{"id":756,"date":"2015-06-04T10:32:42","date_gmt":"2015-06-04T15:32:42","guid":{"rendered":"https:\/\/restruct-lgmd-2021.pantheonsite.io\/?p=756"},"modified":"2015-06-04T10:32:42","modified_gmt":"2015-06-04T15:32:42","slug":"rona","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/06\/04\/rona\/","title":{"rendered":"INDIVIDUAL WITH LGMD: Rona"},"content":{"rendered":"

06\/04\/2015<\/p>\n

\u59d3\u540d<\/strong>:\u00a0 Rona\u00a0\u00a0\u00a0\u00a0 \u5e74\u9f84<\/strong>: \u00a035 Yrs Old\u00a0\"Unknown<\/a><\/p>\n

\u56fd\u5bb6<\/strong>: Philippines<\/p>\n

LGMD \u5b50\u7c7b\u578b<\/strong>: Unknown<\/p>\n

 <\/p>\n

\u60a8\u5728\u51e0\u5c81\u65f6\u786e\u8bca<\/strong>:<\/p>\n

I was diagnosed when I was 21 years old.<\/p>\n

\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

First I noticed \u00a0I began to walk with a \u201cwaddling\u201d\u00a0gait<\/strong><\/em>\u00a0because of\u00a0weakness<\/strong><\/em>\u00a0of the hip and leg muscles. I had trouble getting out of chairs, rising from a toilet seat and \u00a0climbing stairs. I was losing my balance to when standing.<\/p>\n

\u60a8\u662f\u5426\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD\uff1a\u00a0 <\/strong>No.<\/p>\n

\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

The greatest challenge for me is having a hard time walking on my own. Occasional falls that sometimes cause me injuries. Sometimes my physical limitations keeps hindering of things that I can do but it motivates me also to try my best to stay stronger and better.<\/p>\n

\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

After being diagnosed with LGMD, I have always wanted to be positive in life. I had the most challenging job and that is \u00a0being a sales assistant as standing for eight hours was hard. But with a lot of patience I made it.<\/p>\n

I love swimming and going to places that even I find it difficult to go. I dare to live out the closet of limitations. Because I always believe that I am\u00a0 never a failure unless I haven\u2019t tried it.<\/p>\n

As a mother of two children and a wife I believe that I tried my very best to support the family and to stay strong for them. I choose to be productive and efficient in all the things that I do. That is why I want to be a blessing to others by doing some community work as a volunteer teacher in our community helping children to enhance their skill and knowledge in school by giving them after school service program. All things work together for good if we just see things in a positive way. I stay strong and determined because there a lot of things that I can do and be thankful of.<\/p>\n

LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong>: <\/strong><\/p>\n

I know that I have gained respect and trust for others and for myself who have gone through tough, times and triumphed, by placing myself in their shoes, whether they have disabilities or not. I was more hopeful in spite of the sickness that I have there is still a PURPOSE\u00a0 to succeed. I open my arms to LOVE and HEALING\u2026My legs carry me forward in life\u2026My disability sometimes indicates a fear of moving forward or a reluctance to step through….but…Life is beautiful…nothing is perfect in the world I live in…My physical limitations is not a hindrance…All it takes to live in peace with your age is a positive outlook on life\u2026a happy personality…a lot of smiles…Know that inner beauty and inner strength are the mark of a winner in life, not the age or outer physical appearance. WE are all a WINNER…<\/p>\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>:<\/p>\n

We are strong to Live a life of LGMD!<\/p>\n

\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>:<\/p>\n

I want to run and drive.<\/p>","protected":false},"excerpt":{"rendered":"

06\/04\/2015 NAME:\u00a0 Rona\u00a0\u00a0\u00a0\u00a0 AGE: \u00a035 Yrs Old\u00a0 COUNTRY: Philippines LGMD […]<\/p>","protected":false},"author":1,"featured_media":757,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13],"tags":[46,33],"class_list":["post-756","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","tag-philippines","tag-unknown"],"acf":[],"yoast_head":"\nLGMD Spotlight Interview - Rona<\/title>\n<meta name=\"description\" content=\"Rona who is diagnosed with Limb Girdle Muscular Dystrophy (LGMD), shares her experience in living with this progressive neuro-muscular disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2015\/06\/04\/rona\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"LGMD Spotlight Interview - 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