{"id":2259,"date":"2018-09-21T11:47:18","date_gmt":"2018-09-21T16:47:18","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2259"},"modified":"2018-09-21T11:47:18","modified_gmt":"2018-09-21T16:47:18","slug":"beyond-labels-limitations","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/lgmd2a\/2018\/09\/21\/beyond-labels-limitations\/","title":{"rendered":"\u7ec4\u7ec7\uff1a\u8d85\u8d8a\u6807\u7b7e\u548c\u9650\u5236"},"content":{"rendered":"<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%27960%27%20height%3D%27720%27%20viewBox%3D%270%200%20960%20720%27%3E%3Crect%20width%3D%27960%27%20height%3D%27720%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2018\/09\/Beyond-Labels.png\" alt=\"\" class=\"lazyload wp-image-2260\"\/><\/figure>\n\n\n<p><strong>\u7ec4\u7ec7\u540d\u79f0<\/strong>:          \u8d85\u8d8a\u6807\u7b7e\u548c\u9650\u5236\u00a0<\/p>\n<p><strong>\u7f51\u7ad9\uff1a<\/strong>\u00a0 \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \u00a0<a href=\"http:\/\/www.BeyondLabelsLimitations.com\">www.BeyondLabelsLimitations.com<\/a><\/p>\n<p><strong>FACEBOOK\uff1a\u00a0\u00a0 \u00a0\u00a0<\/strong><a href=\"https:\/\/www.facebook.com\/groups\/29111827568\/\">https:\/\/www.facebook.com\/groups\/29111827568\/<\/a><\/p>\n<p><strong>YouTube \u9891\u9053\uff1a\u00a0 \u00a0<\/strong><a href=\"https:\/\/www.youtube.com\/user\/John71377\">www.youtube.com\/user\/John71377<\/a><\/p>\n<p><strong>\u00a0<\/strong><\/p>\n<p><strong>\u8d35\u7ec4\u7ec7\u4fa7\u91cd\u4e8e\u54ea\u79cd lgmd \u5b50\u7c7b\u578b\uff1a\u00a0 <\/strong><\/p>\n<p>LGMD2A \/ Calpainopathy<\/p>\n<p><strong>\u5982\u679c\u60a8\u4e13\u6ce8\u4e8e\u67d0\u4e00\u4e9a\u578b\uff0c\u662f\u5426\u6709\u767b\u8bb0\u5904\uff0c\u60a3\u8005\u5982\u4f55\u52a0\u5165\uff1f <\/strong><\/p>\n<p><a href=\"http:\/\/www.curecalpain3.org\/\" target=\"_blank\" rel=\"noopener noreferrer\">\u6cbb\u7597\u9499\u86cb\u767d\u9176\u8054\u76df 3<\/a> \u7ef4\u6301 <a href=\"http:\/\/www.lgmd2a.org\" target=\"_blank\" rel=\"noopener noreferrer\">\u5168\u7403 LGMD2A \u60a3\u8005\u767b\u8bb0\u5904<\/a> \u53ef\u5728\u7ebf\u8bbf\u95ee\u3002<\/p>\n<p><strong>\u8d35\u7ec4\u7ec7\u662f\u5426\u4e3a\u975e\u8425\u5229\u7ec4\u7ec7\uff1a\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/strong><\/p>\n<p>\u662f\u7684\uff0c\u6211\u4eec\u662f\u4e00\u5bb6 501(c)3 \u975e\u8425\u5229\u7ec4\u7ec7\u3002<\/p>\n<p><strong>\u521b\u5efa\u8d35\u7ec4\u7ec7\u7684\u7075\u611f\u6765\u6e90<\/strong>:<\/p>\n<p>\u6211\uff0c\u7ea6\u7ff0-C-\u683c\u96f7\u6bd4\u5c14\u4e8c\u4e16\uff0c\u5efa\u7acb BL&amp;L \u6709\u4e24\u4e2a\u539f\u56e0\u3002\u7b2c\u4e00\u4e2a\u539f\u56e0\u662f\u4e3a\u7814\u7a76\u7b79\u96c6\u8d44\u91d1\u3002\u4ece 1995 \u5e74\u5230 2006 \u5e74\uff0c\u6bcf\u5e74\u6211\u53bb\u770b\u6211\u7684\u795e\u7ecf\u79d1\u533b\u751f\uff0c\u4ed6\u90fd\u4f1a\u544a\u8bc9\u6211\u6ca1\u6709\u4efb\u4f55\u6cbb\u7597\u65b9\u6cd5\u3002\u6211\u60f3\u6539\u53d8\u8fd9\u79cd\u72b6\u51b5\u3002\u6211\u5efa\u7acb BL&amp;L \u7684\u7b2c\u4e8c\u4e2a\u539f\u56e0\u662f\u901a\u8fc7\u6211\u7684\u89c6\u9891\u63d0\u9ad8\u4eba\u4eec\u7684\u610f\u8bc6\u3002\u5f53\u65f6\uff0c\u6ca1\u6709\u4eba\u8bb0\u5f55\u81ea\u5df1\u7684 LGMD \u8fdb\u5c55\uff0c\u4e5f\u6ca1\u6709\u4eba\u53ef\u4ee5\u4e0e\u6211\u8054\u7cfb\u3002\u901a\u8fc7\u5236\u4f5c\u89c6\u9891\uff0c\u6211\u4e3a\u5176\u4ed6\u4eba\u6253\u5f00\u4e86\u4e00\u6247\u95e8\uff0c\u8ba9\u4ed6\u4eec\u80fd\u591f\u4e0e\u6211\u4ea4\u6d41\uff0c\u4e0d\u518d\u611f\u5230\u5b64\u72ec\u3002  \u6211\u7684\u89c6\u9891\u53ef\u5728\u4ee5\u4e0b\u7f51\u7ad9\u89c2\u770b <a href=\"https:\/\/www.youtube.com\/user\/John71377\" target=\"_blank\" rel=\"noopener noreferrer\">YouTube<\/a><\/p>\n<p><strong>\u8d35\u7ec4\u7ec7\u7684\u4f7f\u547d\u662f\u4ec0\u4e48\uff1f<\/strong><\/p>\n<p>\u652f\u6301\u5bf9 LGMD2A \u8fdb\u884c\u4e25\u683c\u7684\u79d1\u5b66\u7814\u7a76\uff0c\u5e76\u901a\u8fc7\u6211\u7684\u4eb2\u8eab\u7ecf\u5386\u5411\u5176\u4ed6\u4eba\u4ecb\u7ecd\u75be\u75c5\u7684\u53d1\u5c55\u8fc7\u7a0b\u3002<\/p>\n<p><strong>\u8d35\u7ec4\u7ec7\u63d0\u4f9b\u54ea\u4e9b\u670d\u52a1\uff1f<\/strong><\/p>\n<p>\u901a\u8fc7 Facebook \u5efa\u7acb\u5728\u7ebf\u540c\u4f34\u652f\u6301\u7cfb\u7edf\u3002  \u6211\u5efa\u7acb\u7684\u7fa4\u7ec4\u662f\"<a href=\"https:\/\/www.facebook.com\/groups\/29111827568\/\" target=\"_blank\" rel=\"noopener noreferrer\">\u80a2\u8170\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff1a  \u8d85\u8d8a\u6807\u7b7e\u548c\u5c40\u9650<\/a>\"\uff0c\u76ee\u524d\u6709\u6765\u81ea\u4e16\u754c\u5404\u5730\u7684 3000 \u591a\u540d\u6210\u5458\u3002  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noreferrer\">\u5728\u7ebf<\/a>.<\/p>\n<p><strong>\u8054\u7cfb\u8d35\u7ec4\u7ec7\u7684\u6700\u4f73\u65b9\u5f0f\u662f\u4ec0\u4e48\uff1f<\/strong><\/p>\n<p>\u8054\u7cfb John C. Graybill II\uff0c\u8bf7\u53d1\u9001\u7535\u5b50\u90ae\u4ef6\u81f3 jcg713@aol.com<\/p>\n<p><strong>\u60a8\u8fd8\u6709\u4ec0\u4e48\u8981\u8865\u5145\u7684\u5417\uff1f<\/strong><\/p>\n<p>\u89e3\u836f\u5c31\u5728\u90a3\u91cc\u3002<\/p>\n<p>\u00a0<\/p>","protected":false},"excerpt":{"rendered":"<p>NAME OF ORGANIZATION:\u00a0 \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 \u00a0Beyond Labels &amp; Limitations\u00a0 WEBSITE:\u00a0 \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 [&hellip;]<\/p>","protected":false},"author":1,"featured_media":2260,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[94,14,95],"tags":[],"class_list":["post-2259","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-organization-interview","category-lgmd2a","category-organization"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>ORGANIZATION: Beyond Labels &amp; 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