{"id":8593,"date":"2024-09-27T17:23:35","date_gmt":"2024-09-27T17:23:35","guid":{"rendered":"https:\/\/www.lgmd-info.org\/?p=8593"},"modified":"2024-09-27T17:25:03","modified_gmt":"2024-09-27T17:25:03","slug":"individual-with-lgmd-dilek","status":"publish","type":"post","link":"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2024\/09\/27\/individual-with-lgmd-dilek\/","title":{"rendered":"\u60a3\u6709 LGMD \u7684\u4e2a\u4eba\uff1a Dilek"},"content":{"rendered":"

\"\"<\/p>\n

\u540d\u79f0<\/strong>: \u8fea\u83b1\u514b<\/p>\n

\u5e74\u9f84<\/strong>: \u00a039<\/p>\n

\u56fd\u5bb6<\/strong>: \u571f\u8033\u5176<\/p>\n

LGMD \u5b50\u7c7b\u578b<\/strong>: LGMD 2D \/ R3<\/p>\n

 <\/p>\n

\u60a8\u5728\u51e0\u5c81\u65f6\u88ab\u786e\u8bca<\/strong>?<\/p>\n

\u6211\u5728 21 \u5c81\u65f6\u88ab\u786e\u8bca\u3002<\/p>\n

\u60a8\u6700\u521d\u7684\u75c7\u72b6\u662f\u4ec0\u4e48\uff1f<\/strong><\/p>\n

\u6700\u521d\uff0c\u6211\u53d1\u73b0\u81ea\u5df1\u722c\u697c\u68af\u5f88\u56f0\u96be\u3002<\/p>\n

\u60a8\u6709\u5176\u4ed6\u5bb6\u5ead\u6210\u5458\u60a3\u6709 LGMD \u5417\uff1f<\/strong><\/p>\n

\u6211\u54e5\u54e5\u4eca\u5e74 35 \u5c81<\/p>\n

\u60a8\u8ba4\u4e3a LGMD \u60a3\u8005\u5728\u751f\u6d3b\u4e2d\u9762\u4e34\u7684\u6700\u5927\u6311\u6218\u662f\u4ec0\u4e48\uff1f<\/strong>?<\/p>\n

\u6454\u5012\u4e86\u5c31\u722c\u4e0d\u8d77\u6765\u3002\u7a0d\u4e0d\u7559\u795e\u5c31\u4f1a\u6454\u5012\u3002\u6211\u62ac\u8d77\u624b\u81c2\u6709\u56f0\u96be\u3002\u6211\u65e0\u6cd5\u4e0a\u4e0b\u697c\u68af\u3002\u6211\u7684\u793e\u4ea4\u751f\u6d3b\u53d7\u5230\u9650\u5236\u3002<\/p>\n

\u60a8\u6700\u5927\u7684\u6210\u5c31\u662f\u4ec0\u4e48\uff1f<\/strong><\/p>\n

\u6211\u7684\u5fc3\u7406\u5f88\u5f3a\u5927\uff0c\u6211\u5bf9\u751f\u6d3b\u5145\u6ee1\u5e0c\u671b\u3002\u6211\u4e3a\u652f\u6301\u6cbb\u7597\u5de5\u4f5c\u800c\u594b\u6597\u3002\u56e0\u4e3a\u6211\u662f\u6bcd\u4eb2\u3001\u59bb\u5b50\u548c\u6559\u80b2\u5de5\u4f5c\u8005\u3002<\/p>\n

LGMD \u662f\u5982\u4f55\u5f71\u54cd\u60a8\u6210\u4e3a\u4eca\u5929\u7684\u81ea\u5df1\u7684\uff1f<\/strong><\/p>\n

\u5f53\u7136\uff0c\u6709\u4e9b\u5730\u65b9\u4e5f\u4f1a\u4ea7\u751f\u8d1f\u9762\u5f71\u54cd\uff0c\u6211\u7684\u793e\u4ea4\u751f\u6d3b\u53ef\u80fd\u4f1a\u66f4\u6d3b\u8dc3\u3001\u66f4\u70ed\u95f9\u3002\u9057\u61be\u7684\u662f\uff0c\u6211\u65e0\u6cd5\u53c2\u4e0e\u5230\u6bcf\u4e00\u4e2a\u73af\u5883\u4e2d\u3002<\/p>\n

\u60a8\u5e0c\u671b\u4e16\u754c\u4e86\u89e3 LGMD \u7684\u54ea\u4e9b\u65b9\u9762\uff1f<\/strong>?<\/p>\n

\u5728\u65e0\u969c\u788d\u73af\u5883\u65b9\u9762\uff0c\u6211\u5e0c\u671b\u516c\u5171\u573a\u6240\uff08\u9053\u8def\u3001\u5395\u6240\u3001\u5496\u5561\u9986\u3001\u9910\u9986\u7b49\uff09\u80fd\u591f\u4e3a\u6211\u4eec\u63d0\u4f9b\u65e0\u969c\u788d\u73af\u5883\uff0c\u5e0c\u671b\u533b\u751f\u3001\u79d1\u5b66\u5bb6\u3001\u534f\u4f1a\uff0c\u6700\u91cd\u8981\u7684\u662f\u653f\u5e9c\u80fd\u591f\u652f\u6301\u57fa\u56e0\u6cbb\u7597\u7814\u7a76\u548c\u836f\u7269\u7814\u7a76\uff0c\u5e76\u4e3a\u6211\u4eec\u627e\u5230\u6c38\u4e45\u6027\u7684\u89e3\u51b3\u65b9\u6848\u3002<\/p>\n

\u5982\u679c\u60a8\u7684 LGMD \u660e\u5929\u5c31\u80fd \"\u6cbb\u6108\"\uff0c\u60a8\u9996\u5148\u60f3\u505a\u7684\u662f\u4ec0\u4e48\uff1f<\/strong>?<\/p>\n

\u6211\u6709\u5f88\u591a\u68a6\u60f3\uff0c\u6bd4\u5982\u548c\u5973\u513f\u4e00\u8d77\u65e0\u6240\u754f\u60e7\u5730\u5728\u6d77\u91cc\u6e38\u6cf3\u3001\u53c2\u52a0\u4e50\u5668\u57f9\u8bad\u73ed\u3001\u8dd1\u6b65\u3001\u6253\u96ea\u4ed7\u7b49\u7b49\u3002\u6211\u60f3\u91cd\u6e29\u6211\u4e0d\u5f97\u4e0d\u63a8\u8fdf\u7684\u751f\u6d3b\u3002<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

Name:\u00a0 Dilek Age: \u00a039 Country: \u00a0Turkey LGMD Sub-Type: \u00a0LGMD 2D […]<\/p>","protected":false},"author":3,"featured_media":8594,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[13,28],"tags":[108],"class_list":["post-8593","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-individuals-with-lgmd-interviews","category-lgmd2d","tag-lgmd2d-turkey"],"acf":[],"yoast_head":"\nINDIVIDUAL WITH LGMD: Dilek - LGMD Awareness Foundation<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.lgmd-info.org\/zh\/individuals-with-lgmd-interviews\/2024\/09\/27\/individual-with-lgmd-dilek\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"INDIVIDUAL WITH LGMD: Dilek - 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