{"id":2727,"date":"2019-06-12T14:29:32","date_gmt":"2019-06-12T19:29:32","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=2727"},"modified":"2019-06-12T14:29:32","modified_gmt":"2019-06-12T19:29:32","slug":"individual-with-lgmd-jillena","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2019\/06\/12\/individual-with-lgmd-jillena\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a Jillena"},"content":{"rendered":"<figure class=\"wp-block-image\"><img decoding=\"async\" src=\"data:image\/svg+xml,%3Csvg%20xmlns%3D%27http%3A%2F%2Fwww.w3.org%2F2000%2Fsvg%27%20width%3D%271024%27%20height%3D%27576%27%20viewBox%3D%270%200%201024%20576%27%3E%3Crect%20width%3D%271024%27%20height%3D%27576%27%20fill-opacity%3D%220%22%2F%3E%3C%2Fsvg%3E\" data-orig-src=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2019\/06\/LGMD2A-Jillena-1024x576.png\" alt=\"\" class=\"lazyload 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\"\u8d70\u3001\u8d70\u3001\u8d70\"\u3002\n\u8d70\u3002\u6211\u7684\u80f3\u818a\u548c\u817f\u90fd\u53d8\u5f31\u4e86\uff0c\u505a\u5f88\u591a\u4e8b\u60c5\u90fd\u5f88\u7d2f\u3002<\/p>\n\n\n\n<p><strong>\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48 <\/strong>:<\/p>\n\n\n\n<p>\u6211\u6700\u5927\u7684\u6210\u5c31\u662f\u6700\u8fd1\u6001\u5ea6\u7684\u8f6c\u53d8\u3002   I\n\u6211\u610f\u8bc6\u5230\uff0c\u5bf9\u6211\u7684\u75be\u75c5\u548c\u547d\u8fd0\u6301\u6d88\u6781\u6001\u5ea6\u5bf9\u4efb\u4f55\u4eba\u90fd\u6ca1\u6709\u5e2e\u52a9\u3002  \u6211\u4e0d\u4ec5\u51b3\u5b9a\u5728\u751f\u6d3b\u4e2d\n\u6211\u4e0d\u4ec5\u51b3\u5b9a\u6234\u7740\u4e00\u526f\u4e0d\u540c\u7684\u773c\u955c\u53bb\u751f\u6d3b\uff0c\u800c\u4e14\u8fd8\u51b3\u5b9a\u5728\u6211\u7684 Facebook \u4e3b\u9875\u4e0a\n\u5728\u6211\u521b\u5efa\u7684 Facebook \u9875\u9762\u4e0a\uff0c\u901a\u8fc7\u6211\u7684\u4eba\u751f\u5386\u7a0b\u4e0e\u5168\u4e16\u754c\u5206\u4eab\u8fd9\u526f\u773c\u955c\u3002<\/p>\n\n\n\n<p><strong>LGMD \u5bf9\u60a8\n\u662f\u5982\u4f55\u5f71\u54cd\u4f60\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong><\/p>\n\n\n\n<p>\u4e00\u65e6\u6211\u63a5\u53d7\u4e86\u81ea\u5df1\u5f97\u4e86\u8fd9\u79cd\u75c5\n\u6211\u5c31\u5728 Facebook \u4e0a\u521b\u5efa\u4e86\u4e00\u4e2a\u9875\u9762\u3002  \u6211\u5c31\u5f00\u59cb\u5efa\u8bae\u5927\u5bb6\u5982\u4f55\n\u7684\u5efa\u8bae\u3002\u4ece\u90a3\u65f6\u8d77\uff0c\u8fd9\u4e2a\u9875\u9762\u53d8\u5f97\u8d8a\u6765\u8d8a\u591a\u3002\u6211\u73b0\u5728\u6709\u5f88\u591a Facebook \u597d\u53cb\n\u4ed6\u4eec\u5df2\u7ecf\u6210\u4e3a\u6211\u7684\u5f3a\u5927\u652f\u6301\u7cfb\u7edf\u3002\u6b64\u5916\uff0c\u6211\u8fd8\u5728\u4e3a MDA \u4e3e\u884c\u7684\u4e09\u53f6\u8349\n\u4e3a MDA \u7b79\u6b3e\u7684\u6f14\u8bb2\u4e2d\u5206\u4eab\u4e86\u6211\u7684\u6545\u4e8b\u3002  \u6211\u5df2\u7ecf\n\u6210\u4e86\u4e00\u4e2a\u53ea\u5e0c\u671b\u6bcf\u4e2a\u4eba\u90fd\u80fd\u770b\u5230\u81ea\u5df1\u4ef7\u503c\u7684\u4eba\uff01\u5341\u5e74\u524d\uff0c\u6211\u4e0d\n\u66f4\u4e0d\u7528\u8bf4\u5176\u4ed6\u4eba\u4e86\u3002<\/p>\n\n\n\n<p><strong>\u60a8\u60f3\u8ba9\u4e16\u754c\u77e5\u9053\u4ec0\u4e48\n\u5173\u4e8e LGMD <\/strong>:<\/p>\n\n\n\n<p>\u6211\u60f3\u8ba9\u5168\u4e16\u754c\u90fd\u77e5\u9053\uff0cLGMD \u662f\u4e00\u79cd\u6781\u5176\u96be\u6cbb\u7684\u75be\u75c5\n\u56e0\u4e3a\u5b83\u593a\u8d70\u4e86\u4f60\u7684\u72ec\u7acb\u6027\u3002\u968f\u7740\n\u968f\u7740\u5e74\u9f84\u7684\u589e\u957f\uff0c\u808c\u8089\u4f1a\u9010\u6e10\u8870\u5f31\uff0c\u4ece\u800c\u964d\u4f4e\u6d3b\u52a8\u80fd\u529b\u3002\u8fd9\u5f88\u56f0\u96be\u3001\n\u5c24\u5176\u662f\u5f53\u4f60\u6709\u4e09\u4e2a\u5b69\u5b50\u9700\u8981\u7167\u987e\u65f6\u3002<\/p>\n\n\n\n<p><strong>\u5982\u679c\u4f60\u7684\u8001\u5e74\u75f4\u5446\u75c7\u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u4f60\u9996\u5148\u60f3\u505a\u4ec0\u4e48\uff1f\n\u660e\u5929\uff0c\u60a8\u60f3\u505a\u7684\u7b2c\u4e00\u4ef6\u4e8b\u662f\u4ec0\u4e48\uff1f <\/strong>:<\/p>\n\n\n\n<p>\u6211\u4f1a\u548c\u5bb6\u4eba\u4e00\u8d77\n\u6211\u4f1a\u548c\u5bb6\u4eba\u4e00\u8d77\u53bb\u79d1\u7f57\u62c9\u591a\u5dde\u7684\u5c71\u533a\u8fdc\u8db3\uff01<\/p>\n\n\n\n<p>* * * \u6b32\u4e86\u89e3\u66f4\u591a \"LGMD \u805a\u7126\u8bbf\u8c08 \"\u6216\u81ea\u613f\u53c2\u52a0\u5373\u5c06\u4e3e\u884c\u7684\u8bbf\u8c08\uff0c\u8bf7\u8bbf\u95ee\u6211\u4eec\u7684\u7f51\u7ad9 <a href=\"https:\/\/www.lgmd-info.org\/zh\/spotlight-interviews\/\">https:\/\/www.lgmd-info.org\/spotlight-interviews<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>LGMD \u201cSpotlight interview\u201d Name:&nbsp; Jillena &nbsp;Age: 32 yrs. old Country: [&hellip;]<\/p>","protected":false},"author":1,"featured_media":2728,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,14],"tags":[70],"class_list":["post-2727","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2a","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v23.9 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>INDIVIDUAL WITH LGMD: Jillena - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2019\/06\/12\/individual-with-lgmd-jillena\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta 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