{"id":2361,"date":"2019-01-15T10:00:27","date_gmt":"2019-01-15T16:00:27","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2361"},"modified":"2019-01-15T10:00:27","modified_gmt":"2019-01-15T16:00:27","slug":"individual-with-lgmd-andrea","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2019\/01\/15\/individual-with-lgmd-andrea\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a Andrea"},"content":{"rendered":"
\"\"<\/figure>\n\n\n\n

LGMD \"\u7126\u70b9\u8bbf\u8c08\"<\/strong><\/p>\n\n\n\n

\u540d\u79f0<\/strong>: \u5b89\u5fb7\u70c8\u4e9a  \u5e74\u9f84<\/strong>: 24 \u5c81<\/p>\n\n\n\n

\u56fd\u5bb6<\/strong>:\u7f8e\u56fd<\/p>\n\n\n\n

LGMD \u5b50\u7c7b\u578b<\/strong>: LGMD2A--\u4e00\u79cd\u9499\u86cb\u767d\u9176\u75c5 <\/p>\n\n\n\n

\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>:<\/p>\n\n\n\n

\u6211\u5728 11 \u5c81\u65f6\u88ab\u786e\u8bca\u3002<\/p>\n\n\n\n

\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n\n\n\n

8 \u5c81\u65f6\uff0c\u6211\u65e0\u6cd5\u7528\u811a\u8ddf\u7740\u5730\u7ad9\u7acb\uff0c\u4e0d\u4e45\u5c31\u5f00\u59cb\u7528\u811a\u5c16\u8d70\u8def\u3002\n\u6b64\u540e\u4e0d\u4e45\uff0c\u6211\u5f00\u59cb\u7528\u811a\u5c16\u8d70\u8def\u3002\u968f\u540e\uff0c\u6211\u7684\u80a9\u8180\u548c\u81c0\u90e8\n\u968f\u4e4b\u800c\u6765\u3002<\/p>\n\n\n\n

\u60a8\u662f\u5426\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD\uff1a<\/strong><\/p>\n\n\n\n

\u4e0d\uff0c\u6211\u662f\u552f\u4e00\u88ab\u8bca\u65ad\u51fa\u60a3\u6709 LGMD \u7684\u5bb6\u5ead\u6210\u5458\u3002<\/p>\n\n\n\n

\u60a8\u8ba4\u4e3a\u5728\u4e0e LGMD\n\u6700\u5927\u7684\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n\n\n\n

\u65e0\u6cd5\u4f7f\u7528 Uber\uff01<\/p>\n\n\n\n

\u8fd9\u79cd\u75be\u75c5\u7684\u6e10\u8fdb\u6027\u5177\u6709\u6311\u6218\u6027\u3002\u6211\n\u968f\u7740\u65f6\u95f4\u7684\u63a8\u79fb\uff0c\u6211\u4e0d\u5f97\u4e0d\u9002\u5e94\u67d0\u4e9b\u80fd\u529b\u7684\u4e27\u5931\u3002\n\u8981\u77e5\u9053\u8fd9\u4e9b\u80fd\u529b\u7684\u4e27\u5931\u8fd8\u5c06\u7ee7\u7eed\u3002\u4f8b\u5982\uff0c\u6211\u5c0f\u65f6\u5019\u53ef\u4ee5\u8d70\u8def\u3001\n\u5341\u51e0\u5c81\u65f6\u6211\u7528\u8d5b\u683c\u5a01\u4ee3\u6b65\uff0c\u73b0\u5728\u6211\u7528\u8f6e\u6905\u3002\n\u8f6e\u6905\u3002\u5bf9\u6211\u6765\u8bf4\uff0c\u6700\u56f0\u96be\u7684\u8c03\u6574\u662f\u518d\u4e5f\u4e0d\u80fd\n\u4e0d\u80fd\u518d\u53bb\u670b\u53cb\u5bb6\u505a\u5ba2\uff0c\u56e0\u4e3a\u670b\u53cb\u5bb6\u51e0\u4e4e\u90fd\u6709\u53f0\u9636\u3002\n\u518d\u4e5f\u4e0d\u80fd\u6f14\u594f\u6211\u66fe\u7ecf\u559c\u6b22\u7684\u4e50\u5668\u4e86\u3002<\/p>\n\n\n\n

\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n\n\n\n

\u6211\u611f\u5230\u5e78\u8fd0\u7684\u662f\uff0c\u6211\u5728\u5927\u5b66\u91cc\u627e\u5230\u4e86\u81ea\u5df1\u70ed\u8877\u7684\u5b66\u4e60\u9886\u57df\uff0c\u5e76\u80fd\u5728 LGMD \u7ee7\u7eed\u6df1\u9020\u3002\u6211\u4e3a\u81ea\u5df1\u80fd\u642c\u5230\u4e00\u4e2a\u65b0\u5dde\u653b\u8bfb\u751f\u7269\u7edf\u8ba1\u5b66\u7814\u7a76\u751f\u5e76\u72ec\u7acb\u751f\u6d3b\u800c\u611f\u5230\u81ea\u8c6a\u3002\u4f46\u662f \u8bfe\u7a0b<\/g> \u4e00\u8def\u4e0a\u6709\u5f88\u591a\u4eba\u5e2e\u52a9\u8fc7\u6211\uff08\u7231\u4f60\u7684\u5988\u5988\u548c \u7238\u7238 <\/g>:<\/g>).<\/p>\n\n\n\n

LGMD \u662f\u5982\u4f55\u5f71\u54cd\u4f60\u6210\u4e3a\u4eca\u5929\u7684\n\u6210\u4e3a\u4eca\u5929\u7684\u4f60\uff1a<\/strong><\/p>\n\n\n\n

\u6709\u65f6\uff0c\u751f\u6d3b\u4f1a\u7ed9\u4f60\u4e00\u4e9b\u4f60\u65e0\u6cd5\u6539\u53d8\u7684\u6311\u6218\u3001\n\u4f46\u5e94\u5bf9\u8fd9\u4e9b\u6311\u6218\u7684\u8fc7\u7a0b\u5f80\u5f80\u4f1a\u8ba9\u4eba\u53d7\u76ca\u532a\u6d45\u3002\n\u5c3d\u7ba1\u8eab\u4f53\u865a\u5f31\uff0c\u4f46\u4e0e LGMD \u751f\u6d3b\u5728\u4e00\u8d77\u8ba9\u6211\u5728\u5f88\u591a\u65b9\u9762\u53d8\u5f97\u66f4\u52a0\u575a\u5f3a\u3002\n\u53d8\u5f97\u66f4\u52a0\u575a\u5f3a\u3002\u5b83\u8fd8\u8ba9\u6211\u61c2\u5f97\u4e86\u8106\u5f31\u7684\u4ef7\u503c\uff0c\u4ee5\u53ca\u62e5\u62b1\n\u60b2\u4f24\u4ee5\u5145\u5206\u4f53\u9a8c\u5feb\u4e50\u7684\u4ef7\u503c\u3002\u4e8b\u5b9e\u4e0a\uff0c\u4e5f\u8bb8\u662f\u7535\u5f71\u300aInside Out\u300b\u6559\u4f1a\u6211\u7684\n\u6211\u5b66\u4f1a\u4e86\u8fd9\u4e9b...<\/p>\n\n\n\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>:<\/p>\n\n\n\n

\u6bcf\u4e2a\u4eba\u90fd\u5e94\u8be5\u770b\u770b\u65af\u7279\u62c9-\u6768\u7684 TED \u6f14\u8bb2\uff0c\u9898\u76ee\u662f \"\u6211\u4e0d\u662f\u4f60\u7684\u7075\u611f\u6e90\u6cc9\uff0c\u975e\u5e38\u611f\u8c22\"\u3002\n\"\u7684 TED \u6f14\u8bb2\u3002\u5979\u5206\u4eab\u4e86\u5173\u4e8e\n\u5bf9\u6b8b\u75be\u4eba\u7684\u5265\u524a\u3002\u6211\u76f8\u4fe1\n\u5728\u8fd9\u4e2a\u4e16\u754c\u4e0a\uff0c\u6211\u4eec\u4e2d\u7684\u7edd\u5927\u591a\u6570\u4eba\u90fd\u5728\u5c3d\u81ea\u5df1\u6700\u5927\u7684\u52aa\u529b\uff0c\u5c3d\u7ba1\u6211\u4eec\u7ecf\u5386\u4e86\u5404\u79cd\u521b\u4f24\u3002\n\u6240\u627f\u53d7\u7684\u521b\u4f24\u3002\u5bf9\u4e8e\u6211\u4eec\u8fd9\u4e9b\u8eab\u4f53\u6b8b\u75be\u7684\u4eba\u6765\u8bf4\uff0c\u8fd9\u79cd\u521b\u4f24\u53ea\u662f\n\u8089\u773c\u66f4\u660e\u663e\u4e00\u4e9b\u3002<\/p>\n\n\n\n

\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f\n\u60a8\u60f3\u505a\u7684\u7b2c\u4e00\u4ef6\u4e8b\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n\n\n\n

\u8fd9\u4e2a\u95ee\u9898\u5bf9\u6211\u6765\u8bf4\u6700\u96be\u3002\u6211\u4ece\u6765\u6ca1\u6709\n\u5ac9\u5992\u522b\u4eba\u8dd1\u6b65\u3001\u8fdc\u8db3\u6216\u53bb\u5065\u8eab\u623f\u3002\u6211\n\u53ef\u80fd\u53ea\u662f\u53bb\u5b66\u6821\uff0c\u4f46\u4f1a\u8d70\u697c\u68af\u800c\u4e0d\u662f\u7535\u68af\u3002\u4f46\n\u8fd9\u7b54\u6848\u592a\u65e0\u804a\u4e86\u3002\u4e5f\u8bb8\u6211\u4f1a\u66f4\u6709\u620f\u5267\u6027\uff1b\u6211\u53ef\u4ee5\u5356\u6389\u6211\u7684\u8f6e\u6905\n\u7528\u8fd9\u7b14\u94b1\u5e26\u5bb6\u4eba\u53bb\u6b27\u6d32\u65c5\u6e38\u3002\u80fd\u5728\u98de\u673a\u4e0a\u4f7f\u7528\u6d17\u624b\u95f4\n\u5728\u98de\u673a\u4e0a\u4f7f\u7528\u6d17\u624b\u95f4\u53ef\u80fd\u4f1a\u4ee4\u4eba\u5174\u594b\u3002\u4f46\u6211\u4f1a\u6000\u5ff5\u4f7f\u7528\u8f6e\u6905\u5e26\u6765\u7684\u7279\u6b8a\u5f85\u9047\u3002\n\u8f6e\u6905\u5e26\u6765\u7684\u7279\u6b8a\u5f85\u9047\u3002\u4e0e\u4f17\u4e0d\u540c\u4e5f\u6709\u5b83\u7684\u597d\u5904\u3002<\/p>\n\n\n\n

*** \u8bf7\u70b9\u8d5e\u3001\u8bc4\u8bba\u5e76\u5206\u4eab\u672c\u5e16\uff0c\u5e2e\u52a9\u63d0\u9ad8\u4eba\u4eec\u5bf9 LGMD \u7684\u8ba4\u8bc6\u3002\n\u63d0\u9ad8\u5bf9 LGMD \u7684\u8ba4\u8bc6\uff01<\/p>\n\n\n\n

*** \u6b32\u4e86\u89e3\u66f4\u591a \"LGMD \u7126\u70b9\u8bbf\u8c08 \"\u6216\u81ea\u613f\u53c2\u52a0\u5373\u5c06\u4e3e\u884c\u7684\u8bbf\u8c08\uff0c\u8bf7\u8bbf\u95ee\u6211\u4eec\u7684\u7f51\u7ad9 https:\/\/www.lgmd-info.org\/spotlight-interviews <\/a><\/p>","protected":false},"excerpt":{"rendered":"

LGMD \u201cSPOTLIGHT INTERVIEW\u201d Name:  Andrea  Age: 24 yrs. old Country: […]<\/p>","protected":false},"author":1,"featured_media":2360,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[70],"class_list":["post-2361","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Andrea - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2019\/01\/15\/individual-with-lgmd-andrea\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Andrea - 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