{"id":2317,"date":"2018-10-29T13:58:32","date_gmt":"2018-10-29T18:58:32","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2317"},"modified":"2018-10-29T13:58:32","modified_gmt":"2018-10-29T18:58:32","slug":"organization-lgmd2i-research-fund","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/lgmd2i\/2018\/10\/29\/organization-lgmd2i-research-fund\/","title":{"rendered":"\u7ec4\u7ec7\uff1aLGMD2i \u7814\u7a76\u57fa\u91d1"},"content":{"rendered":"
\"\"<\/figure>\n\n\n

\u7ec4\u7ec7\u540d\u79f0<\/strong>: LGMD2i \u7814\u7a76\u57fa\u91d1<\/p>\n

\u7f51\u7ad9\uff1a<\/strong>\u00a0 \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 http:\/\/www.lgmd2ifund.org\/<\/a><\/u><\/p>\n

FACEBOOK\uff1a\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/strong> https:\/\/www.facebook.com\/jeanpierre.laurent.58173<\/a><\/p>\n

\u8d35\u7ec4\u7ec7\u4fa7\u91cd\u4e8e\u54ea\u79cd lgmd \u5b50\u7c7b\u578b\uff1a\u00a0 <\/strong><\/p>\n

\u6211\u4eec\u53ea\u5173\u6ce8 LGMD2I<\/p>\n

\u5982\u679c\u60a8\u4e13\u6ce8\u4e8e\u67d0\u4e00\u4e9a\u578b\uff0c\u662f\u5426\u6709\u767b\u8bb0\u5904\uff0c\u60a3\u8005\u5982\u4f55\u52a0\u5165\uff1f <\/strong><\/p>\n

\u6211\u4eec\u77e5\u9053\u6709\u4e00\u4e2a\u767b\u8bb0\u5904\uff1a\u5168\u7403 FKRP \u767b\u8bb0\u5904 (https:\/\/www.fkrp-registry.org\/)\u3002\u867d\u7136\u5b83\u7684\u603b\u90e8\u8bbe\u5728\u82f1\u56fd\uff0c\u4f46\u5b83\u662f\u4e00\u4e2a\u56fd\u9645\u6ce8\u518c\u673a\u6784\uff0c\u9002\u5e94\u7f55\u89c1\u75c5\u7684\u6027\u8d28\u3002LGMD2I \u662f\u4e00\u79cd\u975e\u5e38\u7f55\u89c1\u7684\u75be\u75c5\uff0c\u8fd9\u610f\u5473\u7740\u4ece\u836f\u7269\u5f00\u53d1\u5546\u7684\u89d2\u5ea6\u6765\u770b\uff0c\u60a3\u75c5\u4eba\u6570\u5f88\u5c11\u3002\u7531\u4e8e\u5148\u8fdb\u7684\u4e34\u5e8a\u7814\u7a76\u9700\u8981\u5927\u91cf\u53c2\u4e0e\u8005\uff0c\u56e0\u6b64\u5efa\u7acb\u4e00\u4e2a\u5168\u7403\u767b\u8bb0\u5904\u5c06\u6709\u52a9\u4e8e\u786e\u5b9a\u5927\u91cf\u6f5c\u5728\u53c2\u4e0e\u8005\uff0c\u589e\u52a0\u6025\u9700\u7684\u8bd5\u9a8c\u6210\u529f\u5165\u7ec4\u7684\u673a\u4f1a\u3002\u591a\u5e74\u6765\uff0c\u6211\u4eec\u4e00\u76f4\u4e3a\u8be5\u767b\u8bb0\u5904\u63d0\u4f9b\u8d44\u91d1\u652f\u6301\uff0c\u5b83\u5df2\u6210\u4e3a LGMD2I \u793e\u533a\u7684\u4e00\u5927\u8d22\u5bcc\u3002<\/p>\n

\u8d35\u7ec4\u7ec7\u662f\u975e\u8425\u5229\u7ec4\u7ec7\u5417\uff1f\u5982\u679c\u662f\uff0c\u662f\u4ec0\u4e48\u7c7b\u578b\uff1f\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 <\/strong><\/p>\n

\u662f\u7684\uff0c\u6211\u4eec\u662f\u4e00\u5bb6\u975e\u8425\u5229\u6027\u79c1\u4eba\u57fa\u91d1\u4f1a\u3002<\/p>\n

\u521b\u5efa\u8d35\u7ec4\u7ec7\u7684\u7075\u611f\u6765\u6e90<\/strong>:<\/p>\n

LGMD2I \u60a3\u8005\u5728\u786e\u5b9a\u6211\u4eec\u7684\u5de5\u4f5c\u91cd\u70b9\u548c\u4f7f\u547d\u65b9\u9762\u53d1\u6325\u4e86\u91cd\u8981\u4f5c\u7528\u3002<\/p>\n

\u8d35\u7ec4\u7ec7\u7684\u4f7f\u547d\u662f\u4ec0\u4e48\uff1f<\/strong><\/p>\n

\u627e\u5230\u6cbb\u7597\u65b9\u6cd5\uff0c\u5e2e\u52a9 2I \u60a3\u8005\u4fdd\u6301\u751f\u6d3b\u8d28\u91cf\u3002<\/p>\n

\u8d35\u7ec4\u7ec7\u63d0\u4f9b\u54ea\u4e9b\u670d\u52a1\uff1f<\/strong><\/p>\n

\u6211\u4eec\u4e0d\u63d0\u4f9b\u670d\u52a1\u3002\u6211\u4eec\u8d44\u52a9\u7814\u7a76\uff0c\u5e2e\u52a9\u4eba\u4eec\u83b7\u5f97\u6709\u5173\u75be\u75c5\u548c\u533b\u7597\u62a4\u7406\u7684\u4fe1\u606f\u3002<\/p>\n

\u8d35\u7ec4\u7ec7\u6700\u5f15\u4ee5\u4e3a\u8c6a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong><\/p>\n

\u6211\u4eec\u8d44\u52a9\u542f\u52a8\u4e86\u6240\u6709\u4e3b\u8981\u6cbb\u7597\u9886\u57df\uff08\u57fa\u56e0\u6cbb\u7597\u3001\u5e72\u7ec6\u80de......\uff09\u3001\u8bca\u65ad\u548c\u7814\u7a76\u5de5\u5177\uff08\u5c0f\u9f20\u6a21\u578b\u3001\u767b\u8bb0\u518c......\uff09\u7684\u9879\u76ee\u3002\u7531\u4e8e\u6211\u4eec\u7684\u53c2\u4e0e\uff0cLGMD2I \u7814\u7a76\u4eba\u5458\u7684\u6570\u91cf\u5728\u4e16\u754c\u5404\u5730\u533a\u7a33\u6b65\u589e\u957f\u3002\u5efa\u7acb\u4e00\u5b9a\u6570\u91cf\u7684\u7814\u7a76\u5c0f\u7ec4\u975e\u5e38\u91cd\u8981\uff0c\u73b0\u5728\u91cd\u8981\u7684\u662f\u8981\u4fdd\u6301\u4e0b\u53bb......<\/p>\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3\u8d35\u7ec4\u7ec7\u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>:<\/p>\n

\u6211\u4eec\u8d44\u52a9\u4efb\u4f55\u80fd\u8ba9\u6211\u4eec\u66f4\u63a5\u8fd1\u6cbb\u6108\u7684 LGMD2I \u7814\u7a76\u9879\u76ee\uff0c\u5e76\u652f\u6301\u5927\u89c4\u6a21\u8bca\u65ad\u3002\u6211\u4eec\u76f8\u4fe1\uff0cLGMD2I \u7684\u9002\u5f53\u6cbb\u7597\/\u6cbb\u6108\u65b9\u6cd5\u5c06\u662f\u591a\u79cd\u6a21\u5f0f\u7684\u7ed3\u5408\uff0c\u8fd9\u4e9b\u6a21\u5f0f\u5c06\u4fee\u590d\u6709\u7f3a\u9677\u7684\u57fa\u56e0\uff0c\u5e76\u5e2e\u52a9\u6062\u590d\u5bf9\u808c\u8089\u9020\u6210\u7684\u635f\u4f24\u3002\u5982\u679c\u4efb\u4f55\u5b9e\u9a8c\u5ba4\u62e5\u6709\u53ef\u7528\u4e8e\u5f00\u53d1 LGMD2I \u6cbb\u7597\u65b9\u6cd5\u7684\u7814\u7a76\u77e5\u8bc6\u548c\u6280\u672f\uff0c\u8bf7\u4e0e\u6211\u4eec\u8054\u7cfb\u3002<\/p>\n

\u4eba\u4eec\u5982\u4f55\u53c2\u4e0e\u652f\u6301\u8d35\u7ec4\u7ec7\uff1a<\/strong><\/p>\n

\u6b22\u8fce\u4efb\u4f55\u4e86\u89e3\u8be5\u75be\u75c5\u76f8\u5173\u4fe1\u606f\u6216\u5bf9\u5bfb\u627e\u6cbb\u7597\u65b9\u6cd5\u611f\u5174\u8da3\u7684\u4eba\u4e0e\u6211\u4eec\u8054\u7cfb\u3002<\/p>\n

\u8054\u7cfb\u8d35\u7ec4\u7ec7\u7684\u6700\u4f73\u65b9\u5f0f\u662f\u4ec0\u4e48\uff1f<\/strong><\/p>\n

\u5982\u9700\u4e86\u89e3\u66f4\u591a\u4fe1\u606f\uff0c\u8bf7\u8054\u7cfb \u9879\u76ee\u5b98\u5458 Jean-Pierre Laurent \u535a\u58eb\uff0c\u8bf7\u53d1\u9001\u7535\u5b50\u90ae\u4ef6\u81f3 jpl@lgmd2ifund.org<\/a><\/p>\n

\u00a0<\/strong><\/p>","protected":false},"excerpt":{"rendered":"

NAME OF ORGANIZATION:\u00a0 \u00a0\u00a0\u00a0\u00a0\u00a0 \u00a0LGMD2i Research Fund WEBSITE:\u00a0 \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0 http:\/\/www.lgmd2ifund.org\/ […]<\/p>","protected":false},"author":1,"featured_media":2316,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[94,35,95],"tags":[],"class_list":["post-2317","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-organization-interview","category-lgmd2i","category-organization"],"acf":[],"yoast_head":"\nORGANIZATION:\u00a0 LGMD2i Research Fund - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/zh\/lgmd2i\/2018\/10\/29\/organization-lgmd2i-research-fund\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"ORGANIZATION:\u00a0 LGMD2i Research Fund - 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