{"id":544,"date":"2015-04-03T14:49:59","date_gmt":"2015-04-03T19:49:59","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=544"},"modified":"2015-04-03T14:49:59","modified_gmt":"2015-04-03T19:49:59","slug":"lacey","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a Lacey"},"content":{"rendered":"

04\/03\/2015<\/p>\n

\u59d3\u540d<\/strong>: \u83b1\u897f \u00a0\u00a0\u00a0\u5e74\u9f84<\/strong>:\u00a042\"LGMD2i<\/a><\/p>\n

\u56fd\u5bb6<\/strong>:\u7f8e\u56fd<\/p>\n

LGMD \u5b50\u7c7b\u578b<\/strong>:LGMD2i<\/p>\n

 <\/p>\n

\u60a8\u5728\u51e0\u5c81\u65f6\u786e\u8bca<\/strong>:<\/p>\n

\u6211 16 \u5c81\u65f6\u88ab\u8bca\u65ad\u60a3\u6709\u808c\u8089\u840e\u7f29\u75c7\uff0c34 \u5c81\u65f6\u88ab\u8bca\u65ad\u60a3\u6709 LGMD2i\u3002\u4e24\u6b21\u8bca\u65ad\u90fd\u662f\u901a\u8fc7\u7535\u8bdd\u8fdb\u884c\u7684\u3002\u4e8b\u540e\u60f3\u60f3\uff0c\u6211\u771f\u5e0c\u671b\u533b\u751f\u80fd\u5f53\u9762\u544a\u8bc9\u6211\uff0c\u56e0\u4e3a\u6211\u6709\u592a\u591a\u7684\u95ee\u9898\uff0c\u800c\u4e14\u5f88\u5bb3\u6015\u3002<\/p>\n

\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u6211\u6700\u5148\u53d1\u73b0\u7684\u75c7\u72b6\u662f\u8dd1\u6b65\u65f6\u817f\u90e8\u62bd\u7b4b\u75bc\u75db\uff0c\u8ddf\u4e0d\u4e0a\u5176\u4ed6\u5b69\u5b50\u7684\u6b65\u4f10\u3002\u6709\u4eba\u8bf4\u6211\u61d2\u60f0\uff0c\u8981\u6211\u5728\u4f53\u80b2\u8bfe\u548c\u5792\u7403\u8bfe\u4e0a\u66f4\u52a0\u52aa\u529b\u3002\u6211\u8bb0\u5f97\u5f53\u65f6\u5728\u60f3\uff1a\"\u6211\u5df2\u7ecf\u5c3d\u529b\u4e86\uff0c\u600e\u4e48\u624d\u80fd\u8ba9\u81ea\u5df1\u50cf\u5176\u4ed6\u5b69\u5b50\u4e00\u6837\u8dd1\u5f97\u66f4\u5feb\u5462\uff1f<\/p>\n

\u60a8\u662f\u5426\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD<\/strong>:<\/p>\n

\u6ca1\u6709\uff0c\u6211\u6ca1\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD\u3002<\/p>\n

\u60a8\u8ba4\u4e3a\u60a3\u6709 LGMD \u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

\u4e0d\u65ad\u7684\u53d8\u5316\uff0c\u52aa\u529b\u5bfb\u627e\u9002\u5e94\u65b0\u5e38\u6001\u7684\u65b9\u6cd5\u3002<\/p>\n

\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48<\/strong>:<\/p>\n

\u6211\u6700\u5927\u7684\u6210\u5c31\u5c31\u662f\u5e26\u7740\u540c\u60c5\u5fc3\u548c\u52c7\u6c14\u8fc7\u597d\u6bcf\u4e00\u5929\uff0c\u6210\u4e3a\u652f\u6301\u6211\u7684\u4e08\u592b\u7684\u59bb\u5b50\u548c\u7231\u6211\u4eec\u7684\u5973\u513f\u4eec\u7684\u5988\u5988\u3002<\/p>\n

lgmd \u662f\u5982\u4f55\u5f71\u54cd\u4f60\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong>:<\/p>\n

LGMD \u8feb\u4f7f\u6211\u653e\u6162\u811a\u6b65\uff0c\u4fdd\u6301\u6e05\u9192\u7684\u5934\u8111\u3002\u56e0\u4e3a\u8fd9\u79cd\u75be\u75c5\uff0c\u6211\u53d8\u5f97\u66f4\u52a0\u575a\u5f3a\uff0c\u66f4\u52a0\u5bcc\u6709\u540c\u60c5\u5fc3\u3002\u6211\u5b66\u4f1a\u4e86\u8fb9\u54ed\u8fb9\u7b11\u3002<\/p>\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>:<\/p>\n

\u6211\u5e0c\u671b\u5168\u4e16\u754c\u90fd\u80fd\u66f4\u591a\u5730\u4e86\u89e3 LGMD\uff0c\u5c24\u5176\u662f\u533b\u751f\u3002\u6211\u77e5\u9053\uff0c\u5bf9\u6211\u4eec\u4e2d\u7684\u8bb8\u591a\u4eba\u6765\u8bf4\uff0c\u83b7\u5f97\u8bca\u65ad\u7684\u9053\u8def\u662f\u6f2b\u957f\u7684\uff0c\u4f46\u5176\u5b9e\u5e76\u4e0d\u4e00\u5b9a\u5982\u6b64\u3002\u4e00\u4e9b LGMD \u60a3\u8005\u6709\u5fc3\u810f\u548c\u80ba\u90e8\u95ee\u9898\uff0c\u6211\u8ba4\u4e3a\u6709\u77e5\u8bc6\u6e0a\u535a\u7684\u533b\u751f\u8fdb\u884c\u76d1\u6d4b\u548c\u63d0\u4f9b\u652f\u6301\u662f\u81f3\u5173\u91cd\u8981\u7684\u3002<\/p>\n

\u5982\u679c\u660e\u5929\u5c31\u80fd \"\u6cbb\u6108 \"\u4f60\u7684\u8001\u5e74\u75f4\u5446\u75c7\uff0c\u4f60\u6700\u60f3\u505a\u7684\u7b2c\u4e00\u4ef6\u4e8b\u662f\u4ec0\u4e48\uff1f<\/strong>: \u6211\u60f3\u505a\u7684\u7b2c\u4e00\u4ef6\u4e8b\u5c31\u662f\u8dd1\u6b65--\u6211\u5e0c\u671b\u6211\u80fd\u8bb0\u4f4f\u8dd1\u6b65\u7684\u611f\u89c9\u3002 \u6709\u65f6\u6211\u5f00\u7740\u6469\u6258\u8f66\uff0c\u95ed\u4e0a\u773c\u775b\u5047\u88c5\u81ea\u5df1\u5728\u8dd1\u6b65--\u8fd9\u6709\u70b9\u5371\u9669\ud83d\ude42\u3002<\/p>","protected":false},"excerpt":{"rendered":"

04\/03\/2015 NAME: \u00a0Lacey \u00a0\u00a0\u00a0AGE:\u00a042 COUNTRY:\u00a0United States LGMD Sub-Type:\u00a0LGMD2i   AT […]<\/p>","protected":false},"author":1,"featured_media":542,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,35],"tags":[36,16],"class_list":["post-544","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2i","tag-lgmd2i","tag-united-states"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Lacey<\/title>\n<meta name=\"description\" content=\"Lacey, who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/04\/03\/lacey\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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