{"id":417,"date":"2015-02-18T14:59:09","date_gmt":"2015-02-18T20:59:09","guid":{"rendered":"http:\/\/mainstay-bg.com\/wp\/?p=282"},"modified":"2015-02-18T14:59:09","modified_gmt":"2015-02-18T20:59:09","slug":"282","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a Suzanne"},"content":{"rendered":"

\u00a002\/18\/2015:<\/span><\/p>\n

\u59d3\u540d\uff1a \u82cf\u73ca\u5a1c\u82cf\u73ca\u5a1c \"LGMD2B<\/a><\/span><\/p>\n

\u5e74\u9f8445
\n<\/span><\/p>\n

\u56fd\u5bb6\uff1a \u82f1\u56fd
\n<\/span><\/p>\n

LGMD \u5b50\u578b\u53f7\uff1aLGMD2B - Miyoshi \u53d8\u4f53
\n
\n\u4f60\u662f\u51e0\u5c81\u88ab\u8bca\u65ad\u51fa\u6765\u7684\uff1f
\n\u6211\u662f\u5728 29 \u5c81\u5de6\u53f3\u88ab\u6b63\u786e\u8bca\u65ad\u51fa\u6765\u7684\u3002<\/span><\/span><\/p>\n

\u4f60\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f
\n\u6211\u65e0\u6cd5\u8e2e\u8d77\u811a\u5c16\u3002<\/p>\n

\u60a8\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD \u5417\uff1f<\/p>\n

\u60a8\u8ba4\u4e3a\u60a3\u6709 LGMD \u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f
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\u4f60\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f
\n\u6211\u6700\u5927\u7684\u6210\u5c31\u662f\u7ed3\u4e86\u5a5a\uff0c\u6709\u4e86\u4e24\u4e2a\u53ef\u7231\u7684\u5b69\u5b50\u3002\u6211\u8fd8\u5728\u5e06\u8239\u534f\u4f1a\u5b66\u4f1a\u4e86\u9a7e\u8239\uff0c\u5e76\u5750\u7740\u8f6e\u6905\u6e9c\u51b0\uff01<\/p>\n

lgmd \u662f\u5982\u4f55\u5f71\u54cd\u4f60\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f
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\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u60c5\u51b5\uff1a\u76ee\u524d\u8fd8\u6ca1\u6709\u6cbb\u7597\u6216\u6cbb\u6108 LGMD 2B Miyoshi \u7684\u65b9\u6cd5\u3002\u8006\u90a3\u6559\u57fa\u91d1\u4f1a\u76ee\u524d\u6b63\u5728\u5e2e\u52a9\u5f00\u5c55\u4e34\u5e8a\u7814\u7a76\uff0c\u4ee5\u8fdb\u4e00\u6b65\u4e86\u89e3\u8fd9\u79cd\u75be\u75c5\uff0c\u5e76\u5c1d\u8bd5\u627e\u5230\u6cbb\u7597\u65b9\u6cd5\u6216\u6cbb\u6108\u65b9\u6cd5\uff01<\/p>\n

\u5982\u679c\u660e\u5929\u5c31\u80fd \"\u6cbb\u6108 \"\u4f60\u7684\u8001\u5e74\u75f4\u5446\u75c7\uff0c\u4f60\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f
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\u00a002\/18\/2015: NAME: Suzanne AGE: 45 COUNTRY: England LGMD Sub-Type: LGMD2B […]<\/p>","protected":false},"author":1,"featured_media":283,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[26,23,27],"class_list":["post-417","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-england","tag-lgmd2b","tag-miyoshi-variant"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Suzanne<\/title>\n<meta name=\"description\" content=\"Suzanne, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/02\/18\/282\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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