u7f51\u7ad9\uff1a <a href=\"https:\/\/www.lgmd-info.org\/zh\/spotlight-interviews\/\">https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Name: Nicole\u00a0\u00a0 AGE: 37 COUNTRY: United States LGMD Sub-Type: LGMD [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1505,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,66],"tags":[78],"class_list":["post-1506","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2j","tag-lgmd2j-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>INDIVIDUAL WITH LGMD: Nicole - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2017\/07\/28\/nicole\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Nicole - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"Name: Nicole\u00a0\u00a0 AGE: 37 COUNTRY: United States LGMD Sub-Type: LGMD [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2017\/07\/28\/nicole\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2017-07-28T13:37:52+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta 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