{"id":5582,"date":"2021-12-12T18:05:10","date_gmt":"2021-12-12T18:05:10","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5582"},"modified":"2024-02-09T14:23:57","modified_gmt":"2024-02-09T14:23:57","slug":"individual-with-lgmd-soralla","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a Soralla"},"content":{"rendered":"

\"Lgmd2a<\/p>\n

LGMD \"\u7126\u70b9\u8bbf\u8c08\" <\/strong><\/p>\n

N<\/strong>\u9668\u77f3<\/strong>:\u7d22\u62c9\u62c9<\/p>\n

\u5e74\u9f84<\/strong>: 28<\/p>\n

\u56fd\u5bb6<\/strong>:\u7f8e\u56fd<\/p>\n

LGMD \u5b50\u7c7b\u578b<\/strong>: LGMD 2A\/R1 \u4e0e\u9499\u86cb\u767d\u9176 3 \u6709\u5173<\/p>\n

\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>?<\/p>\n

\u6211\u5728 23 \u5c81\u65f6\u88ab\u786e\u8bca\u3002<\/p>\n

\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong><\/p>\n

\u6211\u4e00\u5f00\u59cb\u7684\u75c7\u72b6\u662f\u4e0b\u534a\u8eab\u8f7b\u5fae\u65e0\u529b\uff0c\u4e0a\u697c\u68af\u65f6\u5f88\u96be\u50cf\u4ee5\u524d\u90a3\u6837\u5feb\uff0c\u4ece\u5730\u677f\u4e0a\u7ad9\u8d77\u6765\u4e5f\u5f88\u56f0\u96be\uff0c\u5c24\u5176\u662f\u5728\u4f53\u80b2\u8bfe\u4e0a\u6211\u4eec\u5750\u5728\u56db\u5408\u9662\u91cc\u7684\u65f6\u5019\u3002\u8bf7\u8bb0\u4f4f\uff0c\u8fd9\u4e9b\u75c7\u72b6\u5f00\u59cb\u4e8e 11\u7b2c<\/sup> \u9ad8\u4e2d\u4e00\u5e74\u7ea7\u3002\u7136\u800c\uff0c\u6211\u76f4\u5230 23 \u5c81\u624d\u88ab\u786e\u8bca\u3002<\/p>\n

\u60a8\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD \u5417\uff1f<\/strong><\/p>\n

\u6ca1\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u88ab\u8bca\u65ad\u51fa\u60a3\u6709 LGMD\u3002\u6211\u6709\u4e24\u4e2a\u5f1f\u5f1f\u59b9\u59b9\uff0c\u4ed6\u4eec\u8fd8\u6ca1\u6709\u63a5\u53d7\u8fc7\u68c0\u67e5\uff0c\u4f46\u4ed6\u4eec\u90fd\u5df2\u5e74\u8fc7 23 \u5c81\uff0c\u76ee\u524d\u90fd\u5f88\u597d\u3002<\/p>\n

\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>?<\/p>\n

\u5c31\u6211\u4e2a\u4eba\u800c\u8a00\uff0c\u6700\u5927\u7684\u6311\u6218\u662f\u63a5\u53d7\u6211\u6b63\u5728\u53d8\u6210\u7684\u81ea\u5df1\u3002\u6211\u4e4b\u6240\u4ee5\u8fd9\u4e48\u8bf4\uff0c\u662f\u56e0\u4e3a\u6709\u65f6\u6211\u4f1a\u610f\u8bc6\u5230\uff0c\u6211\u6b63\u5728\u7ecf\u5386\u7684\u5f88\u591a\u53d8\u5316\u5e76\u4e0d\u662f\u6211\u7684\u9009\u62e9\uff0c\u4e5f\u4e0d\u662f\u6211\u80fd\u63a7\u5236\u7684\u3002\u5176\u4e2d\u4e4b\u4e00\u5c31\u662f\u6211\u6162\u6162\u5931\u53bb\u4e86\u72ec\u7acb\u751f\u6d3b\u7684\u80fd\u529b\u3002\u5728\u6211\u8fc7\u7740\u975e\u5e38\u72ec\u7acb\u7684\u751f\u6d3b\uff0c\u611f\u89c9\u4e16\u754c\u5c31\u5728\u773c\u524d\u7684\u65f6\u5019\uff0c\u6211\u611f\u89c9\u81ea\u5df1\u5931\u53bb\u4e86\u5bf9\u672a\u6765\u7684\u61a7\u61ac\uff0c\u8fd9\u4e00\u76f4\u662f\uff0c\u4e5f\u5f88\u53ef\u80fd\u662f\u6211\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u3002<\/p>\n

\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f<\/strong><\/p>\n

\u6211\u6700\u5927\u7684\u6210\u5c31\u662f\u627e\u5230\u4e86\u81ea\u5df1\u7684\u58f0\u97f3\u3002\u6211\u5e76\u4e0d\u50cf\u6211\u5e0c\u671b\u7684\u90a3\u6837\u662f\u4e00\u4e2a\u5927\u7684\u5021\u5bfc\u8005\uff0c\u4f46\u6211\u66fe\u591a\u6b21\u8c08\u8bba\u8fc7\u6211\u81ea\u5df1\u548c\u6211\u7684\u6545\u4e8b\u3002\u6211\u5236\u4f5c\u4e86\u4e00\u4e2a YouTube \u9891\u9053\uff0c\u4ece\u6211\u81ea\u5df1\u7684\u89d2\u5ea6\u8bb2\u8ff0\u4e86\u6211\u7684\u6545\u4e8b\uff0c\u6211\u4e5f\u4e3a\u81ea\u5df1\u91cd\u8fd4\u6821\u56ed\u3001\u5b8c\u6210\u56e0\u786e\u8bca\u6b8b\u75be\u800c\u505c\u6ede\u4e0d\u524d\u7684\u5b66\u4e1a\u611f\u5230\u975e\u5e38\u81ea\u8c6a\u3002<\/p>\n

LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong><\/p>\n

\u5b83\u6253\u5f00\u4e86\u6211\u7684\u5fc3\u7075\u3001\u601d\u60f3\u548c\u7075\u9b42\uff0c\u8fd9\u662f\u5176\u4ed6\u4efb\u4f55\u4e1c\u897f\u90fd\u65e0\u6cd5\u6bd4\u62df\u7684\u3002\u6211\u613f\u610f\u76f8\u4fe1\u81ea\u5df1\u4e00\u76f4\u5f88\u6709\u540c\u60c5\u5fc3\uff0c\u5fc3\u80f8\u5bbd\u5e7f\uff0c\u4f46\u4e0d\u5e78\u7684\u662f\uff0c\u6211\u7684\u5185\u5fc3\u975e\u5e38\u8106\u5f31\u3002\u6211\u5c0f\u65f6\u5019\u7ecf\u5e38\u88ab\u4eba\u6b3a\u8d1f\uff0c\u7ecf\u5386\u8fc7\u521b\u4f24\u3002\u73b0\u5728\u6211\u7ecf\u5386\u4e86\u8fd9\u4e00\u5207\uff0c\u6211\u89c9\u5f97\u8fc7\u53bb\u7684\u4e00\u5207\u90fd\u8ba9\u6211\u7684\u5fc3\u4e3a\u8fd9\u573a\u6218\u6597\u505a\u597d\u4e86\u51c6\u5907\u3002\u6211\u4e4b\u6240\u4ee5\u8fd9\u6837\u8bf4\uff0c\u662f\u56e0\u4e3a\u6211\u73b0\u5728\u5728\u60c5\u611f\u4e0a\u6bd4\u4ee5\u524d\u60f3\u8c61\u7684\u8981\u575a\u5f3a\u3002\u5982\u679c\u4eca\u5929\u8ba9\u6211\u5bf9\u5e74\u8f7b\u65f6\u7684\u81ea\u5df1\u8bf4\u8d77\u6211\uff0c\u6211\u4f1a\u4e0d\u76f8\u4fe1\u81ea\u5df1\u3002<\/p>\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>?<\/p>\n

\u6211\u60f3\u8ba9\u5168\u4e16\u754c\u77e5\u9053\uff0c\u6211\u4eec\u5f88\u91cd\u8981\u3002LGMD \u662f\u4e00\u79cd\u80a2\u4f53\u6b8b\u75be\uff0c\u4f46\u5b83\u5bf9\u4eba\u7684\u60c5\u7eea\u3001\u5fc3\u7406\u751a\u81f3\u7cbe\u795e\u5065\u5eb7\u90fd\u6709\u5f71\u54cd\u3002\u56e0\u6b64\uff0c\u8bf7\u5e2e\u52a9\u5176\u4ed6\u4eba\u8bf4\u51fa\u4ed6\u4eec\u7684\u771f\u76f8\u3001\u4ed6\u4eec\u7684\u6545\u4e8b\uff0c\u5e2e\u52a9\u6211\u4eec\u5411\u5168\u4e16\u754c\u4f20\u64ad\u5e0c\u671b\u7684\u4fe1\u606f\uff0c\u5e0c\u671b\u6709\u4e00\u5929\u6211\u4eec\u80fd\u627e\u5230\u6cbb\u6108\u7684\u65b9\u6cd5\u3002<\/p>\n

\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>?<\/p>\n

\u5982\u679c\u6211\u660e\u5929\u5c31\u80fd\u75ca\u6108\uff0c\u6211\u4f1a\u53c2\u52a0\u5f88\u591a\u4e8b\u60c5\u3001\u5192\u9669\u3001\u90ca\u6e38\u548c\u6d3b\u52a8\u3002\u4f46\u6709\u4e00\u4ef6\u4e8b\u6211\u4e00\u5b9a\u4f1a\u7ee7\u7eed\u505a\u4e0b\u53bb\uff0c\u90a3\u5c31\u662f\u5ba3\u4f20\u548c\u52aa\u529b\u5de5\u4f5c\uff0c\u786e\u4fdd\u6bcf\u4e00\u4e2a\u53ef\u4ee5\u6cbb\u6108\u7684\u4eba\u90fd\u80fd\u5f97\u5230\u4ed6\u4eec\u5e94\u5f97\u7684\u673a\u4f1a\u3002\u56e0\u4e3a\u5728\u7ecf\u5386\u4e86\u8fd9\u4e00\u5207\u4e4b\u540e\uff0c\u6211\u65e0\u6cd5\u518d\u7ad9\u8d77\u6765\u751f\u6d3b\uff0c\u4e5f\u65e0\u6cd5\u518d\u56de\u9996\u5f80\u4e8b\uff0c\u4eff\u4f5b\u4e00\u5207\u90fd\u6ca1\u6709\u53d1\u751f\u8fc7\u3002<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5581,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,22],"tags":[70],"class_list":["post-5582","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2b","tag-lgmd2a-calpainopathy-united-states"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Soralla - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Soralla - LGMD Awareness Foundation\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/\" \/>\n<meta property=\"og:site_name\" content=\"LGMD Awareness Foundation\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/LGMDawareness\/\" \/>\n<meta property=\"article:published_time\" content=\"2021-12-12T18:05:10+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-09T14:23:57+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/12\/LGMD2A-Soralla-R.png\" \/>\n\t<meta property=\"og:image:width\" content=\"1280\" \/>\n\t<meta property=\"og:image:height\" content=\"720\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"aoss@charter.net\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:site\" content=\"@LgmdAwareness\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"aoss@charter.net\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/\"},\"author\":{\"name\":\"aoss@charter.net\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511\"},\"headline\":\"INDIVIDUAL WITH LGMD: Soralla\",\"datePublished\":\"2021-12-12T18:05:10+00:00\",\"dateModified\":\"2024-02-09T14:23:57+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/\"},\"wordCount\":845,\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/12\/LGMD2A-Soralla-R.png\",\"keywords\":[\"LGMD2A; Calpainopathy; United States\"],\"articleSection\":[\"Individuals with LGMD - Interviews\",\"LGMD2B\"],\"inLanguage\":\"zh-CN\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/\",\"name\":\"INDIVIDUAL WITH LGMD: Soralla - LGMD Awareness Foundation\",\"isPartOf\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/12\/LGMD2A-Soralla-R.png\",\"datePublished\":\"2021-12-12T18:05:10+00:00\",\"dateModified\":\"2024-02-09T14:23:57+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/#breadcrumb\"},\"inLanguage\":\"zh-CN\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"zh-CN\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/#primaryimage\",\"url\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/12\/LGMD2A-Soralla-R.png\",\"contentUrl\":\"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/12\/LGMD2A-Soralla-R.png\",\"width\":1280,\"height\":720,\"caption\":\"Lgmd2a Soralla R\"},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.lgmd-info.org\/de\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"INDIVIDUAL WITH LGMD: Soralla\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#website\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"name\":\"LGMD Awareness Foundation\",\"description\":\"Information Hub for the LGMD community\",\"publisher\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"zh-CN\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#organization\",\"name\":\"LGMD Awareness Foundation, Inc.\",\"url\":\"https:\/\/www.lgmd-info.org\/de\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"zh-CN\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"contentUrl\":\"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png\",\"width\":208,\"height\":61,\"caption\":\"LGMD Awareness Foundation, Inc.\"},\"image\":{\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/LGMDawareness\/\",\"https:\/\/x.com\/LgmdAwareness\",\"https:\/\/www.instagram.com\/lgmdawareness\/\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511\",\"name\":\"aoss@charter.net\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"zh-CN\",\"@id\":\"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g\",\"caption\":\"aoss@charter.net\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"INDIVIDUAL WITH LGMD: Soralla - LGMD Awareness Foundation","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/","og_locale":"zh_CN","og_type":"article","og_title":"INDIVIDUAL WITH LGMD: Soralla - LGMD Awareness Foundation","og_url":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/","og_site_name":"LGMD Awareness Foundation","article_publisher":"https:\/\/www.facebook.com\/LGMDawareness\/","article_published_time":"2021-12-12T18:05:10+00:00","article_modified_time":"2024-02-09T14:23:57+00:00","og_image":[{"width":1280,"height":720,"url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/12\/LGMD2A-Soralla-R.png","type":"image\/png"}],"author":"aoss@charter.net","twitter_card":"summary_large_image","twitter_creator":"@LgmdAwareness","twitter_site":"@LgmdAwareness","twitter_misc":{"Written by":"aoss@charter.net","Est. reading time":"3 minutes"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/#article","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/"},"author":{"name":"aoss@charter.net","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511"},"headline":"INDIVIDUAL WITH LGMD: Soralla","datePublished":"2021-12-12T18:05:10+00:00","dateModified":"2024-02-09T14:23:57+00:00","mainEntityOfPage":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/"},"wordCount":845,"publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/#primaryimage"},"thumbnailUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/12\/LGMD2A-Soralla-R.png","keywords":["LGMD2A; Calpainopathy; United States"],"articleSection":["Individuals with LGMD - Interviews","LGMD2B"],"inLanguage":"zh-CN"},{"@type":"WebPage","@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/","url":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/","name":"INDIVIDUAL WITH LGMD: Soralla - LGMD Awareness Foundation","isPartOf":{"@id":"https:\/\/www.lgmd-info.org\/de\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/#primaryimage"},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/#primaryimage"},"thumbnailUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/12\/LGMD2A-Soralla-R.png","datePublished":"2021-12-12T18:05:10+00:00","dateModified":"2024-02-09T14:23:57+00:00","breadcrumb":{"@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/#breadcrumb"},"inLanguage":"zh-CN","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/"]}]},{"@type":"ImageObject","inLanguage":"zh-CN","@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/#primaryimage","url":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/12\/LGMD2A-Soralla-R.png","contentUrl":"https:\/\/www.lgmd-info.org\/wp-content\/uploads\/2021\/12\/LGMD2A-Soralla-R.png","width":1280,"height":720,"caption":"Lgmd2a Soralla R"},{"@type":"BreadcrumbList","@id":"https:\/\/www.lgmd-info.org\/de\/individuals-with-lgmd-interviews\/2021\/12\/12\/individual-with-lgmd-soralla\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.lgmd-info.org\/de\/"},{"@type":"ListItem","position":2,"name":"INDIVIDUAL WITH LGMD: Soralla"}]},{"@type":"WebSite","@id":"https:\/\/www.lgmd-info.org\/de\/#website","url":"https:\/\/www.lgmd-info.org\/de\/","name":"LGMD Awareness Foundation","description":"Information Hub for the LGMD community","publisher":{"@id":"https:\/\/www.lgmd-info.org\/de\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.lgmd-info.org\/de\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"zh-CN"},{"@type":"Organization","@id":"https:\/\/www.lgmd-info.org\/de\/#organization","name":"LGMD Awareness Foundation, Inc.","url":"https:\/\/www.lgmd-info.org\/de\/","logo":{"@type":"ImageObject","inLanguage":"zh-CN","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/","url":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","contentUrl":"https:\/\/lgmd-info.org\/wp-content\/uploads\/2021\/02\/LGMD_Logo.png","width":208,"height":61,"caption":"LGMD Awareness Foundation, Inc."},"image":{"@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/LGMDawareness\/","https:\/\/x.com\/LgmdAwareness","https:\/\/www.instagram.com\/lgmdawareness\/"]},{"@type":"Person","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/c054968884f9011521fbf0d4c05e8511","name":"aoss@charter.net","image":{"@type":"ImageObject","inLanguage":"zh-CN","@id":"https:\/\/www.lgmd-info.org\/de\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/ae9711d6d07e76026e99e44662991879?s=96&d=mm&r=g","caption":"aoss@charter.net"}}]}},"_links":{"self":[{"href":"https:\/\/www.lgmd-info.org\/zh\/wp-json\/wp\/v2\/posts\/5582","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.lgmd-info.org\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.lgmd-info.org\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/zh\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/zh\/wp-json\/wp\/v2\/comments?post=5582"}],"version-history":[{"count":1,"href":"https:\/\/www.lgmd-info.org\/zh\/wp-json\/wp\/v2\/posts\/5582\/revisions"}],"predecessor-version":[{"id":7460,"href":"https:\/\/www.lgmd-info.org\/zh\/wp-json\/wp\/v2\/posts\/5582\/revisions\/7460"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.lgmd-info.org\/zh\/wp-json\/wp\/v2\/media\/5581"}],"wp:attachment":[{"href":"https:\/\/www.lgmd-info.org\/zh\/wp-json\/wp\/v2\/media?parent=5582"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/zh\/wp-json\/wp\/v2\/categories?post=5582"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.lgmd-info.org\/zh\/wp-json\/wp\/v2\/tags?post=5582"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}