{"id":2266,"date":"2018-09-24T12:51:12","date_gmt":"2018-09-24T17:51:12","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2266"},"modified":"2018-09-24T12:51:12","modified_gmt":"2018-09-24T17:51:12","slug":"rodrigo","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2018\/09\/24\/rodrigo\/","title":{"rendered":"LGMD \u60a3\u8005\uff1a\u7f57\u5fb7\u91cc\u6208"},"content":{"rendered":"

LGMD \"\u7126\u70b9\u8bbf\u8c08\"<\/strong><\/span><\/p>\n

\u540d\u79f0<\/strong><\/span>:\u00a0 \u7f57\u5fb7\u91cc\u6208\u00a0 \u5e74\u9f84<\/strong>: 29 \u5c81\u00a0\u00a0\"\"<\/a><\/span><\/p>\n

\u56fd\u5bb6<\/strong>:\u7f8e\u56fd<\/span><\/p>\n

LGMD \u5b50\u7c7b\u578b\uff1a\u00a0 <\/strong>LGMD2B \/ <\/span>Myoshi \u808c\u75c5<\/span><\/p>\n

\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>:<\/span><\/p>\n

\u6211\u5728 24 \u5c81\u65f6\u88ab\u8bca\u65ad\u51fa\u60a3\u6709 LGMD2B\u3002<\/span><\/p>\n

\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/span><\/p>\n

\u6211\u7684\u75c7\u72b6\u51fa\u73b0\u5728 17 \u5c81\u5de6\u53f3\u3002<\/span><\/p>\n

\u60a8\u662f\u5426\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD\uff1a<\/strong><\/span><\/p>\n

\u6211\u6709\u4e24\u4e2a\u5144\u5f1f\uff0c\u4ed6\u4eec\u90fd\u6709\u75c7\u72b6\uff0c\u4f46\u5c1a\u672a\u786e\u8bca\u3002<\/span><\/p>\n

\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/span><\/p>\n

\u884c\u52a8\u4e0d\u4fbf\u662f\u6211\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u3002<\/span><\/p>\n

\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/span><\/p>\n

\u6211\u6700\u5927\u7684\u6210\u5c31\u662f\u8ba9\u6211\u7684\u827a\u672f\u5929\u8d4b\u5f97\u4ee5\u5f70\u663e\u3002<\/span><\/p>\n

LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong><\/span><\/p>\n

LGMD \u5728\u5f88\u5927\u7a0b\u5ea6\u4e0a\u5f71\u54cd\u4e86\u6211\uff0c\u4f7f\u6211\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u3002 \u5b83\u8ba9\u6211\u4ee5\u5b8c\u5168\u4e0d\u540c\u7684\u65b9\u5f0f\u770b\u5f85\u751f\u6d3b\u3002 \u5b83\u8feb\u4f7f\u6211\u4e0d\u65ad\u97ad\u7b56\u81ea\u5df1\uff0c\u5373\u4f7f\u662f\u6700\u5c0f\u7684\u4efb\u52a1\uff0c\u8fd9\u53cd\u8fc7\u6765\u53c8\u4f7f\u6211\u53d8\u5f97\u575a\u97e7\u4e0d\u62d4\u3002 \u5b83\u8fd8\u8d4b\u4e88\u4e86\u6211\u540c\u7406\u5fc3\uff0c\u8ba9\u6211\u80fd\u591f\u540c\u60c5\u90a3\u4e9b\u4e5f\u5728\u6323\u624e\u7684\u4eba\u3002 LGMD \u8ba9\u6211\u61c2\u5f97\u73cd\u60dc\u751f\u6d3b\u7684\u65b9\u65b9\u9762\u9762\uff0c\u6452\u5f03\u4e86\u7269\u8d28\u81f3\u4e0a\u7684\u884c\u4e3a\u3002<\/span><\/p>\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>:<\/span><\/p>\n

\u9996\u5148\uff0c\u4e16\u754c\u9700\u8981\u77e5\u9053\u6211\u4eec\u7684\u5b58\u5728\u3002 \u80a2\u8170\u808c\u8425\u517b\u4e0d\u826f\u75c7\u53ef\u4ee5\u6cbb\u6108\uff0c\u4e5f\u5c06\u4f1a\u6cbb\u6108\uff0c\u4f46\u6ca1\u6709\u8db3\u591f\u7684\u4eba\u4e86\u89e3\u5b83\uff0c\u4e5f\u6ca1\u6709\u8db3\u591f\u7684\u4eba\u5173\u5fc3\u5b83\u3002 \u597d\u5728\u5b83\u53ea\u5f71\u54cd\u4e00\u5c0f\u90e8\u5206\u4eba\uff0c\u4f46\u6211\u4eec\u662f\u4e00\u4e2a\u76f8\u5bf9\u5e9e\u5927\u7684\u7fa4\u4f53\uff0c\u4ed6\u4eec\u4ecd\u7136\u5e0c\u671b\u5728\u751f\u6d3b\u4e2d\u6709\u6240\u4f5c\u4e3a\u3002 \u6211\u4eec\u4e5f\u5728\u8ffd\u6c42\u5e78\u798f\uff0c\u4f46\u9700\u8981\u522b\u4eba\u66f4\u591a\u7684\u5e2e\u52a9\u3002 \u4e16\u754c\u9700\u8981\u77e5\u9053\uff0c\u6211\u4eec\u4ecd\u5728\u8d21\u732e\u81ea\u5df1\u7684\u529b\u91cf\u3002 \u6211\u4eec\u6323\u624e\u7740\uff0c\u751a\u81f3\u8fde\u628a\u4e00\u5757\u9762\u5305\u653e\u8fdb\u5634\u91cc\u90fd\u5f88\u56f0\u96be\uff0c\u4f46\u6211\u4eec\u63a5\u53d7\u4e86\u8fd9\u4e9b\u6311\u6218\uff0c\u575a\u5f3a\u5df2\u6210\u4e3a\u6211\u4eec\u552f\u4e00\u7684\u751f\u6d3b\u65b9\u5f0f\u3002<\/span><\/p>\n

\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/span><\/p>\n

\u6211\u4f1a\u9009\u62e9\u6700\u5feb\u7684\u5eb7\u590d\u4e4b\u8def\u3002 \u6211\u4f1a\u50cf \"\u963f\u7518\u6b63\u4f20 \"\u90a3\u6837\u5954\u8dd1\u8d77\u6765\u3002 \u6211\u4f1a\u544a\u8bc9\u8def\u4e0a\u7684\u6bcf\u4e00\u4e2a\u4eba\uff0c\u6211\u6709\u591a\u4e48\u611f\u6fc0\u80fd\u91cd\u65b0\u52a8\u8d77\u6765\uff0c\u8bd5\u56fe\u8ba9\u4eba\u4eec\u81ea\u6211\u610f\u8bc6\u5230\u5065\u5eb7\u7684\u91cd\u8981\u6027\uff0c\u5e76\u6307\u51fa\u6211\u4eec\u6709\u591a\u5c11\u4e8b\u60c5\u662f\u7406\u6240\u5f53\u7136\u7684\u3002 \u5065\u5eb7\u4eba\u6bcf\u8fc8\u51fa\u4e00\u6b65\u90fd\u662f\u7406\u6240\u5f53\u7136\u7684\uff0c\u800c\u808c\u8089\u840e\u7f29\u75c7\u60a3\u8005\u5374\u5e0c\u671b\u81ea\u5df1\u80fd\u8fc8\u51fa\u8fd9\u4e00\u6b65\u3002<\/span><\/p>\n

 <\/p>\n

\u8981\u9605\u8bfb\u66f4\u591a \"LGMD \u7126\u70b9\u8bbf\u8c08\"\uff0c\u6216\u81ea\u613f\u53c2\u52a0\u5373\u5c06\u4e3e\u884c\u7684\u8bbf\u8c08\uff0c\u8bf7\u8bbf\u95ee\u6211\u4eec\u7684\u7f51\u7ad9 https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/span><\/p>\n

 <\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

LGMD “SPOTLIGHT INTERVIEW” Name:\u00a0 Rodrigo\u00a0 Age: 29 yrs. old\u00a0\u00a0 Country: […]<\/p>","protected":false},"author":1,"featured_media":2265,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[87],"class_list":["post-2266","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2b-united-states"],"acf":[],"yoast_head":"\nIndividual with LGMD: Rodrigo - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2018\/09\/24\/rodrigo\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Individual with LGMD: Rodrigo - 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