{"id":8006,"date":"2024-04-19T15:18:17","date_gmt":"2024-04-19T15:18:17","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=8006"},"modified":"2024-04-19T15:27:01","modified_gmt":"2024-04-19T15:27:01","slug":"8006","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2024\/04\/19\/8006\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a \u963f\u66fc\u8fbe"},"content":{"rendered":"

\"\"<\/p>\n

\u540d\u79f0<\/strong>:\u963f\u66fc\u8fbe<\/p>\n

\u5e74\u9f84<\/strong>: 26<\/p>\n

\u56fd\u5bb6<\/strong>:\u7f8e\u56fd<\/p>\n

LGMD \u5b50\u7c7b\u578b<\/strong>:\u4e0e LGMD2B\/R2 \u5e72\u6270\u7d20\u76f8\u5173<\/p>\n

\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>?<\/p>\n

\u6211\u5728 14 \u5c81\u65f6\u88ab\u786e\u8bca\u3002<\/p>\n

\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong><\/p>\n

\u6211\u6700\u521d\u51fa\u73b0\u75c7\u72b6\u662f\u5728 20 \u5c81\u5de6\u53f3\u3002\u4ece\u90a3\u65f6\u8d77\uff0c\u6211\u5f00\u59cb\u7b2c\u4e00\u6b21\u771f\u6b63\u6ce8\u610f\u5230\u808c\u8089\u65e0\u529b\/\u840e\u7f29\u7684\u75c7\u72b6\u3002\u6211\u4e3b\u8981\u662f\u5728\u4f7f\u7528\u4e0b\u534a\u8eab\u7684\u60c5\u51b5\u4e0b\u6ce8\u610f\u5230\u8fd9\u4e00\u70b9\uff0c\u6bd4\u5982\u4e0a\u697c\u68af\u6216\u4e0b\u8e72\u3002\u4ee4\u6211\u60ca\u8bb6\u7684\u662f\uff0c\u6211\u7684\u819d\u76d6\u4e5f\u51fa\u73b0\u4e86\u660e\u663e\u7684\u75bc\u75db\u3002\u6211\u73b0\u5728\u77e5\u9053\uff0c\u8fd9\u4e9b\u90e8\u4f4d\u4e5f\u51fa\u73b0\u4e86\u808c\u8089\u840e\u7f29\u3002<\/p>\n

\u60a8\u662f\u5426\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD<\/strong>?<\/strong><\/p>\n

\u6211\u6ca1\u6709\u3002<\/p>\n

\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>?<\/p>\n

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\u76ee\u524d\uff0c\u6211\u8ba4\u4e3a\u6211\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f \u8eab\u4f53\u4e0a<\/em> \u662f\u6211\u7684\u75c5\u60c5\u53d1\u4f5c\u548c\u75bc\u75db\u96be\u4ee5\u9884\u6d4b\u3002\u5feb\u901f\u53d1\u4f5c\u7684\u75b2\u52b3\u3001\u50f5\u786c\u548c\u75bc\u75db\u6709\u65f6\u4f1a\u8ba9\u6211\u5f88\u96be\u5145\u5206\u5de5\u4f5c\u548c\u751f\u6d3b\u3002<\/p>\n

\u6211\u9762\u4e34\u7684\u6700\u5927\u6311\u6218 \u60c5\u7eea\u4e0a <\/em>\u90a3\u5c31\u662f\u672a\u6765\u4e4b\u8c1c\uff0c\u4ee5\u53ca\u5728\u6211\u6709\u751f\u4e4b\u5e74\u80fd\u5426\u770b\u5230\u6cbb\u6108\u7684\u65b9\u6cd5\u3002\u6211\u6bcf\u65f6\u6bcf\u523b\u90fd\u5728\u601d\u8003\u8fd9\u4e2a\u95ee\u9898\u3002\u591a\u5e74\u6765\uff0c\u6211\u4e5f\u4e00\u76f4\u5728\u52aa\u529b\u5411\u6211\u7684\u533b\u7597\u56e2\u961f\u5ba3\u4f20 LGMD\u3002\u9664\u4e86\u6211\u7684\u533b\u5b66\u4e13\u5bb6\u5916\uff0c\u5176\u4ed6\u533b\u751f\/\u62a4\u58eb\/\u533b\u52a1\u4eba\u5458\u901a\u5e38\u90fd\u4e0d\u77e5\u9053\u8fd9\u79cd\u75be\u75c5\u662f\u4ec0\u4e48\uff0c\u4ece\u75c5\u4eba\u7684\u89d2\u5ea6\u6765\u770b\uff0c\u8fd9\u8ba9\u6211\u611f\u5230\u975e\u5e38\u75b2\u60eb\u3002<\/p>\n

\u60a8\u7684 <\/strong>\u6700\u5927\u7684\u6210\u5c31\uff1f<\/strong><\/p>\n

\u5f53\u6211\u88ab\u8bca\u65ad\u51fa\u60a3\u6709 LGMD \u65f6\uff0c\u6211\u4e0d\u5f97\u4e0d\u653e\u5f03\u6211\u6240\u4ece\u4e8b\u7684\u6240\u6709\u8fd0\u52a8\uff0c\u56e0\u4e3a\u533b\u751f\u62c5\u5fc3\u6211\u7684\u808c\u9178\u6fc0\u9176\u6c34\u5e73\uff0c\u4e0d\u77e5\u9053\u6211\u8fd8\u4f1a\u9020\u6210\u4ec0\u4e48\u4f24\u5bb3\u30022012 \u5e74\u65f6\uff0cLGMD 2B \u8fd8\u662f\u4e00\u79cd\u975e\u5e38\u65b0\u7684\u75be\u75c5\u3002\u6211\u975e\u5e38\u559c\u6b22\u8fd0\u52a8\uff0c\u6240\u4ee5\u653e\u5f03\u8fd0\u52a8\u8ba9\u6211\u5d29\u6e83\u3002\u4f46\u540e\u6765\u6211\u51b3\u5b9a\u5c06\u6240\u6709\u7cbe\u529b\u6295\u5165\u5230\u827a\u672f\u521b\u4f5c\u4e2d\uff0c\u5e76\u4e0d\u65ad\u52a0\u6df1\u5bf9\u827a\u672f\u7684\u70ed\u7231\u3002\u6700\u540e\uff0c\u6211\u627e\u5230\u4e86\u81ea\u5df1\u611f\u5174\u8da3\u7684\u5404\u79cd\u827a\u672f\u5f62\u5f0f\uff0c\u5e76\u6700\u7ec8\u5c06\u5176\u4e2d\u4e00\u79cd\u4f5c\u4e3a\u81ea\u5df1\u7684\u804c\u4e1a\u3002<\/p>\n

LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong>?<\/strong><\/p>\n

\u9664\u4e86 LGMD \u5bf9\u6211\u804c\u4e1a\u751f\u6daf\u7684\u5f71\u54cd\u4e4b\u5916\uff0c\u6211\u8ba4\u4e3a\u5b83\u8fd8\u5927\u5927\u6539\u53d8\u4e86\u6211\u7684\u5fc3\u6001\u3002\u5c3d\u7ba1\u8fd9\u5f88\u4e0d\u516c\u5e73\uff0c\u800c\u4e14\u786e\u5b9e\u5f88\u4e0d\u516c\u5e73\uff0c\u4f46\u5982\u679c LGMD \u60a3\u8005\u60f3\u5728\u8fd9\u79cd\u75be\u75c5\u4e2d\u627e\u5230\u5feb\u4e50\uff0c\u4ed6\u4eec\u522b\u65e0\u9009\u62e9\uff0c\u53ea\u80fd\u8c03\u6574\u81ea\u5df1\u7684\u5fc3\u6001\u3002\u5728\u8fd9\u65b9\u9762\uff0c\u6211\u4e00\u76f4\u5728\u52aa\u529b\u6539\u5584\u6211\u7684\u5fc3\u7406\u5065\u5eb7\uff0c\u6211\u53d1\u73b0\u6cbb\u7597\u548c\u4e00\u4e2a\u652f\u6301\u6211\u7684\u793e\u533a\u662f\u6539\u53d8\u6211\u7684\u4e3b\u8981\u56e0\u7d20\u3002<\/p>\n

\u56e0\u6b64\uff0c\u6700\u8fd1\u6211\u51b3\u5b9a\u5f00\u901a\u4e00\u4e2a\u535a\u5ba2\uff1a HerChronicWellness.com<\/a> \u5728\u8fd9\u91cc\uff0c\u6211\u5206\u4eab\u81ea\u5df1\u6162\u6027\u75c5\u5386\u7a0b\u4e2d\u7684\u70b9\u70b9\u6ef4\u6ef4\uff0c\u8ba9\u5176\u4ed6\u4eba\u7684\u6162\u6027\u75c5\u5386\u7a0b\u66f4\u8f7b\u677e\u4e00\u4e9b\u3002\u6211\u8fd8\u5c06\u5f00\u8bbe\u4e00\u4e2a \"\u7cbe\u9009 \"\u7248\u5757\uff0c\u8ba9\u5176\u4ed6\u4eba\u5206\u4eab\u4ed6\u4eec\u7684\u6162\u6027\u75c5\u6545\u4e8b\u548c\u5efa\u8bae\u3002\u8bf7\u968f\u65f6\u524d\u5f80\u67e5\u770b\uff01<\/p>\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>?<\/p>\n

\u6211\u60f3\u8ba9\u5168\u4e16\u754c\u77e5\u9053 \u4e00\u5207<\/em> \u5173\u4e8e LGMD\uff01\u4f46\u6700\u91cd\u8981\u7684\u662f\uff0c\u65f6\u95f4\u662f\u5173\u952e\u3002\u8fd9\u662f\u4e00\u79cd\u65e0\u6cd5\u6cbb\u6108\u7684\u6e10\u8fdb\u6027\u75be\u75c5\u3002\u6240\u6709\u7684 LGMD \u75c5\u4f8b\u90fd\u4e0d\u5c3d\u76f8\u540c\uff0c\u6211\u8ba4\u4e3a\u81ea\u5df1\u662f\u4e00\u4e2a\u975e\u5e38\u5e78\u8fd0\u7684\u75c5\u4f8b\u3002\u4eba\u4eec\u6b63\u5728\u906d\u53d7\u75db\u82e6\uff0c\u800c\u627e\u5230\u6cbb\u6108\u65b9\u6cd5\u7684\u552f\u4e00\u9014\u5f84\u5c31\u662f\u63d0\u9ad8\u4eba\u4eec\u7684\u8ba4\u8bc6\uff0c\u5e76\u6559\u80b2\u6211\u4eec\u793e\u533a\u7684\u4eba\u4eec--\u6211\u4eec\u7684\u533b\u751f\u3001\u6211\u4eec\u7684\u540c\u4e8b\u3001\u6211\u4eec\u7684\u670b\u53cb\u548c\u6211\u4eec\u7684\u5bb6\u4eba\u3002<\/p>\n

\u6211\u8fd8\u60f3\u8ba9\u5168\u4e16\u754c\u90fd\u77e5\u9053\uff0c\u867d\u7136 LGMD \u5728\u6bcf\u4e2a\u4eba\u8eab\u4e0a\u770b\u8d77\u6765\u90fd\u4e0d\u4e00\u6837\uff0c\u4f46\u5b83\u770b\u8d77\u6765\u4e5f\u662f\u4e0d\u4e00\u6837\u7684 \u5bf9\u4e8e<\/em> \u6bcf\u4e2a\u4eba \u6bcf\u5929<\/em>.\u6211\u65e0\u6cd5\u4fdd\u8bc1\u660e\u5929\u6211\u7684\u8eab\u4f53\u4f1a\u6709\u4ec0\u4e48\u611f\u89c9\uff0c\u6211\u4e5f\u65e0\u6cd5\u9884\u77e5\u968f\u7740\u65f6\u95f4\u7684\u63a8\u79fb\u60c5\u51b5\u4f1a\u5982\u4f55\u53d1\u5c55\u3002\u6211\u6628\u5929\u505a\u8fc7\u7684\u4e8b\u60c5\u5e76\u4e0d\u610f\u5473\u7740\u6211\u4eca\u5929\u4e5f\u80fd\u505a\u3002\u4e0d\u5e78\u7684\u662f\uff0c\u6211\u7684\u8eab\u4f53\u6bd4\u4e00\u822c\u4eba\u66f4\u96be\u4ee5\u9884\u6d4b\u3002<\/p>\n

\u5982\u679c\u60a8\u7684 LGMD \u53ef\u80fd\u662f <\/strong>\"<\/strong>\u660e\u5929\u5c31 \"\u75ca\u6108 \"\u4e86\uff0c\u4f60\u60f3\u505a\u7684\u7b2c\u4e00\u4ef6\u4e8b\u662f\u4ec0\u4e48\uff1f<\/strong>?<\/p>\n

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