{"id":5724,"date":"2022-05-09T21:26:35","date_gmt":"2022-05-09T21:26:35","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5724"},"modified":"2024-02-09T14:23:54","modified_gmt":"2024-02-09T14:23:54","slug":"individual-with-lgmd-buck","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/lgmd2l\/2022\/05\/09\/individual-with-lgmd-buck\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a \u5df4\u514b"},"content":{"rendered":"

 <\/p>\n

\"\"<\/p>\n

\u540d\u79f0<\/strong>:\u00a0 \u00a0\u00a0\u00a0 \u00a0Buck<\/p>\n

\u5e74\u9f84<\/strong>: \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a031 years old<\/p>\n

\u56fd\u5bb6<\/strong>: \u00a0\u00a0Unites States of America<\/p>\n

LGMD \u5b50\u7c7b\u578b<\/strong>:\u00a0 LGMD 2L \/ R12<\/p>\n

 <\/p>\n

\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>?<\/p>\n

I was diagnosed at the age of 28.<\/p>\n

\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong><\/p>\n

My initials symptoms included weakness and pain in my legs, difficulty climbing stairs and it was hard to stand up from the ground.<\/p>\n

\u60a8\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD \u5417\uff1f<\/strong><\/p>\n

I do not have any known relatives that have been diagnosed with LGMD.<\/p>\n

\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>?<\/p>\n

Chronic pain is my greatest challenge with LGMD.<\/p>\n

\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f<\/strong><\/p>\n

I am still working on my greatest accomplishment but for now I have three beautiful children that I am focusing on.<\/p>\n

LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong><\/p>\n

I have always had a great work ethic, always able to accomplish what I put my mind to.\u00a0 Because of my disability, things are hard to get done but I never give up.\u00a0 I have been able to stay positive and encouraging to others.<\/p>\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>?<\/p>\n

I want the world to know that this disease is life changing and it can be extremely hard at times.\u00a0 Unfortunately, there isn\u2019t a lot of support for LGMD.\u00a0 Hopefully raising awareness can lead to better support for people living with this disease.<\/p>\n

\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>?<\/p>\n

If I could be cured tomorrow, I would go to a trampoline park with my kids!\u00a0 It is the small things in life that I cherish now.<\/p>","protected":false},"excerpt":{"rendered":"

  Name:\u00a0 \u00a0\u00a0\u00a0 \u00a0Buck Age: \u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a0\u00a031 years old Country: \u00a0\u00a0Unites […]<\/p>","protected":false},"author":3,"featured_media":5725,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,49],"tags":[],"class_list":["post-5724","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2l"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Buck - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/zh\/lgmd2l\/2022\/05\/09\/individual-with-lgmd-buck\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Buck - 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