{"id":5855,"date":"2022-08-13T22:20:30","date_gmt":"2022-08-13T22:20:30","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=5855"},"modified":"2024-02-09T14:23:52","modified_gmt":"2024-02-09T14:23:52","slug":"5855","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2022\/08\/13\/5855\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a Arthur"},"content":{"rendered":"

\"<\/p>\n

\u540d\u79f0<\/strong>: \u4e9a\u745f<\/p>\n

\u5e74\u9f84<\/strong>: \u00a013<\/p>\n

\u56fd\u5bb6<\/strong>: \u6cd5\u56fd<\/p>\n

LGMD \u5b50\u7c7b\u578b<\/strong>: LGMD 2C\/R5 \u4e0e\u4f3d\u9a6c\u8089\u7c98\u86cb\u767d\u76f8\u5173<\/p>\n

\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>?<\/p>\n

\u6211\u662f\u5728 9 \u5c81\u65f6\u88ab\u786e\u8bca\u7684\u3002<\/p>\n

\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong><\/p>\n

\u6211\u4ece\u5c0f\u5c31\u6709\u8dd1\u6b65\u548c\u8d77\u8eab\u56f0\u96be\uff0c\u722c\u697c\u68af\u4e5f\u662f\u5982\u6b64\u3002<\/p>\n

\u00a0<\/strong>\u60a8\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD \u5417\uff1f<\/strong><\/p>\n

\u4e0d\uff0c\u6211\u6709\u4e00\u4e2a\u59b9\u59b9\uff0c\u4f46\u5979\u6ca1\u6709 LGMD\u3002<\/p>\n

\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>?<\/p>\n

\u5f53\u6211\u4eec\u8fd8\u662f\u5b69\u5b50\u7684\u65f6\u5019\uff0c\u8981\u8ba9\u522b\u4eba\u7406\u89e3\u6211\u4eec\u7684\u56f0\u96be\u5e76\u4e0d\u5bb9\u6613\uff0c\u4eba\u4eec\u5f80\u5f80\u8ba4\u4e3a\u6211\u4eec\u4e0d\u60f3\u505a\u7684\u4e8b\u60c5\uff0c\u6211\u4eec\u4e0d\u80fd\u505a\u7684\u4e8b\u60c5\uff0c\u662f\u56e0\u4e3a\u6211\u4eec\u7684\u8eab\u4f53\u5de5\u4f5c\u65b9\u5f0f\u4e0d\u540c\u3002<\/p>\n

\u5c3d\u7ba1\u60a3\u75c5\uff0c\u4f46\u6211\u59cb\u7ec8\u4fdd\u6301\u7740\u5feb\u4e50\u548c\u96c4\u5fc3\u3002<\/p>\n

\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f<\/strong><\/p>\n

\u6211\u52aa\u529b\u6309\u7167\u81ea\u5df1\u7684\u6c34\u5e73\u548c\u8282\u594f\u8fdb\u884c\u8fd0\u52a8\uff0c\u5c24\u5176\u662f\u8db3\u7403\uff0c\u6211\u559c\u6b22\u6cd5\u56fd\u961f\uff0c\u5c24\u5176\u662f\u5df4\u9ece\u3002\u9057\u61be\u7684\u662f\uff0c\u6211\u4e0d\u80fd\u8dd1\u6b65\u3002\u53ea\u8981\u6211\u7684\u808c\u8089\u8fd8\u80fd\u652f\u6491\uff0c\u6211\u5c31\u4f1a\u575a\u6301\u4e0b\u53bb\u3002<\/p>\n

LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong><\/p>\n

\u6211\u662f\u4e00\u4e2a\u5145\u6ee1\u6597\u5fd7\u7684\u4eba\uff0c\u6211\u4e0d\u60f3\u5728\u75be\u75c5\u9762\u524d\u653e\u5f03\uff0c\u6211\u60f3\u6218\u80dc\u5b83\u3002\u6211\u53d1\u73b0\uff0c\u75c5\u4eba\u6709\u4e00\u79cd\u5f3a\u5927\u7684\u5185\u5728\u529b\u91cf\uff0c\u8fd9\u4e00\u70b9\u5f88\u91cd\u8981\uff0c\u53ea\u6709\u4fdd\u6301\u8fd9\u79cd\u529b\u91cf\uff0c\u624d\u80fd\u4e0d\u88ab\u524a\u5f31\u3002\u6211\u9047\u5230\u8fc7\u5176\u4ed6 LGMD \u60a3\u8005\uff0c\u4ed6\u4eec\u90fd\u6709\u8fd9\u79cd\u5185\u5728\u529b\u91cf\uff0c\u6211\u559c\u6b22\u8fd9\u79cd\u529b\u91cf\u3002<\/p>\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>?<\/p>\n

\u6211\u5e0c\u671b\u4eba\u4eec\u77e5\u9053\u5e76\u4e86\u89e3\u8fd9\u79cd\u75be\u75c5\u7684\u4e25\u91cd\u6027\u4ee5\u53ca\u53ef\u80fd\u5b58\u5728\u7684\u98ce\u9669\uff0c\u5373\u4f7f\u76ee\u524d\u5728\u6211\u4eec\u8fd8\u662f\u5b69\u5b50\u7684\u65f6\u5019\uff0c\u8fd9\u79cd\u75be\u75c5\u8fd8\u4e0d\u662f\u5f88\u660e\u663e\u3002\u8fd9\u5f88\u96be\u89e3\u91ca\uff0c\u56e0\u4e3a\u522b\u4eba\u4f1a\u8ba4\u4e3a\u6211\u4eec\u4e0d\u60f3\u505a\u4e8b\u60c5\uff0c\u8fd9\u5bf9\u6211\u4eec\u7684\u7cbe\u795e\u4f24\u5bb3\u5f88\u5927\u3002<\/p>\n

\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>?<\/p>\n

\u5982\u679c\u6211\u7684\u75c5\u6cbb\u597d\u4e86\uff0c\u6211\u60f3\u5c3d\u53ef\u80fd\u957f\u65f6\u95f4\u5730\u76f4\u7ebf\u5954\u8dd1\u3002\u6211\u8fd8\u60f3\u6210\u4e3a\u4e00\u540d\u4f1f\u5927\u7684\u8db3\u7403\u8fd0\u52a8\u5458\uff0c\u6210\u4e3a\u7403\u573a\u4e0a\u8dd1\u5f97\u6700\u5feb\u7684\u4eba\u3002 \u4f46\u6211\u4e5f\u60f3\u7ee7\u7eed\u4e3a\u5176\u4ed6\u60a3\u6709\u7f55\u89c1\u75c5\u7684\u513f\u7ae5\u800c\u6218\u3002 \u6211\u5e0c\u671b\u6cbb\u7597\u80fd\u5c3d\u5feb\u5230\u6765\u3002<\/p>\n<\/div><\/div><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":5856,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,75],"tags":[110],"class_list":["post-5855","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2c","tag-lgmd2c-france"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Arthur - 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