{"id":1651,"date":"2018-01-08T10:22:50","date_gmt":"2018-01-08T16:22:50","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=1651"},"modified":"2018-01-08T10:22:50","modified_gmt":"2018-01-08T16:22:50","slug":"jill-2","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2018\/01\/08\/jill-2\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a Jill"},"content":{"rendered":"<p><span style=\"color: #000000;\"><strong>LGMD \u7126\u70b9\u8bbf\u8c08<\/strong><\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>\u540d\u79f0<\/strong><\/span>:<span style=\"color: #000000;\">\u00a0 \u00a0 \u5409\u5c14\u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0 \u00a0\u00a0<strong>\u5e74\u9f84<\/strong>:33 \u5c81<a href=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2018\/01\/LGMD2i-Jill-W.png\"><img decoding=\"async\" class=\"lazyload size-medium wp-image-1650 alignright\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27300%27%20height%3D%27169%27%20viewBox%3D%270%200%20300%20169%27%3E%3Crect%20width%3D%27300%27%20height%3D%27169%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2018\/01\/LGMD2i-Jill-W-300x169.png\" alt=\"\" width=\"300\" height=\"169\" \/><\/a><\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>\u56fd\u5bb6<\/strong>:    \u7f8e\u56fd<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>LGMD \u5b50\u7c7b\u578b<\/strong>:    LGMD2i<\/span><!--more--><\/p>\n<p>&nbsp;<\/p>\n<p><span style=\"color: #000000;\"><strong>\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">\u6211\u662f\u5728 27 \u5c81\u65f6\u88ab\u786e\u8bca\u7684\u3002<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">\u5c0f\u5b66\u65f6\uff0c\u6211\u603b\u662f\u6700\u540e\u4e00\u4e2a\u51b2\u8fc7\u7ec8\u70b9\u7ebf\u7684\u5b69\u5b50\u3002 <\/span>\u5065\u8eab\u623f<span style=\"color: #000000;\">.\u6211\u8fd8\u8bb0\u5f97\uff0c\u7531\u4e8e\u817f\u90e8\u62bd\u7b4b\u75bc\u75db\uff0c\u6211\u4e0d\u5f97\u4e0d\u7f3a\u5e2d\u5b66\u6821\u7684\u6d3b\u52a8\u3002\u4e0d\u8fc7\uff0c\u6211\u66fe\u662f\u821e\u8e48\u961f\u7684\u4e00\u5458\uff0c\u5e76\u6709\u4e00\u4e2a <\/span>\u8d85\u6b63\u5e38<span style=\"color: #000000;\"> \u7ae5\u5e74\u30022008 \u5e74\uff0c23 \u5c81\u7684\u6211\u751f\u5b8c\u7b2c\u4e00\u4e2a\u5b69\u5b50\u540e\uff0c\u5f00\u59cb\u56e0\u75b2\u52b3\u548c\u75bc\u75db\u65ad\u65ad\u7eed\u7eed\u5730\u5230\u6025\u8bca\u5ba4\u5c31\u8bca\u3002\u6211\u8bb0\u5f97\u5f53\u65f6\u6211\u5bf9\u4e08\u592b\u8bf4\uff1a\"\u6211\u7684\u8eab\u4f53\u51fa\u4e86\u95ee\u9898\uff0c\u603b\u6709\u4e00\u5929\u6211\u4f1a\u627e\u51fa\u95ee\u9898\u6240\u5728\u30022010 \u5e74\uff0c\u6211\u7684\u7b2c\u4e8c\u4e2a\u5973\u513f\u51fa\u751f\u540e\uff0c\u6211\u4e00\u76f4\u5728\u4e0e\u8e52\u8dda\u5b66\u6b65\u7684\u5b69\u5b50\u548c\u65b0\u751f\u513f\u7684\u8eab\u4f53\u72b6\u51b5\u4f5c\u6597\u4e89\u3002\u6211\u518d\u4e5f\u65e0\u6cd5\u4e0d\u8d39\u5439\u7070\u4e4b\u529b\u5c31\u722c\u4e0a\u4e00\u6bb5\u697c\u68af\u3002\u6211\u8fd8\u5728\u60f3\uff0c\"\u4e5f\u8bb8\u8fd9\u5c31\u662f\u75b2\u60eb\u5988\u5988\u7684\u611f\u89c9\"\u30022011 \u5e74\uff0c\u6211\u611f\u67d3\u4e86\u75c5\u6bd2\u5e76\u53d1\u70e7\uff0c\u5bfc\u81f4\u6a2a\u7eb9\u808c\u6eb6\u89e3\u75c7\u3002\u6211\u5e26\u7740\u4e25\u91cd\u7684\u865a\u5f31\u53bb\u770b\u533b\u751f\uff0cCPK \u8fbe\u5230\u4e86 11000\u3002\u8fd9\u7ec8\u4e8e\u8ba9\u6211\u4eec\u8d70\u4e0a\u4e86\u6b63\u786e\u7684\u9053\u8def\uff0c\u5e76\u786e\u8bca\u4e3a LGMD2I\u3002\u548c\u4f60\u4eec\u4e2d\u7684\u8bb8\u591a\u4eba\u4e00\u6837\uff0c\u8bca\u65ad\u4e4b\u8def\u4e5f\u5f88\u6f2b\u957f\u3002<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>\u60a8\u662f\u5426\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD\uff1a<\/strong><\/span><\/p>\n<p><span style=\"color: #000000;\">\u4e0d\uff0c\u6211\u662f\u540c\u5375\u9690\u6027\u9057\u4f20\uff0c\u6240\u4ee5\u6211\u7684\u7236\u6bcd\u90fd\u662f\u643a\u5e26\u8005\u3002\u503c\u5f97\u5e86\u5e78\u7684\u662f\uff0c\u6211\u7684\u54e5\u54e5\u548c\u59d0\u59d0\u90fd\u6ca1\u6709\u53d7\u5230\u5f71\u54cd\u3002<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">\u6211\u88ab\u786e\u8bca\u65f6\uff0c\u6211\u7684\u5973\u513f\u4eec\u8fd8\u662f\u5a74\u513f\u3002\u4e00\u5e74\u540e\uff0c\u6211\u7684\u4e08\u592b\u88ab\u8bca\u65ad\u51fa\u60a3\u6709\u8111\u764c\u3002\u6211\u62c5\u5fc3\u81ea\u5df1\u65e0\u6cd5\u7167\u987e\u5bb6\u4eba\u3002\u6211\u82b1\u4e86\u5f88\u591a\u65f6\u95f4\u62c5\u5fc3\u6211\u4eec\u4f1a\u53d1\u751f\u4ec0\u4e48\u4e8b\u3002\u6211\u52aa\u529b\u4fdd\u6301\u5f53\u4e0b\u7684\u72b6\u6001\uff0c\u4eab\u53d7\u7f8e\u597d\u65f6\u5149\u3002\u8981\u4fdd\u6301 \"\u5934\u8111\u6e05\u9192\"\uff0c\u4e0d\u9884\u6599\u81ea\u5df1\u7684\u8870\u9000\uff0c\u4e0d\u8ba9\u632b\u6298\u548c\u75db\u82e6\u5f71\u54cd\u6211\u7684\u751f\u6d3b\uff0c\u8fd9\u662f\u5f88\u6709\u6311\u6218\u6027\u7684\u3002 <\/span>\u81f3<span style=\"color: #000000;\"> \u5e8a\u3002\u7136\u800c\uff0c\u4eca\u5929\u6211\u5728\u8fd9\u91cc\u3002\u6211\u7684\u4e08\u592b\u4eca\u5929\u4e5f\u5728\u8fd9\u91cc\u3002\u6211\u7684\u5b69\u5b50\u4eec\u4ee4\u4eba\u60ca\u53f9\u3001\u575a\u97e7\u4e0d\u62d4\u3002\u6240\u4ee5\uff0c\u6211\u4ecd\u7136\u5fc3\u5b58\u611f\u6fc0\uff0c\u6211\u4eec\u7ee7\u7eed\u524d\u8fdb\u3002<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">\u6211\u6700\u5927\u7684\u4e2a\u4eba\u6210\u5c31\u5c31\u662f\u6211\u7684\u5e78\u798f\u3002\u5c3d\u7ba1\u6211\u4eec\u9762\u4e34\u6311\u6218\uff0c\u4f46\u6211\u4e00\u76f4\u5728\u52aa\u529b\u8ba9\u81ea\u5df1\u5feb\u4e50\u3002\u6211\u4e3a\u6b64\u611f\u5230\u975e\u5e38\u81ea\u8c6a\u3002  \u8fd9\u662f\u6211\u6bcf\u5929\u90fd\u5728\u52aa\u529b\u505a\u51fa\u7684\u9009\u62e9\u3002<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong><\/span><\/p>\n<p><span style=\"color: #000000;\">\u6211\u786e\u5b9e\u611f\u5230\u786e\u8bca\u540e\u7684\u751f\u6d3b\u66f4\u6709\u610f\u4e49\u3002\u6211\u66f4\u7231\u6211\u7684\u4eba\u3002\u6211\u5b66\u4f1a\u4e86\u653e\u6162\u811a\u6b65\uff0c\u56e0\u4e3a\u6211\u5fc5\u987b\u8fd9\u6837\u505a\uff0c\u800c\u8fd9\u5e76\u4e0d\u662f\u4e00\u79cd\u7cdf\u7cd5\u7684\u751f\u6d3b\u65b9\u5f0f\u3002\u6211\u4e5f\u611f\u8c22\u6709\u673a\u4f1a\u7406\u89e3\u548c\u540c\u60c5\u90a3\u4e9b\u60a3\u6709\u6162\u6027\u75be\u75c5\u3001\u75bc\u75db\u3001\u60b2\u4f24......\u6240\u6709\u90a3\u4e9b\u5f88\u5bb9\u6613\u88ab\u8bef\u89e3\u4e3a\u61d2\u60f0\u6216\u4e0d\u52aa\u529b\u7684\u9690\u5f62\u75be\u75c5\u7684\u4eba\u3002\u6211\u770b\u5230\u4e86\u4f60\uff0c\u5f88\u62b1\u6b49\u8fd9\u5f88\u96be\u3002<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">\u6211\u5e0c\u671b\u5168\u4e16\u754c\u90fd\u77e5\u9053\uff0cLGMD \u662f\u4e00\u79cd\u9057\u4f20\u6027\u75be\u75c5\uff0c\u800c\u4e0d\u662f \"\u8425\u517b\u7f3a\u4e4f \"\u6216\u4e0d\u53bb\u5065\u8eab\u623f\u953b\u70bc\u7684\u7ed3\u679c\u3002\u8fd9\u79cd\u75be\u75c5\u4e0d\u662f\u4eba\u4eec\u81ea\u5df1\u9009\u62e9\u7684\u3002\u5b83\u662f\u6e10\u8fdb\u6027\u7684\uff0c\u800c\u4e14\u65e0\u6cd5\u6cbb\u6108\u3002\u867d\u7136\u4fdd\u6301\u79ef\u6781\u4e50\u89c2\u7684\u6001\u5ea6\u548c\u4fdd\u6301\u8fd0\u52a8\u4f1a\u6709\u6240\u5e2e\u52a9\uff0c\u4f46\u8fd9\u5e76\u4e0d\u80fd\u963b\u6b62\u75c5\u60c5\u7684\u53d1\u5c55\u3002\u5728\u6211\u770b\u6765\uff0c\u5bf9 LGMD \u60a3\u8005\u8bf4\u7684\u6700\u597d\u7684\u4e00\u53e5\u8bdd\u5c31\u662f\uff1a\"\u6211\u77e5\u9053\u8fd9\u5f88\u96be\uff0c\u4f46\u4f60\u505a\u5f97\u5f88\u597d\u3002\u5982\u679c\u5c06\u6765\u80fd\u627e\u5230\u6cbb\u7597\u65b9\u6cd5\u6216\u6cbb\u6108\u65b9\u6cd5\uff0c\u90a3\u5c06\u662f\u591a\u4e48\u7f8e\u597d\u7684\u4e8b\u60c5\u3002\u4fdd\u6301\u5e0c\u671b\u662f\u4ef6\u597d\u4e8b\u3002<\/span><\/p>\n<p><span style=\"color: #000000;\"><strong>\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/span><\/p>\n<p><span style=\"color: #000000;\">\u8ba9\u6211\u7684\u5973\u513f\u4eec\u80cc\u7740\u6211\u53bb\u4e0a\u5b66\uff0c\u4e3e\u529e\u4e00\u573a\u76db\u5927\u7684\u6d3e\u5bf9\uff0c\u4e00\u5bb6\u4eba\u9a91\u7740\u81ea\u884c\u8f66\u73af\u6e38\u6211\u4eec\u6700\u559c\u6b22\u7684\u6e56\u3002<\/span><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p><span style=\"color: #000000;\">* * * \u6b32\u4e86\u89e3\u66f4\u591a \"LGMD \u805a\u7126\u8bbf\u8c08\"\uff0c\u6216\u81ea\u613f\u53c2\u52a0\u5373\u5c06\u4e3e\u884c\u7684\u8bbf\u8c08\uff0c\u8bf7\u8bbf\u95ee\u6211\u4eec\u7684\u7f51\u7ad9 <\/span>\u4e8e <span style=\"color: #000000;\"><a style=\"color: #000000;\" href=\"https:\/\/www.lgmd-info.org\/zh\/spotlight-interviews\/\">https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a>\u00a0<\/span><\/p>\n<p><span style=\"color: #000000;\">* * * \u8bf7\u70b9\u8d5e\u3001\u8bc4\u8bba\u548c\u5206\u4eab\u672c\u5e16\uff0c\u5e2e\u52a9\u63d0\u9ad8\u4eba\u4eec\u5bf9 LGMD \u7684\u8ba4\u8bc6\uff01<\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>LGMD Spotlight Interview Name:\u00a0 \u00a0 Jill\u00a0 \u00a0 \u00a0 \u00a0 \u00a0 [&hellip;]<\/p>","protected":false},"author":1,"featured_media":1650,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[83],"class_list":["post-1651","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>INDIVIDUAL WITH LGMD: Jill - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2018\/01\/08\/jill-2\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Jill - LGMD Awareness Foundation\" \/>\n<meta property=\"og:description\" content=\"LGMD Spotlight Interview Name:\u00a0 \u00a0 Jill\u00a0 \u00a0 \u00a0 \u00a0 \u00a0 [&hellip;]\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2018\/01\/08\/jill-2\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2018-01-08T16:22:50+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/06\/LGMD-Logo_1200X630.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1200\" \/>\n\t<meta property=\"og:image:height\" content=\"630\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"dooley\" \/>\n<meta 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